Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 Hi Dane, Your mother may have Restless Legs Syndrome, it is a symptom of LBD also. If your mother has trouble reasoning or communicating, she may not be able to tell you that her legs feel like there is movement in them; like the feeling of worms in them. You can not see the movement with your eyes, it's not like tremors that you can see the jerking movement. You can not see anything at all, but the person with RLS feels it. My husband has Restless Legs Syndrome. Thankfully, he got it when he could still communicate his feelings to me. He could not rest at night. He was up and down all night with very little sleep. It was broken sleep, so he never had straight sleep. He was going crazy. As long as he was in movement walking, his legs were ok, but as soon as he sat down or layed down, his legs would act up. He started having Restless Legs Syndrome in 1992, before doctors knew much about it. His doctor tried various sleeping pills, but the muscle relaxants in them did not help my husband, when he would go to stand up, he would fall from the relaxants in his leg muscles and on top of it he was very tired and drowsy from sleep deprivation. None of the sleeping pills worked. Vicadin was the only thing that ended up helping him to sleep through the night and not be drowsy in the morning. He could also stand without falling. Even though it is addictive it was the best of two evils. Somehow Vicadin deadens the sensations in his legs. Now, the doctors are more aware of Restless Legs Syndrome and Requip is what they perscribe now for Restless Legs and it is not addictive as Vicadin is. Requip is also a medication used for Parkinsons. You might want to check into Restless Legs Syndrome. Go to http://www.restless legs syndrome.com to read about it. Jan Colello dane_bauerle wrote: My mother often only sleeps 2 hours a night in small increments. From what I read this is normal. When she wakes, my dad must help her pace for 5-15 min. before she can lay down again. Often, she will need to walk again 10-15 min. after that. I have not read your experiences like that. Is this a 'norm' with LBD / LBD Parkinsons? Also, any current meds working (even a little) to hlep with sleep? Thanks! Dane Son of , age 60- Parkinsons LBD Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
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