Re: (unknown)

[Guest guest]

Wait--who called you a troll? I didn't see that anywhere.I know there was another thread about a troll, but that wasn't about you--that was about that Lori person that came in here... at least that is what I took it as.

I see where you are coming from. I have been talking on my blog and Facebook about misophonia for months, and I have had so many people say " I think I have that too! ___ bothers me. " and I want so badly to scream " A noise just bothering your is NOT misophonia--it is SO much more than that " .. yet at the same time, who am I to judge who has this? I don't know if someone has this or not. I just know that I have it and it is miserable and I wouldn't wish it on anyone.

Welcome to the group... I was not offended by what you said at all. With all of the media, it will attract a lot of people who have this and are relieved to finally have a name for it. But it will also attract people who may not truly have it and may fall into the category of " annoyed by noises " but not truly having misophonia.. and in that way, I agree that it may be being used too loosely right now--everyone out there is grabbing into it and saying " that fits me " when it may not truly fit all of them.

Yet as I said, there are plenty of us who do have this... and it is a very real condition for all of us.---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

 

I mentioned that I didn't intend to offend _ I 'm sorry that you feel this way.  I speak for myself.  I'm sorry that you don't like what I said but I repeated many times that I didn't want to offend.  As for calling me a troll - THAT is offensive.  

I don't think that I should be judged based on how I feel and express myself on this board.  I'm new here and learning.  That's what I presume it's all about.  Again, I apologize for offending but I don't apologize for how I feel.

Margaret

To: Soundsensitivity Sent: Sunday, May 27, 2012 2:13:42 AM

Subject: Re: (unknown)

 

> Of course you have offended some of us. It is pure hell.

You either don't have misophonia or just have low self esteem. This

> condition is real, not just a justification for odd behavior. Do you feel

> like you don't deserve to be helped or don't deserve to know why you feel

> like this? You can go ahead and keep thinking you're an undeserving freak

> or realize that isn't your fault chewing,sneezing slurping etc cause you

> to be enraged. I am not only affected by noise but also by the sight of

> such things, and even the knowledge of these things going on makes me

> upset. If I don't vocalize my frustration, the rage gets worse. Thank god

> the only people who trigger these reactions are close family. Sound

> familiar? Ask anyone here if they are experiencing the same things. It's

> not just you, you're not the only one, you don't just have weird feelings.

> We're all getting help and you should reach out for help too.

>

> On May 26, 2012, at 8:25 PM, margaret spinoso

> wrote:

>

>> Hi,

>>

>> I'm new to this group. I believe I have misophonia and like many others

>> in this group, certain sounds are highly annoying to me. I'm 54 years

>> old, professional and have always assumed that I was a little peculiar

>> (to myself of course). Couldn't understand why so many sounds would

>> annoy me to the point of avoidance while the rest of my family seemed

>> indifferent to these sounds.

>> I may sound skeptical , and forgive me for saying so, but deep down

>> inside, I still think that this 'condition' is being used a little

>> loosely.

>>

>> I am not in any way downplaying this sit or its members. I feel

>> relieved to be able to connect with others who share the same symptoms;

>> however, I am skeptical about how much of the way we feel can be

>> attributed to certain conditions. I have been 'different' in this

>> respect since I was about 8. Certain sounds were unbearable to hear. I

>> felt like a freak. I may still sometimes feel like a freak and

>> therefore I prefer to suffer quietly without mentioning a word to

>> anyone. Most members of my family just think I am sensitive to sounds

>> and that I have a very good hearing.

>>

>> I hope I'm not offending anyone; that is not my objective. I just think

>> that way too many people use different conditions to justify sometimes

>> odd behavior or feelings. I hope that I become more comfortable with

>> the knowledge that this site brings. My objective is to learn from

>> others and to accept this condition . Again, please accept my apology

>> if I have offended any participants. I am here as others are; to feel

>> better and to share.

>>

>> All the best to you,

>>

>> Margaret

>>

>>

>>

>>

>>

>>

[Guest guest]

Margaret, no offense taken here. I'm also 54 and first noticed it was a problem around age 16. The reason i think it is an actual condition is that I become an 'obsessive' when the trigger occurs, and no other thoughts can surface. I see and hear nothing else. I get a racing heart, sweat, and feel like i am going to spontaneously combust. I am not too bad off, in that I have just two main triggers and one of them is gum chewing/popping. A couple days ago at work my co-worker came over to my cube, and she was standing over me eating carrots. I noticed it, it bothered me a little, but I was able to focus on our work problem. That wouldn't be the case if she were chewing or popping gum. Believe me, I am not looking for another thing to make me feel alienated from the rest of modern

society; my views about religion, my dietary choices, and views about non-humans already make me feel alienated enough. -Hope

[Guest guest]

Hi ,Thanks for clarifying the Troll business. You very clearly and succinctly explained what I meant. I think that you did a better job than I did!!! I do agree that no one on this board is really in a position (at least at a distance that is) to judge whether someone does or doesn't have misophobia. From what I read, I suspect I do - unfortunately. At least, I can put a name to the weird feelings - and isolation.Thank you for identifying with my position and being honest and brave enough to speak your mind. I'll look forward to chatting with you.Margaret

To: Soundsensitivity Sent: Sunday, May 27, 2012 2:45:43 AM Subject: Re: (unknown)

Wait--who called you a troll? I didn't see that anywhere.I know there was another thread about a troll, but that wasn't about you--that was about that Lori person that came in here... at least that is what I took it as.

I see where you are coming from. I have been talking on my blog and Facebook about misophonia for months, and I have had so many people say "I think I have that too! ___ bothers me." and I want so badly to scream "A noise just bothering your is NOT misophonia--it is SO much more than that".. yet at the same time, who am I to judge who has this? I don't know if someone has this or not. I just know that I have it and it is miserable and I wouldn't wish it on anyone.

Welcome to the group... I was not offended by what you said at all. With all of the media, it will attract a lot of people who have this and are relieved to finally have a name for it. But it will also attract people who may not truly have it and may fall into the category of "annoyed by noises" but not truly having misophonia.. and in that way, I agree that it may be being used too loosely right now--everyone out there is grabbing into it and saying "that fits me" when it may not truly fit all of them.

Yet as I said, there are plenty of us who do have this... and it is a very real condition for all of us.---------------------------------------------------------

♥

"Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

I mentioned that I didn't intend to offend _ I 'm sorry that you feel this way. I speak for myself. I'm sorry that you don't like what I said but I repeated many times that I didn't want to offend. As for calling me a troll - THAT is offensive.

I don't think that I should be judged based on how I feel and express myself on this board. I'm new here and learning. That's what I presume it's all about. Again, I apologize for offending but I don't apologize for how I feel.

Margaret

To: Soundsensitivity Sent: Sunday, May 27, 2012 2:13:42 AM

Subject: Re: (unknown)

> Of course you have offended some of us. It is pure hell.

You either don't have misophonia or just have low self esteem. This

> condition is real, not just a justification for odd behavior. Do you feel

> like you don't deserve to be helped or don't deserve to know why you feel

> like this? You can go ahead and keep thinking you're an undeserving freak

> or realize that isn't your fault chewing,sneezing slurping etc cause you

> to be enraged. I am not only affected by noise but also by the sight of

> such things, and even the knowledge of these things going on makes me

> upset. If I don't vocalize my frustration, the rage gets worse. Thank god

> the only people who trigger these reactions are close family. Sound

> familiar? Ask anyone here if they are experiencing the same things. It's

> not just you, you're not the only one, you don't just have weird feelings.

> We're all getting help and you should reach out for help too.

>

> On May 26, 2012, at 8:25 PM, margaret spinoso

> wrote:

>

>> Hi,

>>

>> I'm new to this group. I believe I have misophonia and like many others

>> in this group, certain sounds are highly annoying to me. I'm 54 years

>> old, professional and have always assumed that I was a little peculiar

>> (to myself of course). Couldn't understand why so many sounds would

>> annoy me to the point of avoidance while the rest of my family seemed

>> indifferent to these sounds.

>> I may sound skeptical , and forgive me for saying so, but deep down

>> inside, I still think that this 'condition' is being used a little

>> loosely.

>>

>> I am not in any way downplaying this sit or its members. I feel

>> relieved to be able to connect with others who share the same symptoms;

>> however, I am skeptical about how much of the way we feel can be

>> attributed to certain conditions. I have been 'different' in this

>> respect since I was about 8. Certain sounds were unbearable to hear. I

>> felt like a freak. I may still sometimes feel like a freak and

>> therefore I prefer to suffer quietly without mentioning a word to

>> anyone. Most members of my family just think I am sensitive to sounds

>> and that I have a very good hearing.

>>

>> I hope I'm not offending anyone; that is not my objective. I just think

>> that way too many people use different conditions to justify sometimes

>> odd behavior or feelings. I hope that I become more comfortable with

>> the knowledge that this site brings. My objective is to learn from

>> others and to accept this condition . Again, please accept my apology

>> if I have offended any participants. I am here as others are; to feel

>> better and to share.

>>

>> All the best to you,

>>

>> Margaret

>>

>>

>>

>>

>>

>>

[Guest guest]

Hi Hope,I feel the same way; can't seem to focus on anything else. You're lucky in the sense that you have only a couple of triggers. I have several sounds that annoy me. I try to avoid them as much as I can. All in all, I've done OK. I know what you mean when you say ' I see and hear nothing else'. There may be some obsessive behavior on my part as well. I also feel sweaty and feel like running away before I scream. Of course, I never do (scream) but just tense up and hope that no one notices. I know about feeling alienated - hopefully, I can share my feelings here without being judged. Margaret To: Soundsensitivity Sent: Sunday, May 27, 2012 3:03:14 AM Subject: re: (unknown)

Margaret, no offense taken here. I'm also 54 and first noticed it was a problem around age 16. The reason i think it is an actual condition is that I become an 'obsessive' when the trigger occurs, and no other thoughts can surface. I see and hear nothing else. I get a racing heart, sweat, and feel like i am going to spontaneously combust. I am not too bad off, in that I have just two main triggers and one of them is gum chewing/popping. A couple days ago at work my co-worker came over to my cube, and she was standing over me eating carrots. I noticed it, it bothered me a little, but I was able to focus on our work problem. That wouldn't be the case if she were chewing or popping gum. Believe me, I am not looking for another thing to make me feel alienated from the rest of modern

society; my views about religion, my dietary choices, and views about non-humans already make me feel alienated enough. -Hope

[Guest guest]

Hope, I really relate to your comment about not needing to feel any more

alienated than I already am, for all the same reasons you mention. If

someone was chewing a carrot next to me I would probably ask them to

stop. Though, a guy at work chews gum very loudly (mouth open) in

meetings and I somehow manage to not say anything. I'm 58 and can't

remember when I didn't have the problem. No one understands, but some

people are kinder than others if I tell them something bothers me. A

phone near me was on vibrate at work on a surface that made a loud

buzzing noise. I sounds crazy to talk about it, but I moved the phone and

asked him if he could not put it on that surface. I basically feel

" different " from everyone all the time.

At 08:03 PM 5/26/2012, you wrote:

Margaret, no offense taken here. I'm also 54 and first

noticed it was a problem around age 16. The reason i think it is an

actual condition is that I become an 'obsessive' when the trigger occurs,

and no other thoughts can surface. I see and hear nothing else. I

get a racing heart, sweat, and feel like i am going to spontaneously

combust. I am not too bad off, in that I have just two main

triggers and one of them is gum chewing/popping. A couple days ago

at work my co-worker came over to my cube, and she was standing over me

eating carrots. I noticed it, it bothered me a little, but I was able to

focus on our work problem. That wouldn't be the case if she were

chewing or popping gum. Believe me, I am not looking for another

thing to make me feel alienated from the rest of modern society; my views

about religion, my dietary choices, and views about non-humans already

make me feel alienated enough. -Hope

[Guest guest]

Well said, Hope.

Margaret, I didn't take offense either. I can see what you meant by people who are just annoyed by sounds using this too loosely, but there's a real difference between what I feel with my triggers and what I feel with things that just annoy me. The things that trigger me make me want to explode until I either ask them to stop or leave the situation. I'm new here too, and just heard about misophonia, but it's a big relief to know there's a name for it, and I'm not just being terribly picky and super sensitive. It has nothing to do with hearing well - I just realized that when triggers bother me, people accuse me of having hearing that's too good, but half an hour later they'll fuss because I ask them to repeat themselves because I couldn't hear what they said, and they say I need my hearing checked. ;-/ By the way, I was in my early teens when I first noticed the problem - it suddenly made eating with noisy eaters miserable.

Missy in Nashville

Margaret, no offense taken here. I'm also 54 and first noticed it was a problem around age 16. The reason i think it is an actual condition is that I become an 'obsessive' when the trigger occurs, and no other thoughts can surface. I see and hear nothing else. I get a racing heart, sweat, and feel like i am going to spontaneously combust. I am not too bad off, in that I have just two main triggers and one of them is gum chewing/popping. A couple days ago at work my co-worker came over to my cube, and she was standing over me eating carrots. I noticed it, it bothered me a little, but I was able to focus on our work problem. That wouldn't be the case if she were chewing or popping gum. Believe me, I am not looking for another thing to make me feel alienated from the rest of modern society; my views about religion, my dietary choices, and views about non-humans already make me feel alienated enough. -Hope

[Guest guest]

After I was on the Today show one of my closet friends told me she had Misophonia too and had even called it off with a boyfriend because he ate so gross. I said " Oh my Gosh. All this time I has no idea. And how on earth did you stand being with him for 5 years." I then added "did it scare you how upset internally you'd get with him?" She said "no".I said "well how did you handle your rapid pulse and feeling hot and ready to rip his tongue out? Because there's times I want to hurt people."She said, most condescendingly, "Oh, Heidi Don't be ridiculous. Of course I didn't feel like that. Nobody feels like that."I sighed. She didn't get me at all. And she most definitely did NOT have Misophonia. She just didn't like her boyfriend's gross manners. BIG differnce. So I understand what your saying Margaret. HeidiSent from my iPhoneAsk me how to get Amazing Skin with a Natural Productwww.heidisalerno.nerium.comHappy Dancing!www.jitterbal.com

[Guest guest]

http://www.misophonia-uk.org/the-misophonia-activation-scale.htmlMargaret, there seem to be varying degrees of severity of misophonia for different people, if you look at the misophonia activation scale,( link above), my guess is that you are at a low level of misophonia. To:

"Soundsensitivity " <Soundsensitivity > Sent: Saturday, May 26, 2012 9:23 PM Subject: Re: (unknown)

Carolyne,Thanks for your comments. I assume I have misophonia based on the comments and information I viewed on 20 20 last week. I haven't been diagnosed with this condition. As for feeling undeserving; the reason I am on this board is to seek help and presumably feel like I do deserve it. Why would feeling like a freak be synonymous to feeling undeserving for help? I am not ashamed to admit that I have felt freakish at times and still do; after all isn't what this board is all about -honesty. As for low self esteem; maybe - but not more so than 50% of the people I know. I don't know

much about

misophonia;just heard about it last week on 20 20.Carolyne, I mentioned several times in my last e-mail that I didn't intend to offend anyone nor diminish this board; I am new here. Don't know much about misophobia. I am learning. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:35:19 AM Subject: Re: (unknown)

You either don't have misophonia or just have low self esteem. This condition is real, not just a justification for odd behavior. Do you feel like you don't deserve to be helped or don't deserve to know why you feel like this? You can go ahead and keep thinking you're an undeserving freak or realize that isn't your fault chewing,sneezing slurping etc cause you to be enraged. I am not only affected by noise but also by the sight of such things, and even the knowledge of these things going on makes me upset. If I don't vocalize my frustration, the rage gets worse. Thank god the only people who trigger these reactions are close family. Sound familiar? Ask anyone here if they are experiencing the same things. It's not just you, you're not the only one, you don't just have weird feelings. We're all getting help and you should reach out for help too.

Hi,I'm new to this group. I believe I have misophonia and like many others in this group, certain sounds are highly annoying to me. I'm 54 years old, professional and have always assumed that I was a little peculiar (to myself of course). Couldn't understand why so many sounds would annoy me to the point of avoidance while the rest of my family seemed indifferent to these sounds.I may sound skeptical , and forgive me for saying so, but deep down inside, I still think that this 'condition' is being used a little loosely.I am not in any way downplaying this sit or its members. I feel relieved to be able to connect with others who share the same symptoms; however, I am skeptical about how much of the way we feel can be attributed to

certain conditions.

I have been 'different' in this respect since I was about 8. Certain sounds were unbearable to hear. I felt like a freak. I may still sometimes feel like a freak and therefore I prefer to suffer quietly without mentioning a word to anyone. Most members of my family just think I am sensitive to sounds and that I have a very good hearing.I hope I'm not offending anyone; that is not my objective. I just think that way too many people use different conditions to justify sometimes odd behavior or feelings. I hope that I become more comfortable with the knowledge that this site brings. My objective is to learn from others and to accept this condition . Again, please accept my apology if I have offended any participants. I am here as others are; to feel better and to share.All the best to you,Margaret

=

[Guest guest]

Hi Missy,I do understand the difference because I have noticed that certain 'triggers' which make me feel extremely anxious will just be 'annoying' to others. I can describe the feelings as follows: A trigger happens which is audible to everyone. Let's say someone is clicking a ballpoint in a closed space (office or classroom).Me: I start to get fidgety. I start glaring at the person (indiscreetly) hoping that they stop or get my cue via eye contact. I can't get my mind focused on anything else but the clicking. I start to feel panicky cause I can visualize myself ripping the pen off of the person's hand or yelling at

them to STOP! I endure, endure, endure until I either leave or the person does. These instances were a nightmare for me in University during exams. I sometimes had earplugs on , just in case the trigger happened.Others: If the same thing happens, someone without misophonia will just say; oh isn't that an annoying. I can' t stand it when people do that. That's the typical answer I've always gotten from others whenever I've brought up triggers that bother me. Yet whenever that trigger would arise, they'd seem perfectly calm or oblivious to the trigger.I'm glad that I can share my feelings. I've been alone with this for the last 46 years and sometimes thought I was crazy. Nice to know I'm not alone

Missy.Margaret To: Soundsensitivity Sent: Sunday, May 27, 2012 4:29:57 AM Subject: Re: re: (unknown)

Well said, Hope.

Margaret, I didn't take offense either. I can see what you meant by people who are just annoyed by sounds using this too loosely, but there's a real difference between what I feel with my triggers and what I feel with things that just annoy me. The things that trigger me make me want to explode until I either ask them to stop or leave the situation. I'm new here too, and just heard about misophonia, but it's a big relief to know there's a name for it, and I'm not just being terribly picky and super sensitive. It has nothing to do with hearing well - I just realized that when triggers bother me, people accuse me of having hearing that's too good, but half an hour later they'll fuss because I ask them to repeat themselves because I couldn't hear what they said, and they say I need my hearing checked. ;-/ By the way, I was in my early teens when I first noticed the problem - it suddenly made eating with noisy eaters miserable.

Missy in Nashville

Margaret, no offense taken here. I'm also 54 and first noticed it was a problem around age 16. The reason i think it is an actual condition is that I become an 'obsessive' when the trigger occurs, and no other thoughts can surface. I see and hear nothing else. I get a racing heart, sweat, and feel like i am going to spontaneously combust. I am not too bad off, in that I have just two main triggers and one of them is gum chewing/popping. A couple days ago at work my co-worker came over to my cube, and she was standing over me eating carrots. I noticed it, it bothered me a little, but I was able to focus on our work problem. That wouldn't be the case if she were chewing or popping gum. Believe me, I am not looking for another thing to make me feel alienated from the rest of modern society; my views about religion, my dietary choices, and views about non-humans already make me feel alienated enough. -Hope

[Guest guest]

Thank you for the information. I believe I have a moderate level. Does this sound familiar? I sent it to another member on this board.Hi Missy,I

do understand the difference because I have noticed that certain 'triggers' which make me feel extremely anxious will just be 'annoying' to others. I can describe the feelings as follows: A trigger happens which is audible to everyone. Let's say someone is clicking a ballpoint

in a closed space (office or classroom).Me:

I start to get fidgety. I start glaring at the person (indiscreetly) hoping that they stop or get my cue via eye contact. I can't get my mind focused on anything else but the clicking. I start to feel panicky

cause I can visualize myself ripping the pen off of the person's hand or yelling at

them to STOP! I endure, endure, endure until I either leave or the person does. These instances were a nightmare for me in University during exams. I sometimes had earplugs on , just in case the trigger happened.Others: If the same thing happens, someone without misophonia will just say; oh isn't that an annoying. I

can' t stand it when people do that. That's the typical answer I've always gotten from others whenever I've brought up triggers that bother me. Yet whenever that trigger would arise, they'd seem perfectly calm or oblivious to the trigger. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:04:29 PM Subject: Re: (unknown)

http://www.misophonia-uk.org/the-misophonia-activation-scale.htmlMargaret, there seem to be varying degrees of severity of misophonia for different people, if you look at the misophonia activation scale,( link above), my guess is that you are at a low level of misophonia.

To:

"Soundsensitivity " <Soundsensitivity > Sent: Saturday, May 26, 2012 9:23 PM Subject: Re: (unknown)

Carolyne,Thanks for your comments. I assume I have misophonia based on the comments and information I viewed on 20 20 last week. I haven't been diagnosed with this condition. As for feeling undeserving; the reason I am on this board is to seek help and presumably feel like I do deserve it. Why would feeling like a freak be synonymous to feeling undeserving for help? I am not ashamed to admit that I have felt freakish at times and still do; after all isn't what this board is all about -honesty. As for low self esteem; maybe - but not more so than 50% of the people I know. I don't know

much about

misophonia;just heard about it last week on 20 20.Carolyne, I mentioned several times in my last e-mail that I didn't intend to offend anyone nor diminish this board; I am new here. Don't know much about misophobia. I am learning. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:35:19 AM Subject: Re: (unknown)

You either don't have misophonia or just have low self esteem. This condition is real, not just a justification for odd behavior. Do you feel like you don't deserve to be helped or don't deserve to know why you feel like this? You can go ahead and keep thinking you're an undeserving freak or realize that isn't your fault chewing,sneezing slurping etc cause you to be enraged. I am not only affected by noise but also by the sight of such things, and even the knowledge of these things going on makes me upset. If I don't vocalize my frustration, the rage gets worse. Thank god the only people who trigger these reactions are close family. Sound familiar? Ask anyone here if they are experiencing the same things. It's not just you, you're not the only one, you don't just have weird feelings. We're all getting help and you should reach out for help too.

Hi,I'm new to this group. I believe I have misophonia and like many others in this group, certain sounds are highly annoying to me. I'm 54 years old, professional and have always assumed that I was a little peculiar (to myself of course). Couldn't understand why so many sounds would annoy me to the point of avoidance while the rest of my family seemed indifferent to these sounds.I may sound skeptical , and forgive me for saying so, but deep down inside, I still think that this 'condition' is being used a little loosely.I am not in any way downplaying this sit or its members. I feel relieved to be able to connect with others who share the same symptoms; however, I am skeptical about how much of the way we feel can be attributed to

certain conditions.

I have been 'different' in this respect since I was about 8. Certain sounds were unbearable to hear. I felt like a freak. I may still sometimes feel like a freak and therefore I prefer to suffer quietly without mentioning a word to anyone. Most members of my family just think I am sensitive to sounds and that I have a very good hearing.I hope I'm not offending anyone; that is not my objective. I just think that way too many people use different conditions to justify sometimes odd behavior or feelings. I hope that I become more comfortable with the knowledge that this site brings. My objective is to learn from others and to accept this condition . Again, please accept my apology if I have offended any participants. I am here as others are; to feel better and to share.All the best to you,Margaret

=

[Guest guest]

Yes, Margaret, that's a very good description!

Missy in Nashville :-)

Hi Missy,

I do understand the difference because I have noticed that certain 'triggers' which make me feel extremely anxious will just be 'annoying' to others. I can describe the feelings as follows: A trigger happens which is audible to everyone. Let's say someone is clicking a ballpoint in a closed space (office or classroom).

Me: I start to get fidgety. I start glaring at the person (indiscreetly) hoping that they stop or get my cue via eye contact. I can't get my mind focused on anything else but the clicking. I start to feel panicky cause I can visualize myself ripping the pen off of the person's hand or yelling at them to STOP! I endure, endure, endure until I either leave or the person does. These instances were a nightmare for me in University during exams. I sometimes had earplugs on , just in case the trigger happened.

Others: If the same thing happens, someone without misophonia will just say; oh isn't that annoying.

I can' t stand it when people do that. That's the typical answer I've always gotten from others whenever I've brought up triggers that bother me. Yet whenever that trigger would arise, they'd seem perfectly calm or oblivious to the trigger.

[Guest guest]

Hi, Margaret,Yes it does sound like you have misophonia. I have a more severe form of misophonia but you have not offended me.but this statement you made does bother me a tad, although I realize you are generalizing, "I just think that way too many people use different conditions to justify sometimes odd behavior or feelings."This does happen. but..But with misophonia which does result in odd behavior from the norm (ie. avoiding people eating) from my own experience, it tends to be others who try to come up with reasons to justify my odd behavior. ie. "you can't stand my ..., that's ridiculous, that can't be the reason, you just don't want to be around me because of x, y or z."

(usually the other person takes it personally, defensive and has to come up with other more justifiable reasons to satisfy their own disbelieving mind, although I do admit misophonia is hard to believe...)I guess I am thinking about the mentally ill here, (not saying any of us are mentally ill) and how hard it is for others who don't have mental illness to understand, accept or distance oneself or not take personally the sometimes extremely odd behavior/emotions that often can't be helped by mentally ill people. Nobody can really know what it is like to live in someone else's head, it's hard to know where people are really coming fromI'm sorry if I missed your point entirely. Maybe you are talking about the secondary feelings resulting from thoughts after the initial phsyiological emotional spark ? To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 8:44 AM Subject: Re: (unknown)

Thank you for the information. I believe I have a moderate level. Does this sound familiar? I sent it to another member on this board.Hi Missy,I

do understand the difference because I have noticed that certain 'triggers' which make me feel extremely anxious will just be 'annoying' to others. I can describe the feelings as follows: A trigger happens which is audible to everyone. Let's say someone is clicking a ballpoint

in a closed space (office or classroom).Me:

I start to get fidgety. I start glaring at the person (indiscreetly) hoping that they stop or get my cue via eye contact. I can't get my mind focused on anything else but the clicking. I start to feel panicky

cause I can visualize myself ripping the pen off of the person's hand or yelling at

them to STOP! I endure, endure, endure until I either leave or the person does. These instances were a nightmare for me in University during exams. I sometimes had earplugs on , just in case the trigger happened.Others: If the same thing happens, someone without misophonia will just say; oh isn't that an annoying. I

can' t stand it when people do that. That's the typical answer I've always gotten from others whenever I've brought up triggers that bother me. Yet whenever that trigger would arise, they'd seem perfectly calm or oblivious to the trigger. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:04:29 PM Subject: Re: (unknown)

http://www.misophonia-uk.org/the-misophonia-activation-scale.htmlMargaret, there seem to be varying degrees of severity of misophonia for different people, if you look at the misophonia activation scale,( link above), my guess is that you are at a low level of misophonia.

To:

"Soundsensitivity " <Soundsensitivity > Sent: Saturday, May 26, 2012 9:23 PM Subject: Re: (unknown)

Carolyne,Thanks for your comments. I assume I have misophonia based on the comments and information I viewed on 20 20 last week. I haven't been diagnosed with this condition. As for feeling undeserving; the reason I am on this board is to seek help and presumably feel like I do deserve it. Why would feeling like a freak be synonymous to feeling undeserving for help? I am not ashamed to admit that I have felt freakish at times and still do; after all isn't what this board is all about -honesty. As for low self esteem; maybe - but not more so than 50% of the people I know. I don't know

much about

misophonia;just heard about it last week on 20 20.Carolyne, I mentioned several times in my last e-mail that I didn't intend to offend anyone nor diminish this board; I am new here. Don't know much about misophobia. I am learning. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:35:19 AM Subject: Re: (unknown)

You either don't have misophonia or just have low self esteem. This condition is real, not just a justification for odd behavior. Do you feel like you don't deserve to be helped or don't deserve to know why you feel like this? You can go ahead and keep thinking you're an undeserving freak or realize that isn't your fault chewing,sneezing slurping etc cause you to be enraged. I am not only affected by noise but also by the sight of such things, and even the knowledge of these things going on makes me upset. If I don't vocalize my frustration, the rage gets worse. Thank god the only people who trigger these reactions are close family. Sound familiar? Ask anyone here if they are experiencing the same things. It's not just you, you're not the only one, you don't just have weird feelings. We're all getting help and you should reach out for help too.

Hi,I'm new to this group. I believe I have misophonia and like many others in this group, certain sounds are highly annoying to me. I'm 54 years old, professional and have always assumed that I was a little peculiar (to myself of course). Couldn't understand why so many sounds would annoy me to the point of avoidance while the rest of my family seemed indifferent to these sounds.I may sound skeptical , and forgive me for saying so, but deep down inside, I still think that this 'condition' is being used a little loosely.I am not in any way downplaying this sit or its members. I feel relieved to be able to connect with others who share the same symptoms; however, I am skeptical about how much of the way we feel can be attributed to

certain conditions.

I have been 'different' in this respect since I was about 8. Certain sounds were unbearable to hear. I felt like a freak. I may still sometimes feel like a freak and therefore I prefer to suffer quietly without mentioning a word to anyone. Most members of my family just think I am sensitive to sounds and that I have a very good hearing.I hope I'm not offending anyone; that is not my objective. I just think that way too many people use different conditions to justify sometimes odd behavior or feelings. I hope that I become more comfortable with the knowledge that this site brings. My objective is to learn from others and to accept this condition . Again, please accept my apology if I have offended any participants. I am here as others are; to feel better and to share.All the best to you,Margaret

=

[Guest guest]

Missy!! I am in Nashville as well...I am so surprised! I did not think anyone was near me...Sent from my iPhone

Yes, Margaret, that's a very good description!

Missy in Nashville :-)

Hi Missy,

I do understand the difference because I have noticed that certain 'triggers' which make me feel extremely anxious will just be 'annoying' to others. I can describe the feelings as follows: A trigger happens which is audible to everyone. Let's say someone is clicking a ballpoint in a closed space (office or classroom).

Me: I start to get fidgety. I start glaring at the person (indiscreetly) hoping that they stop or get my cue via eye contact. I can't get my mind focused on anything else but the clicking. I start to feel panicky cause I can visualize myself ripping the pen off of the person's hand or yelling at them to STOP! I endure, endure, endure until I either leave or the person does. These instances were a nightmare for me in University during exams. I sometimes had earplugs on , just in case the trigger happened.

Others: If the same thing happens, someone without misophonia will just say; oh isn't that annoying.

I can' t stand it when people do that. That's the typical answer I've always gotten from others whenever I've brought up triggers that bother me. Yet whenever that trigger would arise, they'd seem perfectly calm or oblivious to the trigger.

[Guest guest]

Hi,What I meant from this statement was very general. I made this statement referring to certain people who do outrageous things and justify these actions using certain "conditions." By odd behavior, I meant outrageous behavior. For example, I may want to beat someone up who's chewing a gum loudly with an open mouth but I won't likely act on it , that is, kill the person and then say - "oh that was because of my misophonia". That's what I meant. I realize that it may not sound correct. To: "Soundsensitivity " <Soundsensitivity >

Sent: Sunday, May 27, 2012 11:34:30 PM Subject: Re: (unknown)

Hi, Margaret,Yes it does sound like you have misophonia. I have a more severe form of misophonia but you have not offended me.but this statement you made does bother me a tad, although I realize you are generalizing, "I just think that way too many people use different conditions to justify sometimes odd behavior or feelings."This does happen. but..But with misophonia which does result in odd behavior from the norm (ie. avoiding people eating) from my own experience, it tends to be others who try to come up with reasons to justify my odd behavior. ie. "you can't stand my ..., that's ridiculous, that can't be the

reason, you

just don't want to be around me because of x, y or z."

(usually the other person takes it personally, defensive and has to come up with other more justifiable reasons to satisfy their own disbelieving mind, although I do admit misophonia is hard to believe...)I guess I am thinking about the mentally ill here, (not saying any of us are mentally ill) and how hard it is for others who don't have mental illness to understand, accept or distance oneself or not take personally the sometimes extremely odd behavior/emotions that often can't be helped by mentally ill people. Nobody can really know what it is like to live in someone else's head, it's hard to know where people are really coming fromI'm sorry if I missed your point entirely. Maybe you are talking about the secondary feelings resulting from thoughts after the initial phsyiological emotional spark ? To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 8:44 AM Subject: Re: (unknown)

Thank you for the information. I believe I have a moderate level. Does this sound familiar? I sent it to another member on this board.Hi Missy,I

do understand the difference because I have noticed that certain 'triggers' which make me feel extremely anxious will just be 'annoying' to others. I can describe the feelings as follows: A trigger happens which is audible to everyone. Let's say someone is clicking a ballpoint

in a closed space (office or classroom).Me:

I start to get fidgety. I start glaring at the person (indiscreetly) hoping that they stop or get my cue via eye contact. I can't get my mind focused on anything else but the clicking. I start to feel panicky

cause I can visualize myself ripping the pen off of the person's hand or yelling at

them to STOP! I endure, endure, endure until I either leave or the person does. These instances were a nightmare for me in University during exams. I sometimes had earplugs on , just in case the trigger happened.Others: If the same thing happens, someone without misophonia will just say; oh isn't that an annoying. I

can' t stand it when people do that. That's the typical answer I've always gotten from others whenever I've brought up triggers that bother me. Yet whenever that trigger would arise, they'd seem perfectly calm or oblivious to the trigger. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:04:29 PM Subject: Re: (unknown)

http://www.misophonia-uk.org/the-misophonia-activation-scale.htmlMargaret, there seem to be varying degrees of severity of misophonia for different people, if you look at the misophonia activation scale,( link above), my guess is that you are at a low level of misophonia. From: margaret spinoso

To:

"Soundsensitivity " <Soundsensitivity > Sent: Saturday, May 26, 2012 9:23 PM Subject: Re: (unknown)

Carolyne,Thanks for your comments. I assume I have misophonia based on the comments and information I viewed on 20 20 last week. I haven't been diagnosed with this condition. As for feeling undeserving; the reason I am on this board is to seek help and presumably feel like I do deserve it. Why would feeling like a freak be synonymous to feeling undeserving for help? I am not ashamed to admit that I have felt freakish at times and still do; after all isn't what this board is all about -honesty. As for low self esteem; maybe - but not more

so than 50%

of the people I know. I don't know

much about

misophonia;just heard about it last week on 20 20.Carolyne, I mentioned several times in my last e-mail that I didn't intend to offend anyone nor diminish this board; I am new here. Don't know much about misophobia. I am learning. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:35:19 AM Subject: Re: (unknown)

You either don't have misophonia or just have low self esteem. This condition is real, not just a justification for odd behavior. Do you feel like you don't deserve to be helped or don't deserve to know why you feel like this? You can go ahead and keep thinking you're an undeserving freak or realize that isn't your fault chewing,sneezing slurping etc cause you to be enraged. I am not only affected by noise but also by the sight of such things, and even the knowledge of these things going on makes me upset. If I don't vocalize my frustration, the rage gets worse. Thank god the only people who trigger these reactions are close family. Sound familiar? Ask anyone here if they are experiencing the same things. It's not just you, you're not the only one, you don't just have weird feelings. We're all getting help and you should reach out for help too.

Hi,I'm new to this group. I believe I have misophonia and like many others in this group, certain sounds are highly annoying to me. I'm 54 years old, professional and have always assumed that I was a little peculiar (to myself of course). Couldn't understand why so many sounds would annoy me to the point of avoidance while the rest of my family seemed indifferent to these sounds.I may sound skeptical , and forgive me for saying so, but deep down inside, I still think that this 'condition' is being used a little loosely.I am not in any way downplaying this sit or its members. I feel relieved to be able to connect with others who share the same symptoms; however, I am skeptical about how

much of the

way we feel can be attributed to

certain conditions.

I have been 'different' in this respect since I was about 8. Certain sounds were unbearable to hear. I felt like a freak. I may still sometimes feel like a freak and therefore I prefer to suffer quietly without mentioning a word to anyone. Most members of my family just think I am sensitive to sounds and that I have a very good hearing.I hope I'm not offending anyone; that is not my objective. I just think that way too many people use different conditions to justify sometimes odd behavior or feelings. I hope that I become more comfortable with the knowledge that this site brings. My objective is to learn from others and to accept this condition . Again, please accept my apology if I have offended any participants. I am here as others are; to feel better and to share.All the best to you,Margaret

=

[Guest guest]

Communication can be very difficult sometimes, no matter how hard we try to phrase something. It's a good idea to say, "I thought I heard you say ....., is that what you really meant to say?" and clarify BEFORE we get upset or offended. It would prevent a lot of hurt feelings and stress!

Just a suggestion, learned from experience.... :-)

[Guest guest]

Yes, I'm sorry if I seemed harsh, however anything that suggests I'm not trying hard to suppress this condition makes me angry. It took me a long time to realize it wasn't my fault. I hope you find help here, but if not, at least comfort.

Carolyne,Thanks for your comments. I assume I have misophonia based on the comments and information I viewed on 20 20 last week. I haven't been diagnosed with this condition. As for feeling undeserving; the reason I am on this board is to seek help and presumably feel like I do deserve it. Why would feeling like a freak be synonymous to feeling undeserving for help? I am not ashamed to admit that I have felt freakish at times and still do; after all isn't what this board is all about -honesty. As for low self esteem; maybe - but not more so than 50% of the people I know. I don't know much about

misophonia;just heard about it last week on 20 20.Carolyne, I mentioned several times in my last e-mail that I didn't intend to offend anyone nor diminish this board; I am new here. Don't know much about misophobia. I am learning. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:35:19 AM Subject: Re: (unknown)

You either don't have misophonia or just have low self esteem. This condition is real, not just a justification for odd behavior. Do you feel like you don't deserve to be helped or don't deserve to know why you feel like this? You can go ahead and keep thinking you're an undeserving freak or realize that isn't your fault chewing,sneezing slurping etc cause you to be enraged. I am not only affected by noise but also by the sight of such things, and even the knowledge of these things going on makes me upset. If I don't vocalize my frustration, the rage gets worse. Thank god the only people who trigger these reactions are close family. Sound familiar? Ask anyone here if they are experiencing the same things. It's not just you, you're not the only one, you don't just have weird feelings. We're all getting help and you should reach out for help too.

Hi,I'm new to this group. I believe I have misophonia and like many others in this group, certain sounds are highly annoying to me. I'm 54 years old, professional and have always assumed that I was a little peculiar (to myself of course). Couldn't understand why so many sounds would annoy me to the point of avoidance while the rest of my family seemed indifferent to these sounds.I may sound skeptical , and forgive me for saying so, but deep down inside, I still think that this 'condition' is being used a little loosely.I am not in any way downplaying this sit or its members. I feel relieved to be able to connect with others who share the same symptoms; however, I am skeptical about how much of the way we feel can be attributed to

certain conditions.

I have been 'different' in this respect since I was about 8. Certain sounds were unbearable to hear. I felt like a freak. I may still sometimes feel like a freak and therefore I prefer to suffer quietly without mentioning a word to anyone. Most members of my family just think I am sensitive to sounds and that I have a very good hearing.I hope I'm not offending anyone; that is not my objective. I just think that way too many people use different conditions to justify sometimes odd behavior or feelings. I hope that I become more comfortable with the knowledge that this site brings. My objective is to learn from others and to accept this condition . Again, please accept my apology if I have offended any participants. I am here as others are; to feel better and to share.All the best to you,Margaret

=

=

[Guest guest]

Margaret thank you for your clarification.Seems to me most people who post here, commonly don't act on their violent thoughts. And I realize you were making a generalization.But I just thought that I would point out that there is a level 10 on the misophonia scale, outrageous severe behavior which I do believe the condition alone can cause, although it seems to be rare.Level 10 - Actual

use of physical violence on a person or animal (i.e., a household pet).

Violence may be inflicted on self (self-harming). I have not used physical

violence on another person or animal, I don't experience extreme rage

personally, but self-harm is not outside the realm of possibilities for

me. It can get just that horrendous. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 8:41 PM Subject: Re: (unknown)

Hi,What I meant from this statement was very general. I made this statement referring to certain people who do outrageous things and justify these actions using certain "conditions." By odd behavior, I meant outrageous behavior. For

example, I may want to beat someone up who's chewing a gum loudly with an open mouth but I won't likely act on it , that is, kill the person and then say - "oh that was because of my misophonia". That's what I meant. I realize that it may not sound correct. To: "Soundsensitivity "

<Soundsensitivity >

Sent: Sunday, May 27, 2012 11:34:30 PM Subject: Re: (unknown)

Hi, Margaret,Yes it does sound like you have misophonia. I have a more severe form of misophonia but you have not offended me.but this statement you made does bother me a tad, although I realize you are generalizing, "I just think that way too many people use different conditions to justify sometimes odd behavior or feelings."This does happen. but..But with misophonia which does result in odd behavior from the norm (ie. avoiding people eating) from my own experience, it tends to be others who try to come up with reasons to justify my odd behavior. ie. "you can't stand my ..., that's ridiculous, that can't be the

reason, you

just don't want to be around me because of x, y or z."

(usually the other person takes it personally, defensive and has to come up with other more justifiable reasons to satisfy their own disbelieving mind, although I do admit misophonia is hard to believe...)I guess I am thinking about the mentally ill here, (not saying any of us are mentally ill) and how hard it is for others who don't have mental illness to understand, accept or distance oneself or not take personally the sometimes extremely odd behavior/emotions that often can't be helped by mentally ill people. Nobody can really know what it is like to live in someone else's head, it's hard to know where people are really coming fromI'm sorry if I missed your point entirely. Maybe you are talking about the secondary feelings resulting from thoughts after the initial phsyiological emotional spark ? To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 8:44 AM Subject: Re: (unknown)

Thank you for the information. I believe I have a moderate level. Does this sound familiar? I sent it to another member on this board.Hi Missy,I

do understand the difference because I have noticed that certain 'triggers' which make me feel extremely anxious will just be 'annoying' to others. I can describe the feelings as follows: A trigger happens which is audible to everyone. Let's say someone is clicking a ballpoint

in a closed space (office or classroom).Me:

I start to get fidgety. I start glaring at the person (indiscreetly) hoping that they stop or get my cue via eye contact. I can't get my mind focused on anything else but the clicking. I start to feel panicky

cause I can visualize myself ripping the pen off of the person's hand or yelling at

them to STOP! I endure, endure, endure until I either leave or the person does. These instances were a nightmare for me in University during exams. I sometimes had earplugs on , just in case the trigger happened.Others: If the same thing happens, someone without misophonia will just say; oh isn't that an annoying. I

can' t stand it when people do that. That's the typical answer I've always gotten from others whenever I've brought up triggers that bother me. Yet whenever that trigger would arise, they'd seem perfectly calm or oblivious to the trigger. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:04:29 PM Subject: Re: (unknown)

http://www.misophonia-uk.org/the-misophonia-activation-scale.htmlMargaret, there seem to be varying degrees of severity of misophonia for different people, if you look at the misophonia activation scale,( link above), my guess is that you are at a low level of misophonia. From: margaret spinoso

To:

"Soundsensitivity " <Soundsensitivity > Sent: Saturday, May 26, 2012 9:23 PM Subject: Re: (unknown)

Carolyne,Thanks for your comments. I assume I have misophonia based on the comments and information I viewed on 20 20 last week. I haven't been diagnosed with this condition. As for feeling undeserving; the reason I am on this board is to seek help and presumably feel like I do deserve it. Why would feeling like a freak be synonymous to feeling undeserving for help? I am not ashamed to admit that I have felt freakish at times and still do; after all isn't what this board is all about -honesty. As for low self esteem; maybe - but not more

so than 50%

of the people I know. I don't know

much about

misophonia;just heard about it last week on 20 20.Carolyne, I mentioned several times in my last e-mail that I didn't intend to offend anyone nor diminish this board; I am new here. Don't know much about misophobia. I am learning. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:35:19 AM Subject: Re: (unknown)

You either don't have misophonia or just have low self esteem. This condition is real, not just a justification for odd behavior. Do you feel like you don't deserve to be helped or don't deserve to know why you feel like this? You can go ahead and keep thinking you're an undeserving freak or realize that isn't your fault chewing,sneezing slurping etc cause you to be enraged. I am not only affected by noise but also by the sight of such things, and even the knowledge of these things going on makes me upset. If I don't vocalize my frustration, the rage gets worse. Thank god the only people who trigger these reactions are close family. Sound familiar? Ask anyone here if they are experiencing the same things. It's not just you, you're not the only one, you don't just have weird feelings. We're all getting help and you should reach out for help too.

Hi,I'm new to this group. I believe I have misophonia and like many others in this group, certain sounds are highly annoying to me. I'm 54 years old, professional and have always assumed that I was a little peculiar (to myself of course). Couldn't understand why so many sounds would annoy me to the point of avoidance while the rest of my family seemed indifferent to these sounds.I may sound skeptical , and forgive me for saying so, but deep down inside, I still think that this 'condition' is being used a little loosely.I am not in any way downplaying this sit or its members. I feel relieved to be able to connect with others who share the same symptoms; however, I am skeptical about how

much of the

way we feel can be attributed to

certain conditions.

I have been 'different' in this respect since I was about 8. Certain sounds were unbearable to hear. I felt like a freak. I may still sometimes feel like a freak and therefore I prefer to suffer quietly without mentioning a word to anyone. Most members of my family just think I am sensitive to sounds and that I have a very good hearing.I hope I'm not offending anyone; that is not my objective. I just think that way too many people use different conditions to justify sometimes odd behavior or feelings. I hope that I become more comfortable with the knowledge that this site brings. My objective is to learn from others and to accept this condition . Again, please accept my apology if I have offended any participants. I am here as others are; to feel better and to share.All the best to you,Margaret

=

[Guest guest]

Well said.

Colleen

>

> Communication can be very difficult sometimes, no matter how hard we try to

> phrase something. It's a good idea to say, " I thought I heard you say

> ....., is that what you really meant to say? " and clarify BEFORE we get

> upset or offended. It would prevent a lot of hurt feelings and stress!

>

> Just a suggestion, learned from experience.... :-)

>

[Guest guest]

Thanks for your kind words Carolyne. I'm just discovering it's not my fault either. I'll try to be more selective with my words.Margaret To: "Soundsensitivity " <Soundsensitivity > Sent: Monday, May 28, 2012 2:46:22 AM Subject: Re:

(unknown)

Yes, I'm sorry if I seemed harsh, however anything that suggests I'm not trying hard to suppress this condition makes me angry. It took me a long time to realize it wasn't my fault. I hope you find help here, but if not, at least comfort.

Carolyne,Thanks for your comments. I assume I have misophonia based on the comments and information I viewed on 20 20 last week. I haven't been diagnosed with this condition. As for feeling undeserving; the reason I am on this board is to seek help and presumably feel like I do deserve it. Why would feeling like a freak be synonymous to feeling undeserving for help? I am not ashamed to admit that I have felt freakish at times and still do; after all isn't what this board is all about -honesty. As for low self esteem; maybe - but not more so than 50% of the people I know. I don't know

much about

misophonia;just heard about it last week on 20 20.Carolyne, I mentioned several times in my last e-mail that I didn't intend to offend anyone nor diminish this board; I am new here. Don't know much about misophobia. I am learning. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:35:19 AM Subject: Re: (unknown)

You either don't have misophonia or just have low self esteem. This condition is real, not just a justification for odd behavior. Do you feel like you don't deserve to be helped or don't deserve to know why you feel like this? You can go ahead and keep thinking you're an undeserving freak or realize that isn't your fault chewing,sneezing slurping etc cause you to be enraged. I am not only affected by noise but also by the sight of such things, and even the knowledge of these things going on makes me upset. If I don't vocalize my frustration, the rage gets worse. Thank god the only people who trigger these reactions are close family. Sound familiar? Ask anyone here if they are experiencing the same things. It's not just you, you're not the only one, you don't just have weird feelings. We're all getting help and you should reach out for help too.

Hi,I'm new to this group. I believe I have misophonia and like many others in this group, certain sounds are highly annoying to me. I'm 54 years old, professional and have always assumed that I was a little peculiar (to myself of course). Couldn't understand why so many sounds would annoy me to the point of avoidance while the rest of my family seemed indifferent to these sounds.I may sound skeptical , and forgive me for saying so, but deep down inside, I still think that this 'condition' is being used a little loosely.I am not in any way downplaying this sit or its members. I feel relieved to be able to connect with others who share the same symptoms; however, I am skeptical about how much of the way we feel can be attributed to

certain conditions.

I have been 'different' in this respect since I was about 8. Certain sounds were unbearable to hear. I felt like a freak. I may still sometimes feel like a freak and therefore I prefer to suffer quietly without mentioning a word to anyone. Most members of my family just think I am sensitive to sounds and that I have a very good hearing.I hope I'm not offending anyone; that is not my objective. I just think that way too many people use different conditions to justify sometimes odd behavior or feelings. I hope that I become more comfortable with the knowledge that this site brings. My objective is to learn from others and to accept this condition . Again, please accept my apology if I have offended any participants. I am here as others are; to feel better and to share.All the best to you,Margaret

=

=

[Guest guest]

Colleen,You should give lessons on the art of diplomacy. Well said. I'll take your cue and phrase more considerately.Thanks for sharing,Margaret To: Soundsensitivity Sent: Monday, May 28, 2012 4:02:30 PM Subject: Re: (unknown)

Well said.

Colleen

>

> Communication can be very difficult sometimes, no matter how hard we try to

> phrase something. It's a good idea to say, "I thought I heard you say

> ....., is that what you really meant to say?" and clarify BEFORE we get

> upset or offended. It would prevent a lot of hurt feelings and stress!

>

> Just a suggestion, learned from experience.... :-)

>

[Guest guest]

Hi,I will rephrase my words more consderately in the future given the information which you provided. I'm sorry to hear : ' I don't experience extreme rage

personally, but self-harm is not outside the realm of possibilities for

me. It can get just that horrendous.' We do, however; all have our demons. I have had to go on anxiety medication to relieve the symptoms this winter. I thought I was going insane. Now I realize that it was attributed to the misophonia. I hope that this board is of help to all of us.Margaret To: "Soundsensitivity " <Soundsensitivity > Sent:

Monday, May 28, 2012 7:28:18 AM Subject: Re: (unknown)

Margaret thank you for your clarification.Seems to me most people who post here, commonly don't act on their violent thoughts. And I realize you were making a generalization.But I just thought that I would point out that there is a level 10 on the misophonia scale, outrageous severe behavior which I do believe the condition alone can cause, although it seems to be rare.Level 10 - Actual

use of physical violence on a person or animal (i.e., a household pet).

Violence may be inflicted on self (self-harming). I have not used physical

violence on another person or animal, I don't experience extreme rage

personally, but self-harm is not outside the realm of possibilities for

me. It can get just that horrendous. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 8:41 PM Subject: Re: (unknown)

Hi,What I meant from this statement was very general. I made this statement referring to certain people who do outrageous things and justify these actions using certain "conditions." By odd behavior, I meant outrageous behavior. For

example, I may want to beat someone up who's chewing a gum loudly with an open mouth but I won't likely act on it , that is, kill the person and then say - "oh that was because of my misophonia". That's what I meant. I realize that it may not sound correct. To: "Soundsensitivity "

<Soundsensitivity >

Sent: Sunday, May 27, 2012 11:34:30 PM Subject: Re: (unknown)

Hi, Margaret,Yes it does sound like you have misophonia. I have a more severe form of misophonia but you have not offended me.but this statement you made does bother me a tad, although I realize you are generalizing, "I just think that way too many people use different conditions to justify sometimes odd behavior or feelings."This does happen. but..But with misophonia which does result in odd behavior from the norm (ie. avoiding people eating) from my own experience, it tends to be others who try to come up with reasons to justify my odd behavior. ie. "you can't stand my ..., that's ridiculous, that can't be the

reason, you

just don't want to be around me because of x, y or z."

(usually the other person takes it personally, defensive and has to come up with other more justifiable reasons to satisfy their own disbelieving mind, although I do admit misophonia is hard to believe...)I guess I am thinking about the mentally ill here, (not saying any of us are mentally ill) and how hard it is for others who don't have mental illness to understand, accept or distance oneself or not take personally the sometimes extremely odd behavior/emotions that often can't be helped by mentally ill people. Nobody can really know what it is like to live in someone else's head, it's hard to know where people are really coming fromI'm sorry if I missed your point entirely. Maybe you are talking about the secondary feelings resulting from thoughts after the initial phsyiological emotional spark ? To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 8:44 AM Subject: Re: (unknown)

Thank you for the information. I believe I have a moderate level. Does this sound familiar? I sent it to another member on this board.Hi Missy,I

do understand the difference because I have noticed that certain 'triggers' which make me feel extremely anxious will just be 'annoying' to others. I can describe the feelings as follows: A trigger happens which is audible to everyone. Let's say someone is clicking a ballpoint

in a closed space (office or classroom).Me:

I start to get fidgety. I start glaring at the person (indiscreetly) hoping that they stop or get my cue via eye contact. I can't get my mind focused on anything else but the clicking. I start to feel panicky

cause I can visualize myself ripping the pen off of the person's hand or yelling at

them to STOP! I endure, endure, endure until I either leave or the person does. These instances were a nightmare for me in University during exams. I sometimes had earplugs on , just in case the trigger happened.Others: If the same thing happens, someone without misophonia will just say; oh isn't that an annoying. I

can' t stand it when people do that. That's the typical answer I've always gotten from others whenever I've brought up triggers that bother me. Yet whenever that trigger would arise, they'd seem perfectly calm or oblivious to the trigger. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:04:29 PM Subject: Re: (unknown)

http://www.misophonia-uk.org/the-misophonia-activation-scale.htmlMargaret, there seem to be varying degrees of severity of misophonia for different people, if you look at the misophonia activation scale,( link above), my guess is that you are at a low level of misophonia. From: margaret spinoso

To:

"Soundsensitivity " <Soundsensitivity > Sent: Saturday, May 26, 2012 9:23 PM Subject: Re: (unknown)

Carolyne,Thanks for your comments. I assume I have misophonia based on the comments and information I viewed on 20 20 last week. I haven't been diagnosed with this condition. As for feeling undeserving; the reason I am on this board is to seek help and presumably feel like I do deserve it. Why would feeling like a freak be synonymous to feeling undeserving for help? I am not ashamed to admit that I have felt freakish at times and still do; after all isn't what this board is all about -honesty. As for low self esteem; maybe - but not more

so than 50%

of the people I know. I don't know

much about

misophonia;just heard about it last week on 20 20.Carolyne, I mentioned several times in my last e-mail that I didn't intend to offend anyone nor diminish this board; I am new here. Don't know much about misophobia. I am learning. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:35:19 AM Subject: Re: (unknown)

You either don't have misophonia or just have low self esteem. This condition is real, not just a justification for odd behavior. Do you feel like you don't deserve to be helped or don't deserve to know why you feel like this? You can go ahead and keep thinking you're an undeserving freak or realize that isn't your fault chewing,sneezing slurping etc cause you to be enraged. I am not only affected by noise but also by the sight of such things, and even the knowledge of these things going on makes me upset. If I don't vocalize my frustration, the rage gets worse. Thank god the only people who trigger these reactions are close family. Sound familiar? Ask anyone here if they are experiencing the same things. It's not just you, you're not the only one, you don't just have weird feelings. We're all getting help and you should reach out for help too.

Hi,I'm new to this group. I believe I have misophonia and like many others in this group, certain sounds are highly annoying to me. I'm 54 years old, professional and have always assumed that I was a little peculiar (to myself of course). Couldn't understand why so many sounds would annoy me to the point of avoidance while the rest of my family seemed indifferent to these sounds.I may sound skeptical , and forgive me for saying so, but deep down inside, I still think that this 'condition' is being used a little loosely.I am not in any way downplaying this sit or its members. I feel relieved to be able to connect with others who share the same symptoms; however, I am skeptical about how

much of the

way we feel can be attributed to

certain conditions.

I have been 'different' in this respect since I was about 8. Certain sounds were unbearable to hear. I felt like a freak. I may still sometimes feel like a freak and therefore I prefer to suffer quietly without mentioning a word to anyone. Most members of my family just think I am sensitive to sounds and that I have a very good hearing.I hope I'm not offending anyone; that is not my objective. I just think that way too many people use different conditions to justify sometimes odd behavior or feelings. I hope that I become more comfortable with the knowledge that this site brings. My objective is to learn from others and to accept this condition . Again, please accept my apology if I have offended any participants. I am here as others are; to feel better and to share.All the best to you,Margaret

=

[Guest guest]

Hi Margaret,I am sorry I have been so nit-picky about words especially since you are a newcomer. I suppose I perceived it as a sensitive issue, because so many people are trying to "come out of the closet" here, especially since all the media attention recently. You mentioned you prefer to suffer in silence, which I sure most of us here would prefer to do as well. Though it has become impossible for some here and others have decided to just take the big plunge. bravo.I am sure you will find it very helpful being a member here. As It has helped me to not feel so alone, find out coping solutions, share information, support, ect.

Also since finding out that there are other people out there with my weird problem, I am learning to finally accept it. And now it is easier to give myself permission for sanity-saving behaviors that others might not approve of or agree with, avoiding family meals for example. Also I have learned not to feel so bad when others can't understand or take it personally my miso related behavior, although I haven't told any non-misos yet that I have this condition.I am happy to hear that you were helped with the anti-anxiety medication. I also take anti-anxiety meds as I need them, and an anti-depressant which also help me cope with the misophonia. I have tried just about every class of psychiatric drug there is, in a quest to find something that really helps with my misophonia, no luck yet, only slight relief.I am not doing so badly right now, but am living very isolated because of the miso and have a

realllly hard time trying to support myself.Thank you for explaining your statements. Honestly I was not offended

nor am I am ready to go over the edge at this point either. I was just was trying to head

off what I was concerned might become an uncomfortable topic here is all. I admit I tend to be overly-sensitive in general. Welcome to the group! To: "Soundsensitivity " <Soundsensitivity > Sent: Monday, May 28, 2012 11:50 AM Subject: Re: (unknown)

Hi,I will rephrase my words more consderately in the future given the information which you provided. I'm sorry to hear : ' I don't experience extreme rage

personally, but self-harm is not outside the realm of possibilities for

me. It can get just that horrendous.' We do, however; all have our demons. I have had to go on anxiety medication to relieve the symptoms this winter. I thought I was going insane. Now I realize that it was attributed to the misophonia. I hope that this board is of help to all of us.Margaret To: "Soundsensitivity " <Soundsensitivity > Sent:

Monday, May 28, 2012 7:28:18 AM Subject: Re: (unknown)

Margaret thank you for your clarification.Seems to me most people who post here, commonly don't act on their violent thoughts. And I realize you were making a generalization.But I just thought that I would point out that there is a level 10 on the misophonia scale, outrageous severe behavior which I do believe the condition alone can cause, although it seems to be rare.Level 10 - Actual

use of physical violence on a person or animal (i.e., a household pet).

Violence may be inflicted on self (self-harming). I have not used physical

violence on another person or animal, I don't experience extreme rage

personally, but self-harm is not outside the realm of possibilities for

me. It can get just that horrendous. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 8:41 PM Subject: Re: (unknown)

Hi,What I meant from this statement was very general. I made this statement referring to certain people who do outrageous things and justify these actions using certain "conditions." By odd behavior, I meant outrageous behavior. For

example, I may want to beat someone up who's chewing a gum loudly with an open mouth but I won't likely act on it , that is, kill the person and then say - "oh that was because of my misophonia". That's what I meant. I realize that it may not sound correct. To: "Soundsensitivity "

<Soundsensitivity >

Sent: Sunday, May 27, 2012 11:34:30 PM Subject: Re: (unknown)

Hi, Margaret,Yes it does sound like you have misophonia. I have a more severe form of misophonia but you have not offended me.but this statement you made does bother me a tad, although I realize you are generalizing, "I just think that way too many people use different conditions to justify sometimes odd behavior or feelings."This does happen. but..But with misophonia which does result in odd behavior from the norm (ie. avoiding people eating) from my own experience, it tends to be others who try to come up with reasons to justify my odd behavior. ie. "you can't stand my ..., that's ridiculous, that can't be the

reason, you

just don't want to be around me because of x, y or z."

(usually the other person takes it personally, defensive and has to come up with other more justifiable reasons to satisfy their own disbelieving mind, although I do admit misophonia is hard to believe...)I guess I am thinking about the mentally ill here, (not saying any of us are mentally ill) and how hard it is for others who don't have mental illness to understand, accept or distance oneself or not take personally the sometimes extremely odd behavior/emotions that often can't be helped by mentally ill people. Nobody can really know what it is like to live in someone else's head, it's hard to know where people are really coming fromI'm sorry if I missed your point entirely. Maybe you are talking about the secondary feelings resulting from thoughts after the initial phsyiological emotional spark ? To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 8:44 AM Subject: Re: (unknown)

Thank you for the information. I believe I have a moderate level. Does this sound familiar? I sent it to another member on this board.Hi Missy,I

do understand the difference because I have noticed that certain 'triggers' which make me feel extremely anxious will just be 'annoying' to others. I can describe the feelings as follows: A trigger happens which is audible to everyone. Let's say someone is clicking a ballpoint

in a closed space (office or classroom).Me:

I start to get fidgety. I start glaring at the person (indiscreetly) hoping that they stop or get my cue via eye contact. I can't get my mind focused on anything else but the clicking. I start to feel panicky

cause I can visualize myself ripping the pen off of the person's hand or yelling at

them to STOP! I endure, endure, endure until I either leave or the person does. These instances were a nightmare for me in University during exams. I sometimes had earplugs on , just in case the trigger happened.Others: If the same thing happens, someone without misophonia will just say; oh isn't that an annoying. I

can' t stand it when people do that. That's the typical answer I've always gotten from others whenever I've brought up triggers that bother me. Yet whenever that trigger would arise, they'd seem perfectly calm or oblivious to the trigger. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:04:29 PM Subject: Re: (unknown)

http://www.misophonia-uk.org/the-misophonia-activation-scale.htmlMargaret, there seem to be varying degrees of severity of misophonia for different people, if you look at the misophonia activation scale,( link above), my guess is that you are at a low level of misophonia. From: margaret spinoso

To:

"Soundsensitivity " <Soundsensitivity > Sent: Saturday, May 26, 2012 9:23 PM Subject: Re: (unknown)

Carolyne,Thanks for your comments. I assume I have misophonia based on the comments and information I viewed on 20 20 last week. I haven't been diagnosed with this condition. As for feeling undeserving; the reason I am on this board is to seek help and presumably feel like I do deserve it. Why would feeling like a freak be synonymous to feeling undeserving for help? I am not ashamed to admit that I have felt freakish at times and still do; after all isn't what this board is all about -honesty. As for low self esteem; maybe - but not more

so than 50%

of the people I know. I don't know

much about

misophonia;just heard about it last week on 20 20.Carolyne, I mentioned several times in my last e-mail that I didn't intend to offend anyone nor diminish this board; I am new here. Don't know much about misophobia. I am learning. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:35:19 AM Subject: Re: (unknown)

You either don't have misophonia or just have low self esteem. This condition is real, not just a justification for odd behavior. Do you feel like you don't deserve to be helped or don't deserve to know why you feel like this? You can go ahead and keep thinking you're an undeserving freak or realize that isn't your fault chewing,sneezing slurping etc cause you to be enraged. I am not only affected by noise but also by the sight of such things, and even the knowledge of these things going on makes me upset. If I don't vocalize my frustration, the rage gets worse. Thank god the only people who trigger these reactions are close family. Sound familiar? Ask anyone here if they are experiencing the same things. It's not just you, you're not the only one, you don't just have weird feelings. We're all getting help and you should reach out for help too.

Hi,I'm new to this group. I believe I have misophonia and like many others in this group, certain sounds are highly annoying to me. I'm 54 years old, professional and have always assumed that I was a little peculiar (to myself of course). Couldn't understand why so many sounds would annoy me to the point of avoidance while the rest of my family seemed indifferent to these sounds.I may sound skeptical , and forgive me for saying so, but deep down inside, I still think that this 'condition' is being used a little loosely.I am not in any way downplaying this sit or its members. I feel relieved to be able to connect with others who share the same symptoms; however, I am skeptical about how

much of the

way we feel can be attributed to

certain conditions.

I have been 'different' in this respect since I was about 8. Certain sounds were unbearable to hear. I felt like a freak. I may still sometimes feel like a freak and therefore I prefer to suffer quietly without mentioning a word to anyone. Most members of my family just think I am sensitive to sounds and that I have a very good hearing.I hope I'm not offending anyone; that is not my objective. I just think that way too many people use different conditions to justify sometimes odd behavior or feelings. I hope that I become more comfortable with the knowledge that this site brings. My objective is to learn from others and to accept this condition . Again, please accept my apology if I have offended any participants. I am here as others are; to feel better and to share.All the best to you,Margaret

=

[Guest guest]

Hi,You sound like a very genuine person. I'm glad that you were honest with me; I will be more careful in my wording (as I said). I do hope to feel better by joining this group. I still find it hard to believe that there are really other people out there who suffer the same thing as I do. I have kept these feelings to myself for many many years. I haven' t ever been able to tell my family how I felt either. I have also felt extremely isolated. I don' t think that I've ever met anyone who's displayed any of the symptoms. My family just thought I was very peculiar in certain ways. I still don't think they'd really understand. Thanks for your kind words and your warm welcome to

this group. I look forward to chatting.Margaret To: "Soundsensitivity " <Soundsensitivity > Sent: Monday, May 28, 2012 10:22:31 PM Subject: Re: (unknown)

Hi Margaret,I am sorry I have been so nit-picky about words especially since you are a newcomer. I suppose I perceived it as a sensitive issue, because so many people are trying to "come out of the closet" here, especially since all the media attention recently. You mentioned you prefer to suffer in silence, which I sure most of us here would prefer to do as well. Though it has become impossible for some here and others have decided to just take the big plunge. bravo.I am sure you will find it very helpful being a member here. As It has helped me to not feel so alone, find out coping solutions, share

information, support, ect.

Also since finding out that there are other people out there with my weird problem, I am learning to finally accept it. And now it is easier to give myself permission for sanity-saving behaviors that others might not approve of or agree with, avoiding family meals for example. Also I have learned not to feel so bad when others can't understand or take it personally my miso related behavior, although I haven't told any non-misos yet that I have this condition.I am happy to hear that you were helped with the anti-anxiety medication. I also take anti-anxiety meds as I need them, and an anti-depressant which also help me cope with the misophonia. I have tried just about every class of psychiatric drug there is, in a quest to find something that really helps with my misophonia, no luck yet, only slight relief.I am not doing so badly right now, but am living very isolated because of the miso and have a

realllly hard time trying to support myself.Thank you for explaining your statements. Honestly I was not offended

nor am I am ready to go over the edge at this point either. I was just was trying to head

off what I was concerned might become an uncomfortable topic here is all. I admit I tend to be overly-sensitive in general. Welcome to the group! To: "Soundsensitivity " <Soundsensitivity > Sent: Monday, May 28, 2012 11:50 AM Subject: Re: (unknown)

Hi,I will rephrase my words in the future given the information which you provided. I'm sorry to hear : ' I don't experience extreme rage

personally, but self-harm is not outside the realm of possibilities for

me. It can get just that horrendous.' We do, however; all have our demons. I have had to go on anxiety medication to relieve the symptoms this winter. I thought I was going insane. Now I realize that it was attributed to the misophonia. I hope that this board is of help to all of us.Margaret To: "Soundsensitivity " <Soundsensitivity > Sent:

Monday, May 28, 2012 7:28:18 AM Subject: Re: (unknown)

Margaret thank you for your clarification.Seems to me most people who post here, commonly don't act on their violent thoughts. And I realize you were making a generalization.But I just thought that I would point out that there is a level 10 on the misophonia scale, outrageous severe behavior which I do believe the condition alone can cause, although it seems to be rare.Level 10 - Actual

use of physical violence on a person or animal (i.e., a household pet).

Violence may be inflicted on self (self-harming). I have not used physical

violence on another person or animal, I don't experience extreme rage

personally, but self-harm is not outside the realm of possibilities for

me. It can get just that horrendous. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 8:41 PM Subject: Re: (unknown)

Hi,What I meant from this statement was very general. I made this statement referring to certain people who do outrageous things and justify these actions using certain "conditions." By odd behavior, I meant outrageous behavior.

For

example, I may want to beat someone up who's chewing a gum loudly with an open mouth but I won't likely act on it , that is, kill the person and then say - "oh that was because of my misophonia". That's what I meant. I realize that it may not sound correct. To: "Soundsensitivity "

<Soundsensitivity >

Sent: Sunday, May 27, 2012 11:34:30 PM Subject: Re: (unknown)

Hi, Margaret,Yes it does sound like you have misophonia. I have a more severe form of misophonia but you have not offended me.but this statement you made does bother me a tad, although I realize you are generalizing, "I just think that way too many people use different conditions to justify sometimes odd behavior or feelings."This does happen. but..But with misophonia which does result in odd behavior from the norm (ie. avoiding people eating) from my own experience, it tends to be others who try to come up with reasons to justify my odd behavior. ie. "you can't stand my ..., that's ridiculous, that can't be the

reason, you

just don't want to be around me because of x, y or z."

(usually the other person takes it personally, defensive and has to come up with other more justifiable reasons to satisfy their own disbelieving mind, although I do admit misophonia is hard to believe...)I guess I am thinking about the mentally ill here, (not saying any of us are mentally ill) and how hard it is for others who don't have mental illness to understand, accept or distance oneself or not take personally the sometimes extremely odd behavior/emotions that often can't be helped by mentally ill people. Nobody can really know what it is like to live in someone else's head, it's hard to know where people are really coming fromI'm sorry if I missed your point entirely. Maybe you are talking about the secondary feelings resulting from thoughts after the initial phsyiological emotional spark ? To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 8:44 AM Subject: Re: (unknown)

Thank you for the information. I believe I have a moderate level. Does this sound familiar? I sent it to another member on this board.Hi Missy,I

do understand the difference because I have noticed that certain 'triggers' which make me feel extremely anxious will just be 'annoying' to others. I can describe the feelings as follows: A trigger happens which is audible to everyone. Let's say someone is clicking a ballpoint

in a closed space (office or classroom).Me:

I start to get fidgety. I start glaring at the person (indiscreetly) hoping that they stop or get my cue via eye contact. I can't get my mind focused on anything else but the clicking. I start to feel panicky

cause I can visualize myself ripping the pen off of the person's hand or yelling at

them to STOP! I endure, endure, endure until I either leave or the person does. These instances were a nightmare for me in University during exams. I sometimes had earplugs on , just in case the trigger happened.Others: If the same thing happens, someone without misophonia will just say; oh isn't that an annoying. I

can' t stand it when people do that. That's the typical answer I've always gotten from others whenever I've brought up triggers that bother me. Yet whenever that trigger would arise, they'd seem perfectly calm or oblivious to the trigger. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:04:29 PM Subject: Re: (unknown)

http://www.misophonia-uk.org/the-misophonia-activation-scale.htmlMargaret, there seem to be varying degrees of severity of misophonia for different people, if you look at the misophonia activation scale,( link above), my guess is that you are at a low level of misophonia. From: margaret spinoso

To:

"Soundsensitivity " <Soundsensitivity > Sent: Saturday, May 26, 2012 9:23 PM Subject: Re: (unknown)

Carolyne,Thanks for your comments. I assume I have misophonia based on the comments and information I viewed on 20 20 last week. I haven't been diagnosed with this condition. As for feeling undeserving; the reason I am on this board is to seek help and presumably feel like I do deserve it. Why would feeling like a freak be synonymous to feeling undeserving for help? I am not ashamed to admit that I have felt freakish at times and still do; after all isn't what this board is all about -honesty. As for low self esteem; maybe - but not more

so than 50%

of the people I know. I don't know

much about

misophonia;just heard about it last week on 20 20.Carolyne, I mentioned several times in my last e-mail that I didn't intend to offend anyone nor diminish this board; I am new here. Don't know much about misophobia. I am learning. To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, May 27, 2012 12:35:19 AM Subject: Re: (unknown)

You either don't have misophonia or just have low self esteem. This condition is real, not just a justification for odd behavior. Do you feel like you don't deserve to be helped or don't deserve to know why you feel like this? You can go ahead and keep thinking you're an undeserving freak or realize that isn't your fault chewing,sneezing slurping etc cause you to be enraged. I am not only affected by noise but also by the sight of such things, and even the knowledge of these things going on makes me upset. If I don't vocalize my frustration, the rage gets worse. Thank god the only people who trigger these reactions are close family. Sound familiar? Ask anyone here if they are experiencing the same things. It's not just you, you're not the only one, you don't just have weird feelings. We're all getting help and you should reach out for help too.

Hi,I'm new to this group. I believe I have misophonia and like many others in this group, certain sounds are highly annoying to me. I'm 54 years old, professional and have always assumed that I was a little peculiar (to myself of course). Couldn't understand why so many sounds would annoy me to the point of avoidance while the rest of my family seemed indifferent to these sounds.I may sound skeptical , and forgive me for saying so, but deep down inside, I still think that this 'condition' is being used a little loosely.I am not in any way downplaying this sit or its members. I feel relieved to be able to connect with others who share the same symptoms; however, I am skeptical about how

much of the

way we feel can be attributed to

certain conditions.

I have been 'different' in this respect since I was about 8. Certain sounds were unbearable to hear. I felt like a freak. I may still sometimes feel like a freak and therefore I prefer to suffer quietly without mentioning a word to anyone. Most members of my family just think I am sensitive to sounds and that I have a very good hearing.I hope I'm not offending anyone; that is not my objective. I just think that way too many people use different conditions to justify sometimes odd behavior or feelings. I hope that I become more comfortable with the knowledge that this site brings. My objective is to learn from others and to accept this condition . Again, please accept my apology if I have offended any participants. I am here as others are; to feel better and to share.All the best to you,Margaret

=

[Guest guest]

Margaret,

I think you hit a nerve when you said you prefer to suffer silently, because

this is the time in history that misophonics no longer need to do so. Only

within the last few months does the world know this is a real medical condition

and not just a behavioral weirdness. So I think that is why people initially

reacted to your phrasing with concern.

Those who shared their stories in the national press are to be commended. They

are very brave and give a voice to all those who suffer in silence.

Everyone with an odd condition like this feels like a freak, and of course

people are reluctant to expose their freakishness to the world.

Welcome. You are not alone.

>

>

>  

> >Hi,

> >

> >

> >I'm new to this group.  I believe I have misophonia and like many others in

this group, certain sounds are highly annoying to me.  I'm 54 years old,

professional and have always assumed that I was a little peculiar (to myself of

course). Couldn't understand why so many sounds would annoy me to the point of

avoidance while the rest of my family seemed indifferent to these sounds.

> >I may sound skeptical , and forgive me for saying so, but deep down inside, I

still think that this 'condition' is being used a little loosely.

> >

> >

> >I am not in any way downplaying this sit or its members.  I feel relieved to

be able to connect with others who share the same symptoms; however, I am

skeptical about how much of the way we feel can be attributed to certain

conditions.  I have been 'different' in this respect since I was about 8. 

Certain sounds were unbearable to hear.  I felt like a freak.  I may still

sometimes feel like a freak and therefore I prefer to suffer quietly without

mentioning a word to anyone.  Most members of my family just think I am

sensitive to sounds and that I have a very good hearing.

> >

> >

> >I hope I'm not offending anyone; that is not my objective.  I just think

that way too many people use different conditions to justify sometimes odd

behavior or feelings.  I hope that I become more comfortable with the knowledge

that this site brings.  My objective is to learn from others and to accept this

condition .  Again, please accept my apology if I have offended any

participants.  I am here as others are; to feel better and to share.

> >

> >

> >All the best to you,

> >

> >

> >Margaret

> >=

>

[Guest guest]

Hi Peach,The reason why I still feel "freakish" is maybe because it is relatively unknown. I'll bet that my own MD is maybe still vague about this condition if I spoke to her about it. (I guess I shouldn't generalize; here I go again !!!!). I only found out about misophonia a week ago and quite frankly, I'm still in a fog; I feel as though it can't be that there's a name to IT. I feel like " No, it can't possibly be that there's a name to the way I've felt for soooo many years." I've felt so lonely,

ashamed and helpless that I verbalizing my feelings on this board re the misopohonia is odd.Peach, thanks for your support. Look forward to talking.Margaret To: Soundsensitivity Sent: Tuesday, May 29, 2012 2:44:44 AM Subject: Re: (unknown)

Margaret,

I think you hit a nerve when you said you prefer to suffer silently, because this is the time in history that misophonics no longer need to do so. Only within the last few months does the world know this is a real medical condition and not just a behavioral weirdness. So I think that is why people initially reacted to your phrasing with concern.

Those who shared their stories in the national press are to be commended. They are very brave and give a voice to all those who suffer in silence.

Everyone with an odd condition like this feels like a freak, and of course people are reluctant to expose their freakishness to the world.

Welcome. You are not alone.

>

>

> Â

> >Hi,

> >

> >

> >I'm new to this group. I believe I have misophonia and like many others in this group, certain sounds are highly annoying to me. I'm 54 years old, professional and have always assumed that I was a little peculiar (to myself of course). Couldn't understand why so many sounds would annoy me to the point of avoidance while the rest of my family seemed indifferent to these sounds.

> >I may sound skeptical , and forgive me for saying so, but deep down inside, I still think that this 'condition' is being used a little loosely.

> >

> >

> >I am not in any way downplaying this sit or its members. I feel relieved to be able to connect with others who share the same symptoms; however, I am skeptical about how much of the way we feel can be attributed to certain conditions. I have been 'different' in this respect since I was about 8. Certain sounds were unbearable to hear. I felt like a freak. I may still sometimes feel like a freak and therefore I prefer to suffer quietly without mentioning a word to anyone. Most members of my family just think I am sensitive to sounds and that I have a very good hearing.

> >

> >

> >I hope I'm not offending anyone; that is not my objective. I just think that way too many people use different conditions to justify sometimes odd behavior or feelings. I hope that I become more comfortable with the knowledge that this site brings. My objective is to learn from others and to accept this condition . Again, please accept my apology if I have offended any participants. I am here as others are; to feel better and to share.

> >

> >

> >All the best to you,

> >

> >

> >Margaret

> >=

>