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ACM and sleep apnea

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Hi all,

I am new to posting here but have read many of your posts. After my

sons last VP shunt replacement in August he was referred to a sleep

clinic. They found a breathing abnormality which is called central

hypoventilation or complex sleep apnea. Basically he doesnt breathe

in enough oxygen, and doesnt breathe out enough CO2. Now he needs to

be on a BIPAP machine at night to force air into his airway. So I

have googled it some and it seems to be common with ACM. Is anyone

else dealing with this? I would love to hear from you, and hear about

your experience with this.

Thanks for your time

-

(Mom to Josh):

ACM II

Status post decompression

Syringomyelia

Central hypoventilation

Hydrocephalus

VP shunt w/ magnet

Status post tethered-cord release

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