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Re: Welcome Missy and family!

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Well he just turned 20 months old and he absolutely adorable and he

knows it lol. He is very social and loves everyone. He isn't

walking yet but he gets around just fine. The doctor said they are

not going to worry until he is 2. He pulls up on things, climbs on

and off his rocking horse, and loves to climb on and off the couch.

He says Hi, bye, ma, and da. We are trying for Mama and Dada. He

has reddish blonde hair and amazing blue eyes. We have been told he

has 60% ds cells. He gets sick a lot with upper respiratory

infections and has asthma. Well that's all for now. Thank you!

>

> Hi Everyone

> We have a new family joining us today! Here is what Missy had to

say...

>

> My husband and I have recently adopted a 20 month old with MDS

and would love to part of your group.

>

> Welcome to our family Missy! I am so glad you have joined us!

Congratulations on your new son! Please tell us all about him and the

rest of your family! Feel free to ask any questions you may have

here. We will all be very happy to share our experiences.

>

> Kristy

> Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12

>

>

> Kristy Colvin

> IMDSA President

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> International Mosaic Down Syndrome Association

> PH:

> Toll Free: 1-888-MDS-LINK

> http://www.imdsa.org

> http://www.mosaicmoments.today.com

>

>

>

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Yes he is allergic to milk. They have him on a formula still because

of it instead of regular milk. I will ask his doc about the honey,

thank you for that. I also added some photos, they are under Treston

Futrell.

-- In MosaicDS , Kristy Colvin wrote:

>

> Hi Missy

> He sounds adorable and definitely one to keep you on your toes!

>

> When my son Tim was young, he had horrible asthma and respiratory

problems. First of all, the congestion was because he was allergic to

milk! (didn't find out till later) When I took him off milk, most of

the congestion went away. As for the asthma.... it was bad and we

were running to the hospital for breathing treatments about 3 or more

times a week. (this was before you could easily get one for your

home) I began giving Tim a teaspoon of local honey every morning.

Because it was local honey it built up his immune system to the

pollen in our area that he was allergic to. Within about 3 months of

me giving him this every day, he went from having severe, very scary,

asthma attacks several times a week, to having none at all!

>

> There is a certain age that you can not yet eat honey and I am

not sure if at 20 months it is safe or not. (you may have to wait

till he is 2) But, it is definitely worth a try! It worked miracles

for us!

>

> Welcome!

> Kristy

>

>

> missyfutrell wrote:

>

> Well he just turned 20 months old and he absolutely adorable and he

> knows it lol. He is very social and loves everyone. He isn't

> walking yet but he gets around just fine. The doctor said they are

> not going to worry until he is 2. He pulls up on things, climbs on

> and off his rocking horse, and loves to climb on and off the couch.

> He says Hi, bye, ma, and da. We are trying for Mama and Dada. He

> has reddish blonde hair and amazing blue eyes. We have been told he

> has 60% ds cells. He gets sick a lot with upper respiratory

> infections and has asthma. Well that's all for now. Thank you!

>

> >

> > Hi Everyone

> > We have a new family joining us today! Here is what Missy had to

> say...

> >

> > My husband and I have recently adopted a 20 month old with MDS

> and would love to part of your group.

> >

> > Welcome to our family Missy! I am so glad you have joined us!

> Congratulations on your new son! Please tell us all about him and

the

> rest of your family! Feel free to ask any questions you may have

> here. We will all be very happy to share our experiences.

> >

> > Kristy

> > Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12

> >

> >

> > Kristy Colvin

> > IMDSA President

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > International Mosaic Down Syndrome Association

> > PH:

> > Toll Free: 1-888-MDS-LINK

> > http://www.imdsa.org

> > http://www.mosaicmoments.today.com

> >

> >

> >

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welcome aboard and bless you for adopting such a special person

hope everyone is well

I live in Virginia and my daughter, a who has MDS, is 7 years old

hugs

 

tina swann

Subject: Welcome Missy and family!

To: mosaicds

Date: Monday, September 8, 2008, 7:52 PM

Hi Everyone

We have a new family joining us today! Here is what Missy had to say...

My husband and I have recently adopted a 20 month old with MDS and would love to

part of your group.

Welcome to our family Missy! I am so glad you have joined us! Congratulations on

your new son! Please tell us all about him and the rest of your family! Feel

free to ask any questions you may have here. We will all be very happy to share

our experiences.

Kristy

Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12

Kristy Colvin

IMDSA President

~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

International Mosaic Down Syndrome Association

PH:

Toll Free: 1-888-MDS-LINK

http://www.imdsa. org

http://www.mosaicmo ments.today. com

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Local honey is a help for allergies, BUT NEVER give raw honey or

other honey to a child under age TWO. (not one). Sorry, I wanted to

make sure that no one did this at age One. (very dangerous)Some

babies havean immature digestive system even past one year. Here is a

clip I copied from the Internet:

Raw Honey – Safe for pregnant women

The primary concern about raw honey is Botulinin spores which are

found throughout nature: in soil, in dust, and on the unwashed

surfaces of unpeeled fruits and vegetables. Acid will inhibit the

spores from growing and producing the botulism toxin. A baby's

immature digestive system is not yet acidic enough to inhibit the

toxin from being produced, whereas the digestive system of an older

child or adults is. In other words, the baby's digestive tract

provides a nice warm, air-free, low-acid environment where botulinum

spores just love to grow. When it grows it will produce the toxin.

The toxin produced by the spore is the danger. Therefore, a pregnant

mom can safely eat honey. Her digestive tract is acidic, and will

prevent botulinum spores from growing -- no toxin will be produced.

There is no danger to the fetus from the mom-to-be eating raw honey

or honey-containing foods.*

*reference: Sue Gilbert, MS

Honey is a known source of bacterial spores that produce Clostridium

botulinum bacteria. These bacteria are typically harmless to older

children and adults. But when ingested by an infant, these bacteria

make a toxin that can cause infant botulism. It's unclear why this

occurs in infants and not in older children or adults.

Infant botulism affects a baby's nervous system and can result in

death. Signs and symptoms of infant botulism include:

Persistent constipation

Floppy arms, legs and neck

Weak cry due to muscle weakness

Weak sucking and poor feeding

Tired all the time (lethargy)

Botulism spores may also be found in undercooked food, corn syrup and

even maple syrup. For this reason, feeding an infant any of these

foods is risky as well.

Here is another: (follow the link and read 1/3 of the way down...)

Baby " s and Honey [Archive] - Beesource Beekeeping ForumsJun 5,

2005 ... I have seen warnings on honey to wait till up to two years

to give them to .... directly to environmental sources of C.

botulinum spores, ...

www.beesource.com/forums/archive/index.php/t-206768.html

You may find a lot of sources that say " One " , but be on the safe side

and wait until TWO. Besides, many children with DS/MDS have immatue

digestive systems and you would not want to take a chance, would you?

SUSan

> >

> > Hi Everyone

> > We have a new family joining us today! Here is what Missy had to

> say...

> >

> > My husband and I have recently adopted a 20 month old with MDS

> and would love to part of your group.

> >

> > Welcome to our family Missy! I am so glad you have joined us!

> Congratulations on your new son! Please tell us all about him and

the

> rest of your family! Feel free to ask any questions you may have

> here. We will all be very happy to share our experiences.

> >

> > Kristy

> > Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12

> >

> >

> > Kristy Colvin

> > IMDSA President

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > International Mosaic Down Syndrome Association

> > PH:

> > Toll Free: 1-888-MDS-LINK

> > http://www.imdsa.org <http://www.imdsa.org/>

> > http://www.mosaicmoments.today.com

<http://www.mosaicmoments.today.com/>

> >

> >

> >

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Some doctor told my mother that all allergies were acquired; I guess

I cannot argue that one, as my kids " acquired " some of them from

me/my genes when inutero...LOL...allergies can be inherited and I

recommend everyone having a complete allergy test done at the

doctor's office.

We do the vicks also (if needed) and head of bed elevation is great.

The single most important thing is HANDWASHING (almost like obsessive

compulsively...LOL).Handwashing prevents the spread of germs; we

carry that germ gel with us everywhere we go. Although it does not

help the airborn stuff when someone sneezes on you. We take vitamins

as well. And when one of us gets sick, even with a cold, we employ

the lysol spray on everything. My grandmother recommends the old WWII

remedy: drink a half of cup (nondairy) liquid every 1/2 hour (for an

adult)....less for a child....to flush out the germs(warning you will

be headed to the toilet frequently.) Avoid dairy as that tickens

mucous secretions. (OK, I am done with the free nurse advice

tonight...;0)))

> >

> > Hi Everyone

> > We have a new family joining us today! Here is what Missy had to

> say...

> >

> > My husband and I have recently adopted a 20 month old with MDS

> and would love to part of your group.

> >

> > Welcome to our family Missy! I am so glad you have joined us!

> Congratulations on your new son! Please tell us all about him and

the

> rest of your family! Feel free to ask any questions you may have

> here. We will all be very happy to share our experiences.

> >

> > Kristy

> > Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12

> >

> >

> > Kristy Colvin

> > IMDSA President

> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> > International Mosaic Down Syndrome Association

> > PH:

> > Toll Free: 1-888-MDS-LINK

> > http://www.imdsa. org

> > http://www.mosaicmo ments.today. com

> >

> >

> >

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Share on other sites

She must have it confused with the fact that under 6 months or age 1

(I think it is at least one) that they cannot get strep because they

are not developed enough. (throat wise) So, if you get strep, do not

worry about your baby...I " know " firsthand that allergies can be

inherited; there is a genetic predisposition to certain allergens.

> >

> > Hi Everyone

> > We have a new family joining us today! Here is what Missy had to

> say...

> >

> > My husband and I have recently adopted a 20 month old with MDS

> and would love to part of your group.

> >

> > Welcome to our family Missy! I am so glad you have joined us!

> Congratulations on your new son! Please tell us all about him and

the

> rest of your family! Feel free to ask any questions you may have

> here. We will all be very happy to share our experiences.

> >

> > Kristy

> > Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12

> >

> >

> > Kristy Colvin

> > IMDSA President

> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~

> > International Mosaic Down Syndrome Association

> > PH:

> > Toll Free: 1-888-MDS-LINK

> > http://www.imdsa. org

> > http://www.mosaicmo ments.today. com

> >

> >

> >

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Share on other sites

Oh they didn't tell us to wait he is in Early steps, PT and ST and

will start OT soon. By the way, he took 2 steps by his

self!!!!!!!!!!!!We are thrilled!

> >

> > Hi Everyone

> > We have a new family joining us today! Here is what Missy had to

> say...

> >

> > My husband and I have recently adopted a 20 month old with MDS

> and would love to part of your group.

> >

> > Welcome to our family Missy! I am so glad you have joined us!

> Congratulations on your new son! Please tell us all about him and

the

> rest of your family! Feel free to ask any questions you may have

> here. We will all be very happy to share our experiences.

> >

> > Kristy

> > Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12

> >

> >

> > Kristy Colvin

> > IMDSA President

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > International Mosaic Down Syndrome Association

> > PH:

> > Toll Free: 1-888-MDS-LINK

> > http://www.imdsa.org

> > http://www.mosaicmoments.today.com

> >

> >

> >

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