Re: (unknown)

[Guest guest]

Welcome to the group!  If anything, I do not post much (regarding my daughter) but I have found this group to be a great place to turn to for ideas, encouragment, and assurance (when the doctors, friends, and even family members do not quite understand).

 

~M

Hi everyone,Thank you for accepting me into your support group.I have a 13 year old daughter who shows many signs of Misophonia, especially towards me and her 10 year old twin sisters. I'm glad to actually hear it has a name, as the last 12 months have been a very frustrating time, we have been to see our GP and my daughter was referred to a psychologist, which to our distress didn't help as the psychologist has never heard of Misophonia... So here we are with our only tools, google and thankfully a support group

Sent from my iPhone------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you.  MJ

[Guest guest]

What is this link? I mean tell me about your experience as I tend to get a little paranoid about giving info online. Thanks,,, Sent from my iPad

http://www.21daystoprofitableleadership.com/wp-content/plugins/zufneseeauo/template.php?prove223.jpeg

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[Guest guest]

Hi and thank you, I'm not of much use In regards to I formation as I'm new to MisoAnd know nothing about it, but have found There is some interesting information in this Group.Only thing I do know is that its been a viciousCircle and frustrating as I can't begin to understandWhat it feels like to have Miso, as my daughterKeeps telling me, as she has an enraged outburstto noises I cannot even hear. What's more frustrating is trying to seek helpAnd no one I've spoken to knows what I'm Talking about... So where do you go for helpWhen no one has even heard of this condition.SimoneSent from my iPhone

Welcome to the group! If anything, I do not post much (regarding my daughter) but I have found this group to be a great place to turn to for ideas, encouragment, and assurance (when the doctors, friends, and even family members do not quite understand).

~M

Hi everyone,Thank you for accepting me into your support group.I have a 13 year old daughter who shows many signs of Misophonia, especially towards me and her 10 year old twin sisters. I'm glad to actually hear it has a name, as the last 12 months have been a very frustrating time, we have been to see our GP and my daughter was referred to a psychologist, which to our distress didn't help as the psychologist has never heard of Misophonia... So here we are with our only tools, google and thankfully a support group

Sent from my iPhone------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

This is just a suggestion but if she is having problems at school make an appointment with your Special Education Director ,,, discuss this condition and take as much information/documentation that you have to your meeting with them. You want your child to do well in school and have positive social interactions! You will have to push yourself into the system and become a strong advocate for your Daughter. Sent from my iPad

Hi and thank you, I'm not of much use In regards to I formation as I'm new to MisoAnd know nothing about it, but have found There is some interesting information in this Group.Only thing I do know is that its been a viciousCircle and frustrating as I can't begin to understandWhat it feels like to have Miso, as my daughterKeeps telling me, as she has an enraged outburstto noises I cannot even hear. What's more frustrating is trying to seek helpAnd no one I've spoken to knows what I'm Talking about... So where do you go for helpWhen no one has even heard of this condition.SimoneSent from my iPhone

Welcome to the group! If anything, I do not post much (regarding my daughter) but I have found this group to be a great place to turn to for ideas, encouragment, and assurance (when the doctors, friends, and even family members do not quite understand).

~M

Hi everyone,Thank you for accepting me into your support group.I have a 13 year old daughter who shows many signs of Misophonia, especially towards me and her 10 year old twin sisters. I'm glad to actually hear it has a name, as the last 12 months have been a very frustrating time, we have been to see our GP and my daughter was referred to a psychologist, which to our distress didn't help as the psychologist has never heard of Misophonia... So here we are with our only tools, google and thankfully a support group

Sent from my iPhone------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

Thank you, but school luckily is not an issueHer report cards are wonderful, she enjoys school!It's just at home when it seems to flare, with mostly her Sisters and myself.I am a teacher aide at a special school, I haveSpoken to the nurse at work and she has notHeard of Misophonia either.Sent from my iPhone

This is just a suggestion but if she is having problems at school make an appointment with your Special Education Director ,,, discuss this condition and take as much information/documentation that you have to your meeting with them. You want your child to do well in school and have positive social interactions! You will have to push yourself into the system and become a strong advocate for your Daughter. Sent from my iPad

Hi and thank you, I'm not of much use In regards to I formation as I'm new to MisoAnd know nothing about it, but have found There is some interesting information in this Group.Only thing I do know is that its been a viciousCircle and frustrating as I can't begin to understandWhat it feels like to have Miso, as my daughterKeeps telling me, as she has an enraged outburstto noises I cannot even hear. What's more frustrating is trying to seek helpAnd no one I've spoken to knows what I'm Talking about... So where do you go for helpWhen no one has even heard of this condition.SimoneSent from my iPhone

Welcome to the group! If anything, I do not post much (regarding my daughter) but I have found this group to be a great place to turn to for ideas, encouragment, and assurance (when the doctors, friends, and even family members do not quite understand).

~M

Hi everyone,Thank you for accepting me into your support group.I have a 13 year old daughter who shows many signs of Misophonia, especially towards me and her 10 year old twin sisters. I'm glad to actually hear it has a name, as the last 12 months have been a very frustrating time, we have been to see our GP and my daughter was referred to a psychologist, which to our distress didn't help as the psychologist has never heard of Misophonia... So here we are with our only tools, google and thankfully a support group

Sent from my iPhone------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

From my experience, many do not take it seriously unless they know someone who has it.  Even after I show the video of 20/20 to ppl, (including a very close Doctor friend of our family) the reactions are that they don't really understand.  

Thank goodness my daughter goes to a private school where the teachers are more than caring.  They took a clock down, moved her away from the windows where the birds chirp, and have an open door policy where if she is bothered to please let them know ASAP. (especially during testing).

Family life is difficult....you learn to cope, it's trying to keep everyone happy.  It's teaching the miso daughter how to react, and to learn the triggers before a bad reaction takes place.  It's informing my husband (so he knows this is real) from time to time, and it's letting extended family know so as they can accomadate her if we visit.

I tell her it is like a disability in a way...you must learn coping strategies and you can do this.  I try to stay positive, I let her know we believe her, and we will support her, but we cannot make extreme changes.  She must learn to adjust as well.  

Hoping for a cure, and hoping for better ways to cope.Hang in there mom!M

Thank you, but school luckily is not an issueHer report cards are wonderful, she enjoys school!It's just at home when it seems to flare, with mostly her Sisters and myself.

I am a teacher aide at a special school, I haveSpoken to the nurse at work and she has notHeard of Misophonia either.Sent from my iPhone

 

This is just a suggestion but if she is having problems at school make an appointment with your Special Education Director ,,, discuss this condition and take as much information/documentation that you have to your meeting with them. You want your child to do well in school and have positive social interactions! You will have to push yourself into the system and become a strong advocate for your Daughter. 

Sent from my iPad

 

Hi and thank you, I'm not of much use In regards to I formation as I'm new to MisoAnd know nothing about it, but have found There is some interesting information in this 

Group.Only thing I do know is that its been a viciousCircle and frustrating as I can't begin to understandWhat it feels like to have Miso, as my daughterKeeps telling me, as she has an enraged outburst

to noises I cannot even hear. What's more frustrating is trying to seek helpAnd no one I've spoken to knows what I'm Talking about... So where do you go for help

When no one has even heard of this condition.SimoneSent from my iPhone

 

Welcome to the group!  If anything, I do not post much (regarding my daughter) but I have found this group to be a great place to turn to for ideas, encouragment, and assurance (when the doctors, friends, and even family members do not quite understand).

 

~M

Hi everyone,Thank you for accepting me into your support group.I have a 13 year old daughter who shows many signs of Misophonia, especially towards me and her 10 year old twin sisters. I'm glad to actually hear it has a name, as the last 12 months have been a very frustrating time, we have been to see our GP and my daughter was referred to a psychologist, which to our distress didn't help as the psychologist has never heard of Misophonia... So here we are with our only tools, google and thankfully a support group

Sent from my iPhone------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you.  MJ

[Guest guest]

Thanks M,I'm lucky in the sense that my family is supportive,It was actually my mum that found MisophoniaOn google and then she watched 20/20 and showed me.My daughter (being a teen) will not always walk awayAs we try and tell her to do. I'm in the process ofTrying to gather information so I can sit down with herAnd try and explain to her that their are otherPeople with this condition.I am the same in regards to letting her know We can't make major changes, she can't silenceThe world she has to work at coping and walking away as well.Sent from my iPhone

From my experience, many do not take it seriously unless they know someone who has it. Even after I show the video of 20/20 to ppl, (including a very close Doctor friend of our family) the reactions are that they don't really understand.

Thank goodness my daughter goes to a private school where the teachers are more than caring. They took a clock down, moved her away from the windows where the birds chirp, and have an open door policy where if she is bothered to please let them know ASAP. (especially during testing).

Family life is difficult....you learn to cope, it's trying to keep everyone happy. It's teaching the miso daughter how to react, and to learn the triggers before a bad reaction takes place. It's informing my husband (so he knows this is real) from time to time, and it's letting extended family know so as they can accomadate her if we visit.

I tell her it is like a disability in a way...you must learn coping strategies and you can do this. I try to stay positive, I let her know we believe her, and we will support her, but we cannot make extreme changes. She must learn to adjust as well.

Hoping for a cure, and hoping for better ways to cope.Hang in there mom!M

Thank you, but school luckily is not an issueHer report cards are wonderful, she enjoys school!It's just at home when it seems to flare, with mostly her Sisters and myself.

I am a teacher aide at a special school, I haveSpoken to the nurse at work and she has notHeard of Misophonia either.Sent from my iPhone

This is just a suggestion but if she is having problems at school make an appointment with your Special Education Director ,,, discuss this condition and take as much information/documentation that you have to your meeting with them. You want your child to do well in school and have positive social interactions! You will have to push yourself into the system and become a strong advocate for your Daughter.

Sent from my iPad

Hi and thank you, I'm not of much use In regards to I formation as I'm new to MisoAnd know nothing about it, but have found There is some interesting information in this

Group.Only thing I do know is that its been a viciousCircle and frustrating as I can't begin to understandWhat it feels like to have Miso, as my daughterKeeps telling me, as she has an enraged outburst

to noises I cannot even hear. What's more frustrating is trying to seek helpAnd no one I've spoken to knows what I'm Talking about... So where do you go for help

When no one has even heard of this condition.SimoneSent from my iPhone

Welcome to the group! If anything, I do not post much (regarding my daughter) but I have found this group to be a great place to turn to for ideas, encouragment, and assurance (when the doctors, friends, and even family members do not quite understand).

~M

Hi everyone,Thank you for accepting me into your support group.I have a 13 year old daughter who shows many signs of Misophonia, especially towards me and her 10 year old twin sisters. I'm glad to actually hear it has a name, as the last 12 months have been a very frustrating time, we have been to see our GP and my daughter was referred to a psychologist, which to our distress didn't help as the psychologist has never heard of Misophonia... So here we are with our only tools, google and thankfully a support group

Sent from my iPhone------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

hi kendra, i just signed up yesterday and found the approval in my spam.. hopefully its in there.. goddluck,,,... jason

Subject: (unknown)To: "Soundsensitivity " <Soundsensitivity >Date: Thursday, August 2, 2012, 9:47 PM

Hi,

I was Approved to join the Sound Sensitivity group, but it won't let me login. It says it has not been approved by admin? I would like to join and be able to interact/post with others in the group.

Warm wishes,

Kendra s

[Guest guest]

This is a post to the group, and you wouldn't have been able to send it if you weren't approved, so you're in the group already. Signing in to yahoo is a different issue. If you still can't sign in, try contacting yahoo for help. Welcome!

Missy

In a message dated 8/3/2012 9:15:26 A.M. Central Daylight Time, kendra30752@...:

Hi,

I was Approved to join the Sound Sensitivity group, but it won't let me login. It says it has not been approved by admin? I would like to join and be able to interact/post with others in the group.

Warm wishes,

Kendra s

[Guest guest]

thanks for posting tis link.., very helpful..and its what i always thought..physiological. hardwired...

Subject: (unknown)To: Soundsensitivity Date: Friday, August 3, 2012, 11:17 PM

http://www.nytimes.com/2011/09/06/health/06annoy.html?_r=2 & adxnnl=1 & adxnnlx=1344060135-D2iXF4g8/Fv9wBj7g23l4AI hope this link helps everyone. It's an overview of what we have. It also says this, which I believe is the question most of us are asking, "What is the cause": "Aage R. Moller, a neuroscientist at the University of Texas at Dallas who specializes in the auditory nervous system, included misophonia in the 'Textbook of Tinnitus,' a 2010 medical guide of which he was an editor.(This part below is the actual important part)He believes the condition is hard-wired, like right- or left-handedness, and is probably not an auditory disorder but a 'physiological abnormality' that resides in brain structures activated by processed sound."If you want to

read the whole article in the link, feel free. But I think this helps most of us who are wondering what the cause of this horrible thing is.

[Guest guest]

This is the article Joyce Cohen wrote that sparked the Today show that led us to the 20/20. Thanks for reposting it for new people. Heidi Sent from my iPhoneReal Results. Real science. Age-Defying Skin. www.heidisalerno.nerium.comHappy Dancing!www.jitterbal.comOn Aug 4, 2012, at 8:44 AM, jason lange wrote:

thanks for posting tis link.., very helpful..and its what i always thought..physiological. hardwired...

Subject: (unknown)To: Soundsensitivity Date: Friday, August 3, 2012, 11:17 PM

http://www.nytimes.com/2011/09/06/health/06annoy.html?_r=2 & adxnnl=1 & adxnnlx=1344060135-D2iXF4g8/Fv9wBj7g23l4AI hope this link helps everyone. It's an overview of what we have. It also says this, which I believe is the question most of us are asking, "What is the cause": "Aage R. Moller, a neuroscientist at the University of Texas at Dallas who specializes in the auditory nervous system, included misophonia in the 'Textbook of Tinnitus,' a 2010 medical guide of which he was an editor.(This part below is the actual important part)He believes the condition is hard-wired, like right- or left-handedness, and is probably not an auditory disorder but a 'physiological abnormality' that resides in brain structures activated by processed sound."If you want to

read the whole article in the link, feel free. But I think this helps most of us who are wondering what the cause of this horrible thing is.

[Guest guest]

Thanks for the link. Very powerful and accurate. To: Soundsensitivity Sent: Friday, August 3, 2012 11:17 PM Subject: (unknown)

http://www.nytimes.com/2011/09/06/health/06annoy.html?_r=2 & adxnnl=1 & adxnnlx=1344060135-D2iXF4g8/Fv9wBj7g23l4A

I hope this link helps everyone. It's an overview of what we have. It also says this, which I believe is the question most of us are asking, "What is the cause":

"Aage R. Moller, a neuroscientist at the University of Texas at Dallas who specializes in the auditory nervous system, included misophonia in the 'Textbook of Tinnitus,' a 2010 medical guide of which he was an editor.

(This part below is the actual important part)

He believes the condition is hard-wired, like right- or left-handedness, and is probably not an auditory disorder but a 'physiological abnormality' that resides in brain structures activated by processed sound."

If you want to read the whole article in the link, feel free. But I think this helps most of us who are wondering what the cause of this horrible thing is.