Guest guest Posted August 16, 2012 Report Share Posted August 16, 2012 This reminds me of an event that happened at a SF con a year ago. I've mentioned a friend of mine before, the therapist who specialized in gifted/something else kids. many who are Aspie, who refuses to see her own AS. This sF con has a lot of lifestyle panels, she was leading one on Asperger's. I sat in because I love to hear her speak. I have learned to pass so well that most people have no clue that I'm Aspie. I often disclose when I feel it might help the other person feel better about themselves or their kids. My feeling is, if I could learn to do well, you don't have to feel hopeless. Anyway, in the audience at my friend's panel was a woman I can only describe as a militant Aspie. She was constantly interrupting, making demands that the NT world had to unconditionally accept her, declaring that the world had to change to fit her needs, making blanket statements about all people with AS ... obnoxiousness can't be excused. My friend used every bit of tact she had to calm this woman down, and did manage to get through the entire presentation. But afterwards, she mentioned there were several times she wanted to " out " me, to help show the militant that it's possible to be Aspie and still find a place in the NT world. I had been thinking about speaking up, but never figured out the right time/way to do so. I let my friend know she can out me any time. --Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2012 Report Share Posted August 16, 2012 > Anyway, in the audience at my friend's panel was a woman I can only describe as a militant Aspie. She was constantly interrupting, making demands that the NT world had to unconditionally accept her, declaring that the world had to change to fit her needs, making blanket statements about all people with AS ... obnoxiousness can't be excused. Ah, but it can and often is. This person is only celebrating her neurodiversity and should not be required to conform to NT social norms because she is already perfect, just as she is. <tongue firmly in cheek> Unfortunately, I've met a lot of folks like this within the AS community. Militant, angry, bitter, with a chip on their shoulder a mile wide, and inviting rejection at every turn. Thoroughly obnoxious individuals without a clue who are absolutely convinced of their Rightness, who are inclined to argue every little thing, strongly asserting opinions that are anything but informed. The online variety of these folks can be blocked. The F2F version must be endured. Best, ~CJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2012 Report Share Posted August 16, 2012 > Unfortunately, I've met a lot of folks like this within the AS community. Militant, angry, bitter, with a chip on their shoulder a mile wide, and inviting rejection at every turn. Thoroughly obnoxious individuals without a clue who are absolutely convinced of their Rightness, who are inclined to argue every little thing, strongly asserting opinions that are anything but informed. > > The online variety of these folks can be blocked. The F2F version must be endured. Hi CJ, As we know, some of them spent their childhood and a significant part of their adulthood being scorned and bullied, partly brought on by their own off-the-wall behaviors (though that still does not make it right to bully them.) Then they learn they have AS and finally, they feel they have validation and a community. For many of us, learning about AS opens a door to new understanding, but for some, it simply legitimizes behaviors (and it's important to stress " behaviors " ) that have nothing to do with AS and everything to do with maladaptive life patterns. Unfortunately, the same kind of alienating behaviors that caused them social difficulty are now the ones they wear as a badge of pride. They confuse assertiveness (standing one's ground) with violating others sensibilities and boundaries - over and over again. " That's the way I am, " they now think. " Take it or leave it. " And sadly, a great number of others are going to leave it. I have met wonderful AS people in cyberspace and I know a few adults in real time who, like me, feel they are somewhere on the spectrum. I have only ever met one diagnosed adult face to face though. That was nine years ago. I'm sorry to say, that experience put me off wanting to meet another one face to face for a very long time. She was once a member of this list back on the FEAT server days. She alienated many on the list, not because she attacked members but because she came across as a very disturbed person. You could not *tell* her how she was coming across though. One member (another AS) finally did take her to task, and boom, she left the list, which, frankly, was a relief all around. In these parts, your AS & co-morbid conditions have to be profoundly debilitating before you can get a dx. And though the woman's dx was AS, she was much deeper into the spectrum, probably Kanner's type verbal autistic. Not that that in and of itself would have made her the way she was. Her life had many layers of complication which didn't help. She had lived her life almost as a street person, and her closest friends were mentally ill street people, and this is where she would have gained most of her social learning, which also didn't help. She would never knowingly offend people, but the poor woman would often say things that were unsettling to the point of being frightening. One would be tempted to ask, " are you serious?! " but you did not want to know, because she probably was. She was unemployable due to her social deficits, even though she was very smart, hard-working, meticulous and scrupulously honest. That is such a shame. I thought of her recently when I watched to the video had posted of Ari Ne'man, the part where he was addressing the need to harness the skills of unemployed autistic workers. Unfortunately, you have no opportunity to tell people like her the things that could help them. They are so hypervigilant towards anything that smacks of criticism that they equate it with an attack on the very essence of their being. So they go on blithely offending and alienating, being shunned, and destined to never know why. I found a blog on accepting constructive criticism and if I ever find it again, I'll post it. Both AS and NS struggle with this at times. - Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2012 Report Share Posted August 17, 2012 CJ I so agree with you about being caught in the middle and belonging nowhere! Amen sister! ~ " Nobody realizes that some people expend tremendous energy merely to be normal. " --Albert Camus Sent from my VZW BlackBerry Re: Passing Privilege… > They mentioned “passing privilege”, anyone that can pass for whatever is perceived to be the status quo or normal has a better time in society of fitting in and not being the target of discrimination from either society or from their own group. I think what needs to be added here is that the passing is done largely without effort. Those who need to work at passing don't truly have " passing privilege " . In most situations, those who have the privilege may actually deny it, as for them it's just their baseline normal and nothing special. They may not truly realize that not everyone is extended the same courtesies in the form of an assumption of credibility (until proven otherwise). Male (especially white male) privilege is an excellent example of this phenomenon. It's very common for white men to grouse and moan dismissively about being referred to (by women, minorities, and enlightened white men) as privileged when they don't feel privileged at all. > Do you think “passing privilege” applies to our community? Personally, and this is just my humble opinion, I think it does and keeps many from disclosing. Why would you, when you can have the best of both worlds. Disclosing does not happen once in your lifetime, it happens over and over again with different results. > Comments or thoughts? I would definitely agree that " passing privilege " applies to the neurodiversity community as well. On both sides of the fence. For example, I can navigate the NT world without feeling the need to disclose. For me, disclosure would only create more problems than it solves. I may occasionally disclose particular traits for which I seek increased tolerance, yet I never link them to a diagnostic label that can easily be misunderstood and place me at a disadvantage. Fortunately, I can fake NT well enough (although it is exhausting) that I am extended NT " passing privilege " with the rest of the herd, although the privilege is somewhat compromised by the reality that I cannot live up to NT expectations for very long periods of time without taking a break to recharge my batteries. This can be very stressful, as the need for many breaks can easily position me at the rear of the pack, a major issue in situations that are highly competitive. I openly disclose within the neurodiversity community, as there is no benefit to remaining closeted. Whether I disclose or not, I am often regarded as a NT " outsider " anyway, so I may as well disclose. For me, in order to have " passing privilege " within the neurodiversity community, I feel that I must go out of my way to disclose my Aspie deficits in order to prove myself as being a True Aspie worthy of receiving the True Aspie membership card, instead of just another NT masquerading in AS clothing. As usual, I feel caught in the middle and belonging nowhere. Best, ~CJ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No matter how many mistakes you make or how slow you progress, you are still way ahead of everyone who isn't trying. ------------------------------------ " We each have our own way of living in the world, together we are like a symphony. Some are the melody, some are the rhythm, some are the harmony It all blends together, we are like a symphony, and each part is crucial. We all contribute to the song of life. " ...Sondra We might not always agree; but TOGETHER we will make a difference. ASPIRES is a closed, confidential, moderated list. Responsibility for posts to ASPIRES lies entirely with the original author. Do NOT post mail off-list without the author's permission. When in doubt, please refer to our list rules at: http://www.aspires-relationships.com/info_rules.htm ASPIRES ~ Climbing the mountain TOGETHER http://www.aspires-relationships.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2012 Report Share Posted August 17, 2012 Helen: GREAT post. I would only add that one should not count out environmental elements. We live what we have learned. I have gone back to school late in life and I wish our K-12 educational system in the USA was more efficient. Sadly it is not. One needs a license to fish and do other things, but anyone can be a parent. Being a parent is fundamentally important, as you help shaped the next generation. Sometimes it is like rolling dice as life can be a crap shoot. You never really know what the future will bring or if your decisions at the moment will have lasting effects. My daughter was diagnosed with ADHD at the age of three. She was seen by three professionals in the field and had brain mapping done. They were all wrong. She either out grew the label or it was the wrong label. I think this is the greatest dilemma that families face. How do you know that AS is the right label? You don’t as it is a subjective label. It is a crap shoot for parents and adults. What if your kid is born intersex? Male or female? What is your decision as parents? How do you know what sex to make them? Your daughter loves GI Joe dolls and trains and not Barbie dolls? Is she gay or Trans or just a right brain thinker? Do you encourage her or teach her girls play with dolls and not trains? I think we survive our environment but we carry it with us as baggage sometimes. Life is a spectrum and variant from everything from left to right. I just listened to an audio tape from an author who is publishing another book in the fall. It is titled, “Far from the Tree”, by . Although the audio tape in the article deals with transgendered folks, the book deals with everyone with from trans to autism and suggests that diversity is what binds us together. Does environment make a difference? Do we need to cure these behaviors or embrace and enhance them? What role should parents or partners play and how do you really know what path to follow? Be careful when you roll those dice. There are no right answers, unless you can read the future. Just me. and my 2 cents worth which mean nothing outside of my personal opinion Quote Link to comment Share on other sites More sharing options...
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