Re:

[Guest guest]

,

I was so sad to read of all the complications. Is better now??? Please

send an update when possible. These hospitalizations and complications are

very difficult. We are thinking of you all and especially little .

With best wishes,

Mom to Kendra, 13, CHARGE, , 18 and Camille, 21

portland, OR

[Guest guest]

Hi,

I thought I'd tell you about what happened this week. There was a career day

for blind children that Patty got an invitation to. We actually went! I had

a doctors appointment in the area so I brought Patty there, dropped her off,

went to the appointment and came back around lunch. I came in time for the

parents to hear from a man who is totally blind talking about expectations

for children. The kids went to their own seminars. His main idea was to have

high expectations, but only because of the child, not their disability. He

spoke of his parents and their love, and discipline which helped him get

where he is. He also spoke of a young lady that had a career but could not

work the dishwasher, clean a table after she ate or use sharp utensils...,

which he felt was sad. She was able to be educated but had very little life

skills. There was also a man there who was totally blind but water-skis. That

one I couldn't believe! They talked about some modifications and things that

you need to look into after high school.

Anyway, then came lunch and I met Patty. I asked her how it was going

and she seemed tense. She said she didn't belong here because " these kids

are disabled. " She saw the children who were totally blind but did not

notice the ones who had some sort of vision. In the end-to make this long

story shorter, she ended up comfortable. She actually had a hard time

because we did not bring her FM unit and I noticed how her lack of hearing

effects her more than these other children's visual limitations. She often

is a " misfit " even in the disabled world. But it was beneficial. I asked

her what she learned and she said the most important is to " never give up. "

It was worth it! She was happy she went.

The next day we went for an eye exam. Patty's vision has been measured

all over the place by around 4 or 5 different doctors. But, we were told by

one of the doctors that a coloboma is something that will not get worse or

better. He said he couldn't fix it, he is not a miracle worker, no one is,

so just accept it. So, we just took her to regular eye doctors. We finally

went to someone who works with visually impaired children. Patty was NVI

because in her good eye they had her around 20/40 (?) with her glasses on.

Well, low and behold, like we have said, she IS Visually Impaired. I think

it was-with correction-around 20/80 actually. What was horrible is that her

glasses are for farsighted and she is not, she is myopic. Also she has an

astigmatism that no one ever diagnosed. This child has had to work SO hard

to see. Patty has always learned to compensate or modify things she needed

to by herself. I feel horrible. I am just thankful we found out now. I

always question doctors, but never thought to question an eye doctor. All I

needed to do was to ask for explanations, then check into them. The other

day I even got to see inside her " bad " eye. It was kind of cool to

understand the coloboma.

So-what I learned, especially if your child is little, go to a doctor who

knows and understands colobomas. Then approach the educational services for

that disability. That way, even if they are misfits they won't fall through

the cracks.

Bonnie, Mom to Patty 15 CHARGE, Kris 17, and wife to

[Guest guest]

I agree with everything said by Connie and Sheila. Pick yourself up, dust

yourself off and start fresh tomorrow.

Lyn

Hey ,

You can't change what is done. Forget about it

and don't beat yourself up!! Start fresh RIGHT

NOW!

Do you know what caused you to go over? Stress?,

Not journaling?, Not planning meals?

Is it something you can change? I have done this

as well, I think everyone has. People have gone

over by 40 points on some days!

Sheila

__________________________________________________

[Guest guest]

My dh has been ill the

past week and as I sat with him in the drs' office

today holding his hand...his hands seemed more

beautiful to me than ever...because those hands have

taken mine and together we've covered many miles! I

hope your marriage is filled with the same sort of

adoration and love!

: That is absolutely touching. I think I'll remember that when DH and

I are in less than favorable moods with each other (which is too often lately)

I do admit, though, sometimes I look at him from across the room and am amazed

we've been married 12 years, mostly happily. Where does time go!

Lyn

[Guest guest]

~You are very welcome! I am so excited for you, getting married and

finding your true love. I had two children when I found my darling husband.

We had one more together and then I said " that's it!!!! " Well, I have

regretted that decision for years. :0( I thought that I didn't want to risk

having anymore, thinking life might become a hard road again someday. I have

realized that I can trust the Lord with my life now. Even when it comes to

how many children I have. Money is no longer the issue. Fear of divorce is no

longer the issue, when it comes to my decision. There are times when this

stuff resurfaces, but the Lord sees me through. Fear is no longer in control

of my life. PTL (stands for Praise The Lord). Anyhow, you are not alone. I

will keep you in my prayers. This is a wonderful group of ladies. I tap into

their knowledge often. I have only been a part of this group for a couple of

weeks, but I have found that they are a real close bunch and am so happy to

be a part of it. :0) I look forward to more of your letters. I think you are

a real nice person. God bless,

Ingrid 30

Hubby 39

D Jamai 12

DS Christian 10

DS Dylan 6

[Guest guest]

~ Thanks for writing. I understand your excitement! I am waiting for

my TR now. It isn't a lot to go through. I had to choose a surgeon, request

an operative report and have them faxed to Dr. Levin, and schedule a (30min)

phone consult. I have had my consult and I feel confident in my doctor, I

have found a buddy, Colleen, so we worked out a date for the TR. The worst

part is waiting! I have to wait for the lender to send the check to Dr.

Levin, then purchase airfare in advance to save on expenses. A mouth full, I

know, but It is easier than it sounds! I already have a baby crib set up and

I traded in my car for an Astro van to make room for my lil Sweetpea! If you

have any questions about my choice of a Dr., send me your questions to my

personal e-mail so noone will get offended. All my love,

Ingrid 30

dh 39

dd 12

ds 10

ds 6

TL 95

TR planned for 17Jan. 02

[Guest guest]

,

I agree it is neat!! OK

dads family are 's

my moms family are Noe's

My neices are 's and Pendelton's

Know any of them?? hehehe

Love, donna

--- nickshan019@... wrote:

> Donna, I've lived here all my live, almost 29 years.

> who is your family i

> might know them?

>

=====

Donna Fannin 34

DH Kenny 33

DD's Angie & 15 & 16

DS (bubby)14

TL 3-15-88 TR 8-20-01

__________________________________________________

[Guest guest]

,

How did your appt with the RE go? Have you had your

hormones and progestrone tested before? I'm not sure

what else you could ask about my mind is a blank. Let

us know how it went.

Love, Donna

--- vittbb wrote:

>

>

> Ok guys need some help. I have a appointment today

> at 3:00 with the

> RE doctor that Jana has. I am scared and I have now

> forgot all of my

> questions..I should have O'd yesterday or today I

> think... I am at a

> loss on what to ask.. Can anyone help me

>

>

>

>

=====

Donna Fannin 34

DH Kenny 33

DD's Angie & 15 & 16

DS (bubby)14

TL 3-15-88 TR 8-20-01

__________________________________________________

[Guest guest]

Congrats , to you and your Bean...

>

>Reply-To: TubalLigationReversal

>To: " TubalLigationReversals "

><TubalLigationReversal >

>Subject: Update on me and Bean

>Date: Mon, 10 Dec 2001 12:34:07 -0600

>

>Hi ladies, I wanted to update you on me and Bean. First off, I went to

my

>cardiologist last Thursday for a follow up echo of my heart, and the mass

>seems to be gone. What this means is that the IV antibiotics seem to be

>working. He thinks the chest pain I had in Iowa which sent me to the ER

>was either pieces of the mass or the entire thing breaking off and going

>into my lungs. So, I may get this PICC line out next Wednesday!!!!

>Yippeee!! Plus all my labs are looking excellent and I am feeling so

much

>better!

>

>Now, I saw my new high risk OB this AM and I absolutely loved her! She

is

>so sweet and just made me feel so much better about the whole " risk "

thing.

> She told me that the risk from the anesthesia that I had while in the

>hospital is nonexistent, no risk at all. The risk from the CT scan, she

>said don't even bother to worry about that. Once CT scan alone causing

any

>damage is extremely rare. She said she wouldn't want to send me out to

>have 5 more scans but that one should have been fine, especially since

they

>shielded my abdomen. Also, I am 11 weeks and 1 day today and we heard

>Bean's heartbeat with the Doppler! She had told me beforehand not to get

>freaked out if we didn't hear it, but there it was loud and strong! She

>checked my uterus and said it is perfect size, and I am already getting a

>baby belly. I have never shown this early with any of my others, but

this

>is the 4th, so I guess my muscles aren't what they used to be! I see the

>Maternal Fetal specialist on Thursday, and will continue seeing him and

the

>OB throughout the pregnancy, and she said I will probably have numerous

>ultrasounds. That's fine with me, just so Bean is OK. I am so thankful,

>and I feel like a weight has been lifted today. My heart knew that Bean

>was OK, but it sure felt good to hear the doctor say it!!

>

>Thanks to all of you for all of your care and concern, but most

importantly

>all of your prayers. I truly feel very blessed today and always.

>

> Hart

>EDD 30 June 2002

>

>

>

>

>

>

[Guest guest]

Hi Lyn,

Merry Christmas to you and all of the WW posters. Happy 2002!

[Guest guest]

I am really having a hard time gettting the journaling going, why is this

such a hassle for me right now??? I really want to do it all, and i have lost

30 + lbs., 20 to go.

NOt Whinning, just don't understand me...

[Guest guest]

Weigh-in today I lst3/4 of a lb since Friday

[Guest guest]

>Hi

I have already said on another post that I had a VBG 7 weeks ago. I hope I am

not boring everyone by repeating my self.

I did go to a over eaters anon and have to admit to only going once. It just

wasnt me. i have had counselling in the past but I refuse to discusses the real

issues that have haunted my past. Dont want to think Aabout them. I was told by

the councillor that until I do I will never be able to help myself.

Very scary and not ready to go there yet. I " met " and befriended a person with

similar problems to me on the Internet. She has the same issues to deal with as

me and also is having problems with the surgery. I see her suffering and dont

want to go down the same road.

I will crack this

>Hi ,

>I am sorry that right now you are having difficulties. If you don;t

>mind my asking, what surgery did you have and how much have you lost

>so far? It sounds like you may have had the duodenal switch?

>And if you feel you are having major food issues, you might want to

>try a therapist or see if there are any Over eaters anon in your

>area. I have not been to one, but a gentlemen at work goes to OA and

>it has done wonders for him. ANd I know there are people here who

>have gone, or are going. Good luck . I will be keeping you in my

>thoughts.

>joan in PA

>Surgery March 26

>or

>6 days, 1 hour , 12 minutes 35 seconds..34..33..32 but who's

>counting LOLOL

>

>

>

>To Subscribe to 's weekly FREE Newsletter send an email to

GBCookbook-subscribe@...

>

[Guest guest]

I told them that I am not sure what I will be able to afford based on everything they might find, but I will max my mastercard to get a direction. The low blood pressure is not good and I am a tough woman. I am alone and can't afford to be so weak. The vitamins and I am sure some of the protocols that holistic Drs. like to get into, I will not be doing, but I think I have been sick for at least 6 years. That has left me with some damage. I will fix the big stuff and hope good genes will help correct the rest. It seems the unexplained massive weight loss in 97 was the start of this all Hashi stuff. I am curious what they will find, but I am not having my mercury fillings removed no matter what! LOL

----- Original Message -----

From:

Sounds to me like he's investigating in the right directions for sure, but, I know, very expensive. That's why I haven't done all that testing yet. I'm going to order my own, and THEN look around for the right doctor, probably alternative, to guide me on the adrenal thing, if there IS a problem there. The thyroid thing I can handle on my own, but I'm in over my head when it comes to treating myself for adrenal problems(if there is one). Need guidance there, but not the wrong guidance.

[Guest guest]

Yes, because the initial phase of Hashimoto's is usually a hyperthyroid state, until the gland gets destroyed. I have no insurance either, and don't make a whole lot of bucks, am also alone, so that's why I'm opting for getting my own tests done. It's unbelievably cheaper. Doctor's offices mark up the price of getting your labs done. That's why they're so expensive. Kind of like the middle man in any business. Except it plays Russian roulette with people's finances and bodies.

Re:

I told them that I am not sure what I will be able to afford based on everything they might find, but I will max my mastercard to get a direction. The low blood pressure is not good and I am a tough woman. I am alone and can't afford to be so weak. The vitamins and I am sure some of the protocols that holistic Drs. like to get into, I will not be doing, but I think I have been sick for at least 6 years. That has left me with some damage. I will fix the big stuff and hope good genes will help correct the rest. It seems the unexplained massive weight loss in 97 was the start of this all Hashi stuff. I am curious what they will find, but I am not having my mercury fillings removed no matter what! LOL

----- Original Message -----

From:

Sounds to me like he's investigating in the right directions for sure, but, I know, very expensive. That's why I haven't done all that testing yet. I'm going to order my own, and THEN look around for the right doctor, probably alternative, to guide me on the adrenal thing, if there IS a problem there. The thyroid thing I can handle on my own, but I'm in over my head when it comes to treating myself for adrenal problems(if there is one). Need guidance there, but not the wrong guidance.

[Guest guest]

-

A round of hugs for everyone...real ones for those in Ann Arbor next weekend.

Adventure is good, when we have a say on it all.

All the best to you this week until we meet in Ann Arbor.

Give a hug, get a hug - a win win situation-

Sandie

Des Moines, IA

-- " lauraf13 " wrote:

Sandie,

Thanks for the cyber hugs. Yes, I have always felt a connection to you because

of the

similarities between your father and my mother. I'm looking forward to meeting

you and

everyone else. I'm preparing for my road trip and looking forward to my

adventure

(hopefully not to much of an adventure).

Cyber hugs back to you,

in Dallas

> >

> >

> >

> > REMEMBER: Cell Phone Numbers Go Public today

> > REMINDER.... all cell phone numbers are being released to telemarketing

> > companies tomorrow and you will start to receive sale calls.

> >

> > .... YOU WILL BE CHARGED FOR THESE CALLS

> >

> > To prevent this, call the following number from your cell phone:

> > .

> > It is the National DO NOT CALL list. It will only take a minute of your

> > time. It blocks your number for five (5) years. You must call from the cell

phone

> > number you want to have blocked. You cannot call from a different phone

> > number.

> >

> > HELP OTHERS BY PASSING THIS ON TO ALL YOUR FRIENDS.. It takes about 20

> > seconds.

> > or go to _www.donotcall.gov_ (http://www.donotcall.gov/)

> >

> >

> >

> >

> > **************Get fantasy football with free live scoring. Sign up for

> > FanHouse Fantasy Football today.

> > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

> >

> >

> >

[Guest guest]

Hi, and welcome to the group, which for me has been a godsend, even tho I was diagnosed with bronch 36 yrs ago. I have had a life of infections yet little or no education/information from medical fraternity as to managing it/preventing further infx (which create a cycle of lung damage).

Having been through several pneumonias & a lifetime of infx, pretty much alone - no real follow-up from drs, little family support.....guess what I’m trying to say is that that each of us, no matter the details of our story, experiences some very frightening times. And then there’s this new ‘lifestyle’ to try to work out...

Bronchiectasis & its related health issues are as varied as there are people, so often what works for one person can be the worst thing for another!!

I am going in for sinus surgery in a month.... What was your ‘cure’ for sinus probs?

I have also often thought how must it be for people living in countries where there are little or no health services. Living in some regional parts of Australia is bad enough, where it may be hours’ drive to nearest clinic/health centre, and then only limited services - and choice of specialist – if any choice at all - is limited even in townships.

Nebulised saline helps the lungs relax, so it may be worth buying your own nebuliser so you can tailor your ventolin use, also will allow the possiblity to find other means of easing your breathing, which must be dreadful to suddenly find yourself like this,

feel free to ask questions. We’re not doctors, with such a wide range of experience among the group someone is usually able to point to some suggestions that you can raise w/ your dr, or websites for information....

We wish you well,

joy

[Guest guest]

-

I feel terrible for not writing sooner. I was thinking of you all day on Sept.

30. I saw a few white butterflies fluttering around our yard and knew they were

for you. I wondered if you had any Godincidences with butterflies or Orchids.

So please know that even though I forgot to write you were in my thoughts and

prayers.

Hugs-

Sandie

Des Moines, IA

-- " " wrote:

Hi Tony - glad to hear from you... Yes, my parents both continue to

exist through me... No doubt that part of their personalities have

become my personality as time goes by... After my dad passed away

10/10/96 - I became a " writer " meaning I was able to write well - Dad

was a writer and I believe wrote through me. Since my mom has gone

(9/30/06) I've begun to cook (never was a cooker), returned to

dancing (via Zumba & Yoga) and even began to knit (using mom's yarn)

My sister kiddingly said when I came out of surgery one year ago that

it was like my mom reincarnated in me b/c I was waving to her just

how mom used to wave to us... Maybe part of her is part of me now, as

well as dear ole dad... At least that's what I believe...

>

> Amigos Mio :-)

>

> Today just happens to mark the day when Dad left and like life does

it thing, time passes so, but never forgetting his existence.

>

> It's been 1 year since he's gone....but I tell you this, I begin to

think and even look alike (more) like Dad...

>

> He is still around...

>

>

>

>

> ----- Forwarded Message ----

>

> To: Tony

> Sent: Sunday, October 7, 2007 10:56:58 PM

> Subject: My Dad - His Passing

>

>

> Dear Friends,

>

> Some of you have met my father or heard of him. Yesterday at the

age 77, Ramon Alberto ' life ended after an intense battle with

Alzheimer's Disease.

>

> He died in his home in his sleep; we woke up to check on him, his

breathing had stopped, his heart ceased to beat life into him, his

eyes closed the curtains to this world.

>

> To those that have known him personally, he forever has left a mark

in their lives quite simply with a smile, his great heart, his gentle

face, and the affection that comes out naturally. And for you that

never met him, I can show you what he did for me.

>

> He became my father at birth, I became his son growing up with him,

then as he became so ill, my father became my child in need. I was

ever so scared to become a father to him for I never had children

before; but remembering how he came to me when he showed me his love

of music, his love for Mom, how much his kisses meant when he put me

to bed, and how much his words " Te quiero mucho hijo mio " actually

meant for him...

>

> I could then feed him, give him the when he needed, to clothe him,

embrace him in his bed and kiss his forehead.

>

> In the end, trying to sing a lullaby om his last night in this

world, was the most hardest song for my Dad; for he taught me the

love of music and expression, never really knowing that I would play

music in his last hours...

>

> Ramon was his name and he was my Dad, my " viejito lindo " .

>

> I am in the midst of planning a memorial for Dad. If you are near

the Detroit area, please let me know. Please also pass this message

to any of Dad's old friends (from the Argentine community) if you

happen to know them.

>

> Thank you ALL for reading this message.

>

> Sinceramente...

>

> Claudio ...son of Ramon

> ________________________________

> Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get

listings, and more!

>

>

>

>

>

[Guest guest]

The chosen lobby flower for your office building?!! Amazing!

> >

> >

> > -

> > I feel terrible for not writing sooner. I was thinking of you

all

> day on Sept. 30. I saw a few white butterflies fluttering around

our

> yard and knew they were for you. I wondered if you had any

> Godincidences with butterflies or Orchids.

> > So please know that even though I forgot to write you were in my

> thoughts and prayers.

> > Hugs-

> > Sandie

> > Des Moines, IA

>

[Guest guest]

Thanks Joy for telling me about Turmeric. I am going to health food store tomorrow to buy this and give it a try, plus I need eucalyptus oil to place a few drops inside medical masks just in case I'm exposed to this swine flu. I'm in Arkansas and so far no cases have been confirmed. I can't even imagine coming down with this. A simple cold anymore makes me run fever,plus back on Cipro. Again, thanks for information. Hope you're doing well. Take care.Subject: Re: To: "bronchiectasis " <bronchiectasis >Date: Monday, April 27, 2009, 6:29 AM

Hi n,

Because our airways get clogged any aromatic spices/herbs & vegs are good in that they help open airways. Onion and garlic help clear toxins of having constant doses of antibiotics, and also are said to be good for lungs, as is ginger. I couldn’t live w/out these, and chilli and many of the Indian spices, eg turmeric is a known antibacterial and antifungal – not that any of these will cure us, but gives our body that bit more of a fighting chance. Of course, people have different tastes and tolerances but it’s worth a try. Garam masala mixes from a good Asian store contain a mix of 5 or more of these spices which you may find gentler on the palate if can’t take to the stronger spices.

Personally I found that tho I love yoghurt it eventually became impossible as it would make my sinuses stream/block for an hour afterwards, but butter, white cheeses such as fetta, cottage, ricotta etc I can tolerate. And as Norma mentioned, oily fish, such as sardines etc are excellent and keep up our calcium as well to compensate for reduced intake of dairy. When you think of it there are/were culture which use little dairy products and don’t suffer calcium deficiency.. . Just a thought!

Hope this helps,

joy

[Guest guest]

Hi Myriam, Sorry I'm answering this late and sorry that you are back on all that medicine. Are you still having the same reactions to the meds? If so, can they start you slowly and then build up until you are on full strength. It made all the difference in the way my body reacted to the medicines. Of course, everyone is not the same. I'm happy for you that you will be able to get to Denver. Keep us all informed. I have not been in a hospital for a few years and then only overnight. I've been lucky to stay out of the hospital since then. Take care.

Jan

Subject: Re: To: bronchiectasis Date: Saturday, April 25, 2009, 4:03 PM

Hi Joy & Jan

We are back in Ohio. but I was was coughing blood for the 3 days trip. I found out what was the new infection I got, is the same thing I had 15 years ago, that they put me in all those strong antib. that I was suppose to take for at least a year and half, but the Mayo clinic took me off after 9 months, (Jan knows all that) now they are going to put me back, I'm upset about all this, but I'm planning on going to the Jewish hospital in Denver soon. Jan were you in the hospital again? Stay well Myriam

From: joy <endiandralizzy (DOT) com.au>To: "bronchiectasis@ yahoogroups. com" <bronchiectasis@ yahoogroups. com>Sent: Friday, April 10, 2009 8:50:30 PMSubject: Re: n, Norma- Pseudomonas

Hi n & NormaSorry Norma to say news re Psa (Pseudomonas) isn’t good.... Yes your daughter is correct, tho recently I read that the non-mucoidal form can be eliminated, but not once it’s mucoidal. I was dx w/ psa 9 yrs ago, had Cipro for yrs, despite it no longer working, psa quickly becomes resistant. I’ve had 5 courses of IV abx (2 in combo), mostly 14 days (10-14 I believe is standard). I came out of hospital last Saturday, 4th time in 12 mths, Psa exacerbation, it takes a lot out of me... Give yourself time, you’ve a couple of years on me, so it must be tough going for you ! Re saline & dry cough (dry cough can mean diff infx eg candida, due to lots abx). Best mucous clearance I’ve found is hypertonic saline (ht), initially on isotonic (0.9%, same as blood) but not much result for me.

But PLEASE, check w/ dr about using ht first, there are things you need to know. I was recently advised only use as feel needed, overuse dries out lungs & increase infx risk. I’ve found it a lifesave, am convinced I’d have been in hosp sooner if didn’t use it.I had FESS etc (sinus) op last yr, have been much better tho have pnd again, I do daily nasal flush & sure it would be worse if didn’t (FloRinse). My ENT surgeon told me mix bicarb:salt 2:1 eg 1 teaspoon bicarb to half tsp salt. I mix a jar, and put about 1/2 tsp in the flush bottle w/ warm water. It is messy, best not b4 bed, nose drips a while. Since on strong IV abx I eventually found yoghurt not enough as probiotic and started on tab forms. I found taking Fungilin lozenges prophylactically has meant avoiding thrush outbreaks (had 5 yrs getting it back under control). Any immune boost

therapies etc are good, but won’t lessen psa, certainly won’t clear infx – sorry!!! There’s quite a few google websites, I saved some articles, I could send them to you privately but let me know first.All the best,joy

[Guest guest]

Hi Jan

I made a mistake I'm not taking septra, I take biaxin.

Say well Myriam

To: bronchiectasis Sent: Sunday, May 17, 2009 7:27:51 PMSubject: Re:

Hi Myriam,

Good luck in June on your visit to National Jewish. They are supposed to be one of the best. Hopefully you can find some relief. That's a good question on "How did we get so lucky." I think we should receive some kind of prize. How about a "gold" sputum cup. (I'm joking!) There are still too many people with bronch and MAC. Hopefully with your visit, you can get some suggestions that may be helpful to the rest of us. Keep us informed on how you are doing.

Jan in St. Louis

From: Roland Kreml <opa.litayahoo (DOT) com>Subject: Re: To: bronchiectasis@ yahoogroups. comDate: Saturday, May 16, 2009, 11:33 AM

Joy, Jan, & Chacha

I got an appointment for the National Jewish hospital for the 27 of June, because they wanted a sputum specimen, and MAC,(macobacterium avian) grows very slowly, they send me some literature-where it say that in one year in the States 2 people out 100.000 get this illness. Jan how did we get so lucky. I'm glad Joy you're feeling better.

Stay well Myriam

From: joy <endiandralizzy (DOT) com.au>To: "bronchiectasis@ yahoogroups. com" <bronchiectasis@ yahoogroups. com>Sent: Saturday, May 16, 2009 10:34:04 AMSubject: Re: question-anaestheti cs

Hi Lee,Sorry taken some time replying re surgery / anaesthetics recovery. With 20+ surgeries by 20 yrs old (mostly ENT or related). I realised eventually I had a hard time ‘surfacing’ & recovering. It’s hard enough to breathe after surgery, so much pain, airway bruising - but with a chest incision ...! aowwhhh! It may be a cliche some things get easier the more you experience / do. But this kind I think no, definitely not. I hope you’re getting some TLC and nursing..... .the least you deserve after all you do for others. It really does take time - AND nurturing to heal. Hope by this time you’re feeling much much better... And getting the help you need.

Joy

[Guest guest]

Myriam, Sorry I'm replying late. We have been out of town until today. I took Azithromycin, Rifampin, and Ethambutol for 2 1/2 years. I could not take biaxin, since I had a bad reaction to it. I finally ended up on Rifampin. Sorry this is short. I need to unpack.

Take care.

Jan in St. Louis

From: Roland Kreml <opa.litayahoo (DOT) com>Subject: Re: To: bronchiectasis@ yahoogroups. comDate: Saturday, May 16, 2009, 11:33 AM

Joy, Jan, & Chacha

I got an appointment for the National Jewish hospital for the 27 of June, because they wanted a sputum specimen, and MAC,(macobacterium avian) grows very slowly, they send me some literature-where it say that in one year in the States 2 people out 100.000 get this illness. Jan how did we get so lucky. I'm glad Joy you're feeling better.

Stay well Myriam

From: joy <endiandralizzy (DOT) com.au>To: "bronchiectasis@ yahoogroups. com" <bronchiectasis@ yahoogroups. com>Sent: Saturday, May 16, 2009 10:34:04 AMSubject: Re: question-anaestheti cs

Hi Lee,Sorry taken some time replying re surgery / anaesthetics recovery. With 20+ surgeries by 20 yrs old (mostly ENT or related). I realised eventually I had a hard time ‘surfacing’ & recovering. It’s hard enough to breathe after surgery, so much pain, airway bruising - but with a chest incision ...! aowwhhh! It may be a cliche some things get easier the more you experience / do. But this kind I think no, definitely not. I hope you’re getting some TLC and nursing..... . .the least you deserve after all you do for others. It really does take time - AND nurturing to heal. Hope by this time you’re feeling much much better... And getting the help you need.

Joy

[Guest guest]

I did not lose weight on the medication. I actually gained what I had lost from having the MAC (about 5 pounds) I'm still thin though. On my own I visited a dietician who gave me ideas on what to eat without getting all the fat and to eat several small meals a day which I still do. One thing the medicine did do was raise my cholesterol to an all time high. I went off the medicine in December 2008 and this month had another cholesterol reading and it was down 44 points. Yea!! I don't think the doctors believed it was the medicine, but now they don't deny it. Hopefully, the MAC will stay away. Take care.

Jan in St. Louis

From: Roland Kreml <opa.litayahoo (DOT) com>Subject: Re: To: bronchiectasis@ yahoogroups. comDate: Saturday, May 16, 2009, 11:33 AM

Joy, Jan, & Chacha

I got an appointment for the National Jewish hospital for the 27 of June, because they wanted a sputum specimen, and MAC,(macobacterium avian) grows very slowly, they send me some literature-where it say that in one year in the States 2 people out 100.000 get this illness. Jan how did we get so lucky. I'm glad Joy you're feeling better.

Stay well Myriam

From: joy <endiandralizzy (DOT) com.au>To: "bronchiectasis@ yahoogroups. com" <bronchiectasis@ yahoogroups. com>Sent: Saturday, May 16, 2009 10:34:04 AMSubject: Re: question-anaestheti cs

Hi Lee,Sorry taken some time replying re surgery / anaesthetics recovery. With 20+ surgeries by 20 yrs old (mostly ENT or related). I realised eventually I had a hard time ‘surfacing’ & recovering. It’s hard enough to breathe after surgery, so much pain, airway bruising - but with a chest incision ...! aowwhhh! It may be a cliche some things get easier the more you experience / do. But this kind I think no, definitely not. I hope you’re getting some TLC and nursing..... . .the least you deserve after all you do for others. It really does take time - AND nurturing to heal. Hope by this time you’re feeling much much better... And getting the help you need.

Joy

[Guest guest]

Hi Jan and n

When you took the meds for Mac, did you have trouble with your stomach? when I started it was really sick but it got better with provatioticks[can't spell it] I had change the brand and now its really sick again, I get really hungry but I don't like anything. Jan why couldn't you take the bioxin? m How were you feeling terrible?.Tomorrow we are leaving for Denver, He,s driving but Ill receive the email.

Stay well Myriam

To: bronchiectasis Sent: Friday, June 5, 2009 2:24:35 PMSubject: Re:

I did not lose weight on the medication. I actually gained what I had lost from having the MAC (about 5 pounds) I'm still thin though. On my own I visited a dietician who gave me ideas on what to eat without getting all the fat and to eat several small meals a day which I still do. One thing the medicine did do was raise my cholesterol to an all time high. I went off the medicine in December 2008 and this month had another cholesterol reading and it was down 44 points. Yea!! I don't think the doctors believed it was the medicine, but now they don't deny it. Hopefully, the MAC will stay away. Take care.

Jan in St. Louis

From: Roland Kreml <opa.litayahoo (DOT) com>Subject: Re: To: bronchiectasis@ yahoogroups. comDate: Saturday, May 16, 2009, 11:33 AM

Joy, Jan, & Chacha

I got an appointment for the National Jewish hospital for the 27 of June, because they wanted a sputum specimen, and MAC,(macobacterium avian) grows very slowly, they send me some literature-where it say that in one year in the States 2 people out 100.000 get this illness. Jan how did we get so lucky. I'm glad Joy you're feeling better.

Stay well Myriam

From: joy <endiandralizzy (DOT) com.au>To: "bronchiectasis@ yahoogroups. com" <bronchiectasis@ yahoogroups. com>Sent: Saturday, May 16, 2009 10:34:04 AMSubject: Re: question-anaestheti cs

Hi Lee,Sorry taken some time replying re surgery / anaesthetics recovery. With 20+ surgeries by 20 yrs old (mostly ENT or related). I realised eventually I had a hard time ‘surfacing’ & recovering. It’s hard enough to breathe after surgery, so much pain, airway bruising - but with a chest incision ...! aowwhhh! It may be a cliche some things get easier the more you experience / do. But this kind I think no, definitely not. I hope you’re getting some TLC and nursing..... . .the least you deserve after all you do for others. It really does take time - AND nurturing to heal. Hope by this time you’re feeling much much better... And getting the help you need.

Joy