Guest guest Posted December 23, 2008 Report Share Posted December 23, 2008 , Thanks for posting this. I have spoken to one of the family members a little while ago and one problem is is to sick to travel. The website is http://www.caringbridge.org/visit/angelsforalex It is one of those cases you just don't know what to do. KC --- In , <brianc8452@...> wrote: > > I wanted to share this story. They are asking newspapers around the country to publish this letter on January 2. is paralyzed and has had many tests, but they can't find a cause. She has had several genetic tests and all have been negative. and her family were exposed to toxic mold in their home in 2004. Maybe that's what caused her paralysis. Maybe not. If you have any ideas, please contact her family. > ******************************** > Hi, my name is andria Hermstad but everyone calls me .I have an identical twin sister named Jaci and we are 15 years old.I was always healthy but for almost 4 years now, I have been fighting an illness that nobody seems to know what it is or why it is happening to me.I live in Storm Lake, Iowa and I am paralyzed.I have to use a ventilator to breathe through a hole in my throat which sometimes gets plugged and I can't breathe.I cannot swallow food anymore so my diet consists of liquids through a tube in my stomach. My mind still works fine and I understand everything that is going on around me.I can't speak either, so my mom is helping me to put my feelings on paper. > > Jaci and I used to love playing sports, riding horses, and snowmobiling.When I turned 11, I began having trouble moving my left arm.By the end of the year, I could no longer walk..We were told to leave our house because the cause might be environmental, so we left… we left everything!Our dog, Gracie, couldn't even come with us.After 9 months and being in 3 different hospitals, I finally went home. > > Since my illness began, we have met so many caring people.We are very grateful for all those who have reached out and shared whatever they could give.I am very thankful for those who have tried to help me.But at the end of each day…I am still here. > > Many times I want to scream, but I have no voice.Many times I want to hide away in my room, but I cannot move. > I want to hug my family and tell them I love them, but I can't. > > I can still move a little corner of my mouth to answer " yes " questions. > I can still cry and tears can still roll down my face, but I cannot wipe them away. > It takes a long time to be able to communicate with my parents.Many times it's very frustrating to get my thoughts across and then for someone to understand me.What is more frustrating is why do the doctors and researchers we have written to and who have the capability to help me, choose not to help me – like I don't exist? > > I want to do so much but because I am trapped inside my body, I can't. > > I have been ignored by almost everyone who has the power and knowledge to help me.I used to watch medical mystery shows and was always overwhelmed in seeing how a doctor on the show would come forward and do a little extra to save/help their patient.I don't know why someone won't do that for me…?What I do know is that my illness is " atypical " and not the obvious, which seems to be why doctors are so perplexed, but I can't get their attention to care enough to help me.I just need someone to care.Even Make-A-Wish denied my wish. St. Jude's never even tried to help me. President- Elect Obama met me in my home, took his picture with me and promised to help me, yet I still wait.My own governor looks the other way. Nearly every national foundation and organization my family writes to responds back saying I don't meet " criteria " .Every major news organization we write to ignores me.They must not believe 5 minutes is worthy of helping to save my > life.Has our society come to the point that celebrities become a higher priority than rescuing a child with an extremely rare condition? > > Celebrities, foundations, politicians, physicians, hospitals, and the list goes on, does not find it in their hearts to get back to me. Why? What would you do for your loved one? All I want is someone with the power and knowledge, to help me.I have been rejected because I don't meet criteria…how sick do I have to get to meet " criteria " ? > > Recently, a local charity has offered me and my family support by trying to help bring about awareness to my story in hopes it will save my life before it is too late. I am fighting so hard to survive, and even though my voice is silent, I AM SCREAMING ON THE INSIDE TO BE HEARD! PLEASE help me! So many people have told me they love me and they can show this by contacting everyone they know about me so my voice can be heard. There is strength in numbers.Something as simple as taking a few minutes to send a message to all the people in your mailbox could make a big difference. > > I am also writing big newspapers.I am asking that all newspapers come together for one day to do something that is completely unprecedented;publish the same letter across the country so that all may hear my plea, on the same day, January 2nd;a fresh start to the new year. > > It may only take a few minutes, but sharing my letter with someone, a simple random act of kindness, may very well save my life. Please prayerfully hope that I can celebrate another birthday… another Christmas…the day I prayed I would get to graduate from high school. > > But even more- a miracle to share in God's glory. > > I am respectfully and passionately asking people who have the power to move- to move for me. > > I am asking those who have the ability to scream, scream for me. > > I am asking those who have the capacity to talk, to be my voice. > > > Everybody tells me to, " keep fighting " , so I do.I fight relentlessly…each hour of every day. > > Now, I am asking people to fight WITH me and FOR me. > > I don't know why doctors won't help me…will you? > > Last summer, my family began " 's Army " .Will you join 's Army and help me by contacting my email at:alexsarmy@... suggestions and your ideas on how you can help me?Hopefully, and prayerfully, I can find someone who will be willing to help me. > > Those who pray, please pray for me as my faith in God has helped sustain me in this battle. > > Thank you and God Bless > > > Hermstad > www.caringbridge.org/visit/angelsforalex > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2008 Report Share Posted December 23, 2008 Do they have a local Dr who's willing to work with another Dr? Where is she located? a tigerpaw2c <tigerpaw2c@...> wrote: , Thanks for posting this. I have spoken to one of the family members a little while ago and one problem is is to sick to travel. The website is http://www.caringbridge.org/visit/angelsforalex It is one of those cases you just don't know what to do. KC > > I wanted to share this story. They are asking newspapers around the country to publish this letter on January 2. is paralyzed and has had many tests, but they can't find a cause. She has had several genetic tests and all have been negative. and her family were exposed to toxic mold in their home in 2004. Maybe that's what caused her paralysis. Maybe not. If you have any ideas, please contact her family. > ******************************** > Hi, my name is andria Hermstad but everyone calls me .I have an identical twin sister named Jaci and we are 15 years old.I was always healthy but for almost 4 years now, I have been fighting an illness that nobody seems to know what it is or why it is happening to me.I live in Storm Lake, Iowa and I am paralyzed.I have to use a ventilator to breathe through a hole in my throat which sometimes gets plugged and I can't breathe.I cannot swallow food anymore so my diet consists of liquids through a tube in my stomach. My mind still works fine and I understand everything that is going on around me.I can't speak either, so my mom is helping me to put my feelings on paper. > > Jaci and I used to love playing sports, riding horses, and snowmobiling.When I turned 11, I began having trouble moving my left arm.By the end of the year, I could no longer walk..We were told to leave our house because the cause might be environmental, so we left… we left everything!Our dog, Gracie, couldn't even come with us.After 9 months and being in 3 different hospitals, I finally went home. > > Since my illness began, we have met so many caring people.We are very grateful for all those who have reached out and shared whatever they could give.I am very thankful for those who have tried to help me.But at the end of each day…I am still here. > > Many times I want to scream, but I have no voice.Many times I want to hide away in my room, but I cannot move. > I want to hug my family and tell them I love them, but I can't. > > I can still move a little corner of my mouth to answer " yes " questions. > I can still cry and tears can still roll down my face, but I cannot wipe them away. > It takes a long time to be able to communicate with my parents.Many times it's very frustrating to get my thoughts across and then for someone to understand me.What is more frustrating is why do the doctors and researchers we have written to and who have the capability to help me, choose not to help me – like I don't exist? > > I want to do so much but because I am trapped inside my body, I can't. > > I have been ignored by almost everyone who has the power and knowledge to help me.I used to watch medical mystery shows and was always overwhelmed in seeing how a doctor on the show would come forward and do a little extra to save/help their patient.I don't know why someone won't do that for me…?What I do know is that my illness is " atypical " and not the obvious, which seems to be why doctors are so perplexed, but I can't get their attention to care enough to help me.I just need someone to care.Even Make-A-Wish denied my wish. St. Jude's never even tried to help me. President- Elect Obama met me in my home, took his picture with me and promised to help me, yet I still wait.My own governor looks the other way. Nearly every national foundation and organization my family writes to responds back saying I don't meet " criteria " .Every major news organization we write to ignores me.They must not believe 5 minutes is worthy of helping to save my > life.Has our society come to the point that celebrities become a higher priority than rescuing a child with an extremely rare condition? > > Celebrities, foundations, politicians, physicians, hospitals, and the list goes on, does not find it in their hearts to get back to me. Why? What would you do for your loved one? All I want is someone with the power and knowledge, to help me.I have been rejected because I don't meet criteria…how sick do I have to get to meet " criteria " ? > > Recently, a local charity has offered me and my family support by trying to help bring about awareness to my story in hopes it will save my life before it is too late. I am fighting so hard to survive, and even though my voice is silent, I AM SCREAMING ON THE INSIDE TO BE HEARD! PLEASE help me! So many people have told me they love me and they can show this by contacting everyone they know about me so my voice can be heard. There is strength in numbers.Something as simple as taking a few minutes to send a message to all the people in your mailbox could make a big difference. > > I am also writing big newspapers.I am asking that all newspapers come together for one day to do something that is completely unprecedented;publish the same letter across the country so that all may hear my plea, on the same day, January 2nd;a fresh start to the new year. > > It may only take a few minutes, but sharing my letter with someone, a simple random act of kindness, may very well save my life. Please prayerfully hope that I can celebrate another birthday… another Christmas…the day I prayed I would get to graduate from high school. > > But even more- a miracle to share in God's glory. > > I am respectfully and passionately asking people who have the power to move- to move for me. > > I am asking those who have the ability to scream, scream for me. > > I am asking those who have the capacity to talk, to be my voice. > > > Everybody tells me to, " keep fighting " , so I do.I fight relentlessly…each hour of every day. > > Now, I am asking people to fight WITH me and FOR me. > > I don't know why doctors won't help me…will you? > > Last summer, my family began " 's Army " .Will you join 's Army and help me by contacting my email at:alexsarmy@... suggestions and your ideas on how you can help me?Hopefully, and prayerfully, I can find someone who will be willing to help me. > > Those who pray, please pray for me as my faith in God has helped sustain me in this battle. > > Thank you and God Bless > > > Hermstad > www.caringbridge.org/visit/angelsforalex > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2008 Report Share Posted December 24, 2008 Thank you. I have sent the responses and suggestions to the family at alexsarmy@.... The family is located in Iowa. Please keep those ideas coming. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2009 Report Share Posted January 1, 2009 There are TCM patterns that could account for this. Have they tried acupuncture or Chinese herbology? [] Why is paralyzed? I wanted to share this story. They are asking newspapers around the country to publish this letter on January 2. is paralyzed and has had many tests, but they can't find a cause. She has had several genetic tests and all have been negative. and her family were exposed to toxic mold in their home in 2004. Maybe that's what caused her paralysis. Maybe not. If you have any ideas, please contact her family. ******************************** Hi, my name is andria Hermstad but everyone calls me .I have an identical twin sister named Jaci and we are 15 years old.I was always healthy but for almost 4 years now, I have been fighting an illness that nobody seems to know what it is or why it is happening to me.I live in Storm Lake, Iowa and I am paralyzed.I have to use a ventilator to breathe through a hole in my throat which sometimes gets plugged and I can't breathe.I cannot swallow food anymore so my diet consists of liquids through a tube in my stomach. My mind still works fine and I understand everything that is going on around me.I can't speak either, so my mom is helping me to put my feelings on paper. Jaci and I used to love playing sports, riding horses, and snowmobiling.When I turned 11, I began having trouble moving my left arm.By the end of the year, I could no longer walk..We were told to leave our house because the cause might be environmental, so we left.we left everything!Our dog, Gracie, couldn't even come with us.After 9 months and being in 3 different hospitals, I finally went home. Since my illness began, we have met so many caring people.We are very grateful for all those who have reached out and shared whatever they could give.I am very thankful for those who have tried to help me.But at the end of each day.I am still here. Many times I want to scream, but I have no voice.Many times I want to hide away in my room, but I cannot move. I want to hug my family and tell them I love them, but I can't. I can still move a little corner of my mouth to answer " yes " questions. I can still cry and tears can still roll down my face, but I cannot wipe them away. It takes a long time to be able to communicate with my parents.Many times it's very frustrating to get my thoughts across and then for someone to understand me.What is more frustrating is why do the doctors and researchers we have written to and who have the capability to help me, choose not to help me - like I don't exist? I want to do so much but because I am trapped inside my body, I can't. I have been ignored by almost everyone who has the power and knowledge to help me.I used to watch medical mystery shows and was always overwhelmed in seeing how a doctor on the show would come forward and do a little extra to save/help their patient.I don't know why someone won't do that for me.?What I do know is that my illness is " atypical " and not the obvious, which seems to be why doctors are so perplexed, but I can't get their attention to care enough to help me.I just need someone to care.Even Make-A-Wish denied my wish. St. Jude's never even tried to help me. President-Elect Obama met me in my home, took his picture with me and promised to help me, yet I still wait.My own governor looks the other way. Nearly every national foundation and organization my family writes to responds back saying I don't meet " criteria " .Every major news organization we write to ignores me.They must not believe 5 minutes is worthy of helping to save my life.Has our society come to the point that celebrities become a higher priority than rescuing a child with an extremely rare condition? Celebrities, foundations, politicians, physicians, hospitals, and the list goes on, does not find it in their hearts to get back to me. Why? What would you do for your loved one? All I want is someone with the power and knowledge, to help me.I have been rejected because I don't meet criteria.how sick do I have to get to meet " criteria " ? Recently, a local charity has offered me and my family support by trying to help bring about awareness to my story in hopes it will save my life before it is too late. I am fighting so hard to survive, and even though my voice is silent, I AM SCREAMING ON THE INSIDE TO BE HEARD! PLEASE help me! So many people have told me they love me and they can show this by contacting everyone they know about me so my voice can be heard. There is strength in numbers.Something as simple as taking a few minutes to send a message to all the people in your mailbox could make a big difference. I am also writing big newspapers.I am asking that all newspapers come together for one day to do something that is completely unprecedented;publish the same letter across the country so that all may hear my plea, on the same day, January 2nd;a fresh start to the new year. It may only take a few minutes, but sharing my letter with someone, a simple random act of kindness, may very well save my life. Please prayerfully hope that I can celebrate another birthday. another Christmas.the day I prayed I would get to graduate from high school. But even more- a miracle to share in God's glory. I am respectfully and passionately asking people who have the power to move- to move for me. I am asking those who have the ability to scream, scream for me. I am asking those who have the capacity to talk, to be my voice. Everybody tells me to, " keep fighting " , so I do.I fight relentlessly.each hour of every day. Now, I am asking people to fight WITH me and FOR me. I don't know why doctors won't help me.will you? Last summer, my family began " 's Army " .Will you join 's Army and help me by contacting my email at:alexsarmy@... suggestions and your ideas on how you can help me?Hopefully, and prayerfully, I can find someone who will be willing to help me. Those who pray, please pray for me as my faith in God has helped sustain me in this battle. Thank you and God Bless Hermstad www.caringbridge.org/visit/angelsforalex Quote Link to comment Share on other sites More sharing options...
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