Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Could this be answered to the group--my 18 year old daughter has similar symptoms and diagnosis from TCI. Thank you, > > Let me take a moment to explain my daughter's situation before I post a > question. My daughter, , is 17 years old. She was diagnosed with > Chiari Malformation 4 years ago after chronic headaches. At that time > she was referred to Dr. Weigard at s Hopkins. Dr. Weingard said > surgery was an option, but decided she could live with the > symptoms. Since that time developed chronic bladder and back pain. > She has been under the care of a urologist for over 18 months now. The > urologist recently diagnosed her with pelvic floor spasms and neurogenic > bladder. He is recommending sacral root testing and a possible implant. > Part of her evaluation was an MRI of the brain to rule out MS. Her > chiari, which is very prevalent, was brought up again. We then followed > up with the neurosurgeon who strongly recommended decompression surgery. > Pursuing a second opinion we took to the Chiari Institute on Long > Island. After a moring of testing, they told she has occult > tethered cord syndrome and recommended surgery to free her spinal cord. > They feel this will correct her bladder/pelvic problems as well as > provide some relief from her headaches. So in less than a year we have > had 3 different surgical procedures recommended. My question is > whether anyone has had occult tethered cord diagnosed; apparently it is > a very controversial diagnosis? And has anyone with chiari and bladder > problems had this surgery with relief from symptoms? Thank you JoAnn > > > > Quote Link to comment Share on other sites More sharing options...
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