Re: Re: occult tethererd cord

[Guest guest]

I guess my daughter would be considered to have OTC; when we were in New York

Dr. B said that she met the classical definition of a tethered cord with the

conus at L2/3, but when I got the finalized clinic report, it notes that it was

only actually at L1/2 (which would make it the occult version).  Having said

that, I will say that Tasha (surgery 9/30/2008) was doing much better physically

and pain-wise, but had not seen much if any improvement YET in her urological

symptoms up until earlier this month when, due to a prank at school, she took a

hard fall and an updated MRI shows that she now has three bulging disks right in

the area where she had surgery.  I am guessing that having had surgery made

those muscles looser and less able to protect the spine as well as normal; with

it being the holidays we are still waiting to hear back from Dr. B as to his

recommendations.  But, I have sort of gotten off the track...

 

Long story short...in two and a half months she went from spending the majority

of her time in wheelchair to being able to walk independently with support

(crutches or using a grocery basket for support) for as much as half an hour

(with breaks).  She had a PFD previously at another facility in Janurary 2007,

but actually got worse after the PFD.

 

Everyone, of course, is different, but Tasha was doing super after having the

detethering.  I hope all works out for your daughters as well.

 

Let me know if you have any further questions.