Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Hello all, My 89YO father-in-law (FIL) was recently dx'd with diffuse LBD but has been symptomatic for months/years. Additional unrelated(?) health issues include hereditary hemochromatosis, type II diabetes, and now possibly myelodysplastic (anemia) syndrome. His son (my husband) has another myeloproliferative leukemic disorder (CML). Interested in hearing your experiences as regards: 1. Whether anti-Parkinson's drugs worsen the dementia 2. Whether the nature and subject matter of hallucinations change (My FIL's hallucinations have been largely pleasant and, as is apparently typical, involve animals and people.) 3. Incidence/Coincidence of other diseases (particularly myeloprolif disorders) in addition to LBD. 4. Any anecdotal/clinical evidence of heritability of LBD and other associated disease. 5. Any clinical trials or research opportunities that could benefit those yet to travel this path. We are scientists/medical types and are, on the whole, pretty well fascinated by this journey. Quote Link to comment Share on other sites More sharing options...
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