Went to see speech pathologist

[Guest guest]

Today I took Isabella to see Hammer one of the leading speech pathologist

in the country for Apraxia. He spent about 2 hours with her.  Well as with

everyone, Isabella has him completely baffled.  He said her speech patterns are

the strangest he has ever seen.  He said with apraxia normally when they say a

word it is not a clear as the words Isabella says, but the losing of word would

fit in with Apraxia.  He said normally someone with apraxia would not say two

words put together at this age, yet she will at times, never to be heard again. 

He said it was more like a child who has autism, yet he saw no other symptoms

whatsoever of autism.  In fact he said she seemed to be the opposite.  He got

her to say duck two times and then she would not say it again or even attempt

it.  He is suggesting speech two times a week and some form of pre-school to be

around other children hoping this will entice her to speak more.  He also told

us not to

give her things just because we know she wants them.  He wants her to make at

least some kind of sound to get what she wants.  He also suggested not to use

sign language because it seems to be to easy for her rather than saying the

word.  He said normally he would not say that, but with her he suggested us to

stop signing. 

  So then we were off for her yearly visit with the doctor at the genetic

clinic.  The doctor was so impressed with all Isabella can do, but we also were

discussing the speech issues.  She felt Isabella attitude of being carefree and

outgoing was more typical of mds rather than triple x.  Most of what she saw was

the typical 2 year old.  She felt Isabella could talk more than she was letting

on.  She said for us once again to not give into her until she tells us at least

a sound of what she is wanting. The only problem she saw with that is if

Isabella does not get what she wants, she just gives up and goes on to something

else and does not care about the first thing.  This makes is hard to make her

talk because she will just walk away from you.   She also suggested some form of

preschool or daycare feeling that at this age children would get more out of her

than an adult.  Therefore the consensus seems to be to get her to interact more

with

children that will not give into her to try to make her communicate.  It was so

cute when we were leaving the doctors office Isabella was throwing everyone

kisses and yelling " Bye "   in between each kiss she threw. She was even throwing

kisses to people in the waiting room.

 

Sue

Isabella 21 months mds and xxx