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Re: re: my charge page

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Jelena,

I think that's the wish of most of us. To totally take it all away from them

onto us, but on a smaller scale, just to 'be them " for one day. Think how it

would help us in their care/therapies, etc. We might be doing something totally

out of sync with what they need, and we would know it after becoming them for a

day. I just so badly want to know what she goes through, especially with seeing

and listening to her breathe now that her nose is almost completely blocked over

again with scar tissue. I think the rest of it now is not too bad, but I wonder

about that the most, and the other is wondering what a feeding for her feels

like going through her button.

Mom to Kennedy 23 mos old CHARGEr, 10, 8, and wife to Graeme

New Brunswick, Canada

Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716

ICQ #1426476

Re: re: my charge page

And I want to be Logan for at least one day. I had a migraine once, and

could only see out of the lower part of one eye. That's where logan's

vision is. It was very disorienting, but I wondered then if my prayers were

being answered? but that was only the vision. oh what I'd give to know how

it feels to be logan- the whole person, not just the eyes.....

Jelena Salt Lake City UT

Wife to Liam, Mom to Matt 16, Logan 7 (bilateral cleft lip and palate,

partial ACC and SOD: ONH, partial panhypopit, SI disorder and hearing

impaired?), Connor almost 4! and Duncan 18 months

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