10-year old daughter with Hashimoto's-saw Gastroenterologist today/repeated labs

[Guest guest]

Hi everyone,

As you may remember, our 10-year old daughter was diagnosed with Hashimoto's 18

days ago when she was found to be hyperthyoid with a high thyroid peroxidase

antibody titer. Her other antibody levels were negative and our endo told us

that she was in the active inflammatory phase of Hashimoto's when the thyroid

hormone gets released into the blood stream causing high levels and that if this

continues, eventually she will be hypothyroid.

Our pediatric endocrinologist recommended that we do nothing for now and recheck

her thyroid blood tests in a month or two. She said levels take at least a

month or longer to come down significantly.

Well, we didn't wait that long to recheck her blood test. We waited 18 days. In

the last 18 days, we went gluten-free because of all the studies I've read

suggesting that a gluten-free diet may help autoimmune thyroid issues especially

in gluten sensitive folks.

Well, I have some good news. Thankfully our daughter's thyroid functions tests

were much better today - almost normal. Her free T3 and T4 have come down

dramatically and her TSH is better. Her thyroid peroxidase antibodies are still

very positive but our endocrinologist said that can stay high for a long time.

Please see below for today's results and the results from 3 weeks ago (June 28).

The normal values are on the right side.

We also checked serologies for Celiac today (including the genetic tests HLA

DQ-2 and DQ-8), but we won't get those back until later in the week. The

gastroenterologist that we saw today said that even if teh Celiac tests all come

back normal, there's still a reasonable likelihood that our daughter is gluten

sensitive and that it's very possible that the Hashimoto's is related to gluten.

The plan, for now, is to continue the gluten-free diet and recheck thyroid blood

tests again in two weeks - hopefully they'll be normal by then.

We're also planning to see an allergist next week.

Thanks, everyone for all the advice.

July 16, 2012 (today)

FREE T3 INDEX PROFILE

FREE T3 INDEX @ 210 78-162

T-UPTAKE 0.9 TBI 0.9-1.3

T3,TOTAL @ 189 ng/dL 85-185

FREE T4 INDEX PROFILE

FREE T4 INDEX @ 14.2 4.5-10.5

T4,TOTAL @ 12.8 mcg/dL 4.9-11.4

T-UPTAKE 0.9 TBI 0.9-1.3

THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

TSH 0.82 mcIU/mL 0.3-4.7

June 28, 2012

FREE T3 INDEX PROFILE

FREE T3 INDEX @ 558 78-162

T-UPTAKE @ 0.5 TBI 0.9-1.3

T3,TOTAL @ 279 ng/dL 85-185

FREE T4 INDEX PROFILE

FREE T4 INDEX @ 33.0 4.5-10.5

T4,TOTAL @ 16.5 mcg/dL 4.9-11.4

T-UPTAKE @ 0.5 TBI 0.9-1.3

THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

TSH 0.43 mcIU/mL 0.3-4.7

[Guest guest]

Wow, your daughter's levels are indeed much better, - that is great.

I looked at the abstracts you sent for the gluten studies - hard to tell by the

abstract, but I wonder if the length of exposure to gluten or even age matters

for the persistance of thyroid disease in a person. I was eating gluten for 8

years after my Hashimotos diagnosis, and also had repeated Celiac tests over the

years that were always negative. (Yet my chronic diarrhea, headaches, and low

magnesium levels have been resolved by going GF, so there is no doubt in my mind

I am gluten-intolerant.) Perhaps if you catch the gluten intolerance early and/

or young you can resolve the thyroid disease or at least lessen its impact.

Fingers crossed - please do keep us posted.

>

> Hi everyone,

>

> As you may remember, our 10-year old daughter was diagnosed with Hashimoto's

18 days ago when she was found to be hyperthyoid with a high thyroid peroxidase

antibody titer. Her other antibody levels were negative and our endo told us

that she was in the active inflammatory phase of Hashimoto's when the thyroid

hormone gets released into the blood stream causing high levels and that if this

continues, eventually she will be hypothyroid.

>

> Our pediatric endocrinologist recommended that we do nothing for now and

recheck her thyroid blood tests in a month or two. She said levels take at

least a month or longer to come down significantly.

>

> Well, we didn't wait that long to recheck her blood test. We waited 18 days.

In the last 18 days, we went gluten-free because of all the studies I've read

suggesting that a gluten-free diet may help autoimmune thyroid issues especially

in gluten sensitive folks.

>

> Well, I have some good news. Thankfully our daughter's thyroid functions tests

were much better today - almost normal. Her free T3 and T4 have come down

dramatically and her TSH is better. Her thyroid peroxidase antibodies are still

very positive but our endocrinologist said that can stay high for a long time.

Please see below for today's results and the results from 3 weeks ago (June 28).

The normal values are on the right side.

>

> We also checked serologies for Celiac today (including the genetic tests HLA

DQ-2 and DQ-8), but we won't get those back until later in the week. The

gastroenterologist that we saw today said that even if teh Celiac tests all come

back normal, there's still a reasonable likelihood that our daughter is gluten

sensitive and that it's very possible that the Hashimoto's is related to gluten.

>

> The plan, for now, is to continue the gluten-free diet and recheck thyroid

blood tests again in two weeks - hopefully they'll be normal by then.

>

> We're also planning to see an allergist next week.

>

> Thanks, everyone for all the advice.

>

>

>

> July 16, 2012 (today)

>

> FREE T3 INDEX PROFILE

> FREE T3 INDEX @ 210 78-162

> T-UPTAKE 0.9 TBI 0.9-1.3

> T3,TOTAL @ 189 ng/dL 85-185

> FREE T4 INDEX PROFILE

> FREE T4 INDEX @ 14.2 4.5-10.5

> T4,TOTAL @ 12.8 mcg/dL 4.9-11.4

> T-UPTAKE 0.9 TBI 0.9-1.3

> THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

> TSH 0.82 mcIU/mL 0.3-4.7

>

>

> June 28, 2012

>

> FREE T3 INDEX PROFILE

> FREE T3 INDEX @ 558 78-162

> T-UPTAKE @ 0.5 TBI 0.9-1.3

> T3,TOTAL @ 279 ng/dL 85-185

> FREE T4 INDEX PROFILE

> FREE T4 INDEX @ 33.0 4.5-10.5

> T4,TOTAL @ 16.5 mcg/dL 4.9-11.4

> T-UPTAKE @ 0.5 TBI 0.9-1.3

> THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

> TSH 0.43 mcIU/mL 0.3-4.7

>

[Guest guest]

My reading of studies is that the earlier one stop gluten the better. Sent from my BlackBerry® smartphone with SprintSpeedSender: Thyroiditis Date: Tue, 17 Jul 2012 14:32:18 -0000To: <Thyroiditis >ReplyTo: Thyroiditis Subject: Re: 10-year old daughter with Hashimoto's-saw Gastroenterologist today/repeated labs Wow, your daughter's levels are indeed much better, - that is great. I looked at the abstracts you sent for the gluten studies - hard to tell by the abstract, but I wonder if the length of exposure to gluten or even age matters for the persistance of thyroid disease in a person. I was eating gluten for 8 years after my Hashimotos diagnosis, and also had repeated Celiac tests over the years that were always negative. (Yet my chronic diarrhea, headaches, and low magnesium levels have been resolved by going GF, so there is no doubt in my mind I am gluten-intolerant.) Perhaps if you catch the gluten intolerance early and/ or young you can resolve the thyroid disease or at least lessen its impact. Fingers crossed - please do keep us posted. >> Hi everyone,> > As you may remember, our 10-year old daughter was diagnosed with Hashimoto's 18 days ago when she was found to be hyperthyoid with a high thyroid peroxidase antibody titer. Her other antibody levels were negative and our endo told us that she was in the active inflammatory phase of Hashimoto's when the thyroid hormone gets released into the blood stream causing high levels and that if this continues, eventually she will be hypothyroid. > > Our pediatric endocrinologist recommended that we do nothing for now and recheck her thyroid blood tests in a month or two. She said levels take at least a month or longer to come down significantly. > > Well, we didn't wait that long to recheck her blood test. We waited 18 days. In the last 18 days, we went gluten-free because of all the studies I've read suggesting that a gluten-free diet may help autoimmune thyroid issues especially in gluten sensitive folks. > > Well, I have some good news. Thankfully our daughter's thyroid functions tests were much better today - almost normal. Her free T3 and T4 have come down dramatically and her TSH is better. Her thyroid peroxidase antibodies are still very positive but our endocrinologist said that can stay high for a long time. Please see below for today's results and the results from 3 weeks ago (June 28). The normal values are on the right side. > > We also checked serologies for Celiac today (including the genetic tests HLA DQ-2 and DQ-8), but we won't get those back until later in the week. The gastroenterologist that we saw today said that even if teh Celiac tests all come back normal, there's still a reasonable likelihood that our daughter is gluten sensitive and that it's very possible that the Hashimoto's is related to gluten. > > The plan, for now, is to continue the gluten-free diet and recheck thyroid blood tests again in two weeks - hopefully they'll be normal by then. > > We're also planning to see an allergist next week.> > Thanks, everyone for all the advice. > > > > July 16, 2012 (today)> > FREE T3 INDEX PROFILE> FREE T3 INDEX @ 210 78-162> T-UPTAKE 0.9 TBI 0.9-1.3> T3,TOTAL @ 189 ng/dL 85-185> FREE T4 INDEX PROFILE> FREE T4 INDEX @ 14.2 4.5-10.5> T4,TOTAL @ 12.8 mcg/dL 4.9-11.4> T-UPTAKE 0.9 TBI 0.9-1.3> THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20> TSH 0.82 mcIU/mL 0.3-4.7> > > June 28, 2012> > FREE T3 INDEX PROFILE> FREE T3 INDEX @ 558 78-162> T-UPTAKE @ 0.5 TBI 0.9-1.3> T3,TOTAL @ 279 ng/dL 85-185> FREE T4 INDEX PROFILE> FREE T4 INDEX @ 33.0 4.5-10.5> T4,TOTAL @ 16.5 mcg/dL 4.9-11.4> T-UPTAKE @ 0.5 TBI 0.9-1.3> THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20> TSH 0.43 mcIU/mL 0.3-4.7>

[Guest guest]

Hi ,

I agree, your daughter's labs look much better. Hopefully, she will continue to

improve.

My daughter was not as fortunate. Orginially, her labs were very much similar to

your daughter's. The FreeTs were high and then they decreased down into the

normal range, but then wavered from thereon. That is why I previously requested

that you post all labs with reference ranges. We have found out the hard way

that when an Endo says the TSI or TBII (TRab) is normal that does not actually

mean Graves' can be ruled-out.

FWIW, if the HLA-DQ test results are something other than DQ4/DQ4 (we get one

serotype from each parent) it is very possible that your daughter has GI

(gluten-intolerance). DQ1, DQ3, DQ5, DQ6 and DQ7 are known GI genotypes while

DQ2 and DQ8 indicate Celiacs. It appears that DQ7/DQ7 might be next highest

risk for GI after DQ2/DQ2, DQ2/DQ8, or DQ8/DQ8 serotype patterns. DQ6 and DQ5

are also high risk gene serotypes for GI. Once initiated, gluten sensitivity

tends to be life long.

Good luck,

~from another

>

> Hi everyone,

>

> As you may remember, our 10-year old daughter was diagnosed with Hashimoto's

18 days ago when she was found to be hyperthyoid with a high thyroid peroxidase

antibody titer. Her other antibody levels were negative and our endo told us

that she was in the active inflammatory phase of Hashimoto's when the thyroid

hormone gets released into the blood stream causing high levels and that if this

continues, eventually she will be hypothyroid.

>

> Our pediatric endocrinologist recommended that we do nothing for now and

recheck her thyroid blood tests in a month or two. She said levels take at

least a month or longer to come down significantly.

>

> Well, we didn't wait that long to recheck her blood test. We waited 18 days.

In the last 18 days, we went gluten-free because of all the studies I've read

suggesting that a gluten-free diet may help autoimmune thyroid issues especially

in gluten sensitive folks.

>

> Well, I have some good news. Thankfully our daughter's thyroid functions tests

were much better today - almost normal. Her free T3 and T4 have come down

dramatically and her TSH is better. Her thyroid peroxidase antibodies are still

very positive but our endocrinologist said that can stay high for a long time.

Please see below for today's results and the results from 3 weeks ago (June 28).

The normal values are on the right side.

>

> We also checked serologies for Celiac today (including the genetic tests HLA

DQ-2 and DQ-8), but we won't get those back until later in the week. The

gastroenterologist that we saw today said that even if teh Celiac tests all come

back normal, there's still a reasonable likelihood that our daughter is gluten

sensitive and that it's very possible that the Hashimoto's is related to gluten.

>

> The plan, for now, is to continue the gluten-free diet and recheck thyroid

blood tests again in two weeks - hopefully they'll be normal by then.

>

> We're also planning to see an allergist next week.

>

> Thanks, everyone for all the advice.

>

>

>

> July 16, 2012 (today)

>

> FREE T3 INDEX PROFILE

> FREE T3 INDEX @ 210 78-162

> T-UPTAKE 0.9 TBI 0.9-1.3

> T3,TOTAL @ 189 ng/dL 85-185

> FREE T4 INDEX PROFILE

> FREE T4 INDEX @ 14.2 4.5-10.5

> T4,TOTAL @ 12.8 mcg/dL 4.9-11.4

> T-UPTAKE 0.9 TBI 0.9-1.3

> THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

> TSH 0.82 mcIU/mL 0.3-4.7

>

>

> June 28, 2012

>

> FREE T3 INDEX PROFILE

> FREE T3 INDEX @ 558 78-162

> T-UPTAKE @ 0.5 TBI 0.9-1.3

> T3,TOTAL @ 279 ng/dL 85-185

> FREE T4 INDEX PROFILE

> FREE T4 INDEX @ 33.0 4.5-10.5

> T4,TOTAL @ 16.5 mcg/dL 4.9-11.4

> T-UPTAKE @ 0.5 TBI 0.9-1.3

> THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

> TSH 0.43 mcIU/mL 0.3-4.7

>

[Guest guest]

Sorry to hear that your daughter's thyroid function has continued to fluctuate . We just got the word that her HLA testing is normal - not sure what normal means but I assume that means no DQ-2 or DQ-8.

Re: 10-year old daughter with Hashimoto's-saw Gastroenterologist today/repeated labs

Hi ,

I agree, your daughter's labs look much better. Hopefully, she will continue to improve.

My daughter was not as fortunate. Orginially, her labs were very much similar to your daughter's. The FreeTs were high and then they decreased down into the normal range, but then wavered from thereon. That is why I previously requested that you post all labs with reference ranges. We have found out the hard way that when an Endo says the TSI or TBII (TRab) is normal that does not actually mean Graves' can be ruled-out.

FWIW, if the HLA-DQ test results are something other than DQ4/DQ4 (we get one serotype from each parent) it is very possible that your daughter has GI (gluten-intolerance). DQ1, DQ3, DQ5, DQ6 and DQ7 are known GI genotypes while DQ2 and DQ8 indicate Celiacs. It appears that DQ7/DQ7 might be next highest risk for GI after DQ2/DQ2, DQ2/DQ8, or DQ8/DQ8 serotype patterns. DQ6 and DQ5 are also high risk gene serotypes for GI. Once initiated, gluten sensitivity tends to be life long.

Good luck,

~from another

>

> Hi everyone,

>

> As you may remember, our 10-year old daughter was diagnosed with Hashimoto's 18 days ago when she was found to be hyperthyoid with a high thyroid peroxidase antibody titer. Her other antibody levels were negative and our endo told us that she was in the active inflammatory phase of Hashimoto's when the thyroid hormone gets released into the blood stream causing high levels and that if this continues, eventually she will be hypothyroid.

>

> Our pediatric endocrinologist recommended that we do nothing for now and recheck her thyroid blood tests in a month or two. She said levels take at least a month or longer to come down significantly.

>

> Well, we didn't wait that long to recheck her blood test. We waited 18 days. In the last 18 days, we went gluten-free because of all the studies I've read suggesting that a gluten-free diet may help autoimmune thyroid issues especially in gluten sensitive folks.

>

> Well, I have some good news. Thankfully our daughter's thyroid functions tests were much better today - almost normal. Her free T3 and T4 have come down dramatically and her TSH is better. Her thyroid peroxidase antibodies are still very positive but our endocrinologist said that can stay high for a long time. Please see below for today's results and the results from 3 weeks ago (June 28). The normal values are on the right side.

>

> We also checked serologies for Celiac today (including the genetic tests HLA DQ-2 and DQ-8), but we won't get those back until later in the week. The gastroenterologist that we saw today said that even if teh Celiac tests all come back normal, there's still a reasonable likelihood that our daughter is gluten sensitive and that it's very possible that the Hashimoto's is related to gluten.

>

> The plan, for now, is to continue the gluten-free diet and recheck thyroid blood tests again in two weeks - hopefully they'll be normal by then.

>

> We're also planning to see an allergist next week.

>

> Thanks, everyone for all the advice.

>

>

>

> July 16, 2012 (today)

>

> FREE T3 INDEX PROFILE

> FREE T3 INDEX @ 210 78-162

> T-UPTAKE 0.9 TBI 0.9-1.3

> T3,TOTAL @ 189 ng/dL 85-185

> FREE T4 INDEX PROFILE

> FREE T4 INDEX @ 14.2 4.5-10.5

> T4,TOTAL @ 12.8 mcg/dL 4.9-11.4

> T-UPTAKE 0.9 TBI 0.9-1.3

> THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

> TSH 0.82 mcIU/mL 0.3-4.7

>

>

> June 28, 2012

>

> FREE T3 INDEX PROFILE

> FREE T3 INDEX @ 558 78-162

> T-UPTAKE @ 0.5 TBI 0.9-1.3

> T3,TOTAL @ 279 ng/dL 85-185

> FREE T4 INDEX PROFILE

> FREE T4 INDEX @ 33.0 4.5-10.5

> T4,TOTAL @ 16.5 mcg/dL 4.9-11.4

> T-UPTAKE @ 0.5 TBI 0.9-1.3

> THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

> TSH 0.43 mcIU/mL 0.3-4.7

>

[Guest guest]

I agree with the allergy thought; I wasn't getting better on medication alone so my Dr recommend allergy testing. I was skeptical because in the past I did my allergy testing with scratches, patches and a lot of shots. Basically they told me I was allergic to everything. If I had been a paranoid hypochondriac my life would have probably ended. My current Dr recommend to do blood allergy testing which was painless and simple. It took about two months to get all of my results back and it was amazing. I am only dangerously allergic to two things; Cow Dairy and Almonds. I have some sensitivities to other things but I just rotate those. It took about two maybe three months but now I don't have a problem with Asthma, sinus infection, and my thyroid levels balanced for me.All the crazy scratch and sniff testing cost me about $3,000 after insurance paid and it didn't tell me I had a problem with Dairy or Almonds. The simple blood test was $250; it was really worth it. There are only a few labs that do the testing, I used Meridian Valley Laboratory, they didn't bill insurance but my insurance reimbursed me. Best of luck to you both; I wish I had a mother that would have taken the time to fight for me to be a healthy individual.SonyaSent from my iPhone

Hi everyone,

As you may remember, our 10-year old daughter was diagnosed with Hashimoto's 18 days ago when she was found to be hyperthyoid with a high thyroid peroxidase antibody titer. Her other antibody levels were negative and our endo told us that she was in the active inflammatory phase of Hashimoto's when the thyroid hormone gets released into the blood stream causing high levels and that if this continues, eventually she will be hypothyroid.

Our pediatric endocrinologist recommended that we do nothing for now and recheck her thyroid blood tests in a month or two. She said levels take at least a month or longer to come down significantly.

Well, we didn't wait that long to recheck her blood test. We waited 18 days. In the last 18 days, we went gluten-free because of all the studies I've read suggesting that a gluten-free diet may help autoimmune thyroid issues especially in gluten sensitive folks.

Well, I have some good news. Thankfully our daughter's thyroid functions tests were much better today - almost normal. Her free T3 and T4 have come down dramatically and her TSH is better. Her thyroid peroxidase antibodies are still very positive but our endocrinologist said that can stay high for a long time. Please see below for today's results and the results from 3 weeks ago (June 28). The normal values are on the right side.

We also checked serologies for Celiac today (including the genetic tests HLA DQ-2 and DQ-8), but we won't get those back until later in the week. The gastroenterologist that we saw today said that even if teh Celiac tests all come back normal, there's still a reasonable likelihood that our daughter is gluten sensitive and that it's very possible that the Hashimoto's is related to gluten.

The plan, for now, is to continue the gluten-free diet and recheck thyroid blood tests again in two weeks - hopefully they'll be normal by then.

We're also planning to see an allergist next week.

Thanks, everyone for all the advice.

July 16, 2012 (today)

FREE T3 INDEX PROFILE

FREE T3 INDEX @ 210 78-162

T-UPTAKE 0.9 TBI 0.9-1.3

T3,TOTAL @ 189 ng/dL 85-185

FREE T4 INDEX PROFILE

FREE T4 INDEX @ 14.2 4.5-10.5

T4,TOTAL @ 12.8 mcg/dL 4.9-11.4

T-UPTAKE 0.9 TBI 0.9-1.3

THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

TSH 0.82 mcIU/mL 0.3-4.7

June 28, 2012

FREE T3 INDEX PROFILE

FREE T3 INDEX @ 558 78-162

T-UPTAKE @ 0.5 TBI 0.9-1.3

T3,TOTAL @ 279 ng/dL 85-185

FREE T4 INDEX PROFILE

FREE T4 INDEX @ 33.0 4.5-10.5

T4,TOTAL @ 16.5 mcg/dL 4.9-11.4

T-UPTAKE @ 0.5 TBI 0.9-1.3

THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

TSH 0.43 mcIU/mL 0.3-4.7

[Guest guest]

Hi Sonya,

Allergies are one of the main symptoms of Adrenal Fatigue. You may want to get

that checked out, too. Adjusting diet and lifestyle has worked out to be

significant for my family and me; and for our adrenals, too.

I also did the food allergen blood tests and changed to a Paleo diet because of

some level of delayed reactions from shellfish, legumes, cabbage and most grains

especially corn, plus soy. (Although it showed I had NO allergens to gluten or

wheat - that's still a mystery - but I stay gluten-free and grain-free

nonetheless.)

I also have a honey-bee allergy and keep several Epi pens handy.

I don't think every allergy test works for everyone. I was shocked to see the

delayed reaction testing wasn't positive for wheat or gluten for me. The testing

I did showed four levels from none, slight, moderate and strong. Corn was my

only severe one (corn gluten showed no reaction. Soy and corn also goes along

with many Hashis having issues with it. Actually, I don't eat corn and hadn't

for at least 15 years because of the modified organisms and knowing it had

hardly any nutrition value.

I do feel better after I stopped eating those others foods.

Best,

~Bj

>

> > Hi everyone,

> >

> > As you may remember, our 10-year old daughter was diagnosed with Hashimoto's

18 days ago when she was found to be hyperthyoid with a high thyroid peroxidase

antibody titer. Her other antibody levels were negative and our endo told us

that she was in the active inflammatory phase of Hashimoto's when the thyroid

hormone gets released into the blood stream causing high levels and that if this

continues, eventually she will be hypothyroid.

> >

> > Our pediatric endocrinologist recommended that we do nothing for now and

recheck her thyroid blood tests in a month or two. She said levels take at least

a month or longer to come down significantly.

> >

> > Well, we didn't wait that long to recheck her blood test. We waited 18 days.

In the last 18 days, we went gluten-free because of all the studies I've read

suggesting that a gluten-free diet may help autoimmune thyroid issues especially

in gluten sensitive folks.

> >

> > Well, I have some good news. Thankfully our daughter's thyroid functions

tests were much better today - almost normal. Her free T3 and T4 have come down

dramatically and her TSH is better. Her thyroid peroxidase antibodies are still

very positive but our endocrinologist said that can stay high for a long time.

Please see below for today's results and the results from 3 weeks ago (June 28).

The normal values are on the right side.

> >

> > We also checked serologies for Celiac today (including the genetic tests HLA

DQ-2 and DQ-8), but we won't get those back until later in the week. The

gastroenterologist that we saw today said that even if teh Celiac tests all come

back normal, there's still a reasonable likelihood that our daughter is gluten

sensitive and that it's very possible that the Hashimoto's is related to gluten.

> >

> > The plan, for now, is to continue the gluten-free diet and recheck thyroid

blood tests again in two weeks - hopefully they'll be normal by then.

> >

> > We're also planning to see an allergist next week.

> >

> > Thanks, everyone for all the advice.

> >

> >

> >

> > July 16, 2012 (today)

> >

> > FREE T3 INDEX PROFILE

> > FREE T3 INDEX @ 210 78-162

> > T-UPTAKE 0.9 TBI 0.9-1.3

> > T3,TOTAL @ 189 ng/dL 85-185

> > FREE T4 INDEX PROFILE

> > FREE T4 INDEX @ 14.2 4.5-10.5

> > T4,TOTAL @ 12.8 mcg/dL 4.9-11.4

> > T-UPTAKE 0.9 TBI 0.9-1.3

> > THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

> > TSH 0.82 mcIU/mL 0.3-4.7

> >

> > June 28, 2012

> >

> > FREE T3 INDEX PROFILE

> > FREE T3 INDEX @ 558 78-162

> > T-UPTAKE @ 0.5 TBI 0.9-1.3

> > T3,TOTAL @ 279 ng/dL 85-185

> > FREE T4 INDEX PROFILE

> > FREE T4 INDEX @ 33.0 4.5-10.5

> > T4,TOTAL @ 16.5 mcg/dL 4.9-11.4

> > T-UPTAKE @ 0.5 TBI 0.9-1.3

> > THYROID PEROXIDASE ANTIBODY @ > 600 IU/mL < or = 20

> > TSH 0.43 mcIU/mL 0.3-4.7

> >

> >

>

[Guest guest]

Hi ,

The Endo only tested for those specific codes you mentioned, which are the most

common geneotype testing for Celiacs. There are other codes for DQ2/8 besides

those. S/he ordered the subtype 2.5, but DQ2 also has a 2.2 and 2.3 subtype.

Besides the DQA1* 0301 and DQB1* 0302 there is also the DQA1* 0302 and DQB1*

0302 for DQ8 genotype, subtype 8.1 (both subtype sets are seen under the 8.1

subtype for DQ8).

This tells me the doctor doesn't understand this type of testing for gluten

intolerance. Again, s/he was ONLY looking for Celiac disease. S/he probably

called the lab and asked for a celiac gene test and that was what s/he was told

is usually ordered and then ordered it. Or it could be the lab only has this DQ

gene testing readily listed. A doctor can always order specific tests, that is,

if they know what to order.

All you know is that your daughter does NOT have the genotype that was tested.

Again, not all DQ2/DQ8 genotypes were tested, just the most common one for DQ2

and DQ8.

So you have no idea what her HLA-DQ genotype is or if she even has the genes for

human leukocyte antigens (HLA) for DQ proteins in her bloodstream. Celiac

Disease or Gluten Intolerance occurs only in people with certain versions of an

immune system protein called HLA-DQ. HLA proteins are encoded by a set of genes

on chromosome 6. Together the genes are referred to as the " HLA region. "

Proteins from the HLA family are involved in the immune system's recognition of

invaders. They are responsible for presenting bits of foreign proteins to immune

cells and triggering the cells to attack.

What is needed is an HLA-DQ Gene Molecular analysis, which will show your

daughter's actual DQ subtypes. I lost count of how many times I have explained

these tests to doctors. Go figure! Knowledge is powerful!

I hope this is helpful,

~Bj

> & gt; & gt;

> & gt; & gt; Hi everyone,

> & gt; & gt;

> & gt; & gt; As you may remember, our 10-year old daughter was diagnosed with

Hashimoto's 18 days ago when she was found to be hyperthyoid with a high thyroid

peroxidase antibody titer. Her other antibody levels were negative and our endo

told us that she was in the active inflammatory phase of Hashimoto's when the

thyroid hormone gets released into the blood stream causing high levels and that

if this continues, eventually she will be hypothyroid.

> & gt; & gt;

> & gt; & gt; Our pediatric endocrinologist recommended that we do nothing for now

and recheck her thyroid blood tests in a month or two. She said levels take at

least a month or longer to come down significantly.

> & gt; & gt;

> & gt; & gt; Well, we didn't wait that long to recheck her blood test. We waited

18 days. In the last 18 days, we went gluten-free because of all the studies

I've read suggesting that a gluten-free diet may help autoimmune thyroid issues

especially in gluten sensitive folks.

> & gt; & gt;

> & gt; & gt; Well, I have some good news. Thankfully our daughter's thyroid

functions tests were much better today - almost normal. Her free T3 and T4 have

come down dramatically and her TSH is better. Her thyroid peroxidase antibodies

are still very positive but our endocrinologist said that can stay high for a

long time. Please see below for today's results and the results from 3 weeks ago

(June 28). The normal values are on the right side.

> & gt; & gt;

> & gt; & gt; We also checked serologies for Celiac today (including the genetic

tests HLA DQ-2 and DQ-8), but we won't get those back until later in the week.

The gastroenterologist that we saw today said that even if teh Celiac tests all

come back normal, there's still a reasonable likelihood that our daughter is

gluten sensitive and that it's very possible that the Hashimoto's is related to

gluten.

> & gt; & gt;

> & gt; & gt; The plan, for now, is to continue the gluten-free diet and recheck

thyroid blood tests again in two weeks - hopefully they'll be normal by then.

> & gt; & gt;

> & gt; & gt; We're also planning to see an allergist next week.

> & gt; & gt;

> & gt; & gt; Thanks, everyone for all the advice.

> & gt; & gt;

> & gt; & gt;

> & gt; & gt;

> & gt; & gt; July 16, 2012 (today)

> & gt; & gt;

> & gt; & gt; FREE T3 INDEX PROFILE

> & gt; & gt; FREE T3 INDEX @ 210 78-162

> & gt; & gt; T-UPTAKE 0.9 TBI 0.9-1.3

> & gt; & gt; T3,TOTAL @ 189 ng/dL 85-185

> & gt; & gt; FREE T4 INDEX PROFILE

> & gt; & gt; FREE T4 INDEX @ 14.2 4.5-10.5

> & gt; & gt; T4,TOTAL @ 12.8 mcg/dL 4.9-11.4

> & gt; & gt; T-UPTAKE 0.9 TBI 0.9-1.3

> & gt; & gt; THYROID PEROXIDASE ANTIBODY @ & gt; 600 IU/mL & lt; or = 20

> & gt; & gt; TSH 0.82 mcIU/mL 0.3-4.7

> & gt; & gt;

> & gt; & gt;

> & gt; & gt; June 28, 2012

> & gt; & gt;

> & gt; & gt; FREE T3 INDEX PROFILE

> & gt; & gt; FREE T3 INDEX @ 558 78-162

> & gt; & gt; T-UPTAKE @ 0.5 TBI 0.9-1.3

> & gt; & gt; T3,TOTAL @ 279 ng/dL 85-185

> & gt; & gt; FREE T4 INDEX PROFILE

> & gt; & gt; FREE T4 INDEX @ 33.0 4.5-10.5

> & gt; & gt; T4,TOTAL @ 16.5 mcg/dL 4.9-11.4

> & gt; & gt; T-UPTAKE @ 0.5 TBI 0.9-1.3

> & gt; & gt; THYROID PEROXIDASE ANTIBODY @ & gt; 600 IU/mL & lt; or = 20

> & gt; & gt; TSH 0.43 mcIU/mL 0.3-4.7

> & gt; & gt;

> & gt;

>