Guest guest Posted October 8, 2001 Report Share Posted October 8, 2001 Could someone tell me exactly how the Wendi plan works, thanks a bunch, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 I posted the wendie plan. You find your point range, and then eat the amount of points she lists per day. The cycle runs for a week, then you start over. It's really very simple. So...I remember you had a day recently where you went over on points. If you were to follow the Wendie plan, you could have one day with a high point value. If weekends are your downfall, you could start the plan so that your high point day hit the weekend. Lyn Re: Thank you Could someone tell me exactly how the Wendi plan works, thanks a bunch, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Matt, welcome to the board - the place no one wants to be, but grateful for it anyway. I'm going to provide you below w/ a # of links (my 'welcome links') and hope the info will be useful to you. Here you go: I'm glad you found us. First & foremost: NO TRADITIONAL ANTIPSYCHOTICS (e.g. Haldol, Chlorpromazine), NO BENZODIAZEPINES (e.g. Ativan) NO ANTICHOLINERGIC DRUGS (e.g. Benadryl, Tylenol PM, Detrol, Enablex) CAUTION with some ATYPICAL ANTIPSYCHOTICS (e.g. Risperidone, Zyprexa) - but some are used w/ success (e.g. Seroquel, Clozaril) " Start Low, Go Slow " Take a moment to post a possible med. before trying - this board has an archives section w/ tons & tons of warnings about meds that don't work for those w/ LBD - they are extremely sensitive to meds! Read here: Risperdal & Haldol Message w/ collection of articles re: above http://health.groups.yahoo.com/group/LBDcaregivers/message/70932 Dementia With Lewy Bodies: A Review Of Clinical Benzodiazepines (e.g. Ativan) may negatively affect cognition and produce sedation, paradoxic agitation and increased risk of falls in the elderly http://tinyurl.com/2n54qj Why such strong feelings about benzos? Message by , also includes info re: an exception to the no benzo warning, Klonopin, that has been used with success for RBD (REM Behavior Disorder) by Dr. Boeve. http://health.groups.yahoo.com/group/LBDcaregivers/message/61849 Evaluating Meds Advice from a PharmaD via Lin http://health.groups.yahoo.com/group/LBDcaregivers/message/75551 Legal Stuff - get it done NOW http://health.groups.yahoo.com/group/LBDcaregivers/files/ scroll down to this document: The Business of Dementia.doc The 'legal' things you need to know about Top links to important LBD resources (IMHO) A Must Read by Dr. Bradley Boeve A Comprehensive Approach to Treatment can Significantly Improve the Quality of Life of Patients with the Lewy body dementias. http://www.lewybodydementia.org/AR0504BFB.php Diagnostic Review & Medicine Management by Bradley F. Boeve, MD (October 2004) Physicians guide to diagnosing and treating DLB/LBD. Includes recommended dosages. http://www.lewybodydementia.org/Boevelink.php *** 2006, September 08 -- Lewy body dementia From MayoClinic.com, Special to CNN.com. Norma says, " ...this is the most detailed, accurate information I've ever read about LBD. I think it should be sent to all new caregivers AND doctors who aren't clear. Thoughts everyone? " Keli says, " Definately yes!!! This is very informative yet not overwhelming. It can easily be shared with others. I intend to have my husband and children read it, and hopefully my moms dr's as well. Very good information. " http://www.cnn.com/HEALTH/library/DS/00795.html LBD Brochure (to print use legal size paper) http://www.lewybodydementia.org/docs/LBDAbroch_webLGL.pdf " Difficulties in Diagnosing Lewy Body Dementia " by T. MD http://www.youtube.com/LBDAtv Live Chat Event with Gomperts, MD Dr. Gomperts answered your questions in this Q & A session from March 2007 http://www.lewybodydementia.org/docs/gomperts_transcript.pdf If your LO hasn't been diagnosed yet, make sure they get a FDG-PET assessment. http://interactive.snm.org/index.cfm?PageID=7405 & RPID=627 And a summary of what's on this board: Main board: http://groups.yahoo.com/group/LBDcaregivers/ (Read your emails via the board vs. your `in box'. And get into all the different sections that are available on the website. Search archived messages here.) Links Section: http://health.groups.yahoo.com/group/LBDcaregivers/links (Tons of links that is continuously a `work in progress' – all these links are useful to the caregiver. A variety of categories neatly organized into folders – what topic are you interested in? Find the folder and within it find numerous links to other websites for additional information.) Files Section: http://health.groups.yahoo.com/group/LBDcaregivers/files/ (Read other caregiver's stories, read about the good & bad drugs here, print a " companion card " from here (cards to hand out in public areas about your LO's behavior), find the locations of other caregivers who are possibility living in your immediate area, FAQ document, LBD Phases by LBD Caring Spouses, etc.) Database Section: http://health.groups.yahoo.com/group/LBDcaregivers/database (Suggested reading, learn the common denominators about our loved ones, medical referrals, nursing home referrals, bibliography of LBD in literature and film, etc.) Photos Section: http://health.ph.groups.yahoo.com/group/LBDcaregivers/photos (Put a face to a name.) Polls Section: http://health.groups.yahoo.com/group/LBDcaregivers/polls (Several polls running re: LBD) ; loving daughter of Maureen of Boston, MA; dx'd with LBD in 2/2006 (confirmed via brain biopsy;) fell victim to rapid decline from Risperidone; Mom fell into the 50% category of those who could not handle antipsychotics; Was successful on Celexa, Exelon, ALA & B1; Mom became my Guardian Angel on Sept. 30th, 2006. > > Hello , > > My name is Matt. My father was diagnosed with lbd within the last year. It has been difficult for my mother who is his main caregiver.I need to find more ways to help her deal with what lies ahead. I thought joining this group would be a good way to learn more ways to do that. > > Thank you, > Matt Pacell > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Hi, Matt! Welcome to the club none of us ever wanted to join! You'll find a LOT of support and information here. These wonderful people have been more help to me than any doctor.    Gladys Stefany Milford, Pike County, PA Very Proud Daughter of Grace, age 76 - appears to be in between stages 3 and 4 Diagnosed with " probable " Diffuse Lewy Body Disease Current Meds: Exelon Patch, Namenda, Nexium, Parcopa, Premarin, Synthroid, Vytorin, Seroquel, and Zoloft -- thank you Hello , My name is Matt. My father was diagnosed with lbd within the last year. It has been difficult for my mother who is his main caregiver.I need to find more ways to help her deal with what lies ahead. I thought joining this group would be a good way to learn more ways to do that. Thank you, Matt Pacell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Welcome to the group Matt! Courage thank you Hello , My name is Matt. My father was diagnosed with lbd within the last year. It has been difficult for my mother who is his main caregiver.I need to find more ways to help her deal with what lies ahead. I thought joining this group would be a good way to learn more ways to do that. Thank you, Matt Pacell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Welcome, Matt! Feel free to ask any questions that you have, people are always more than willing to share their experiences and knowledge here as well as support . His, Sherry www.owly.net daughter of , (mis?)diagnosed with AD in 2005, descent slowed by Aricept; diagnosed with LBD March 2008, in a wonderful NH 1/2 mile from my house. We're learning to live with Lewy... ----- Original Message ----- My name is Matt. My father was diagnosed with lbd within the last year. It has been difficult for my mother who is his main caregiver.I need to find more ways to help her deal with what lies ahead. I thought joining this group would be a good way to learn more ways to do that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Welcome Matt, just sent you our list of good info. You will find lots of links if you go to the bottom of this message. The blue words at the bottom will take you into all our links. Photos, membership, messages and all. Hope we can be of help. Mostly it comes down to meds a lot of the time. Hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. thank you Hello , � �My name is Matt. My father was diagnosed with lbd within the last year. It has been difficult for my mother who is his main caregiver.I need to find more ways to help her deal with what lies ahead. I thought joining this group would be a good way to learn more ways to do that. � Thank you, Matt Pacell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 hi matt, welcome to our family, yes we are a big loving family, many of us like myself have already traveled the lbd journey and are here to help others on their jounreys and many others are in various places along the way. there are a few rules per se, that you need to understand about lbd, one is think like a turtle go low and go slow.meaning our lo's *(loved ones) cannot handle high dosages of medicines and any changes in meds needs to be done slowly. also medicnes that work for some of our loved ones do not always work for others, every lbd patient is different and reacts different to medicines and situationsl. also, if all the legal paperwork is not done for your dad, then it needs to be done now. and please go ahead and do for your mom too. the number one rule for the cg (caregiver) is that he/she must take care of herself firsst andf oremost. The more lbd progresses the more mood swings, and the less communicative your dad will become and the more reliant on your mom. if possible i would call you local aouncil of aging and your area of elders affairs offices and see if your parents qualify for any programs especially since it is the start of a nyew fiscal year for the government. your parents and you have paid taxes for years and these are benefits taht they are entitled to and take advantage of any program that you can get on to. The more help you can get your mom, the easier it will be for her, she will still be #1 caregiver but if you can get someone else to bathe him everyday, she doesnt have to try to support and bathe him but be there to take care of him when he gets back in bed. please tell us about your dad and mom, what is your dad capable of doing and not doing. how is your mom holding out during this. how is her health??? we are glad you found us, hugs. sharon Subject: thank you To: LBDcaregivers Date: Wednesday, July 30, 2008, 9:42 AM Hello , My name is Matt. My father was diagnosed with lbd within the last year. It has been difficult for my mother who is his main caregiver.I need to find more ways to help her deal with what lies ahead. I thought joining this group would be a good way to learn more ways to do that. Thank you, Matt Pacell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 I everyone, I wanted to thank you all for the prayers and caring support I recieved..Im still here and still digging in.Mom is about the same and life is up and down but I know I will get by with all of you in my corner.Huge hugs to all Ron Quote Link to comment Share on other sites More sharing options...
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