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Re: From Raquel

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Raquel: Glad things are going better at the NH and that they are concerned

about giving him good care. As for one nurse on duty per shift, that's pretty

protocol - in the one my husband was in, it was generally an LPN on the evening

shift. I think there may have been an RN somewhere in the whole area that he

was in, which included the physically disabled as well. Of course, the ass't

and DON are usually RNs, but I think they mostly worked the day shift.

Good luck, again, on your upcoming, hopefully band-aid surgery in lieu of an

incision. If you get that, you should be up and around in a few days. I know

one man that had it, probably just to prove he was a man, went back to work two

days later. Don't do that - take your time to recuperate.

June C.

>

> Subject: From Raquel

> To: LBDcaregivers

> Date: Sunday, September 7, 2008, 11:29 AM

> Dear, DEAR friends, I can't write individually to thank

> you for your words of wisdom and encouragement, but from the

> bottom of my heart I DO thank you and appreciate you and

> feel blessed to have you. I feel a little better about the

> NH. Yesterday I found him dressed and shaved, on a

> wheelchair, and took him outside to have some sun and air.

> He seemed to be happy and was more alert. I also met with

> the administrator and had a long talk with him; he came to

> see me with questions about how they can make Sherman feel

> more at home, what his schedules are, etc., which made me

> realize they really want to care for him. That and the fact

> that I also met several of the aides and the nurses (they

> have only one AM and one PM for that section, it's that

> all right?), and all of them are nice and caring people.

> Some were thrilled that they can talk to him in Spanish and

> he would understand.

> Pray for me tomorrow, especially that I may have only the

> " easy " surgery and that I'll recover fast so I

> can be with my love again soon.Thanks for your support, I

> keep praying for all of you.

> Hugs,

> Raquel

>

>

>

>

>

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About the " mistery " of my thin blood: I take Coumadin because I have a history

of blood clots but the doctor had told me to suspend it the night I was in the

ER. What I think happened is that both Coumadin and my night BP medicine look

about the same -both salmon color, round shape, only one is a little larger than

the other. I was so upset with what was happening to Sherman that I probably

took the blood thiner instead of the BP pill. I have been more careful these

days.

Today Sherman was much more alert, trying to talk (even though I couln't

understand him), smiling and he ate most of his food, but the doctor at the NH

told me that he has had other patients with LBD and that when they go down like

this, they continue going down and deteriorate very fast. I also had a talk with

his neurologist who told me about the same thing but in a much more delicate way

and always saying " Who knows?... "

Thank you so much to all for your good wishes and prayers! I'll be back as soon

as I feel better.

His primary care physician just doesn't want to get involved in his care

anymore. He said that " sundowning " was very common with any dementia. Now, can

somebody explain what's sundowning? I've read it in many of your posts

but I thought it had to do with the hour of the day -sun going down- and it was

temporary, just at that time of day.

My love to all,

Raquel

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Raquel,

" Sundowning " is a time of day they usual get agitated. And it goes on for a few

hours. It is a noticeable difference from their usual behavior.

The next problem is that some people do their " sundowning " at different times of

the day. Mostly it is late afternoon for some mysterious reason.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: From Raquel

About the " mistery " of my thin blood: I take Coumadin because I have a history

of blood clots�but the doctor had told me�to suspend it the night I was in

the ER. What I think happened is that both Coumadin and my night BP medicine

look about the same -both salmon color, round shape, only one is a little larger

than the other. I was so upset with what was happening to Sherman that

I�probably took the blood thiner instead of the BP pill. I have been more

careful these days.

Today Sherman was much more alert, trying to talk (even though I couln't

understand him), smiling and he ate most of his food, but the doctor at the NH

told me that he has had�other patients with LBD and that when they go down

like this, they�continue going down and deteriorate very fast. I also had a

talk with his neurologist who told me about the same thing but in a much more

delicate way and always saying " Who knows?... "

Thank you so much to all for your good wishes and prayers! I'll be back as soon

as I feel better.

His primary care physician just doesn't want to get involved in his care

anymore. He said that " sundowning " was very common with any dementia. Now, can

somebody explain what's sundowning? I've read it�in many of your posts

but�I�thought it had to do with the hour of the day -sun going down- and it

was temporary, just at that time of day.

My love to all,

Raquel

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