Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008 Welcome - tell us about you and about your little girl - I also have a little girl who is 9 with MDS. Darlene - Mom to (11) and (9) > Hi Everyone > We have a new family! Here is what they had to say... > > I have a little girl almost 9 years old with mds > > Welcome to our family! I am so glad you joined us! Please tell us all about > you and your little girl. Feel free to ask any questions. We will all be > happy to share our experiences. > > Kristy > Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12 > > > Kristy Colvin > IMDSA President > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > International Mosaic Down Syndrome Association > PH: > Toll Free: 1-888-MDS-LINK > http://www.imdsa.org > http://www.mosaicmoments.today.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2008 Report Share Posted September 11, 2008 Hi Helga, Welcome! My name is Brigit and we live in Holland. What a lovely pictures! I have a daughter Jip (11 years) and they look a bit alike! Have also a nice day! Brigit Op 10-sep-08 om 9:31 heeft fjordidesember het volgende geschreven: > > Hi folks! > My name is Helga and I have a daughter named Saga that will turn 9 > years > old in october. This is my first time in a forum for mosaic down > syndrome children. Usually I don't tell people that it's mosaic since > I > don't feel that it matters that much. She has down syndrome and that's > that! > > We are family of 4 that lives in Norway, close to Oslo. > > Saga goes to a mainstream school and there is another girl with DS in > her class so she has a best friend at school. Priceless. She can read > and write (startet to read this year) and is doing well in school for > a > child with DS. Her speach is delayed but she speaks OK. She is > bilingual > since I'm icelandic and she speaks more norwegean than icelandic but > is > getting better every year. > > She have never had big problems with her motoric skills. She's a fast > runner and I am to, since she has always been running a lot! She's > very > active. She skies, skates,jumps robe, rides a bike and do more or less > the same as a child does in that age. > > Never any health issues apart from wearing glasses. Except from beeing > very very active there has never been any problems with her. Healthy, > happy and beautiful. > > Photos of her is at this place > > <http://www.flickr.com/photos/eggala/sets/72157603975076974/with/ > 9294752\ > 06/> > > Well that was a lot of bragging! > > Have a nice day. > > > > > > > Hi Everyone > > > We have a new family! Here is what they had to say... > > > > > > I have a little girl almost 9 years old with mds > > > > > > Welcome to our family! I am so glad you joined us! Please tell us > all about > > > you and your little girl. Feel free to ask any questions. We will > all be > > > happy to share our experiences. > > > > > > Kristy > > > Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12 > > > > > > > > > Kristy Colvin > > > IMDSA President > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Hi Everyone We have a new family joining us today. They have a 10 yr old son with MDS, but didn't really tell us more than that, so hopefully they will speak up and let us know more! To the new family: Please tell us more about you and your family! Tell us all about your son and feel free to ask any questions you have here. We will all be happy to share our experiences. Kristy Mom to Arron 27, 23, Tim 22 MDS, Stevan 21 and Garrett 12 Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com http://www.rememberwhen.today.com Quote Link to comment Share on other sites More sharing options...
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