Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 >> >> Wow...do you have a citation Chris? I'd love to post this absolutely >> essential bit of info to some of my lists where fish oil is, >IMO, wantonly >> recommended without any mention of vit. A. But I'll need some >citations for >> it to be believed. >Suze, > >I'm basing this on everything we've already discussed. I've already >provided citations that various PUFA oils, whether omega-3 or omega-6, >long-chain or short-chain, increase peroxides with sufficient E, but >that A-rich oils do not. You likewise said that the fish oil >studies that woman sent you accounted for vitamin E when they found an >increase in oxdation. Actually only one of the abstracts she sent me showed that alpha tocopherol does not always prevent oxidative degeneration of spleen cells and RBC. If I represented the studies as suggesting otherwise, I apologize. I just relooked at them, and saw that some of them actually accounted for vitamin B6 status rather than vitamin E status. B6 also seems to have some inhibitory effects on oxidation. I still haven't had a chance to get the few >studies showing contrary effects for fish oils, unfortunately. I >would have got them Friday but by the time I was driving home from my >class I was slipping into delerium from this sickness I appear to >already be bouncing. OK. Well, I think you mentioned that you'd cited the study or studies that found that E was not sufficient to protect from lipid peroxidation, but A and E *together* were, in your dioxin article citations. So I will check that out when I get a chance. Suze Fisher Lapdog Design, Inc. Web Design & Development http://members.bellatlantic.net/~vze3shjg Weston A. Price Foundation Chapter Leader, Mid Coast Maine http://www.westonaprice.org ---------------------------- “The diet-heart idea (the idea that saturated fats and cholesterol cause heart disease) is the greatest scientific deception of our times.” -- Mann, MD, former Professor of Medicine and Biochemistry at Vanderbilt University, Tennessee; heart disease researcher. The International Network of Cholesterol Skeptics <http://www.thincs.org> ---------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Suze, > OK. Well, I think you mentioned that you'd cited the study or studies that > found that E was not sufficient to protect from lipid peroxidation, but A > and E *together* were, in your dioxin article citations. So I will check > that out when I get a chance. Allright, and I'll try to take a more comprehensive look at the different studies this weekend. Chris -- Dioxins in Animal Foods: A Case For Vegetarianism? Find Out the Truth: http://www.westonaprice.org/envtoxins/dioxins.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 i have used icelands for 8 months and it really helps a lot.charleen emluv23@... wrote: http://www.oceansalive.org/eat.cfm?subnav=fishoil & sort=Rating Sorry! here it is... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 i have used icelands for 8 months and it really helps a lot.charleen emluv23@... wrote: http://www.oceansalive.org/eat.cfm?subnav=fishoil & sort=Rating Sorry! here it is... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 I use the Super Omega complex from Spring Valley. They sell it at Walmart. It has EPA and DHA as well as GLA, flax, safflower oils (they all make up the omega 3,6,9) it says to take one capsule 3 times daily. I take 2 twice daily and give my son 2 capsules twice daily. We have been doing that for 8 months if not longer with no ill effects. Even my daughter takes 1 capsule twice day. Good luck. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 You can read what I do, I replied to Missy, it is only my personal opinion and what I have done. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi Missy, I too am ready to start and need start up info. If you get info please forward to me. I posted several days ago for the first time and either did not get replies or missed them. Debbie (tremper6@...) -------------- Original message -------------- From: <mquilty@...> > I have a daughter with apraxia and hypotonia. I have been reading everyone's emails for the last month. I am ready to try the fish oil therapy. Could someone take me through the start up process. DOSE? EFA? EPA? DHA? Is the Sundown brand from Walmart alright? Help educate me. THANKS, Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi Debbie and Missy! The following is an old EFA archive from this group which has worked in this group for years so it's up on the Speechville message board. Recently there are a few members who are staying with the same formula -but raising the dosage to multi dosing two to three times a day and anecdotally they are observing even more dramatic and accelerated surges. Due to recent messages I want to clarify that the following was for the average new member who in the majority will have a child that is 2 to 4 years old. If your child is around 5 or older you will probably want to start at one a day just for a week or so and then increase right away to two. Not that you won't see any changes on the lower dosage but for older children the one a day (which is comparable to the dosage in infant formula) may not be enough. Also most see the first plateau somewhere between 3-6 months and the second somewhere between 6 months to a year following the lower dosage way. We don't know yet as a group if and when plateaus are reached with higher dosage supplementation. If however you hit a plateau at any point -you probably want to look to increase dosage -especially if you are at one a day with a 4 year old say. You can run by your child's MD -start with the basic and observe and go from there. With fish oils typically the changes are within one day to three weeks almost across the board -so you'll know pretty soon whether it's " working " ! Let us know the good news! From http://www.speech-express.com/boards/viewtopic.php?t=620 What fish oil should I give to my baby? What fish oil should I give to my child? The confusion is more the brand names than the formulas. In actuality there really is no such thing as a " children's EFA " perfect for all children yet. However fish oils can be marketed to children by making fun flavorings and smaller capsules. Most of the parents I know squeeze the oil out of the capsule anyway -so that's besides the point for most of our group. EFAs are now in baby formula and food, and EFAs come and are used in a variety of formulas for children for various reasons. Mainly we hear about the use of them for healthy brain development in regards to children -but they are even proven to help prevent asthma http://www.theage.com.au/articles/2004/02/20/1077072840758.html And they may be coming to a school lunch near you -if you live in an area of savvy parents http://www.valleystar.com/localnews_more.php?id=51945_0_19_0_C Regarding your specific question: (and to answer your question Chris) ProEFA is an Omega 3 (DHA and higher EPA) formula with a small amount of Omega 6 (GLA) The Omega 3 in the ProEFA is from fish oil - not from the liver of the fish -so no vitamin A. Only fish oil made from the liver of the fish contain vitamin A. Children's DHA is cod liver oil which since it's from the liver of the cod fish, it naturally contains Vitamin A. Cod liver oil only contains Omega 3 (DHA and EPA) about that point: " Most of our experience is with one, 1.0 gram capsule of ProEFA (Complete Omega) that contains 144 mg EPA, 99 mg DHA and 40 mg of GLA. We know that this combination appeared to work well. There were some other supplements used but we could not conclude anything about them. I can only say that both EPA and DHA are important and GLA appears to have an additional positive effect on speech. ALA, linoleic and oleic acids in " The Total Omega " contribute very little to the EPA, DHA, and GLA effect. I see at least 2 possibilities that you could use if you decide to make the transition from short-chain omega-3s in plants (flax seed oil containing alpha-linolenic acid or ALA, C18:2n-3) to the long- chain mixture of EPA (C20:5n-3) and DHA (C22:6n-3). These are DHA Jr. (30 mg DHA and 20 mg EPA in a serving unit) and Coromega (350 mg EPA and 230 mg DHA). Both of these have been anecdotally successful in the past. Coromega can be divided in two and taken one half in the morning the other in the evening. If you choose this mode you will provide your son with the equivalent EPA+DHA of 2 ProEFA capsules per day without the GLA. Flax seed oil or freshly ground flax seeds are an excellent source of the essential omega-3 alpha-linolenic acid (ALA or LNA) which is the quintessential parent member of the omega-3 family of essential fatty acids (EFAs). The body transforms it into EPA and the EPA into DHA. This transformation is very inefficient (the yield is about 10%) and is further inhibited by over consumption of omega-6 fatty acids from most vegetable oils or certain disease states. Therefore, it is advisable to independently consume also ready made EPA and DHA from good quality fish of from high quality fish oil supplements. Some recommended intakes are listed on the Introductory lecture on EFAs that I gave at the First Conference on Therapy of Verbal Apraxia, July 23-24, 2001, town, NJ. ( http://www.cherab.org/news/scientific.html ) The CHERAB Foundation's positive research results on potential improvement in speech following EFA supplementation are based on the use of ProEFA (Complete Omega) and that contains also another essential fatty acid, GLA which is an omega-6 fatty acid. The latter appears to be beneficial to children with apraxia. It is not present in flax seed/flaxseed oil. None of these materials present with any known side effects or known toxicity in an otherwise healthy person. Nevertheless, we advise every user of supplements to use them under medical supervision. We don't know your child and we cannot provide you with medical advice. Sincerely, Katz, Ph.D. " About mercury and fish oil (vs. eating fish) " Fish oils have been tested for various heavy metals like mercury and there has been enough preliminary proof through studies, as well as theory from reputable sources, that as I've posted many times I've heard that the oils from fish may be the safest way to get the benefits of the EFAs without the toxins due to the fact that mercury etc. binds to the proteins/muscles of the fish. " Measurement of mercury levels in concentrated over-the-counter fish oil preparations: is fish oil healthier than fish? " " CONCLUSIONS: Fish are rich in omega-3 fatty acids, and their consumption is recommended to decrease the risk of coronary artery disease. However, fish such as swordfish and shark are also a source of exposure to the heavy metal toxin, mercury. The fish oil brands examined in this manuscript have negligible amounts of mercury and may provide a safer alternative to fish consumption. " Division of Laboratory Medicine, Department of Pathology, Massachusetts General Hospital and Harvard Medical School, Boston, Mass 02114, USA. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve & db=PubMed & list_uids=1\ 4632570 & dopt=Abstract And one other thing to keep in mind for those like me who do eat both fish and take fish oil, there are toxins in the fish you eat that won't be in the oil For example while mercury etc. binds to the protein (muscle of the fish) so it's not in the oil of the fish. From what I've read -the largest problem with fish oil itself is rancidity. Oxygen and fish oil doesn't mix well. Consumer Reports had this to say (most likely because toxins in many cases bind to the protein and most oils are not tested for rancidity) " Consumer Reports tested 16 top-selling fish-oil pills which, like other supplements, aren't closely regulated by the FDA. Consumer Reports' Metcalf says the test results are reassuring, " We found that all 16 brands that we tested had the amount of Omega-3s that they said they did, which is good news. And, we don't always find that with supplements. " Since fish can contain toxins, Metcalf says Consumer Reports also checked the supplements for purity, " We tested for three kinds of toxins that often appear in fish — mercury, dioxin, and PCBs. " Testers didn't find significant levels of toxins in any of the pills tested, so you don't have to worry about contaminants. " http://abclocal.go.com/kfsn/features/consumerwatch/consumer_070303_om ega3.html " The omega-3 fatty acids offer some unique benefits, should they prove to be truly effective mood stabilizers. The advantages of the omega-3 fatty acids as mood stabilizers include the apparent acute efficacy in both the manic and depressive phases of bipolar disorder, their lack of toxicity, as well as high patient acceptance. In addition, omega-3 fatty acids confer some health benefits during chronic use, such as possible reduction in the risk of a fatal myocardial infarction. In addition, the omega-3 fatty acids have no documented adverse drug interactions, and appear to be safe (and possibly beneficial) in pregnancy and in children. " http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html " I had the wonderful opportunity to hear ph Hibbeln, M.D., Chief, Outpatient Clinic National Institute of Alcoholism and Alcohol Abuse, NIH, Bethesda, land at the First Apraxia Conference http://www.cherab.org/news/scientific.htm lecture about the importance of PUFA -especially during pregnancy when you are growing a brain inside you. If you don't consume enough PUFAs while pregnant -the babies body will pull it from the mother's body. It's his theory and research as to why so many mom's experience post partum depression. http://www.beachpsych.com/pages/cc46.html In additionit is proven that the PUFAs are important for cognitive ability. http://neuroscience.nih.gov/Lab.asp?Org_ID=352 Here is a quote from the US Department of Agriculture, Environmental Chemistry Laboratory, Agricultural Research Service, 20705, Beltsville, MD, USA Brain-specific lipids from marine, lacustrine, or terrestrial food resources: potential impact on early African Homo sapiens. The polyunsaturated fatty acid (PUFA) composition of the mammalian central nervous system is almost wholly composed of two long-chain polyunsaturated fatty acids (LC-PUFA), docosahexaenoic acid (DHA) and arachidonic acid (AA). PUFA are dietarily essential, thus normal infant/neonatal brain, intellectual growth and development cannot be accomplished if they are deficient during pregnancy and lactation. Uniquely in the human species, the fetal brain consumes 70% of the energy delivered to it by mother. DHA and AA are needed to construct placental and fetal tissues for cell membrane growth, structure and function. Contemporary evidence shows that the maternal circulation is depleted of AA and DHA during fetal growth. Sustaining normal adult human brain function also requires LC-PUFA.Homo sapiens is unlikely to have evolved a large, complex, metabolically expensive brain in an environment which did not provide abundant dietary LC- PUFA. http://www.unl.ac.uk/ibchn/e_Link/cbpbbmb2002.htm " The omega-3 fatty acids offer some unique benefits, should they prove to be truly effective mood stabilizers. The advantages of the omega-3 fatty acids as mood stabilizers include the apparent acute efficacy in both the manic and depressive phases of bipolar disorder, their lack of toxicity, as well as high patient acceptance. In addition, omega-3 fatty acids confer some health benefits during chronic use, such as possible reduction in the risk of a fatal myocardial infarction. In addition, the omega-3 fatty acids have no documented adverse drug interactions, and appear to be safe (and possibly beneficial) in pregnancy and in children. " http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html Here is an archive answer to answer more on EFAs: " I will use the following examples with the brand name ProEFA since that's the formula/dosage that seems to work the best for most of us (Efalex and EyeQ are similar Omega 3/6 formulas that also have good reports) For any brand name of Omega 3/6 formula -you could make the same formula by mixing together fish oil and either primrose or borage seed oil if you prefer -or as found -another brand name with a similar formula (and I hope also a good quality) If you mix two fish oils together which is fine if you know why you are doing that: Look at the amount of DHA, EPA (Omega 3) and the amount of GLA (Omega 6) and then add them all together to see what formula and dosage you now have is. So for those of you that ask - you can mix any brand names together you would like -however what you could change is the three things above (dosage, formula and *quality (*if one of the companies you start using has rancid oils which is not uncommon when it comes to fish oils -so make sure all brands you use are pure) Keep in mind in anecdotal feedback done by parents from all over through CHERAB -that pure Omega 3 or pure Omega 6 either showed no results -or very little results in almost all cases. Pure Omega 3 would include pure cod liver oil, fish oil, flax seed oil without any Omega 6. So even though there is only a small amount of GLA (Omega 6) in the formulas we found to be successful -GLA appears to be important to be there for some reason. GLA has anti-inflammatory properties which perhaps enable to DHA and EPA to get to where it's needed in the brain? Dosage of one capsule a day ProEFA that at the lowest dosage appears to be the best - 148 mg EPA 99 mg DHA 40 mg GLA Here is what many of us have found to be the best plan anecdotally: ....start with the basic formula, one ProEFA a day, we saw surges in a few days to three weeks which continued for months - we then reached a plateau after around 6 months. At this point we raised the dosage to two capsules of ProEFA a day and once again had those surges which lasted again for months. When we reached the next plateau after around a year, instead of going to three a day - we squeezed 1/2 to one capsule of ProEPA into the 2 capsules of ProEFA and for almost all of us that try -that created another surge. Over time -you may raise the dosage up higher -and you may slightly change the formula to raise the Omega 3 over the Omega 6 ratio. Most found raising the EPA vs. the DHA or GLA to be best -but you need to know your own child, keep track of his progress through both your own observations and that of the professionals -with the advice of your child's doctor -to know what is best for him/her. There is much more in the archives both here -as well as more information at http://www.cherab.org/information/indexinformation.html#diet http://www.speechville.com Since I receive lots of calls about this -I wanted to list the most common changes in an apraxic or other speech disordered child on EFAs from what I've read and heard and seen. 1. Increase in babbling or attempts at sounds. 2. Increase in imitation. Changes also can be looked for in (what you see as positive or negative) sleep attention appetite focus behavior stools Next will come a breakthrough of something you were probably working on for a bit -so you will be excited but will think " Well -I don't want to get my hopes up we were working on that for awhile now - maybe it's just a coincidence " However after the second or third surge in a short period of time -and then another - you are pretty sure things are different and it's at this point the professionals and the rest of the family and your friends are noticing it too - maybe about two to three weeks now. OK -the next stage is pure elation and hope -you see the light and no longer feel as desperate and want to share this new information with everyone and anyone. As the months go by and your child continues to progress at a much more rapid rate -you may even start to doubt the original diagnosis -especially if you started EFA supplementation at two -and perhaps the SLP that diagnosed the apraxia who also was at first excited is starting to second guess if the original diagnosis was correct as well. Unless you have to stop the ProEFA (or other Essential Fatty Acids) and literally have the chance to see the regression of acquired speech and language skills, attempts, and changes in behavior like we did with Tanner (and/or have a chance to again witness the second surge when your child is put back on the EFAs) -that doubt will probably remain somewhere in your mind and in others around your child. So the " I told you that he would start talking when he was ready " comments should be expected of course. Up to this point is understandable to me -it's the point after this that is confusing to me, and perhaps not the best stage for our children and for raising awareness or having research done to find out what is happening to our children and why. Perhaps because we have truly hit a paradigm shift... As Dr. Agin states the EFAs actually appear to be in some ways " curing " the apraxic child -even those diagnosed with severe oral and verbal apraxia, hypotonia, sensory and behavioral issues. Especially those started at younger ages. The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either... Some of the parents become more focused on other everyday activities with their child and start to drift away from the support sources. Problem with this attitude is that unless your child is really up to speed on all aspects of speech and language, the support sources that helped in the beginning will still benefit your child today. ProEFA alone is not the only answer and until we know how and why it works (or why in a handful of children it doesn't) we can't improve on it " Know there is lots of information here -but if you have to learn just one thing from all of this it's right up on top -there is always hope! From: " kiddietalk " <kiddietalk@...> Date: Mon Feb 14, 2005 12:59 pm Subject: Re: Question about Fish oils Hi Sara -use the liquid if you have it. Also the shelf life isn't long so use it quick anyway (if your child doesn't mind the taste of it-mine does) Some here may like the liquid -but the capsules are better in my opinion for various reasons. from a recent post: And if taste is an issue -you may want to try capsule. My son and others here do taste the difference between capsule and liquid. Could have to do with exposure to oxygen? " Liquid vs. capsule? Hands down my vote is capsule because it lasts way longer, easy to control dosage, easy to travel with, not a big deal if you spill the bottle over. Passed Tanner taste test (liquid didn't) And..yes...you can just use a pin and " poof " like magic the capsule is 'oil' but the oil without a capsule -can't turn it into a capsule. resources for EFAs 'Hi ! That is great news about the surges you are seeing so far in your child within the typical one to three week period. Because you are new to the group, and there are many other new people here too -I wanted to once again share a view on the 'new' ProEFA liquid you may not have thought of from a cut from an archived post which cleared up a confusing thread of posts about accurate supplementation of EFAs using liquid vs capsules: " Due to the confusion of what dosage of the oils since the introduction of the ProEFA oil in the bottle about a month or so ago (vs. the capsules which are what most of us have used for years up to the bottle oil) below is a reply about dosage of straight oil from developmental pediatrician Dr. Marilyn Agin http://www.cherab.org/information/speechlanguage/advisoryagin.html ....Around just 1/4 a teaspoon of ProEFA oil will be around the same as 'one' capsule of ProEFA since " 1/2 teaspoon of ProEFA oil is close to the equivalent of about 2 capsules of ProEFA " Sadly -it still does appear that unless NN offers a dropper that clearly has lines that state " one capsule " " two capsules " or something like that as a guide as I suggested -that with use of the oils -those of you using the straight oil will no longer be able to share with all of us accurately -or even know yourself - what dosage you are giving your child you are finding to be " too high " " too low " or " perfect! " You will only be able to estimate. The best we can advise now with the oil is that " 1/2 teaspoon of ProEFA oil is close to the equivalent of about 2 capsules of ProEFA " As I always say -brand name does NOT matter -only Formula Dosage Quality However we can use brand names as an easy to understand guide. In our group we have found ProEFA -Efalex and EyeQ to be the three best Omega 3 -6 oils, with ProEFA being the best so far overall due to " it works best at low dosage " . With ProEFA -here is the dosage which we as a group have found to be effective over the past number of years with hundreds and thousands of children, and that has been posted over and over at the CHERAB list. If any of you can figure out a great way to translate this to the use of straight oil without the capsules as a guide -please let us all know. In the meantime - will one of the pharmaceutical R & D people in this group design an EFA patch already so we can just slap that on our children instead of all of this?!! To start: DHA -around 100 mg EPA -around 150 -250 mg GLA -around 30-50 mg The only dosage we as a group know to be effective is to start with one capsule of ProEFA a day -then go to two capsules of ProEFA a day when you see a plateau in about 6 months to a year -then instead of going to three capsules of ProEFA a day when you see a plateau again in a year or more -you stay with the two ProEFA capsules a day and add one capsule of ProEPA. Just a reminder that the ProEFA oil needs to be refrigerated once opened. Also once opened it has a shelf life of 2 months. ProEFA capsules have a shelf life of almost 4 years -do not have to be refrigerated once opened -and can be carried in your pocket if you want. You can do this with the oil but you will smell funny. I chose the ProEFA capsules over the liquid. As always -they work the best at the lowest dosage. " EFA tips and sources http://www.cherab.org/information/dietaryeffects/efatips.html http://www.cherab.org/information/dietaryeffects/efabasics.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 thank you for the great info. This may be an odd question, given the documented sucess but... should we wait until Ben is evaluated to obtain a true diagnosis, or is that unfair to Ben? deb Re: Question about Fish oils Hi Sara -use the liquid if you have it. Also the shelf life isn't long so use it quick anyway (if your child doesn't mind the taste of it-mine does) Some here may like the liquid -but the capsules are better in my opinion for various reasons. from a recent post: And if taste is an issue -you may want to try capsule. My son and others here do taste the difference between capsule and liquid. Could have to do with exposure to oxygen? " Liquid vs. capsule? Hands down my vote is capsule because it lasts way longer, easy to control dosage, easy to travel with, not a big deal if you spill the bottle over. Passed Tanner taste test (liquid didn't) And..yes...you can just use a pin and " poof " like magic the capsule is 'oil' but the oil without a capsule -can't turn it into a capsule. resources for EFAs 'Hi ! That is great news about the surges you are seeing so far in your child within the typical one to three week period. Because you are new to the group, and there are many other new people here too -I wanted to once again share a view on the 'new' ProEFA liquid you may not have thought of from a cut from an archived post which cleared up a confusing thread of posts about accurate supplementation of EFAs using liquid vs capsules: " Due to the confusion of what dosage of the oils since the introduction of the ProEFA oil in the bottle about a month or so ago (vs. the capsules which are what most of us have used for years up to the bottle oil) below is a reply about dosage of straight oil from developmental pediatrician Dr. Marilyn Agin http://www.cherab.org/information/speechlanguage/advisoryagin.html ...Around just 1/4 a teaspoon of ProEFA oil will be around the same as 'one' capsule of ProEFA since " 1/2 teaspoon of ProEFA oil is close to the equivalent of about 2 capsules of ProEFA " Sadly -it still does appear that unless NN offers a dropper that clearly has lines that state " one capsule " " two capsules " or something like that as a guide as I suggested -that with use of the oils -those of you using the straight oil will no longer be able to share with all of us accurately -or even know yourself - what dosage you are giving your child you are finding to be " too high " " too low " or " perfect! " You will only be able to estimate. The best we can advise now with the oil is that " 1/2 teaspoon of ProEFA oil is close to the equivalent of about 2 capsules of ProEFA " As I always say -brand name does NOT matter -only Formula Dosage Quality However we can use brand names as an easy to understand guide. In our group we have found ProEFA -Efalex and EyeQ to be the three best Omega 3 -6 oils, with ProEFA being the best so far overall due to " it works best at low dosage " . With ProEFA -here is the dosage which we as a group have found to be effective over the past number of years with hundreds and thousands of children, and that has been posted over and over at the CHERAB list. If any of you can figure out a great way to translate this to the use of straight oil without the capsules as a guide -please let us all know. In the meantime - will one of the pharmaceutical R & D people in this group design an EFA patch already so we can just slap that on our children instead of all of this?!! To start: DHA -around 100 mg EPA -around 150 -250 mg GLA -around 30-50 mg The only dosage we as a group know to be effective is to start with one capsule of ProEFA a day -then go to two capsules of ProEFA a day when you see a plateau in about 6 months to a year -then instead of going to three capsules of ProEFA a day when you see a plateau again in a year or more -you stay with the two ProEFA capsules a day and add one capsule of ProEPA. Just a reminder that the ProEFA oil needs to be refrigerated once opened. Also once opened it has a shelf life of 2 months. ProEFA capsules have a shelf life of almost 4 years -do not have to be refrigerated once opened -and can be carried in your pocket if you want. You can do this with the oil but you will smell funny. I chose the ProEFA capsules over the liquid. As always -they work the best at the lowest dosage. " EFA tips and sources http://www.cherab.org/information/dietaryeffects/efatips.html http://www.cherab.org/information/dietaryeffects/efabasics.html ========== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 how has it been going with the fish oil the way you are doing it now? Are you giving it before or after the meal...and any changes? (Haven't you been giving it to your child for around a year?) To answer your question in short 1. From what I know it doesn't matter. 2. No because mercury binds to protein -the muscle of the fish so it's not in the oil. 20/20, Consumer Reports and the NIH have all tested various OTC fish oils anyway and this point has been proven again and again. The following archive goes into this a bit more: The following is an old EFA archive from this group which has worked in this group for years so it's up on the Speechville message board. Recently there are a few members who are staying with the same formula -but raising the dosage to multi dosing two to three times a day and anecdotally they are observing even more dramatic and accelerated surges. Due to recent messages I want to clarify that the following was for the average new member who in the majority will have a child that is 2 to 4 years old. If your child is around 5 or older you will probably want to start at one a day just for a week or so and then increase right away to two. Not that you won't see any changes on the lower dosage but for older children the one a day (which is comparable to the dosage in infant formula) may not be enough. Also most see the first plateau somewhere between 3-6 months and the second somewhere between 6 months to a year following the lower dosage way. We don't know yet as a group if and when plateaus are reached with higher dosage supplementation. If however you hit a plateau at any point -you probably want to look to increase dosage -especially if you are at one a day with a 4 year old say. You can run by your child's MD -start with the basic and observe and go from there. With fish oils typically the changes are within one day to three weeks almost across the board -so you'll know pretty soon whether it's " working " ! Let us know the good news! From http://www.speech-express.com/boards/viewtopic.php?t=620 What fish oil should I give to my baby? What fish oil should I give to my child? The confusion is more the brand names than the formulas. In actuality there really is no such thing as a " children's EFA " perfect for all children yet. However fish oils can be marketed to children by making fun flavorings and smaller capsules. Most of the parents I know squeeze the oil out of the capsule anyway -so that's besides the point for most of our group. EFAs are now in baby formula and food, and EFAs come and are used in a variety of formulas for children for various reasons. Mainly we hear about the use of them for healthy brain development in regards to children -but they are even proven to help prevent asthma http://www.theage.com.au/articles/2004/02/20/1077072840758.html And they may be coming to a school lunch near you -if you live in an area of savvy parents http://www.valleystar.com/localnews_more.php?id=51945_0_19_0_C Regarding your specific question: (and to answer your question Chris) ProEFA is an Omega 3 (DHA and higher EPA) formula with a small amount of Omega 6 (GLA) The Omega 3 in the ProEFA is from fish oil - not from the liver of the fish -so no vitamin A. Only fish oil made from the liver of the fish contain vitamin A. Children's DHA is cod liver oil which since it's from the liver of the cod fish, it naturally contains Vitamin A. Cod liver oil only contains Omega 3 (DHA and EPA) about that point: " Most of our experience is with one, 1.0 gram capsule of ProEFA (Complete Omega) that contains 144 mg EPA, 99 mg DHA and 40 mg of GLA. We know that this combination appeared to work well. There were some other supplements used but we could not conclude anything about them. I can only say that both EPA and DHA are important and GLA appears to have an additional positive effect on speech. ALA, linoleic and oleic acids in " The Total Omega " contribute very little to the EPA, DHA, and GLA effect. I see at least 2 possibilities that you could use if you decide to make the transition from short-chain omega-3s in plants (flax seed oil containing alpha-linolenic acid or ALA, C18:2n-3) to the long- chain mixture of EPA (C20:5n-3) and DHA (C22:6n-3). These are DHA Jr. (30 mg DHA and 20 mg EPA in a serving unit) and Coromega (350 mg EPA and 230 mg DHA). Both of these have been anecdotally successful in the past. Coromega can be divided in two and taken one half in the morning the other in the evening. If you choose this mode you will provide your son with the equivalent EPA+DHA of 2 ProEFA capsules per day without the GLA. Flax seed oil or freshly ground flax seeds are an excellent source of the essential omega-3 alpha-linolenic acid (ALA or LNA) which is the quintessential parent member of the omega-3 family of essential fatty acids (EFAs). The body transforms it into EPA and the EPA into DHA. This transformation is very inefficient (the yield is about 10%) and is further inhibited by over consumption of omega-6 fatty acids from most vegetable oils or certain disease states. Therefore, it is advisable to independently consume also ready made EPA and DHA from good quality fish of from high quality fish oil supplements. Some recommended intakes are listed on the Introductory lecture on EFAs that I gave at the First Conference on Therapy of Verbal Apraxia, July 23-24, 2001, town, NJ. ( http://www.cherab.org/news/scientific.html ) The CHERAB Foundation's positive research results on potential improvement in speech following EFA supplementation are based on the use of ProEFA (Complete Omega) and that contains also another essential fatty acid, GLA which is an omega-6 fatty acid. The latter appears to be beneficial to children with apraxia. It is not present in flax seed/flaxseed oil. None of these materials present with any known side effects or known toxicity in an otherwise healthy person. Nevertheless, we advise every user of supplements to use them under medical supervision. We don't know your child and we cannot provide you with medical advice. Sincerely, Katz, Ph.D. " About mercury and fish oil (vs. eating fish) " Fish oils have been tested for various heavy metals like mercury and there has been enough preliminary proof through studies, as well as theory from reputable sources, that as I've posted many times I've heard that the oils from fish may be the safest way to get the benefits of the EFAs without the toxins due to the fact that mercury etc. binds to the proteins/muscles of the fish. " Measurement of mercury levels in concentrated over-the-counter fish oil preparations: is fish oil healthier than fish? " " CONCLUSIONS: Fish are rich in omega-3 fatty acids, and their consumption is recommended to decrease the risk of coronary artery disease. However, fish such as swordfish and shark are also a source of exposure to the heavy metal toxin, mercury. The fish oil brands examined in this manuscript have negligible amounts of mercury and may provide a safer alternative to fish consumption. " Division of Laboratory Medicine, Department of Pathology, Massachusetts General Hospital and Harvard Medical School, Boston, Mass 02114, USA. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve & db=PubMed & list_uids=1\ 4632570 & dopt=Abstract And one other thing to keep in mind for those like me who do eat both fish and take fish oil, there are toxins in the fish you eat that won't be in the oil For example while mercury etc. binds to the protein (muscle of the fish) so it's not in the oil of the fish. From what I've read -the largest problem with fish oil itself is rancidity. Oxygen and fish oil doesn't mix well. Consumer Reports had this to say (most likely because toxins in many cases bind to the protein and most oils are not tested for rancidity) " Consumer Reports tested 16 top-selling fish-oil pills which, like other supplements, aren't closely regulated by the FDA. Consumer Reports' Metcalf says the test results are reassuring, " We found that all 16 brands that we tested had the amount of Omega-3s that they said they did, which is good news. And, we don't always find that with supplements. " Since fish can contain toxins, Metcalf says Consumer Reports also checked the supplements for purity, " We tested for three kinds of toxins that often appear in fish - mercury, dioxin, and PCBs. " Testers didn't find significant levels of toxins in any of the pills tested, so you don't have to worry about contaminants. " http://abclocal.go.com/kfsn/features/consumerwatch/consumer_070303_om ega3.html " The omega-3 fatty acids offer some unique benefits, should they prove to be truly effective mood stabilizers. The advantages of the omega-3 fatty acids as mood stabilizers include the apparent acute efficacy in both the manic and depressive phases of bipolar disorder, their lack of toxicity, as well as high patient acceptance. In addition, omega-3 fatty acids confer some health benefits during chronic use, such as possible reduction in the risk of a fatal myocardial infarction. In addition, the omega-3 fatty acids have no documented adverse drug interactions, and appear to be safe (and possibly beneficial) in pregnancy and in children. " http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html " I had the wonderful opportunity to hear ph Hibbeln, M.D., Chief, Outpatient Clinic National Institute of Alcoholism and Alcohol Abuse, NIH, Bethesda, land at the First Apraxia Conference http://www.cherab.org/news/scientific.htm lecture about the importance of PUFA -especially during pregnancy when you are growing a brain inside you. If you don't consume enough PUFAs while pregnant -the babies body will pull it from the mother's body. It's his theory and research as to why so many mom's experience post partum depression. http://www.beachpsych.com/pages/cc46.html In additionit is proven that the PUFAs are important for cognitive ability. http://neuroscience.nih.gov/Lab.asp?Org_ID=352 Here is a quote from the US Department of Agriculture, Environmental Chemistry Laboratory, Agricultural Research Service, 20705, Beltsville, MD, USA Brain-specific lipids from marine, lacustrine, or terrestrial food resources: potential impact on early African Homo sapiens. The polyunsaturated fatty acid (PUFA) composition of the mammalian central nervous system is almost wholly composed of two long-chain polyunsaturated fatty acids (LC-PUFA), docosahexaenoic acid (DHA) and arachidonic acid (AA). PUFA are dietarily essential, thus normal infant/neonatal brain, intellectual growth and development cannot be accomplished if they are deficient during pregnancy and lactation. Uniquely in the human species, the fetal brain consumes 70% of the energy delivered to it by mother. DHA and AA are needed to construct placental and fetal tissues for cell membrane growth, structure and function. Contemporary evidence shows that the maternal circulation is depleted of AA and DHA during fetal growth. Sustaining normal adult human brain function also requires LC-PUFA.Homo sapiens is unlikely to have evolved a large, complex, metabolically expensive brain in an environment which did not provide abundant dietary LC- PUFA. http://www.unl.ac.uk/ibchn/e_Link/cbpbbmb2002.htm " The omega-3 fatty acids offer some unique benefits, should they prove to be truly effective mood stabilizers. The advantages of the omega-3 fatty acids as mood stabilizers include the apparent acute efficacy in both the manic and depressive phases of bipolar disorder, their lack of toxicity, as well as high patient acceptance. In addition, omega-3 fatty acids confer some health benefits during chronic use, such as possible reduction in the risk of a fatal myocardial infarction. In addition, the omega-3 fatty acids have no documented adverse drug interactions, and appear to be safe (and possibly beneficial) in pregnancy and in children. " http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html Here is an archive answer to answer more on EFAs: " I will use the following examples with the brand name ProEFA since that's the formula/dosage that seems to work the best for most of us (Efalex and EyeQ are similar Omega 3/6 formulas that also have good reports) For any brand name of Omega 3/6 formula -you could make the same formula by mixing together fish oil and either primrose or borage seed oil if you prefer -or as found -another brand name with a similar formula (and I hope also a good quality) If you mix two fish oils together which is fine if you know why you are doing that: Look at the amount of DHA, EPA (Omega 3) and the amount of GLA (Omega 6) and then add them all together to see what formula and dosage you now have is. So for those of you that ask - you can mix any brand names together you would like -however what you could change is the three things above (dosage, formula and *quality (*if one of the companies you start using has rancid oils which is not uncommon when it comes to fish oils -so make sure all brands you use are pure) Keep in mind in anecdotal feedback done by parents from all over through CHERAB -that pure Omega 3 or pure Omega 6 either showed no results -or very little results in almost all cases. Pure Omega 3 would include pure cod liver oil, fish oil, flax seed oil without any Omega 6. So even though there is only a small amount of GLA (Omega 6) in the formulas we found to be successful -GLA appears to be important to be there for some reason. GLA has anti-inflammatory properties which perhaps enable to DHA and EPA to get to where it's needed in the brain? Dosage of one capsule a day ProEFA that at the lowest dosage appears to be the best - 148 mg EPA 99 mg DHA 40 mg GLA Here is what many of us have found to be the best plan anecdotally: ....start with the basic formula, one ProEFA a day, we saw surges in a few days to three weeks which continued for months - we then reached a plateau after around 6 months. At this point we raised the dosage to two capsules of ProEFA a day and once again had those surges which lasted again for months. When we reached the next plateau after around a year, instead of going to three a day - we squeezed 1/2 to one capsule of ProEPA into the 2 capsules of ProEFA and for almost all of us that try -that created another surge. Over time -you may raise the dosage up higher -and you may slightly change the formula to raise the Omega 3 over the Omega 6 ratio. Most found raising the EPA vs. the DHA or GLA to be best -but you need to know your own child, keep track of his progress through both your own observations and that of the professionals -with the advice of your child's doctor -to know what is best for him/her. There is much more in the archives both here -as well as more information at http://www.cherab.org/information/indexinformation.html#diet http://www.speechville.com Since I receive lots of calls about this -I wanted to list the most common changes in an apraxic or other speech disordered child on EFAs from what I've read and heard and seen. 1. Increase in babbling or attempts at sounds. 2. Increase in imitation. Changes also can be looked for in (what you see as positive or negative) sleep attention appetite focus behavior stools Next will come a breakthrough of something you were probably working on for a bit -so you will be excited but will think " Well -I don't want to get my hopes up we were working on that for awhile now - maybe it's just a coincidence " However after the second or third surge in a short period of time -and then another - you are pretty sure things are different and it's at this point the professionals and the rest of the family and your friends are noticing it too - maybe about two to three weeks now. OK -the next stage is pure elation and hope -you see the light and no longer feel as desperate and want to share this new information with everyone and anyone. As the months go by and your child continues to progress at a much more rapid rate -you may even start to doubt the original diagnosis -especially if you started EFA supplementation at two -and perhaps the SLP that diagnosed the apraxia who also was at first excited is starting to second guess if the original diagnosis was correct as well. Unless you have to stop the ProEFA (or other Essential Fatty Acids) and literally have the chance to see the regression of acquired speech and language skills, attempts, and changes in behavior like we did with Tanner (and/or have a chance to again witness the second surge when your child is put back on the EFAs) -that doubt will probably remain somewhere in your mind and in others around your child. So the " I told you that he would start talking when he was ready " comments should be expected of course. Up to this point is understandable to me -it's the point after this that is confusing to me, and perhaps not the best stage for our children and for raising awareness or having research done to find out what is happening to our children and why. Perhaps because we have truly hit a paradigm shift... As Dr. Agin states the EFAs actually appear to be in some ways " curing " the apraxic child -even those diagnosed with severe oral and verbal apraxia, hypotonia, sensory and behavioral issues. Especially those started at younger ages. The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either... Some of the parents become more focused on other everyday activities with their child and start to drift away from the support sources. Problem with this attitude is that unless your child is really up to speed on all aspects of speech and language, the support sources that helped in the beginning will still benefit your child today. ProEFA alone is not the only answer and until we know how and why it works (or why in a handful of children it doesn't) we can't improve on it " Know there is lots of information here -but if you have to learn just one thing from all of this it's right up on top -there is always hope! From: " kiddietalk " <kiddietalk@...> Date: Mon Feb 14, 2005 12:59 pm Subject: Re: Question about Fish oils Hi Sara -use the liquid if you have it. Also the shelf life isn't long so use it quick anyway (if your child doesn't mind the taste of it-mine does) Some here may like the liquid -but the capsules are better in my opinion for various reasons. from a recent post: And if taste is an issue -you may want to try capsule. My son and others here do taste the difference between capsule and liquid. Could have to do with exposure to oxygen? " Liquid vs. capsule? Hands down my vote is capsule because it lasts way longer, easy to control dosage, easy to travel with, not a big deal if you spill the bottle over. Passed Tanner taste test (liquid didn't) And..yes...you can just use a pin and " poof " like magic the capsule is 'oil' but the oil without a capsule -can't turn it into a capsule. resources for EFAs 'Hi ! That is great news about the surges you are seeing so far in your child within the typical one to three week period. Because you are new to the group, and there are many other new people here too -I wanted to once again share a view on the 'new' ProEFA liquid you may not have thought of from a cut from an archived post which cleared up a confusing thread of posts about accurate supplementation of EFAs using liquid vs capsules: " Due to the confusion of what dosage of the oils since the introduction of the ProEFA oil in the bottle about a month or so ago (vs. the capsules which are what most of us have used for years up to the bottle oil) below is a reply about dosage of straight oil from developmental pediatrician Dr. Marilyn Agin http://www.cherab.org/information/speechlanguage/advisoryagin.html ....Around just 1/4 a teaspoon of ProEFA oil will be around the same as 'one' capsule of ProEFA since " 1/2 teaspoon of ProEFA oil is close to the equivalent of about 2 capsules of ProEFA " Sadly -it still does appear that unless NN offers a dropper that clearly has lines that state " one capsule " " two capsules " or something like that as a guide as I suggested -that with use of the oils -those of you using the straight oil will no longer be able to share with all of us accurately -or even know yourself - what dosage you are giving your child you are finding to be " too high " " too low " or " perfect! " You will only be able to estimate. The best we can advise now with the oil is that " 1/2 teaspoon of ProEFA oil is close to the equivalent of about 2 capsules of ProEFA " As I always say -brand name does NOT matter -only Formula Dosage Quality However we can use brand names as an easy to understand guide. In our group we have found ProEFA -Efalex and EyeQ to be the three best Omega 3 -6 oils, with ProEFA being the best so far overall due to " it works best at low dosage " . With ProEFA -here is the dosage which we as a group have found to be effective over the past number of years with hundreds and thousands of children, and that has been posted over and over at the CHERAB list. If any of you can figure out a great way to translate this to the use of straight oil without the capsules as a guide -please let us all know. In the meantime - will one of the pharmaceutical R & D people in this group design an EFA patch already so we can just slap that on our children instead of all of this?!! To start: DHA -around 100 mg EPA -around 150 -250 mg GLA -around 30-50 mg The only dosage we as a group know to be effective is to start with one capsule of ProEFA a day -then go to two capsules of ProEFA a day when you see a plateau in about 6 months to a year -then instead of going to three capsules of ProEFA a day when you see a plateau again in a year or more -you stay with the two ProEFA capsules a day and add one capsule of ProEPA. Just a reminder that the ProEFA oil needs to be refrigerated once opened. Also once opened it has a shelf life of 2 months. ProEFA capsules have a shelf life of almost 4 years -do not have to be refrigerated once opened -and can be carried in your pocket if you want. You can do this with the oil but you will smell funny. I chose the ProEFA capsules over the liquid. As always -they work the best at the lowest dosage. " EFA tips and sources http://www.cherab.org/information/dietaryeffects/efatips.html http://www.cherab.org/information/dietaryeffects/efabasics.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 how has it been going with the fish oil the way you are doing it now? Are you giving it before or after the meal...and any changes? (Haven't you been giving it to your child for around a year?) To answer your question in short 1. From what I know it doesn't matter. 2. No because mercury binds to protein -the muscle of the fish so it's not in the oil. 20/20, Consumer Reports and the NIH have all tested various OTC fish oils anyway and this point has been proven again and again. The following archive goes into this a bit more: The following is an old EFA archive from this group which has worked in this group for years so it's up on the Speechville message board. Recently there are a few members who are staying with the same formula -but raising the dosage to multi dosing two to three times a day and anecdotally they are observing even more dramatic and accelerated surges. Due to recent messages I want to clarify that the following was for the average new member who in the majority will have a child that is 2 to 4 years old. If your child is around 5 or older you will probably want to start at one a day just for a week or so and then increase right away to two. Not that you won't see any changes on the lower dosage but for older children the one a day (which is comparable to the dosage in infant formula) may not be enough. Also most see the first plateau somewhere between 3-6 months and the second somewhere between 6 months to a year following the lower dosage way. We don't know yet as a group if and when plateaus are reached with higher dosage supplementation. If however you hit a plateau at any point -you probably want to look to increase dosage -especially if you are at one a day with a 4 year old say. You can run by your child's MD -start with the basic and observe and go from there. With fish oils typically the changes are within one day to three weeks almost across the board -so you'll know pretty soon whether it's " working " ! Let us know the good news! From http://www.speech-express.com/boards/viewtopic.php?t=620 What fish oil should I give to my baby? What fish oil should I give to my child? The confusion is more the brand names than the formulas. In actuality there really is no such thing as a " children's EFA " perfect for all children yet. However fish oils can be marketed to children by making fun flavorings and smaller capsules. Most of the parents I know squeeze the oil out of the capsule anyway -so that's besides the point for most of our group. EFAs are now in baby formula and food, and EFAs come and are used in a variety of formulas for children for various reasons. Mainly we hear about the use of them for healthy brain development in regards to children -but they are even proven to help prevent asthma http://www.theage.com.au/articles/2004/02/20/1077072840758.html And they may be coming to a school lunch near you -if you live in an area of savvy parents http://www.valleystar.com/localnews_more.php?id=51945_0_19_0_C Regarding your specific question: (and to answer your question Chris) ProEFA is an Omega 3 (DHA and higher EPA) formula with a small amount of Omega 6 (GLA) The Omega 3 in the ProEFA is from fish oil - not from the liver of the fish -so no vitamin A. Only fish oil made from the liver of the fish contain vitamin A. Children's DHA is cod liver oil which since it's from the liver of the cod fish, it naturally contains Vitamin A. Cod liver oil only contains Omega 3 (DHA and EPA) about that point: " Most of our experience is with one, 1.0 gram capsule of ProEFA (Complete Omega) that contains 144 mg EPA, 99 mg DHA and 40 mg of GLA. We know that this combination appeared to work well. There were some other supplements used but we could not conclude anything about them. I can only say that both EPA and DHA are important and GLA appears to have an additional positive effect on speech. ALA, linoleic and oleic acids in " The Total Omega " contribute very little to the EPA, DHA, and GLA effect. I see at least 2 possibilities that you could use if you decide to make the transition from short-chain omega-3s in plants (flax seed oil containing alpha-linolenic acid or ALA, C18:2n-3) to the long- chain mixture of EPA (C20:5n-3) and DHA (C22:6n-3). These are DHA Jr. (30 mg DHA and 20 mg EPA in a serving unit) and Coromega (350 mg EPA and 230 mg DHA). Both of these have been anecdotally successful in the past. Coromega can be divided in two and taken one half in the morning the other in the evening. If you choose this mode you will provide your son with the equivalent EPA+DHA of 2 ProEFA capsules per day without the GLA. Flax seed oil or freshly ground flax seeds are an excellent source of the essential omega-3 alpha-linolenic acid (ALA or LNA) which is the quintessential parent member of the omega-3 family of essential fatty acids (EFAs). The body transforms it into EPA and the EPA into DHA. This transformation is very inefficient (the yield is about 10%) and is further inhibited by over consumption of omega-6 fatty acids from most vegetable oils or certain disease states. Therefore, it is advisable to independently consume also ready made EPA and DHA from good quality fish of from high quality fish oil supplements. Some recommended intakes are listed on the Introductory lecture on EFAs that I gave at the First Conference on Therapy of Verbal Apraxia, July 23-24, 2001, town, NJ. ( http://www.cherab.org/news/scientific.html ) The CHERAB Foundation's positive research results on potential improvement in speech following EFA supplementation are based on the use of ProEFA (Complete Omega) and that contains also another essential fatty acid, GLA which is an omega-6 fatty acid. The latter appears to be beneficial to children with apraxia. It is not present in flax seed/flaxseed oil. None of these materials present with any known side effects or known toxicity in an otherwise healthy person. Nevertheless, we advise every user of supplements to use them under medical supervision. We don't know your child and we cannot provide you with medical advice. Sincerely, Katz, Ph.D. " About mercury and fish oil (vs. eating fish) " Fish oils have been tested for various heavy metals like mercury and there has been enough preliminary proof through studies, as well as theory from reputable sources, that as I've posted many times I've heard that the oils from fish may be the safest way to get the benefits of the EFAs without the toxins due to the fact that mercury etc. binds to the proteins/muscles of the fish. " Measurement of mercury levels in concentrated over-the-counter fish oil preparations: is fish oil healthier than fish? " " CONCLUSIONS: Fish are rich in omega-3 fatty acids, and their consumption is recommended to decrease the risk of coronary artery disease. However, fish such as swordfish and shark are also a source of exposure to the heavy metal toxin, mercury. The fish oil brands examined in this manuscript have negligible amounts of mercury and may provide a safer alternative to fish consumption. " Division of Laboratory Medicine, Department of Pathology, Massachusetts General Hospital and Harvard Medical School, Boston, Mass 02114, USA. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve & db=PubMed & list_uids=1\ 4632570 & dopt=Abstract And one other thing to keep in mind for those like me who do eat both fish and take fish oil, there are toxins in the fish you eat that won't be in the oil For example while mercury etc. binds to the protein (muscle of the fish) so it's not in the oil of the fish. From what I've read -the largest problem with fish oil itself is rancidity. Oxygen and fish oil doesn't mix well. Consumer Reports had this to say (most likely because toxins in many cases bind to the protein and most oils are not tested for rancidity) " Consumer Reports tested 16 top-selling fish-oil pills which, like other supplements, aren't closely regulated by the FDA. Consumer Reports' Metcalf says the test results are reassuring, " We found that all 16 brands that we tested had the amount of Omega-3s that they said they did, which is good news. And, we don't always find that with supplements. " Since fish can contain toxins, Metcalf says Consumer Reports also checked the supplements for purity, " We tested for three kinds of toxins that often appear in fish - mercury, dioxin, and PCBs. " Testers didn't find significant levels of toxins in any of the pills tested, so you don't have to worry about contaminants. " http://abclocal.go.com/kfsn/features/consumerwatch/consumer_070303_om ega3.html " The omega-3 fatty acids offer some unique benefits, should they prove to be truly effective mood stabilizers. The advantages of the omega-3 fatty acids as mood stabilizers include the apparent acute efficacy in both the manic and depressive phases of bipolar disorder, their lack of toxicity, as well as high patient acceptance. In addition, omega-3 fatty acids confer some health benefits during chronic use, such as possible reduction in the risk of a fatal myocardial infarction. In addition, the omega-3 fatty acids have no documented adverse drug interactions, and appear to be safe (and possibly beneficial) in pregnancy and in children. " http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html " I had the wonderful opportunity to hear ph Hibbeln, M.D., Chief, Outpatient Clinic National Institute of Alcoholism and Alcohol Abuse, NIH, Bethesda, land at the First Apraxia Conference http://www.cherab.org/news/scientific.htm lecture about the importance of PUFA -especially during pregnancy when you are growing a brain inside you. If you don't consume enough PUFAs while pregnant -the babies body will pull it from the mother's body. It's his theory and research as to why so many mom's experience post partum depression. http://www.beachpsych.com/pages/cc46.html In additionit is proven that the PUFAs are important for cognitive ability. http://neuroscience.nih.gov/Lab.asp?Org_ID=352 Here is a quote from the US Department of Agriculture, Environmental Chemistry Laboratory, Agricultural Research Service, 20705, Beltsville, MD, USA Brain-specific lipids from marine, lacustrine, or terrestrial food resources: potential impact on early African Homo sapiens. The polyunsaturated fatty acid (PUFA) composition of the mammalian central nervous system is almost wholly composed of two long-chain polyunsaturated fatty acids (LC-PUFA), docosahexaenoic acid (DHA) and arachidonic acid (AA). PUFA are dietarily essential, thus normal infant/neonatal brain, intellectual growth and development cannot be accomplished if they are deficient during pregnancy and lactation. Uniquely in the human species, the fetal brain consumes 70% of the energy delivered to it by mother. DHA and AA are needed to construct placental and fetal tissues for cell membrane growth, structure and function. Contemporary evidence shows that the maternal circulation is depleted of AA and DHA during fetal growth. Sustaining normal adult human brain function also requires LC-PUFA.Homo sapiens is unlikely to have evolved a large, complex, metabolically expensive brain in an environment which did not provide abundant dietary LC- PUFA. http://www.unl.ac.uk/ibchn/e_Link/cbpbbmb2002.htm " The omega-3 fatty acids offer some unique benefits, should they prove to be truly effective mood stabilizers. The advantages of the omega-3 fatty acids as mood stabilizers include the apparent acute efficacy in both the manic and depressive phases of bipolar disorder, their lack of toxicity, as well as high patient acceptance. In addition, omega-3 fatty acids confer some health benefits during chronic use, such as possible reduction in the risk of a fatal myocardial infarction. In addition, the omega-3 fatty acids have no documented adverse drug interactions, and appear to be safe (and possibly beneficial) in pregnancy and in children. " http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html Here is an archive answer to answer more on EFAs: " I will use the following examples with the brand name ProEFA since that's the formula/dosage that seems to work the best for most of us (Efalex and EyeQ are similar Omega 3/6 formulas that also have good reports) For any brand name of Omega 3/6 formula -you could make the same formula by mixing together fish oil and either primrose or borage seed oil if you prefer -or as found -another brand name with a similar formula (and I hope also a good quality) If you mix two fish oils together which is fine if you know why you are doing that: Look at the amount of DHA, EPA (Omega 3) and the amount of GLA (Omega 6) and then add them all together to see what formula and dosage you now have is. So for those of you that ask - you can mix any brand names together you would like -however what you could change is the three things above (dosage, formula and *quality (*if one of the companies you start using has rancid oils which is not uncommon when it comes to fish oils -so make sure all brands you use are pure) Keep in mind in anecdotal feedback done by parents from all over through CHERAB -that pure Omega 3 or pure Omega 6 either showed no results -or very little results in almost all cases. Pure Omega 3 would include pure cod liver oil, fish oil, flax seed oil without any Omega 6. So even though there is only a small amount of GLA (Omega 6) in the formulas we found to be successful -GLA appears to be important to be there for some reason. GLA has anti-inflammatory properties which perhaps enable to DHA and EPA to get to where it's needed in the brain? Dosage of one capsule a day ProEFA that at the lowest dosage appears to be the best - 148 mg EPA 99 mg DHA 40 mg GLA Here is what many of us have found to be the best plan anecdotally: ....start with the basic formula, one ProEFA a day, we saw surges in a few days to three weeks which continued for months - we then reached a plateau after around 6 months. At this point we raised the dosage to two capsules of ProEFA a day and once again had those surges which lasted again for months. When we reached the next plateau after around a year, instead of going to three a day - we squeezed 1/2 to one capsule of ProEPA into the 2 capsules of ProEFA and for almost all of us that try -that created another surge. Over time -you may raise the dosage up higher -and you may slightly change the formula to raise the Omega 3 over the Omega 6 ratio. Most found raising the EPA vs. the DHA or GLA to be best -but you need to know your own child, keep track of his progress through both your own observations and that of the professionals -with the advice of your child's doctor -to know what is best for him/her. There is much more in the archives both here -as well as more information at http://www.cherab.org/information/indexinformation.html#diet http://www.speechville.com Since I receive lots of calls about this -I wanted to list the most common changes in an apraxic or other speech disordered child on EFAs from what I've read and heard and seen. 1. Increase in babbling or attempts at sounds. 2. Increase in imitation. Changes also can be looked for in (what you see as positive or negative) sleep attention appetite focus behavior stools Next will come a breakthrough of something you were probably working on for a bit -so you will be excited but will think " Well -I don't want to get my hopes up we were working on that for awhile now - maybe it's just a coincidence " However after the second or third surge in a short period of time -and then another - you are pretty sure things are different and it's at this point the professionals and the rest of the family and your friends are noticing it too - maybe about two to three weeks now. OK -the next stage is pure elation and hope -you see the light and no longer feel as desperate and want to share this new information with everyone and anyone. As the months go by and your child continues to progress at a much more rapid rate -you may even start to doubt the original diagnosis -especially if you started EFA supplementation at two -and perhaps the SLP that diagnosed the apraxia who also was at first excited is starting to second guess if the original diagnosis was correct as well. Unless you have to stop the ProEFA (or other Essential Fatty Acids) and literally have the chance to see the regression of acquired speech and language skills, attempts, and changes in behavior like we did with Tanner (and/or have a chance to again witness the second surge when your child is put back on the EFAs) -that doubt will probably remain somewhere in your mind and in others around your child. So the " I told you that he would start talking when he was ready " comments should be expected of course. Up to this point is understandable to me -it's the point after this that is confusing to me, and perhaps not the best stage for our children and for raising awareness or having research done to find out what is happening to our children and why. Perhaps because we have truly hit a paradigm shift... As Dr. Agin states the EFAs actually appear to be in some ways " curing " the apraxic child -even those diagnosed with severe oral and verbal apraxia, hypotonia, sensory and behavioral issues. Especially those started at younger ages. The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either... Some of the parents become more focused on other everyday activities with their child and start to drift away from the support sources. Problem with this attitude is that unless your child is really up to speed on all aspects of speech and language, the support sources that helped in the beginning will still benefit your child today. ProEFA alone is not the only answer and until we know how and why it works (or why in a handful of children it doesn't) we can't improve on it " Know there is lots of information here -but if you have to learn just one thing from all of this it's right up on top -there is always hope! From: " kiddietalk " <kiddietalk@...> Date: Mon Feb 14, 2005 12:59 pm Subject: Re: Question about Fish oils Hi Sara -use the liquid if you have it. Also the shelf life isn't long so use it quick anyway (if your child doesn't mind the taste of it-mine does) Some here may like the liquid -but the capsules are better in my opinion for various reasons. from a recent post: And if taste is an issue -you may want to try capsule. My son and others here do taste the difference between capsule and liquid. Could have to do with exposure to oxygen? " Liquid vs. capsule? Hands down my vote is capsule because it lasts way longer, easy to control dosage, easy to travel with, not a big deal if you spill the bottle over. Passed Tanner taste test (liquid didn't) And..yes...you can just use a pin and " poof " like magic the capsule is 'oil' but the oil without a capsule -can't turn it into a capsule. resources for EFAs 'Hi ! That is great news about the surges you are seeing so far in your child within the typical one to three week period. Because you are new to the group, and there are many other new people here too -I wanted to once again share a view on the 'new' ProEFA liquid you may not have thought of from a cut from an archived post which cleared up a confusing thread of posts about accurate supplementation of EFAs using liquid vs capsules: " Due to the confusion of what dosage of the oils since the introduction of the ProEFA oil in the bottle about a month or so ago (vs. the capsules which are what most of us have used for years up to the bottle oil) below is a reply about dosage of straight oil from developmental pediatrician Dr. Marilyn Agin http://www.cherab.org/information/speechlanguage/advisoryagin.html ....Around just 1/4 a teaspoon of ProEFA oil will be around the same as 'one' capsule of ProEFA since " 1/2 teaspoon of ProEFA oil is close to the equivalent of about 2 capsules of ProEFA " Sadly -it still does appear that unless NN offers a dropper that clearly has lines that state " one capsule " " two capsules " or something like that as a guide as I suggested -that with use of the oils -those of you using the straight oil will no longer be able to share with all of us accurately -or even know yourself - what dosage you are giving your child you are finding to be " too high " " too low " or " perfect! " You will only be able to estimate. The best we can advise now with the oil is that " 1/2 teaspoon of ProEFA oil is close to the equivalent of about 2 capsules of ProEFA " As I always say -brand name does NOT matter -only Formula Dosage Quality However we can use brand names as an easy to understand guide. In our group we have found ProEFA -Efalex and EyeQ to be the three best Omega 3 -6 oils, with ProEFA being the best so far overall due to " it works best at low dosage " . With ProEFA -here is the dosage which we as a group have found to be effective over the past number of years with hundreds and thousands of children, and that has been posted over and over at the CHERAB list. If any of you can figure out a great way to translate this to the use of straight oil without the capsules as a guide -please let us all know. In the meantime - will one of the pharmaceutical R & D people in this group design an EFA patch already so we can just slap that on our children instead of all of this?!! To start: DHA -around 100 mg EPA -around 150 -250 mg GLA -around 30-50 mg The only dosage we as a group know to be effective is to start with one capsule of ProEFA a day -then go to two capsules of ProEFA a day when you see a plateau in about 6 months to a year -then instead of going to three capsules of ProEFA a day when you see a plateau again in a year or more -you stay with the two ProEFA capsules a day and add one capsule of ProEPA. Just a reminder that the ProEFA oil needs to be refrigerated once opened. Also once opened it has a shelf life of 2 months. ProEFA capsules have a shelf life of almost 4 years -do not have to be refrigerated once opened -and can be carried in your pocket if you want. You can do this with the oil but you will smell funny. I chose the ProEFA capsules over the liquid. As always -they work the best at the lowest dosage. " EFA tips and sources http://www.cherab.org/information/dietaryeffects/efatips.html http://www.cherab.org/information/dietaryeffects/efabasics.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 I've read that if they stink that's a sign that they aren't fresh. Try Nordic Naturals brand -- they have lemon added so they are quite good and no burps. Fish oil is very delicate -- air, heat, etc can damage it. Many people also supplement with antioxidants to avoid lipid peroxidation. > > Hi - I have started my child -3 on fish oil vitamins this week I > was told no more 1000mg a day .I have just been breaking them open > (Boy do they stink !!!!) and giving him 850mg at one time by squeezing > it in his orange juice is that okay and do I need to find the ones > that actually are 1000mg or is the 850mg good.I 'am all new to this he > has just been recently dx with severe verbal apraxia and very mild > oral apraxia. Any advise be let me know!!!! > > > Thanks alot Merci - son age 3 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 I've read that if they stink that's a sign that they aren't fresh. Try Nordic Naturals brand -- they have lemon added so they are quite good and no burps. Fish oil is very delicate -- air, heat, etc can damage it. Many people also supplement with antioxidants to avoid lipid peroxidation. > > Hi - I have started my child -3 on fish oil vitamins this week I > was told no more 1000mg a day .I have just been breaking them open > (Boy do they stink !!!!) and giving him 850mg at one time by squeezing > it in his orange juice is that okay and do I need to find the ones > that actually are 1000mg or is the 850mg good.I 'am all new to this he > has just been recently dx with severe verbal apraxia and very mild > oral apraxia. Any advise be let me know!!!! > > > Thanks alot Merci - son age 3 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 I use fish flax & borage, omega 3/6/9. I squeeze 2 capsules into grape juice (in a dixie cup..otherwise you can't get the smell off the glass!). - In , " verosol9 " <sol9@...> wrote: > > Hi my name is and I have a 6yr. old son with verbal apraxia. > I have heard that fish oil really works with apraxic kids. That's > anyone knows wich kind I should buy? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 That is fantastic ! Very happy for your family that you're seeing great results !! I also just started seeing great results with ProEFA and ProEPA addition.. Also wanted to ask you.. what do you mean by GERD/vomiting kids ?? My son had a period of months where he vomitted in the night, almost everynight or pretty frequently and he didn't even wake up. The doctors did EEGs to check for seizures but it was fine.. I wonder what this could be. He has never seen a GI. So when you mentioned that I was curious.. Thanks, Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 vimiting and heartburn, which the kids can't tell us are usually a response to an allergin. I would see a GI to rule in or out. I would take 's malabsorption stuff. rainydev wrote: >That is fantastic ! Very happy for your family that you're seeing >great results !! I also just started seeing great results with ProEFA >and ProEPA addition.. > >Also wanted to ask you.. what do you mean by GERD/vomiting kids ?? My >son had a period of months where he vomitted in the night, almost >everynight or pretty frequently and he didn't even wake up. The >doctors did EEGs to check for seizures but it was fine.. I wonder what >this could be. He has never seen a GI. So when you mentioned that I >was curious.. > >Thanks, > >Annie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2007 Report Share Posted November 9, 2007 OK , please help. I need to deal with the autoimmune issue in my speech kid. Are you saying the Omegabrite fits the bill? > > I wrote a couple of days ago asking about DHA. Well, after a three day trial, I gave up that > experiment. At the risk of everyone saying " I told you so " -- I really felt the speech went > downhill fast -- very slushy. For the first time in years, I spent my day saying, " Huh, what did > you say? " > > I ran out of my regular fish oil and so this morning I gave Omegabrite, which I take. It is 7:1 > EPA/DHA, and has Omega 6 (though I don't understand how because it has no evening > primrose oil or borage oil). Anyway, I noticed an immediate improvement. I think it might > have even been better than on our regular (we use Eye Q Smooth or Nordic Naturals). Has > anyone else tried Omegabrite? One capsule as 350 mg EPA and 50 DHA -- and a small > amount of Omega 6. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2007 Report Share Posted November 9, 2007 I don't know! It does have Omega 6, but as a byproduct of Omega 3 production? This confuses me because wouldn't that be true of all fish oil then? And all fish oil does not have it -- Carlsons lists only Omega 3. I bought Carlsons for me after I was told not to use Omega 6 , if you ar reading, could you check out Omegabrite? I checked archives and I found that it was compared to Coromega (only Omega 3), but then someone said no -- it has omega 6 -- but does it have the right kind of Omega 6 (I don't even know if there is a right and wrong kind of Omega 6!) Help -- anybody???? > > > > I wrote a couple of days ago asking about DHA. Well, after a three > day trial, I gave up that > > experiment. At the risk of everyone saying " I told you so " -- I > really felt the speech went > > downhill fast -- very slushy. For the first time in years, I spent > my day saying, " Huh, what did > > you say? " > > > > I ran out of my regular fish oil and so this morning I gave > Omegabrite, which I take. It is 7:1 > > EPA/DHA, and has Omega 6 (though I don't understand how because it > has no evening > > primrose oil or borage oil). Anyway, I noticed an immediate > improvement. I think it might > > have even been better than on our regular (we use Eye Q Smooth or > Nordic Naturals). Has > > anyone else tried Omegabrite? One capsule as 350 mg EPA and 50 > DHA -- and a small > > amount of Omega 6. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 My son only takes 3 Nordic natural Pro EFA, is there any way to bulk up the child's stool??? **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 It is not a loose stool,like diarrhea, it is just from the fish oil, when I increased to three capsules, that is when I noticed it. **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 If his stool is loose you should consider the malabsorption testing outlined in the archives by Dr. . You do not want to miss a health issue. > > My son only takes 3 Nordic natural Pro EFA, is there any way to bulk up the > child's stool??? > > > > **************************************Check out AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007? NCID=aoltop00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 Hi , My knee was so painful I couldn't walk. One think I love to do and try to do everyday is walking. My friend who is great about vitamins told me to take fish oil. Within ten days of starting to take it, I was back out walking. My doctor suggested I take it twice a day to help with cholesterol. Which I do if I remember the second time. Hope you have luck with it. -------------- Original message -------------- From: " " <jaayimee@...> Is anyone taking high doses of fish oil and do you find it helps? Also, what kind are you taking and where do you buy it? I've been reading the Anti inflammation Zone and he's kind of making it seem that the ones you would get most places are unacceptable even though they are tested for mercury and purified. I'm really wanting to try this s was just curious if it's helped anyone here. __________________________________________________________ Beauty School Programs - Get the career you've always wanted. Click Now. http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4vHBNTh3eCMOJYKbUaRK22XGjOt\ UFVoZiBengHwzQS0ikOSL/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 I take it twice a day also to help with cholesterol. I don't know if it does anything for my RA or not. I just take the kind that WalMart has. Sue On Saturday, June 7, 2008, at 10:30 PM, lindacaimi@... wrote: > Hi , > My knee was so painful I couldn't walk. One think I love to do and > try to do everyday is walking. My friend who is great about vitamins > told me to take fish oil. Within ten days of starting to take it, I > was back out walking. My doctor suggested I take it twice a day to > help with cholesterol. Which I do if I remember the second time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Thank you. Because I'm having pain the book suggests I take 7.5 grams a day so with 1,000 mg tables I would take at least 7 a day and back off from there when things are under control. I'm going to give it a shot and see what happens. It also says that once the inflammation is under control to take a maintenance dose of 2-3 pills a day. I'm going to pick some up tomorrow, I'll let you know what happens. High doses of fish oil can't harm you can it? Wouldn't it be like eating a ton of fish? .............................. Hi , My knee was so painful I couldn't walk. One think I love to do and try to do everyday is walking. My friend who is great about vitamins told me to take fish oil. Within ten days of starting to take it, I was back out walking. My doctor suggested I take it twice a day to help with cholesterol. Which I do if I remember the second time. Hope you have luck with it. I take it twice a day also to help with cholesterol. I don't know if it does anything for my RA or not. I just take the kind that WalMart has. Sue ____________________________________________________________ Click here for financial aid options. Quick and Easy. http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4vDe4E2L33Ha7y7BzBbuy7Rp0xH\ qEZneXAqj49t1qj6tLjx9/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 , Do ask your physician if you can take fish oil. Large amounts can thin your blood. Not an MD On Sun, Jun 8, 2008 at 7:53 AM, <jaayimee@...> wrote: > Thank you. Because I'm having pain the book suggests I take 7.5 grams a day > so with 1,000 mg tables I would take at least 7 a day and back off from > there when things are under control. I'm going to give it a shot and see > what happens. It also says that once the inflammation is under control to > take a maintenance dose of 2-3 pills a day. I'm going to pick some up > tomorrow, I'll let you know what happens. High doses of fish oil can't harm > you can it? Wouldn't it be like eating a ton of fish? > Quote Link to comment Share on other sites More sharing options...
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