Re: saliva production

[Guest guest]

Re: vocal chord

Bradley:

Aubrey...14months?? Wow, time flies. When they did the MRI did they look at

the cranial nerves? I think it is nerve VII the facial nerve to motor of

submaxillary and sublingual salivary glands. Just curious why the children

with CHARGE have the incredible saliva production. I guess the option to

surgery would have been to teach her to projectile spit like the older kids

I know!!X~! There was an Applied Kinesiologist that worked with the

drooling aspect of saliva successfully with some Down's Syndrome Kids.

(wasn't a life threatening thing of course) He worked alot on the nerves

even from inside the mouth. He is a chiropractor as well and works also

with Cranial Sacral Therapy. He was down Casey's way, on the Santa Cruz,

San line in California. (Dr. ) I'm thinking of those who

mentioned a hesitation on surgery on those glands.

Ann Gloyn, DB Specialist, CANADA

> From: Bradweis2@...

>

> Our daughter, Aubrey (14 months) had a drool procedure done last month in

> Cincinnati. They removed the two major glands under her jaw, tied off the

> two major ones in her mouth (in front of ears), and removed her adnoids

which

> were enlarged. Our main reason for doing it was that Aubrey aspirates her

> saliva (shown in a FEAS study) and also has an enormous amount of

secretions

> that pool in the back of her mouth. The hope is that she does not swallow

> well because she secretions setting in the back of her mouth/throat area

for

> so long have caused her to lose sensation back there and the sensation to

> swallow has diminished. With the drool procedure, if there is not

secretions

> pooling back there maybe she will regain the sensation again and swallow -

> she did swallow at one time, several months ago. She also has a trach,

and

> this is the first step for us to be able to get rid of the trach someday.

> She had the surgery on a Friday afternoon and we brought her home the next

> day. She was swollen pretty bad and it really sucked having to change the

> dressing under the jaw (they make 2 incisions, one on each side) along

with

> the trach being in the way. We only had to have a dressing on it for a

> couple days.

>

> The results we've seen so far are that she does not drool out of her mouth

> anymore, but she still has a lot of secretions in her trach, and they are

> thicker. We are still hoping that those will dry up some, since it hasn't

> been a month yet since the surgery. We are continuing oral therapy trying

to

> get her to swallow better, but haven't seen any significant results yet.

>

> Bradley

> father to Aubrey (14 months ChARgE)

>

> > For information about the CHARGE Syndrome Foundation or to become a member

please contact marion@....

>