Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 We have a lot of allergies to antibiotics and Zithromax is almost like water (low dose AB), and sometimes it is either Zithromax or nothing for us. Try PROBIOTICS from GNC. A bottle on a kid lasts forever (and I store mine in the frig); the capsule is more than one dose. We break open the capsule and add just a little to his favorite drink whenever we since an illness coming on. You can do it for a preventive measure also. Bottle is less than $15. You will not be on antibiotics any more!!! Try it. P.S> it was recommended by a speech therapist and I am glad she did. > > > > > > My daughter is starting to really communicate these days. > Not > > > in > > > > full > > > > > > sentences, but if she want a banana, she will come up to > me, > > > tap > > > > me, > > > > > > and then say nana. If she needs to go potty she will say > pee > > > pee. > > > > > > Some of what she is saying is all so new this summer. It > > seems > > > > like > > > > > > new words are popping out each day. And the part that is > > > > surprising > > > > > > me is how intentional her communication is. She is 3 and > 1/2. > > > > Like I > > > > > > said, no sentences but lots of letting us know what she > wants > > > > through > > > > > > words. My question is, at what age did you all with older > > ones > > > > let go > > > > > > completely of the sign, and let your child work more on the > > > > words? Or > > > > > > did you? I find us moving further and further from the > > signing, > > > > and > > > > > > more and more closer to the words. Would love to hear your > > > > thoughts. > > > > > > Diane > > > > > > > > > > > > Kristy Colvin > > > > > > IMDSA President > > > > > > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~ > > > > > > International Mosaic Down Syndrome Association > > > > > > PH: > > > > > > Toll Free: 1-888-MDS-LINK > > > > > > http://www.imdsa. org <http://www.imdsa. org/> > > > > > > http://www.mosaicmo ments.today. com > > > <http://www.mosaicmo ments.today. com/> > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2008 Report Share Posted September 13, 2008 , I second what Judie said, you have to be as open and honest about " who she is " as possible. At first I told people I worked with because I needed support, I was still reeling " How could MY PRINCESS " have MDS? And now I am still shocked when people (only 3 people have) ask " Does your daughter have DS? " Mostly people who have children with DS - they can see it in her eyes, which is her only external sign of MDS. However, has a speech delay. She is 9 and she did not talk until she was in 2nd grade - without speech teachers are at a loss to check that a Kindergartern or 1st grade student knows the answers. So she lost 2 years of school. Her speech is coming fast - it is 70% intellegable but you have to slow down and listen to what she is saying to understand. So I was always afraid that she would be judged by how she looks, now she is judged by how she sounds. But as for the kids in school - they just know her as and she has a TON of friends. So you really can't prepare for everything. Believe me, I tried. You will make mistakes, and you will learn. Good Luck with Andi, Darlene - Mom to (11) and (9) > Dear , > > If you really want people to look at Andi (great name!) " for who she is " > then be open about who she is. She is herself, and MDS is as much a part of > her > as the color of her eyes. > > As for " labels, " the mosaicism's effect on Andi won't be known until her > development progresses, but no matter how, it doesn't change the fact that > its > there. > > You can explain to others that you waited to talk about it because you > wanted > to get a handle on it yourselves first, so you could better answer > questions you knew you'd be facing. > > Judie, mom to Christi, 29 and others > > ************** > Psssst...Have you heard the news? There's a new fashion blog, > plus the latest fall trends and hair styles at StyleList.com. > > (http://www.stylelist.com/trends?ncid=aolsty00050000000014) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2008 Report Share Posted September 14, 2008 You ladies have been amazing. We went to a wedding today and I could not wait to get home and read what your thoughts were. Thank you so much for opening up and sharing your experiences. We have felt little support from our family because when we asked if we could keep this between our family they did not do that. We felt as if we did not have time to process this information before they wanted to tell everyone. Then my mother-n-law asked us if we were embarrassed of our daughter. That comment has changed our relationship. It was like she did not get it. She did not respect that this was really hard for us. It was only a week that went by before we got people calling us or letters in the mail. Since then I have really shut down from talking to my family. Every time I try to talk to them they say she is so " typical " it is unreal. If I say something about MDS I feel as though they get annoyed. I am a first time mom learning what it is like being a mom and also learning about MDS. We have reached out to our Down syndrome network here in Eugene, in hopes that we can get more support and meet new friends. I am hoping that meeting some moms and their families will give me the strength to be open about Andi. I have read the book A Roadmap to Holland. Which is a great book. I am also reading GIFTS: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives. Reading these stories have made me have a connection with moms that I have not been able to have since we found out about Andi. It has been great having this support group. I want to try to make the right choices for Andi and I am so thankful that I have you amazing mom's to help us with our journey so thank you!!! If anyone one has any other thoughts or experiences I would love to hear them. Re: Question , Me thinks you protest too much. People might actually know you by your eye color rather than that you are an author. The point was, it's all a part of who you are. If someone was looking for me they would say I have gorgeous brown eyes, long silky blond hair, a voluptuous figure etc. (Just kidding.) So it seems to me that's a part of who I am. I guess I can change that with green contact lenses. But no one would know me on sight if they were told to look for a dental hygienist. Judie, mom to Christi, 29 and others ************ ** Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelis t.com/trends? ncid=aolsty00050 000000014) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2008 Report Share Posted September 15, 2008 I was not speaking to your son's specific situation. As I stated, I do not know your son, so I could not even begin to say what his needs are or are not. My explanation of speech as a related service was merely informational in a general sense. It was not intended to offend or judge in any way. No, I do not think you are an idiot. I was merely responding to your statement about my being " under a rock " in regards to the eligibility advice I gave the other parent. I was merely telling her that a child cannot arbitrarily be classified as having a cognitive disability without testing to back it up. I was also stating to her that something seemed " off " for a child to be classified as having a cognitive disability and then switched to a learning disability, because the defnitions are so far removed from each other. I don't know what to tell you to do about your child's IEP not being followed. Again, I am not there, so I do not know. I don't have a clue why you cannot get an advocate to argue your case. I also know nothing about your school or school system, but I do know that I am not the guilty party here. I just offered a piece of advice to a mom who had made comment. Nothing more. I wish you luck in obtaining services for your son. No child should be denied an education. I fight for that cause every day, both at work and at home with my own child. > > > > > > > > > > > > Hello everyone.. > > > > > > > > > > > > I have a quick question that I know that some will say it > is > > a > > > > > personal choice but I would love to hear some feedback on > what > > > you > > > > > would do or have done. Andi (our daughter) is 6 months old > and > > > we > > > > > found out almost four months ago that she has MDS. My > husband > > > and > > > > I > > > > > have went back and forth on whether we should be open about > it > > > with > > > > > others. Our families know and some close friends. We have > > asked > > > > > that our family and friends not say anything in fear that > Andi > > > will > > > > > be judged before anyone knows her. We did not want anyone to > > > look > > > > at > > > > > her and try to find something wrong with her, we wanted > people > > to > > > > > look at her for who she is. Now that we are more educated > and > > > feel > > > > > that we have more support through books, family and friends > we > > > are > > > > > not sure if we are making the right decision. I am always so > > > > > hesitant to talk about Andi's diagnoses with others. Our > > family > > > is > > > > > from a small town (about an hour from us) and I don't want > the > > > word > > > > > to travel so fast that before > > > > > > you know it I get phone calls asking why I haven't told > > people > > > > > Andi has Down syndrome. I am also in fear that if this does > > not > > > > > effect her that I put a label on her by telling people. A > > label > > > > that > > > > > I might never get off. If this does not effect her and we > have > > > not > > > > > told her about her unique diagnoses and someone else does how > > > will > > > > > that effect her? Or do you tell her from the beginning? Or > am > > I > > > > > just getting way ahead of myself? Any ideas thoughts or > > > > experiences > > > > > will help... > > > > > > > > > > > > Thank you > > > > > > > > > > > > Hummel > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2008 Report Share Posted September 15, 2008 Well,I ha a message typed and it did not go thru...ARGH!! Long story short, he has had an IEP in place now for over a year (various ones throughout the year). Eligibility was determined when speech services were added to IEP. They tried to argue that the IEP was not signed byme, which it does not have to be signed to be n place. Then, next was they did not receive his eligibility reports and wanted to do their own, which is where we are now. They are refusing to come to the home as stated by the dr. note, which was admitted at the " first " IEP, but they refused to take copy of it. (I guess I can fax it to the asst. superintendent and let her know what is going on.) I made the under a rock comment because your wording sounds like you believe that IDEA protects our kids. Sometimes a judge and lawyer cannot even do this. If a school (previous one) does not change their behavior after being sued " and losing to the parents " many times, then will they ever?) IDEA " should " protect our children, as all laws should, but they only protect us if someone enforces them. Because I am fighting " this " battle (again) with the " public " school system and now the new one (where we have pieced together finally thru pictures and memory recall what has happened to CH's speech and eyes),I am not sure I want to waste the time (5 years already lost) fighting the school. SO, if any speech pathologists have any helpful tips for me teaching speech on my own, then please e-mail me agirlnamedsuess@... Other than this, it appears that all I have left is prayer for my son, which isn't a half bad idea. - P.S> I am not angry any more, but I am concerned that nothing will be one due to lack of $$$ on both problems.-- In MosaicDS , " cakjones " wrote: > > I was not speaking to your son's specific situation. As I stated, I > do not know your son, so I could not even begin to say what his needs > are or are not. My explanation of speech as a related service was > merely informational in a general sense. It was not intended to > offend or judge in any way. > > No, I do not think you are an idiot. I was merely responding to your > statement about my being " under a rock " in regards to the eligibility > advice I gave the other parent. I was merely telling her that a > child cannot arbitrarily be classified as having a cognitive > disability without testing to back it up. I was also stating to her > that something seemed " off " for a child to be classified as having a > cognitive disability and then switched to a learning disability, > because the defnitions are so far removed from each other. > > I don't know what to tell you to do about your child's IEP not being > followed. Again, I am not there, so I do not know. I don't have a > clue why you cannot get an advocate to argue your case. I also know > nothing about your school or school system, but I do know that I am > not the guilty party here. I just offered a piece of advice to a mom > who had made comment. Nothing more. I wish you luck in obtaining > services for your son. No child should be denied an education. I > fight for that cause every day, both at work and at home with my own > child. > > > > > > > > > > > > > > > > Hello everyone.. > > > > > > > > > > > > > > I have a quick question that I know that some will say it > > is > > > a > > > > > > personal choice but I would love to hear some feedback on > > what > > > > you > > > > > > would do or have done. Andi (our daughter) is 6 months old > > and > > > > we > > > > > > found out almost four months ago that she has MDS. My > > husband > > > > and > > > > > I > > > > > > have went back and forth on whether we should be open about > > it > > > > with > > > > > > others. Our families know and some close friends. We have > > > asked > > > > > > that our family and friends not say anything in fear that > > Andi > > > > will > > > > > > be judged before anyone knows her. We did not want anyone > to > > > > look > > > > > at > > > > > > her and try to find something wrong with her, we wanted > > people > > > to > > > > > > look at her for who she is. Now that we are more educated > > and > > > > feel > > > > > > that we have more support through books, family and friends > > we > > > > are > > > > > > not sure if we are making the right decision. I am always > so > > > > > > hesitant to talk about Andi's diagnoses with others. Our > > > family > > > > is > > > > > > from a small town (about an hour from us) and I don't want > > the > > > > word > > > > > > to travel so fast that before > > > > > > > you know it I get phone calls asking why I haven't told > > > people > > > > > > Andi has Down syndrome. I am also in fear that if this > does > > > not > > > > > > effect her that I put a label on her by telling people. A > > > label > > > > > that > > > > > > I might never get off. If this does not effect her and we > > have > > > > not > > > > > > told her about her unique diagnoses and someone else does > how > > > > will > > > > > > that effect her? Or do you tell her from the beginning? > Or > > am > > > I > > > > > > just getting way ahead of myself? Any ideas thoughts or > > > > > experiences > > > > > > will help... > > > > > > > > > > > > > > Thank you > > > > > > > > > > > > > > Hummel > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2008 Report Share Posted September 15, 2008 You might try to remember that the people in this forum ARE trying to help and that your anger ( & yes it is VERY obvious) makes it difficult for some of us to use your input in a positive way. And it might detour people from making suggestions that might just turn out to be helpful to you. I only say this because I don't want all of our new families to be afraid to speak lest they be riduculed. ---- wrote: > G! Do you seriously think I am an idiot? Or must I just explain > everything? Excuse me,he has an eligibilireport and it is written in > his IEP that he receive services from the school (2 and a half > segments per week). (Anything else you need to know?) Geez.... I KNOW > what IDEA says....so, now do you know of an advocate that will help > me fight them pro bono? I did not think you did. > For those just joining in this, I apologize for sounding snippy, but > OMG have you not been listening at all to what I hve been constantly > saying here that has been going on for 5 years? > I am very poor (moneywise) and there is NO attorney that I can find > to help me PRO BONO and very few that know the IDEA or specialize in > it. > I know what my son's IEP says and I know what services he is not > receiving at this moment and he has been in this county since June 20 > WITH this IEP that clearly indicates SPEECH SERVICES. He has not > gotten what his IEP says since we have had it. Before you say it, I > have spent day after day after day in IEP meetings for 3 to 5 hours > at a time. I have tape recordings of these meetings. I have spent the > last penny I had hiring a lawyer to come and help me and they STILL > refused to follow the IEP. > I feel like I am talking to a brick wall.Next... > P.S. If it sound like I am angry, I am. > > > > > > > > > > > > > Hello everyone.. > > > > > > > > > > > > I have a quick question that I know that some will say it > is > > a > > > > > personal choice but I would love to hear some feedback on > what > > > you > > > > > would do or have done. Andi (our daughter) is 6 months old > and > > > we > > > > > found out almost four months ago that she has MDS. My > husband > > > and > > > > I > > > > > have went back and forth on whether we should be open about > it > > > with > > > > > others. Our families know and some close friends. We have > > asked > > > > > that our family and friends not say anything in fear that > Andi > > > will > > > > > be judged before anyone knows her. We did not want anyone to > > > look > > > > at > > > > > her and try to find something wrong with her, we wanted > people > > to > > > > > look at her for who she is. Now that we are more educated > and > > > feel > > > > > that we have more support through books, family and friends > we > > > are > > > > > not sure if we are making the right decision. I am always so > > > > > hesitant to talk about Andi's diagnoses with others. Our > > family > > > is > > > > > from a small town (about an hour from us) and I don't want > the > > > word > > > > > to travel so fast that before > > > > > > you know it I get phone calls asking why I haven't told > > people > > > > > Andi has Down syndrome. I am also in fear that if this does > > not > > > > > effect her that I put a label on her by telling people. A > > label > > > > that > > > > > I might never get off. If this does not effect her and we > have > > > not > > > > > told her about her unique diagnoses and someone else does how > > > will > > > > > that effect her? Or do you tell her from the beginning? Or > am > > I > > > > > just getting way ahead of myself? Any ideas thoughts or > > > > experiences > > > > > will help... > > > > > > > > > > > > Thank you > > > > > > > > > > > > Hummel > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2008 Report Share Posted September 15, 2008 I felt the anger in this email too. Re: Re: Question You might try to remember that the people in this forum ARE trying to help and that your anger ( & yes it is VERY obvious) makes it difficult for some of us to use your input in a positive way. And it might detour people from making suggestions that might just turn out to be helpful to you. I only say this because I don't want all of our new families to be afraid to speak lest they be riduculed. ---- wrote: > G! Do you seriously think I am an idiot? Or must I just explain > everything? Excuse me,he has an eligibilireport and it is written in > his IEP that he receive services from the school (2 and a half > segments per week). (Anything else you need to know?) Geez.... I KNOW > what IDEA says....so, now do you know of an advocate that will help > me fight them pro bono? I did not think you did. > For those just joining in this, I apologize for sounding snippy, but > OMG have you not been listening at all to what I hve been constantly > saying here that has been going on for 5 years? > I am very poor (moneywise) and there is NO attorney that I can find > to help me PRO BONO and very few that know the IDEA or specialize in > it. > I know what my son's IEP says and I know what services he is not > receiving at this moment and he has been in this county since June 20 > WITH this IEP that clearly indicates SPEECH SERVICES. He has not > gotten what his IEP says since we have had it. Before you say it, I > have spent day after day after day in IEP meetings for 3 to 5 hours > at a time. I have tape recordings of these meetings. I have spent the > last penny I had hiring a lawyer to come and help me and they STILL > refused to follow the IEP. > I feel like I am talking to a brick wall.Next... > P.S. If it sound like I am angry, I am. > > > > > > > > > > > > > Hello everyone.. > > > > > > > > > > > > I have a quick question that I know that some will say it > is > > a > > > > > personal choice but I would love to hear some feedback on > what > > > you > > > > > would do or have done. Andi (our daughter) is 6 months old > and > > > we > > > > > found out almost four months ago that she has MDS. My > husband > > > and > > > > I > > > > > have went back and forth on whether we should be open about > it > > > with > > > > > others. Our families know and some close friends. We have > > asked > > > > > that our family and friends not say anything in fear that > Andi > > > will > > > > > be judged before anyone knows her. We did not want anyone to > > > look > > > > at > > > > > her and try to find something wrong with her, we wanted > people > > to > > > > > look at her for who she is. Now that we are more educated > and > > > feel > > > > > that we have more support through books, family and friends > we > > > are > > > > > not sure if we are making the right decision. I am always so > > > > > hesitant to talk about Andi's diagnoses with others. Our > > family > > > is > > > > > from a small town (about an hour from us) and I don't want > the > > > word > > > > > to travel so fast that before > > > > > > you know it I get phone calls asking why I haven't told > > people > > > > > Andi has Down syndrome. I am also in fear that if this does > > not > > > > > effect her that I put a label on her by telling people. A > > label > > > > that > > > > > I might never get off. If this does not effect her and we > have > > > not > > > > > told her about her unique diagnoses and someone else does how > > > will > > > > > that effect her? Or do you tell her from the beginning? Or > am > > I > > > > > just getting way ahead of myself? Any ideas thoughts or > > > > experiences > > > > > will help... > > > > > > > > > > > > Thank you > > > > > > > > > > > > Hummel > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2011 Report Share Posted April 27, 2011 > > > > Has 4 S been documented in the Diagnostic and Statistical Manual? The military does not seem to acknowledge it because the military doctors tell me its not in there. They keep telling me its OCD or ADD (which i do have but cope very well with it). If anyone can give me other information to tell my doc on the base it would be greatly appreciated, Thank you. > > > I read a great deal of old psychiatry texts and have, for example, found many cases of autism published before Kanner supposedly published the first cases in 1943. However, I have found nothing at all resembling 4S in the historical literature. So, where was 4S hiding in the old days, or is it an entirely modern condition? An answer to this question should take us a long way towards understanding its cause(s). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 I don’t think it is just a modern condition because several in this group have said that their grandfather had it or even great grandfather. One person on the group was themselves 50 years old, and if their grandfather had it then 4s was around 100 years ago. I think that just as now—the medical society misdiagnosis it as anxiety or OCD, back in old medical books it was probably lumped in with some other ailment. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of anthony gSent: Wednesday, April 27, 2011 8:04 AMTo: Soundsensitivity Subject: Re: question > >> > Has 4 S been documented in the Diagnostic and Statistical Manual? The military does not seem to acknowledge it because the military doctors tell me its not in there. They keep telling me its OCD or ADD (which i do have but cope very well with it). If anyone can give me other information to tell my doc on the base it would be greatly appreciated, Thank you.> >>I read a great deal of old psychiatry texts and have, for example, found many cases of autism published before Kanner supposedly published the first cases in 1943. However, I have found nothing at all resembling 4S in the historical literature. So, where was 4S hiding in the old days, or is it an entirely modern condition? An answer to this question should take us a long way towards understanding its cause(s). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 I think bringing all theories up helps us make decisions to ease our discomfort while there is no " cure. " As for the 50 year old, I am one of them and even though I had a very select sensitivity when I was young the world as a whole was far more graceful and less personally noisy (no cell phones, Ipods, pdas etc). The fact remains that our sensitivities are more triggered by humans making the sound and in our highly sophistocated technilogical age - more people with gadgets and things make noise than in the past. Which means a modern societal exacerbation, as opposed to a past remote isolated trigger. I agree that there is a neurological issue and psychological, but as modern pollution and other man-made carcinagens brought more cancers to the fore than in the past, so too the the noise pollution for our 4S. Maybe it just helps to be able to share the cause than put ourselves in the " problem " category all the time. As I posted, and only one person responded, I took a stand against rude and disrespectful people and filed a hostile work environment complaint. Yes we need to find a " cure " or therapy, but that doesn't mean we have to be pushed around and be subjegated! > > > > > > Has 4 S been documented in the Diagnostic and Statistical Manual? The > military does not seem to acknowledge it because the military doctors tell > me its not in there. They keep telling me its OCD or ADD (which i do have > but cope very well with it). If anyone can give me other information to tell > my doc on the base it would be greatly appreciated, Thank you. > > > > > > > I read a great deal of old psychiatry texts and have, for example, found > many cases of autism published before Kanner supposedly published the first > cases in 1943. However, I have found nothing at all resembling 4S in the > historical literature. So, where was 4S hiding in the old days, or is it an > entirely modern condition? An answer to this question should take us a long > way towards understanding its cause(s). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 But my primary triggers are not technological: eating and drinking sounds - even whistling. The only " technology " involved is having a mouth and a nose. My dog - who is not prone to using technology - can also trigger me with his loud drinking sounds. I think it is more likely that we develop more triggers - and are sensitive to a wider range of people - than when we were younger. We start out enraged by the eating or drinking of one or two specific people (typically a parent or sibling). Over time this generalises to more sounds, and to more people. It is true that social and technological changes can exacerbate that process: students were not allowed to eat in class, and chewing gum was completely forbidden at school (even outside in the playground), when I was growing up; mobile phones create a new source of annoying environmental sounds; and some countries are more prone to chewing gum use than others (it was invented in the US and is more common there than in many other nations, I believe). But despite these social and technological changes, most people still are not affected by these sounds and we are. That, I think, is the bottom line. We can point to all sorts of changes, but *most people are not affected by those changes, and we are*. We are different to most people. We react differently to the social and technological changes around us. And the world will not change (at least, not very much) to accommodate our peculiar sensitivities. It is our problem, not theirs. > > when I was young the world as a whole was far more graceful and less personally noisy (no cell phones, Ipods, pdas etc). The fact remains that our sensitivities are more triggered by humans making the sound and in our highly sophistocated technilogical age - more people with gadgets and things make noise than in the past. Which means a modern societal exacerbation, as opposed to a past remote isolated trigger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2011 Report Share Posted May 1, 2011 No, it doesn’t mean we can’t stand up for ourselves against rude noises. I tell people they can’t chew gum around my daughter all the time. I’m just saying that 4s has been around probably for hundreds of years, and although it may be worse now because we have to live and work with more people and be exposed to more sounds, I don’t think that it’s in any way the cause of more 4s. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of spencermary20Sent: Thursday, April 28, 2011 5:03 PMTo: Soundsensitivity Subject: Re: question I think bringing all theories up helps us make decisions to ease our discomfort while there is no " cure. " As for the 50 year old, I am one of them and even though I had a very select sensitivity when I was young the world as a whole was far more graceful and less personally noisy (no cell phones, Ipods, pdas etc). The fact remains that our sensitivities are more triggered by humans making the sound and in our highly sophistocated technilogical age - more people with gadgets and things make noise than in the past. Which means a modern societal exacerbation, as opposed to a past remote isolated trigger.I agree that there is a neurological issue and psychological, but as modern pollution and other man-made carcinagens brought more cancers to the fore than in the past, so too the the noise pollution for our 4S.Maybe it just helps to be able to share the cause than put ourselves in the " problem " category all the time. As I posted, and only one person responded, I took a stand against rude and disrespectful people and filed a hostile work environment complaint. Yes we need to find a " cure " or therapy, but that doesn't mean we have to be pushed around and be subjegated!> > >> > > Has 4 S been documented in the Diagnostic and Statistical Manual? The> military does not seem to acknowledge it because the military doctors tell> me its not in there. They keep telling me its OCD or ADD (which i do have> but cope very well with it). If anyone can give me other information to tell> my doc on the base it would be greatly appreciated, Thank you.> > >> >> > I read a great deal of old psychiatry texts and have, for example, found> many cases of autism published before Kanner supposedly published the first> cases in 1943. However, I have found nothing at all resembling 4S in the> historical literature. So, where was 4S hiding in the old days, or is it an> entirely modern condition? An answer to this question should take us a long> way towards understanding its cause(s).> Quote Link to comment Share on other sites More sharing options...
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