Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 Hi, I became a member of this group over 6 years ago when it was in the beginning stages. First, thank you for all of you help, information and support. This journey would have been much more scarey and with worse results without the help of all the caregivers who answered my questions and provided support. I have not been posting for a year or so as I am very burned out between taking care of my dad ( 84 with LBD in a nursing home) and mom (who has had 2 knee replacements and 1 hip) along with raising 2 sons (started when my youngest was 12 and now 18 and working and..... But this week, my dad looks like he is finally letting go. It may be coincidental, but I have been praying to St. Jude for about 8 days to help my dad have a quick and easy passage(before he showed any signs of change). On the 6th day, I started receiving daily calls that dad -- did not want to eat, or had a low grade fever. My sister and I saw him Sunday, he didn't eat (and we are ok with that) and then he has been with a low fever and not eating since then. Today, they called to get my ok to put him on morphine and some other drugs to ease his pain and help his breathing (comfort care only). My sister and I will go up tonight to see him and bring mom tomorrow. In my head, I know this is the great to know he will soon be free but in my heart, it has been such an intense journey -nights in the ER, moving from hospital to nursing home and again to find a good one, being there to comfort him when he was in the early stages and cognizant enf to be scared about what he was experiencing... I have tried to prepare myself for this time but I don't think I did a very good job. My sister (older) is still holding up-- very in charge and telling me how great this is that dad will soon be free-- but I don't have her will and strenghts and the worst is yet to come when my siblings who could not and/or would not help will jump back in with their opinons and what we " should " have done ... Keep us in your thoughts and prayers... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 Dear Donna, This is such a difficult time to go through. No matter how prepared we try to be, think we might be, the pain is intense and we suffer. My gosh, you are losing your father, someone who has been in your life and loved you your whole life! I hope the final stage of his journey is quick and comfortable for him. I so understand the mixed emotions. Plus we go into the end exhausted from the ride. Sending strength. Gibsons BC Mother died Aug. 12, 2006 at age 92 after a 13 year decline from PDD. > > Hi, > > I became a member of this group over 6 years ago when it was in the > beginning stages. First, thank you for all of you help, information > and support. This journey would have been much more scarey and with > worse results without the help of all the caregivers who answered my > questions and provided support. > > I have not been posting for a year or so as I am very burned out > between taking care of my dad ( 84 with LBD in a nursing home) and > mom (who has had 2 knee replacements and 1 hip) along with raising 2 > sons (started when my youngest was 12 and now 18 and working > and..... But this week, my dad looks like he is finally letting go. > > It may be coincidental, but I have been praying to St. Jude for about > 8 days to help my dad have a quick and easy passage(before he showed > any signs of change). On the 6th day, I started receiving daily calls > that dad -- did not want to eat, or had a low grade fever. > > My sister and I saw him Sunday, he didn't eat (and we are ok with > that) and then he has been with a low fever and not eating since > then. Today, they called to get my ok to put him on morphine and > some other drugs to ease his pain and help his breathing (comfort > care only). My sister and I will go up tonight to see him and bring > mom tomorrow. > > In my head, I know this is the great to know he will soon be free but > in my heart, it has been such an intense journey -nights in the ER, > moving from hospital to nursing home and again to find a good one, > being there to comfort him when he was in the early stages and > cognizant enf to be scared about what he was experiencing... > > I have tried to prepare myself for this time but I don't think I did > a very good job. My sister (older) is still holding up-- very in > charge and telling me how great this is that dad will soon be free-- > but I don't have her will and strenghts and the worst is yet to come > when my siblings who could not and/or would not help will jump back > in with their opinons and what we " should " have done ... > > > Keep us in your thoughts and prayers... > Quote Link to comment Share on other sites More sharing options...
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