Brain: Re: Re: Why is paralyzed?

[Guest guest]

I have put her picture, video and letter on my website's main page at

www.moldenvironment.com for additional help.  Thanks KC for all that you have

done to help as well.  , thanks for posting this info to us.  Darlene

From: tigerpaw2c <tigerpaw2c@...>

Subject: Brain: Re: [] Re: Why is paralyzed?

Date: Wednesday, December 24, 2008, 8:42 AM

I gave the one family member Dr.Grays contact info. along with many

of the other Dr's that we all know.What happened after that I'm not

sure. They did say,they had a bad experience with one or two of

these Dr's in Texas.

KC

>

> >

>

> > I wanted to share this story.  They are asking newspapers around

>

> the country to publish this letter on January 2.  is

paralyzed

>

> and has had many tests, but they can't find a cause.  She has had

>

> several genetic tests and all have been negative.   and her

>

> family were exposed to toxic mold in their home in 2004.  Maybe

>

> that's what caused her paralysis.  Maybe not.  If you have any

>

> ideas, please contact her family.

>

> > ************ ********* ********* **

>

> > Hi, my name is andria Hermstad but everyone calls me .I

>

> have an identical twin sister named Jaci and we are 15 years old.I

>

> was always healthy but for almost 4 years now, I have been

fighting

>

> an illness that nobody seems to know what it is or why it is

>

> happening to me.I live in Storm Lake, Iowa and I am paralyzed.I

have

>

> to use a ventilator to breathe through a hole in my throat which

>

> sometimes gets plugged and I can't breathe.I cannot swallow food

>

> anymore so my diet consists of liquids through a tube in my

stomach.

>

> My mind still works fine and I understand everything that is going

>

> on around me.I can't speak either, so my mom is helping me to put

my

>

> feelings on paper.

>

> >

>

> > Jaci and I used to love playing sports, riding horses, and

>

> snowmobiling. When I turned 11, I began having trouble moving my

left

>

> arm.By the end of the year, I could no longer walk..We were told

to

>

> leave our house because the cause might be environmental, so we

left…

>

> we left everything!Our dog, Gracie, couldn't even come with

us.After

>

> 9 months and being in 3 different hospitals, I finally went home.

>

> >

>

> > Since my illness began, we have met so many caring people.We are

>

> very grateful for all those who have reached out and shared

whatever

>

> they could give.I am very thankful for those who have tried to

help

>

> me.But at the end of each day…I am still here.

>

> >

>

> > Many times I want to scream, but I have no voice.Many times I

want

>

> to hide away in my room, but I cannot move.

>

> > I want to hug my family and tell them I love them, but I can't.

>

> >

>

> > I can still move a little corner of my mouth to answer " yes "

>

> questions.

>

> > I can still cry and tears can still roll down my face, but I

>

> cannot wipe them away.

>

> > It takes a long time to be able to communicate with my

>

> parents.Many times it's very frustrating to get my thoughts across

>

> and then for someone to understand me.What is more frustrating is

>

> why do the doctors and researchers we have written to and who have

>

> the capability to help me, choose not to help me – like I don't

>

> exist?

>

> >

>

> > I want to do so much but because I am trapped inside my body, I

>

> can't.

>

> >

>

> > I have been ignored by almost everyone who has the power and

>

> knowledge to help me.I used to watch medical mystery shows and was

>

> always overwhelmed in seeing how a doctor on the show would come

>

> forward and do a little extra to save/help their patient.I don't

>

> know why someone won't do that for me…?What I do know is that my

>

> illness is " atypical " and not the obvious, which seems to be why

>

> doctors are so perplexed, but I can't get their attention to care

>

> enough to help me.I just need someone to care.Even Make-A-Wish

>

> denied my wish. St. Jude's never even tried to help me. President-

>

> Elect Obama met me in my home, took his picture with me and

promised

>

> to help me, yet I still wait.My own governor looks the other way.

>

> Nearly every national foundation and organization my family writes

>

> to responds back saying I don't meet " criteria " .Every major news

>

> organization we write to ignores me.They must not believe 5

minutes

>

> is worthy of helping to save my

>

> > life.Has our society come to the point that celebrities become

a

>

> higher priority than rescuing a child with an extremely rare

>

> condition?

>

> >

>

> > Celebrities, foundations, politicians, physicians, hospitals,

and

>

> the list goes on, does not find it in their hearts to get back to

>

> me. Why? What would you do for your loved one? All I want is

someone

>

> with the power and knowledge, to help me.I have been rejected

>

> because I don't meet criteria…how sick do I have to get to

>

> meet " criteria " ?

>

> >

>

> > Recently, a local charity has offered me and my family support

by

>

> trying to help bring about awareness to my story in hopes it will

>

> save my life before it is too late. I am fighting so hard to

>

> survive, and even though my voice is silent, I AM SCREAMING ON THE

>

> INSIDE TO BE HEARD! PLEASE help me! So many people have told me

they

>

> love me and they can show this by contacting everyone they know

>

> about me so my voice can be heard. There is strength in

>

> numbers.Something as simple as taking a few minutes to send a

>

> message to all the people in your mailbox could make a big

>

> difference.

>

> >

>

> > I am also writing big newspapers.I am asking that all newspapers

>

> come together for one day to do something that is completely

>

> unprecedented; publish the same letter across the country so that

all

>

> may hear my plea, on the same day, January 2nd;a fresh start to

the

>

> new year.

>

> >

>

> > It may only take a few minutes, but sharing my letter with

>

> someone, a simple random act of kindness, may very well save my

>

> life. Please prayerfully hope that I can celebrate another

birthday…

>

> another Christmas…the day I prayed I would get to graduate from

high

>

> school.

>

> >

>

> > But even more- a miracle to share in God's glory.

>

> >

>

> > I am respectfully and passionately asking people who have the

>

> power to move- to move for me.

>

> >

>

> > I am asking those who have the ability to scream, scream for me.

>

> >

>

> > I am asking those who have the capacity to talk, to be my voice.

>

> >

>

> >

>

> > Everybody tells me to, " keep fighting " , so I do.I fight

>

> relentlessly… each hour of every day.

>

> >

>

> > Now, I am asking people to fight WITH me and FOR me.

>

> >

>

> > I don't know why doctors won't help me…will you?

>

> >

>

> > Last summer, my family began " 's Army " .Will you join 's

>

> Army and help me by contacting my email at:alexsarmy@ ...

suggestions

>

> and your ideas on how you can help me?Hopefully, and prayerfully,

I

>

> can find someone who will be willing to help me.

>

> >

>

> > Those who pray, please pray for me as my faith in God has helped

>

> sustain me in this battle.

>

> >

>

> > Thank you and God Bless

>

> >

>

> >

>

> > Hermstad

>

> > www.caringbridge. org/visit/ angelsforalex

>

> > http://www.youtube. com/watch? v=Lq6qotHIiCM

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

[Guest guest]

thank you SOOOOOOOOO much for posting this KC!

vicki

I gave the one family member Dr.Grays contact info. along with many

of the other Dr's that we all know.What happened after that I'm not

sure. They did say,they had a bad experience with one or two of

these Dr's in Texas.

KC

[Guest guest]

I also have contacted the family some time ago and given them a lot

of information/suggestions that I had. 's uncle e-mailed me back

a couple of times. Many other people that I know have also been in

contact with the family. V

--- In , Darlene <darlenesb2000@...>

wrote:

>

> I have put her picture, video and letter on my website's main page

at www.moldenvironment.com