Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 Lynn, Hi how are you tonight? The cinnamon goes into the nut mixture and the butter into the cake batter. Half of the nut mix is sprinkled on top of the cake batter before the last of the batter is poured in, then followed by the remaining nut mixture. Hope this helps Lynn wrote: I was thinking about making your Sour Cream Coffee Cake. I need some help. Where does the cinnamon & butter go? the nut mixture or the cake mixture.? Rather go back in and reread your instructions and I can read it there. happiness and butterflies Lynn Happiness and Butterflies Lynn your Mom, Sister, Aunt, Gramma or Friend Live each day as if it is a memory in the making. Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Hi June, Thanks for that information. I didn't know that. Her stomach issues actually prefaced the beginning of the mental decline. She seems to tolerate the Aricept very well, and now she doesn't complain too often about stomach pain. She does sometimes feel the need to urinate often... but that could be when she gets nervous or feels stress. When I had her stay with me for a bit over the summer, she felt the need to go constantly, until she relaxed and felt more comfortable with being away from home. I don't remember the dosage of Aricept that she's on - but I'll double check that with my aunt. Regards, Helene From: Raquel Asay <la.melense@ yahoo. com> Subject: Question for To: LBDcaregivers@ yahoogroups. com Date: Monday, August 25, 2008, 11:35 AM Hi, , and all of my friends! I know that sometime ago I read about using Exelon together with Razadine and Namenda or Aricept. I asked then if that was done in some cases, and I THINK you and somebody else answered affirmatively and sent me a link where I could find information. I don't know what I did with it. Can you send it again, please? The new neurologist that saw Sherman last month for the first time told me very frankly that she is a GENERAL neurologist and not very familiar with LBD. Today I talked to her again and she said she's " waiting for information " about using those drugs together, that she hasn't heard about it nor read anything that justifies it. Maybe I can help her educate herself a little more... Another question: Has any in our group had the experience of a negative reaction to Provigil? I started it according to doctor's orders by 100 mg, but I noticed he was having some hallucinations or strange dreams and I stopped it. Then I read here that somebody was taking 50 mg and was doing OK, so I started again, and it seemed to work. After a week I increased the dose to 100 mg and again his behavior has become very strange -he's talking a lot of non-sense (which he wasn't doing before), imagining things that people -real people- have said to him (that they haven't), and even told me the physical therapist was flirting with him! Could that be the Provigil? I asked the doctor today on our phone conversation, and she said " Maybe. Why don't you stop it to see what happens? I could also be that the dementia is progressing, blah, blah, blah " . He doesn't show ANY symptoms of a physical problem, infection, etc. No fever, no listleness, no increase/decrease in urination nor change of color, and he is eating well. Any ideas? Still praying for all of you! My love to all, Raquel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 A nurse at Mom's nh shared that most of their residents with LBD spent the day with eyes closed, including my mom for a few years. Gibsons BC Mother died Aug. 12, 2006 at age 92 after a 13 year decline from PDD. > > From: Raquel Asay <la.melenseyahoo (DOT) com> > Subject: Question for > To: LBDcaregivers@ yahoogroups. com > Date: Monday, August 25, 2008, 11:35 AM > > Hi, , and all of my�friends! I know that sometime ago I read about using Exelon together with Razadine and Namenda or Aricept. I asked then if that was done in some cases, and I THINK you and somebody else answered affirmatively and sent�me a link where I could find information. I don't know what I did with it. Can you send it again, please? The new neurologist that saw Sherman last month for the first time told me very frankly that she is a GENERAL neurologist and not very familiar with LBD. Today I talked to her again and she said she's " waiting for information " about using those drugs together, that she hasn't heard about it nor read anything that justifies it. Maybe I can help her educate herself a little more... > Another question: Has any in our group had the experience of a negative reaction to Provigil? I started it according to doctor's orders by 100 mg, but I noticed he was having some hallucinations or strange dreams and I stopped it. Then I read here that somebody was taking 50 mg and was doing OK, so I started again, and it seemed to work. After a week I increased the dose to 100 mg and again his behavior has become very strange - he's talking a lot of non-sense (which he wasn't doing before), imagining things that people -real people- have said to him (that they haven't), and even told me the physical therapist was flirting with him! Could that be the Provigil?� I asked the doctor today on�our phone conversation, and she said " Maybe. Why don't you stop it to see what happens? I could also be that the dementia is progressing, blah, blah, blah " .��He doesn't show ANY symptoms of a physical problem, infection, etc. No fever, no listleness,�no > increase/decrease in�urination nor change of color, and he is eating well. > Any ideas? > Still praying for all of you! My love to all, > Raquel > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 I've also wondered if the retrieval process for opening eyes isn't there, or needs to be found. Sometimes Mom would be able to open those baby blues when I arrived, other times they would flutter, like she was trying to open them but they remained closed. Then there were the times there was no response at all. Very sad. Gibsons BC Mother died Aug. 12, 2006 at age 92 after a 13 year decline from PDD. > > From: Raquel Asay <la.melense@ yahoo. com> > Subject: Question for > To: LBDcaregivers@ yahoogroups. com > Date: Monday, August 25, 2008, 11:35 AM > > Hi, , and all of my�friends! I know that sometime ago I read about using Exelon together with Razadine and Namenda or Aricept. I asked then if that was done in some cases, and I THINK you and somebody else answered affirmatively and sent�me a link where I could find information. I don't know what I did with it. Can you send it again, please? The new neurologist that saw Sherman last month for the first time told me very frankly that she is a GENERAL neurologist and not very familiar with LBD. Today I talked to her again and she said she's " waiting for information " about using those drugs together, that she hasn't heard about it nor read anything that justifies it. Maybe I can help her educate herself a little more... > Another question: Has any in our group had the experience of a negative reaction to Provigil? I started it according to doctor's orders by 100 mg, but I noticed he was having some hallucinations or strange dreams and I stopped it. Then I read here that somebody was taking 50 mg and was doing OK, so I started again, and it seemed to work. After a week I increased the dose to 100 mg and again his behavior has become very strange - he's talking a lot of non-sense (which he wasn't doing before), imagining things that people -real people- have said to him (that they haven't), and even told me the physical therapist was flirting with him! Could that be the Provigil?� I asked the doctor today on�our phone conversation, and she said " Maybe. Why don't you stop it to see what happens? I could also be that the dementia is progressing, blah, blah, blah " .��He doesn't show ANY symptoms of a physical problem, infection, etc. No fever, no > listleness,�no > increase/decrease in�urination nor change of color, and he is eating well. > Any ideas? > Still praying for all of you! My love to all, > Raquel > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 At what stage do you guys typically notice this? There have been many times where my mom closes her eyes while she was sitting just because she said she wanted to, or felt like it. It has seemed to be a way to block out so many distractions that further confuse her already-muddled thinking...but don't know if it is the same thing that you are all discussing or not. His, Sherry www.owly.net daughter of , (mis?)diagnosed with AD in 2005, descent slowed by Aricept; diagnosed with LBD March 2008, in a wonderful NH 1/2 mile from my house. We're learning to live with Lewy... ----- Original Message ----- I've also wondered if the retrieval process for opening eyes isn't there, or needs to be found. Sometimes Mom would be able to open those baby blues when I arrived, other times they would flutter, like she was trying to open them but they remained closed. Then there were the times there was no response at all. Very sad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Thank you for the information, . Do you know if they were awake and were able to carry on coversation? Helene Subject: Re: Question for To: LBDcaregivers Date: Tuesday, August 26, 2008, 1:22 PM A nurse at Mom's nh shared that most of their residents with LBD spent the day with eyes closed, including my mom for a few years. Gibsons BC Mother died Aug. 12, 2006 at age 92 after a 13 year decline from PDD. > > From: Raquel Asay <la.melense@ yahoo. com> > Subject: Question for > To: LBDcaregivers@ yahoogroups. com > Date: Monday, August 25, 2008, 11:35 AM > > Hi, , and all of my�friends! I know that sometime ago I read about using Exelon together with Razadine and Namenda or Aricept. I asked then if that was done in some cases, and I THINK you and somebody else answered affirmatively and sent�me a link where I could find information. I don't know what I did with it. Can you send it again, please? The new neurologist that saw Sherman last month for the first time told me very frankly that she is a GENERAL neurologist and not very familiar with LBD. Today I talked to her again and she said she's " waiting for information " about using those drugs together, that she hasn't heard about it nor read anything that justifies it. Maybe I can help her educate herself a little more... > Another question: Has any in our group had the experience of a negative reaction to Provigil? I started it according to doctor's orders by 100 mg, but I noticed he was having some hallucinations or strange dreams and I stopped it. Then I read here that somebody was taking 50 mg and was doing OK, so I started again, and it seemed to work. After a week I increased the dose to 100 mg and again his behavior has become very strange - he's talking a lot of non-sense (which he wasn't doing before), imagining things that people -real people- have said to him (that they haven't), and even told me the physical therapist was flirting with him! Could that be the Provigil?� I asked the doctor today on�our phone conversation, and she said " Maybe. Why don't you stop it to see what happens? I could also be that the dementia is progressing, blah, blah, blah " .��He doesn't show ANY symptoms of a physical problem, infection, etc. No fever, no listleness,�no > increase/decrease in�urination nor change of color, and he is eating well. > Any ideas? > Still praying for all of you! My love to all, > Raquel > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 That's very interesting - sometimes I tell her to open her eyes, and she does. Then I'll turn on the TV and talk to her about what is on the screen to engage her in conversation, and she keeps her eyes open. It is all very sad indeed. Helene Subject: Re: Question for To: LBDcaregivers Date: Tuesday, August 26, 2008, 1:27 PM I've also wondered if the retrieval process for opening eyes isn't there, or needs to be found. Sometimes Mom would be able to open those baby blues when I arrived, other times they would flutter, like she was trying to open them but they remained closed. Then there were the times there was no response at all. Very sad. Gibsons BC Mother died Aug. 12, 2006 at age 92 after a 13 year decline from PDD. > > From: Raquel Asay <la.melense@ yahoo. com> > Subject: Question for > To: LBDcaregivers@ yahoogroups. com > Date: Monday, August 25, 2008, 11:35 AM > > Hi, , and all of my�friends! I know that sometime ago I read about using Exelon together with Razadine and Namenda or Aricept. I asked then if that was done in some cases, and I THINK you and somebody else answered affirmatively and sent�me a link where I could find information. I don't know what I did with it. Can you send it again, please? The new neurologist that saw Sherman last month for the first time told me very frankly that she is a GENERAL neurologist and not very familiar with LBD. Today I talked to her again and she said she's " waiting for information " about using those drugs together, that she hasn't heard about it nor read anything that justifies it. Maybe I can help her educate herself a little more... > Another question: Has any in our group had the experience of a negative reaction to Provigil? I started it according to doctor's orders by 100 mg, but I noticed he was having some hallucinations or strange dreams and I stopped it. Then I read here that somebody was taking 50 mg and was doing OK, so I started again, and it seemed to work. After a week I increased the dose to 100 mg and again his behavior has become very strange - he's talking a lot of non-sense (which he wasn't doing before), imagining things that people -real people- have said to him (that they haven't), and even told me the physical therapist was flirting with him! Could that be the Provigil?� I asked the doctor today on�our phone conversation, and she said " Maybe. Why don't you stop it to see what happens? I could also be that the dementia is progressing, blah, blah, blah " .��He doesn't show ANY symptoms of a physical problem, infection, etc. No fever, no > listleness,�no > increase/decrease in�urination nor change of color, and he is eating well. > Any ideas? > Still praying for all of you! My love to all, > Raquel > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Hi Sherry, I think we are discussing the same thing. Regards, Helene Subject: Re: Re: Question for To: LBDcaregivers Date: Tuesday, August 26, 2008, 1:31 PM At what stage do you guys typically notice this? There have been many times where my mom closes her eyes while she was sitting just because she said she wanted to, or felt like it. It has seemed to be a way to block out so many distractions that further confuse her already-muddled thinking...but don't know if it is the same thing that you are all discussing or not. His, Sherry www.owly.net daughter of , (mis?)diagnosed with AD in 2005, descent slowed by Aricept; diagnosed with LBD March 2008, in a wonderful NH 1/2 mile from my house. We're learning to live with Lewy... ----- Original Message ----- From: " stimtimminss " <stimdccnet (DOT) com> I've also wondered if the retrieval process for opening eyes isn't there, or needs to be found. Sometimes Mom would be able to open those baby blues when I arrived, other times they would flutter, like she was trying to open them but they remained closed. Then there were the times there was no response at all. Very sad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 There are times when I've asked Mom why she has her eyes closed, and she will give a variety of answers, but most of them have to do with blocking out stimuli, either in the form of people, lights, shadows, and sometimes so she can't see the " bad people " coming in the front door. Jannis Redefining Normal Every Day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Dear , Thank you for sharing that with me. My mom can keep her eyes closed some of the time, and very coherently answers questions. It's really something. Helene Subject: Re: Question for To: LBDcaregivers Date: Wednesday, August 27, 2008, 1:42 PM At times, yes, enough to know they weren't always asleep and often very aware of what was going on around them. The conversation as such often only involved answering questions with simple 1 or 2 words. I've shared this story before of taking my mother to the chaplain's service in her nh. She sat in her wheelchair, head drooped forward, eyes closed, mouth open, looking to all intents as if she was sound asleep. The chaplain asked the group if any of them remembered walking through trilliums in the spring. My mom's hand slowly went up. I know she loved trilliums and had often mentioned going to a particular wooded area as a young person to walk among them. The chaplain looked at me, eyebrows raised, and I to her. Mom was in there right to the end whether she could respond on a given day or not. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Dear , Thank you for sharing that with me. My mom can keep her eyes closed some of the time, and very coherently answers questions. It's really something. Helene Subject: Re: Question for To: LBDcaregivers Date: Wednesday, August 27, 2008, 1:42 PM At times, yes, enough to know they weren't always asleep and often very aware of what was going on around them. The conversation as such often only involved answering questions with simple 1 or 2 words. I've shared this story before of taking my mother to the chaplain's service in her nh. She sat in her wheelchair, head drooped forward, eyes closed, mouth open, looking to all intents as if she was sound asleep. The chaplain asked the group if any of them remembered walking through trilliums in the spring. My mom's hand slowly went up. I know she loved trilliums and had often mentioned going to a particular wooded area as a young person to walk among them. The chaplain looked at me, eyebrows raised, and I to her. Mom was in there right to the end whether she could respond on a given day or not. Quote Link to comment Share on other sites More sharing options...
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