We just got some good news!

[Guest guest]

What a relief; we have to celebrate all the good news, so thanks for posting

this!

Judie, mom to Christi, 29 and others

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[Guest guest]

I'm not sure if anyone remembers but I posted a few months ago about

Sydney failing her hearing screening. They kept getting no response

from her right ear during the screenings. Well we had to wait for 3

months to finally have the ABR (EEG) type hearing test done to test for

possible hearing loss or impairment. I was extremely anxious while

waiting to have the test done. We just found out today that her hearing

in both ears is perfectly fine. Her hearing was within normal limits

for all of the frequencies they tested for. We are very pleased to

hear this news. I just wanted to share my joy with you all. Take care.

[Guest guest]

Carmen

This is great news!!!!!

Kristy

Carmen wrote:

I'm not sure if anyone remembers but I posted a few months ago about

Sydney failing her hearing screening. They kept getting no response

from her right ear during the screenings. Well we had to wait for 3

months to finally have the ABR (EEG) type hearing test done to test for

possible hearing loss or impairment. I was extremely anxious while

waiting to have the test done. We just found out today that her hearing

in both ears is perfectly fine. Her hearing was within normal limits

for all of the frequencies they tested for. We are very pleased to

hear this news. I just wanted to share my joy with you all. Take care.

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH:

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

[Guest guest]

As someone who knows that " punched in the pit of the stomach " feeling of hearing

the audiologist say, " Your child definitely has a hearing loss and it looks to

be pretty significant in both ears, " I can breathe a HUGE sigh of relief for you

and with you. I am glad your news was good!

Out of curiosity, did they figure out why she was not responding to sound in her

right ear?

A.

Special Educator

Simon Kenton HS

11132 Madison Pk.

Independence, KY 41051

(859)960-0348

cynthia.jones@...

________________________________

From: MosaicDS on behalf of Carmen

Sent: Wed 11/5/2008 6:19 PM

To: MosaicDS

Subject: We just got some good news!

I'm not sure if anyone remembers but I posted a few months ago about

Sydney failing her hearing screening. They kept getting no response

from her right ear during the screenings. Well we had to wait for 3

months to finally have the ABR (EEG) type hearing test done to test for

possible hearing loss or impairment. I was extremely anxious while

waiting to have the test done. We just found out today that her hearing

in both ears is perfectly fine. Her hearing was within normal limits

for all of the frequencies they tested for. We are very pleased to

hear this news. I just wanted to share my joy with you all. Take care.

[Guest guest]

Thanks . It is interesting that you asked that question

because they did not explain that to us. In fact, I've actually had

a " horrible " experience with this whole thing so far. We were first

referred to INOVA Fairfax Hospital here in Virginia to have the test

done. They had a 4 month waiting list. It's a great hospital however,

they utilize IV sedation to put the children to sleep. I was very

uncomfortable with having her that sedated just to get the hearing

test done. So I decided to have it done at Children's Hospital in

Washington DC. The audiologist would not tell us the result at the

end. She said that the neurologist would mail us the result. So I got

a mailed copy of the write up that states her hearing is normal. I am

actually going to go back to the ENT now to try and find out why she

may not have responded to the other tests in the right ear. My gut

feeling is that the probes did not fit her ear very well and so they

were not getting a good reading. Sydney's ears are small and each

time they tested her the probes kept falling out. The also tested her

for fluid in the ear and there was no problem there. She also passed

the other hearing test where they put her in a sound booth and test

her response by turning her head to various sounds and she passed

that as well. So why she failed the initial test is still a mystery.

I honestly feel like I always have to do my own research and know

which questions to ask in order to get the information I need from

the medical folks. It is quite frustrating sometimes. I will let you

know as soon as I find out more answers.