Morgellons disease, new article 3/6/2009

[Guest guest]

Morgellons: Expert Says Awareness and Early Treatment are Paramountby Barbara

Minton, Natural Health Editor

March 6, 2009

(NaturalNews) Morgellons is a terrifying disease reaching pandemic

status. Yet because the symptoms of the disease are so bizarre, people

who have it tend to withdraw and become isolated from society. With

mysterious fibers and parasites coming through lesions in their skin,

Morgellons sufferers often live in fear. As a result there is no

pressure on the medical establishment to become educated about the

disease, and most practitioners continue to view it as isolated

instances of delusional parasitosis. Because Morgellons affects

cognitive functioning and the ability to communicate, its victims are

often unable to advocate for themselves, and few are knowledgeable or

willing to advocate for them. Trisha Springstead, a former surgical

charge nurse and clinical educator who now works as an advocate for

patient's rights, has stepped in to fill some of this gap. Both

knowledgeable and experienced with Morgellons, Trisha agreed to be

interviewed to provide the kind of insight into the disease that can

only come from direct experience.

Barbara:

Trisha, thank you for doing this interview. It's time for information

about this disease to become widely available. Hopefully this is a

start. Is incidence of Morgellons confined to the U.S.?

Trisha:

Morgellons is everywhere. It's in Australia, England, Germany. The only

country where people have not reported cases of Moregllons is Iceland.

Dr. Neculai Dulceanu, Head of the Department of Parasitology in Romania

just scraped these from the skin of a 75 year old woman there [shows

slides of fibers and parasites]. He found Rotifers and Collembola in

her skin using a needle aspiration biopsy. As you can see, this shows

how the fibers and parasites are intermixed. When you look deep enough

into the skin, this is what you find.

No one truly knows how

many people have this disease, as many of the persons I have spoken

with have not reported to any database. Most people with Morgellons

seem to think they are the only ones who have it, so awareness is

paramount. It is so important for me to let new patients know they are

not alone, and that there are thousands and thousands of people with

this disease.

What I have seen is that so very many people are

isolating themselves. With increased awareness and validation, I am

beginning to get phone calls from isolated people who have only had

this disease for a short time, like five months. These people get

referred to me by word of mouth and my name is all over the internet.

When people with the disease peruse the internet they find my name and

email me or call me. This is the best time to get patients, because at

this point they just have the crawling and biting sensations. The

disease is not yet full blown. Last week I had 30 calls. I have a phone

number that is in my lab, and young people in their twenties and

thirties are calling. This is because they are internet savvy.

I've

set up an internet reporting site where people can report that they

suspect they have Morgellons. I send those reports to my Congresswoman

Ginny Brown Waite. Congresswoman Waite sent a letter to the head of the

CDC in May of 2007. Now there is a new head at the CDC and we are back

and square one tying to get them to understand what is going on.

Barbara: Tell me some numbers so we can get a feel for the scope of the disease

as it is now.

Trisha:

The Morgellons Research Foundation has over 13,561 reported families.

Not persons, but families. Oklahoma State University has over 20,000

families registered. About 600 people have reported their disease to

me, and some have reported to the CDC. My source at CDC told me that

this is the most reported disease entity since the reports of HIV/AIDS.

And yet so many people have not reported out of fear. The CDC wants to

keep it quiet because they are afraid of mass hysteria and mass

pandemonium.

There is a huge concern among many sufferers that

they are going to be rounded up and put in a camp like lepers, so they

don't report.

My husband is an orthopedic surgeon. He has seen

six Morgellons partients come into his office, in a very small town,

Brookville. These people just happened to come to him for their joint

problems, and I have taught him what to look for to diagnose

Morgellons. Barbara, if he has seen six right here, it means there is a

huge epidemic. And since it is world wide, it is a pandemic.

The

sufferers are frenzied, and scared. I can tell you with utmost

certainty, at this point in the syndrome there is not a state large

enough to hold all these sufferers. Look at the numbers from Oklahoma

State University. The people with this disease are so secretive and

opaque that this 20,000 is just the tip of the iceberg in my estimation.

I

have a teleconference call every Tuesday evening with nurses from

Florida to Alaska who are working with Morgellons sufferers. Last

evening we went from 9 pm to 12:30 in the morning. I spoke to them

regarding advocacy and how to help raise awareness. If you are

interested I will see if they wouldn't mind getting you in on the next

phone call. It is the nurses that are the ones who are giving out

information and trying to help others and teach the doctors about this

emerging pandemic.

Barbara: I'm almost afraid to ask this, but is the disease contagious?

Trisha:

The jury is out on that as far as I am concerned. Many of the nurses

caring for these people in hiding do not have the disease. I believe

some can be contagious but I truly believe that would be the exception

and not the rule. Do I believe that some were exposed to something else

at the same time they contracted this...absolutely. I interviewed the

captain of a boat on Monday and I spent five hours in their home. They

were the most kind and decent people. The husband has the disease, but

the wife and children do not. I hugged them all and did a very in depth

assessment. Dr. Randy Wymore does not have the disease, and all the

doctors I work with except two of them do not have the disease.

Hundreds of people I have spoken with have one or two family members

that have the disease, and the rest do not.

Barbara: What happens to people who are so reluctant to come forth?

Trisha:

Since doctors are so unresponsive to these people, they have gone to

the internet. There are boards all over where people talk about this

disease. There are many videos on YouTube. They are giving each other

advice and there are no medical professionals there to tell them

whoa...hold on...please don't bathe in bleach, ammonia or toxic

chemicals. Hold up on the dangerous advice. People who listen to this

type of advice are going to have to make a decision in a few years

about what type of lung cancer treatment they want. Or they will be

looking for a liver transplant, because they have poisoned themselves.

People with Morgellons become very desperate and understandably so, but

treating themselves with chemicals they don't understand is so

dangerous. Some take de-wormers and Ivermectin or Albendazole for the

weight of a horse because they don't know how to calculate kilograms of

body weight, and they get the stuff from a vet or a feed store.

Barbara: What is the knowledge about how Morgellons is transmitted?

Trisha:

No one knows for certain how it is being transmitted. GMOs certainly

have not been ruled out. Actually, nothing has been ruled out. I keep

going back to water, soil, mold and pesticides. Water, soil, mold and

pesticides, but I haven't as yet been able to get beyond that to a true

understanding. I personally believe that it is man's misuse of the

earth with enscience, GMOs, and thinking they can rearrange

natural ecosystems of the earth that has created this mess. I believe

the disease is also vector borne in many cases. Some of the people I

have spoken with distinctly remember a bite, then a red, raised area on

the skin. Then it became a rash, ulcers and full blown lesions all over

their bodies. Then the bugs. The bugs are the progression of

Morgellons. No doubt about it. The sicker the patients become, the more

the parasites build up in the body, the deeper the brain fog, and then

they begin purging out bugs.

Vitaly Citovsky at Stonybrook in New York studied the fibers of 10 patients and

said they had Agrobacterium Tumafaciens in their bodies (the bacterium that

causes crown gall disease in

plants), but what amazed him the most was that he found a biofilm on

the skins of these people. It is almost like a pseudo skin. We have to

penetrate that biofilm and draw this stuff out of the body or these

people will never get better. If you don't, it will stay in the skin

and get worse.

Dr. Kalani said the fibers from Morgellons

patients were fungal. Because the body becomes like soil, fungus is

attracted. The fibers are coated with the Agobacterium, which

is a pathogenic fungus also known as Agent Green. Whether it is getting

in the lungs, being ingested, or is vector borne or transmitted sweat

to sweat is the big question.

I took slides to my friend who is

an entomologist and we found fungal hyphae, alternarium, and pathogenic

funguses on the slides. These are not things that grow in humans. They

are organisms that grow in plants. So the human bodies of these

sufferers are becoming like soil and that does that attract? Fungus,

mold and parasites.

The bodies of people with Morgellons become

very acidic and so we are working with pH buffers. s Hopkins and

even Harvard have proven that many chronic diseases, especially cancer,

cannot survive in a perfectly alkaline body. So, just as we raise soil

alkalinity to make it more hospitable to plant life, we must alkalinize

the body to fight these pathogens. If you look at my website, there is

an alkaline chart and an 80% alkaline, 20% acidic diet is on there. But

if you can't do it with diet, you can buffer your pH safely. There are

websites that have great pH buffers and teach sufferers how to check

their urine twice a day. If they are too acidic, they can take two

buffers and not the whole bottle, and check their urine again in the

evening.

We have so many people who worked at the Aberdeen

Proving grounds (site of munitions testing in land) that now have

Morgellons. They were truckers for a multimillion dollar company called

Horvath. I called the owner of Horvath and told her, " Do you not

understand that you have truckers who are very sick because they were

exposed to soil contaminants at Aberdeen? " This woman, Sheila Horvath,

said, " peak to my lawyer " . No one wants to go up against this

company in land because they have power and money. The people with

the disease and I want to know what was in that soil.

There are

Morgellons sufferers in the Poconos and I speak with them when I can.

They are having a hard time getting lost wages and disability, and have

been called delusional. Barbara, they are the salt of the earth, just

good, kind people. They are not delusional. I am beginning to think the

doctors who label them only say " delusional " because they don't want to

look at this.

Then, as you know, there are doctors with this

disease. Dr. s in land almost lost his license because

he was trying to help people. I saw where you commented on Dr. Beverly

Drottar in your earlier article. They are the tip of the iceberg. How

many biologists have this disease? I know that nurses are the number

one reported sufferers, and that teachers are number two. Is it because

they are reporting their disease and not hiding? That is a question I

have been asking in this political quagmire, but I have no answers.

I

just spoke with a woman in Tampa whose husband has had Morgellons for

three years. She has a drawer full of anti-psychotic prescriptions.

Their home in Grand Cayman was flooded. When they went back to it two

months after the storm, he contracted Morgellons. She told me you could

smell the mold from the street. Now he is a full blown case because

they searched for three years to get help before they finally found Dr.

Kolb in Atlanta. Now he has lesions all over his legs, moving

into his abdomen with bugs coming out of his body. I got him in to see

Dr. Cheryl in Tampa. I just spoke to her and she said he is a

mess. She is getting labs to determine his liver enzymes, and is doing

other studies. The jury is still out on him.

Fusarium Osysporum

is a pathogenic fungus that we have seen in skin scrapings from

patients. This is being sprayed on crops in the war on drugs. I have

guys coming back from Afganistan with the disease. What is the biggest

crop there? Opium.

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