Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Hi Sgtnick, Welcome, sounds like you have a good doc and a good honey, that's more than half the battle. I was diagnosed in 1984 and wrote www.copingandprevailing.com If you cannot afford to pay for the book send me your mailing address and I will send it to you. Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Sounds like we need to start the walker club. I also use a walker most of the time and keep my wheelchair in my truck when I go places. I also have the bladder trouble as well. I never have had fatigue troubles with my MS maybe I can trade that in to get my balance back so I can walk normal again. Welcome to the group. Bill (unknown) HI folkzzz,I just joined this group (duh!) and thought I'd let you know a bit about myself. Currently, I am using a walker to get around the apartment and a wheelchair on my rare forays into the big, bad world (which used to seem so small and friendly). I'm engaged to my wonderful Patty-lady, drawing a 110% (that's right!!) disability pension courtesy of my 11+ years of dedicated and honorable service in the US Army, and going through all kinds of changes/stressors in my life thanks to kids (mine and fiancee Pat's) who are in the 19- to 21-year-old age-group and can't seem to quite figure out how life works, except that when there's a major disaster, it's call Mom or Dad/Me. This usually involves cars or cops, thus $$$$. I'm no tight wad, but the money tree will inevitably run dry, eventually.Grumble grumble grumble.My "brand" of MS is somewhere between relapsing/remitting and secondary/progressive, but who knows? Just labels, as several neurologists have told me. They really don't know ow to classify precisely because of the slipperiness of the disease. I know there's a huge range of disabilities associated with MS, and so far I've been relatively lucky. Oh, I do have a tricky bladder and the occasional difficulty (impossibility) with bowel control-though constipation is a larger problem, but I generally manage. Also a chronically sore lumbar spine, which may be due to scoliosis (spinal curvature), which I was informed I had during an Army physical way back when (1983) I was still busy being a Russian linguist/radio intercept operator in then West Berlin and well before I was finally medically discharged. My first symptom was, Ta! Da!!, optic retinitis (neuritis?) of the right eye. Did a month of prednisone, two weeks on the neuro ward at since defunct Letterman Army General Hospital in San Franciso, got LPd and evoke-responsed and on and on, but could only be provisionally diagnosed with MS. Took an MRI in '86 to settle that issue. I also noticed tinnitus (ringing ears) that began concurrently with the eye problems, but the neuros all say, "Na, that hasn't a thing to do with MS." Bahh!! Who knows MS better than you or I? Of course, the ear ringing could have been a result of standing too close to cherry bombs when I was leading the life of "Beaver" in the 50s and 60s, or because of too much time spent with firearms both in the army and hunting. Or driving a combine, or tractor, or forklift. What else: Oh yeah. For the guys-any of you having trouble with the "lead in your pencils?" Pretty common in MSers with bladder involvement. I find Viagra worked great for a while, but not so consistently any longer. Good thing I'm not the fiend I once was.Any advice as to finding community services that I may not be aware of would be greatly appreciated, or new MS-related web sites. Or just chat.Oh yeah...what's the general consensus on MS-related depression issues among you folks? I know what the stats are, and I have an appointment with VA mental health on the advice of my neurologist, my primary care physician, and my Patty. How up do they expect me to be, I wonder? I've always been a "glass is half-empty" kind of guy, so I really didn't notice anything. I'm anything but suicidal. Self murder is the greatest slap in the face of God possible. If more drugs will help, I'll try something. Wellbutrin (sp?) seems like it might be useful and is generally well tolerated. Truly, I'd rather smoke the evil weed because it's natural and it works, but never mind that. Wait for the prohibition to end. I actually believe that most of my recent gloomier days have been a result of situational stressors.I know I have more to spout off about, but it's early and I want more coffee. One must have one's priorities. And a sitz-shower. And clean clothes. And lottery winnings. And stronger faith. And peace and health and happiness throughout the universe. Is that too much to ask?Snows blowing yet again. Better than the heat of summer, which kicks my rear.Luck to all, K. Nicklaysgtnick1951@...Current meds include Zanaflex, Valium, and lots of vitamins. I did try Avonex, but it didn't agree with my emotional lability level; i.e., I was noticeably more depressed after use.I just got lost in thought. It was unfamiliar territory. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Welcome to the CLub, Steve! Related to walker club, can I join if I'm only using it at night? During the day, I found that using "Canadian crutches", or forearm crutches, to work better. With the walker, I was tending to slouch over more. I did get a "winnie walker" which was great, had brakes, and a basket and a seat for when I got tired; it let me go over rough territory (like football and soccer fields) and always have a seat available. With the forearm crutches (prescribed by PT) I was able to improve my posture, and actually am more stable. With a cane, having weak wrists, I was wobbly. With the CC, since they are stabilized from the forearms and you hold onto a bar below, it feels like an extension of your arm and I am much more stable. Also fits better when shopping. I don't need the crutches in the house. I do use a walker at my bedside at night, to stabilize myself when I get up to go to the bathroom. Sam in Boston; where winter is coming back next week.. Bill Foulke wrote: Sounds like we need to start the walker club. I also use a walker most of the time and keep my wheelchair in my truck when I go places. I also have the bladder trouble as well. I never have had fatigue troubles with my MS maybe I can trade that in to get my balance back so I can walk normal again. Welcome to the group. Bill ----- Original Message ----- From: Sgt. K. Nicklay, USA (Med.Ret.) To: MSersLife Sent: Saturday, March 06, 2004 12:58 PM Subject: (unknown) HI folkzzz, I just joined this group (duh!) and thought I'd let you know a bit about myself. Currently, I am using a walker to get around the apartment and a wheelchair on my rare forays into the big, bad world (which used to seem so small and friendly). I'm engaged to my wonderful Patty-lady, drawing a 110% (that's right!!) disability pension courtesy of my 11+ years of dedicated and honorable service in the US Army, and going through all kinds of changes/stressors in my life thanks to kids (mine and fiancee Pat's) who are in the 19- to 21-year-old age-group and can't seem to quite figure out how life works, except that when there's a major disaster, it's call Mom or Dad/Me. This usually involves cars or cops, thus $$$$. I'm no tight wad, but the money tree will inevitably run dry, eventually. Grumble grumble grumble. My "brand" of MS is somewhere between relapsing/remitting and secondary/progressive, but who knows? Just labels, as several neurologists have told me. They really don't know ow to classify precisely because of the slipperiness of the disease. I know there's a huge range of disabilities associated with MS, and so far I've been relatively lucky. Oh, I do have a tricky bladder and the occasional difficulty (impossibility) with bowel control-though constipation is a larger problem, but I generally manage. Also a chronically sore lumbar spine, which may be due to scoliosis (spinal curvature), which I was informed I had during an Army physical way back when (1983) I was still busy being a Russian linguist/radio intercept operator in then West Berlin and well before I was finally medically discharged. My first symptom was, Ta! Da!!, optic retinitis (neuritis?) of the right eye. Did a month of prednisone, two weeks on the neuro ward at since defunct Letterman Army General Hospital in San Franciso, got LPd and evoke-responsed and on and on, but could only be provisionally diagnosed with MS. Took an MRI in '86 to settle that issue. I also noticed tinnitus (ringing ears) that began concurrently with the eye problems, but the neuros all say, "Na, that hasn't a thing to do with MS." Bahh!! Who knows MS better than you or I? Of course, the ear ringing could have been a result of standing too close to cherry bombs when I was leading the life of "Beaver" in the 50s and 60s, or because of too much time spent with firearms both in the army and hunting. Or driving a combine, or tractor, or forklift. What else: Oh yeah. For the guys-any of you having trouble with the "lead in your pencils?" Pretty common in MSers with bladder involvement. I find Viagra worked great for a while, but not so consistently any longer. Good thing I'm not the fiend I once was. Any advice as to finding community services that I may not be aware of would be greatly appreciated, or new MS-related web sites. Or just chat. Oh yeah...what's the general consensus on MS-related depression issues among you folks? I know what the stats are, and I have an appointment with VA mental health on the advice of my neurologist, my primary care physician, and my Patty. How up do they expect me to be, I wonder? I've always been a "glass is half-empty" kind of guy, so I really didn't notice anything. I'm anything but suicidal. Self murder is the greatest slap in the face of God possible. If more drugs will help, I'll try something. Wellbutrin (sp?) seems like it might be useful and is generally well tolerated. Truly, I'd rather smoke the evil weed because it's natural and it works, but never mind that. Wait for the prohibition to end. I actually believe that most of my recent gloomier days have been a result of situational stressors. I know I have more to spout off about, but it's early and I want more coffee. One must have one's priorities. And a sitz-shower. And clean clothes. And lottery winnings. And stronger faith. And peace and health and happiness throughout the universe. Is that too much to ask? Snows blowing yet again. Better than the heat of summer, which kicks my rear. Luck to all, K. Nicklay sgtnick1951@... Current meds include Zanaflex, Valium, and lots of vitamins. I did try Avonex, but it didn't agree with my emotional lability level; i.e., I was noticeably more depressed after use. I just got lost in thought. It was unfamiliar territory. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 Number 1-never feel sorry for chatting on. We all need to do it…I’m the queen of this ‘art’. Second, thank you for serving our country. Third, I am on Paxil, and had to bring the dose up once. I got the worst headache, brought the dose right back down and it worked fine. Take Care, Drew ---- " When you're curious, you find lots of interesting things to do. And one thing it takes to accomplish something is courage. " Walt Disney Re: (unknown) Hi , or is it Steve? Hi Sarge, Welcome to the group. You gave 110% to your country, its a comfort to see them giving 110% back. You will find a great deal of support, information, ideas and shoulders here. A great bunch of people. I have been on Wellbutrin, Zoloft, and currently Paxil. They all seem to work fairly well, however I think I beging to build up a tolerance after a while. I have had interesting side effects with the Zoloft and Paxil that my Siginficant Other noticed as well. (everything works when its supposed to but the grand finale takes at least an hour to achieve) Needless to say, I havent been told to stop taking them. Besides, I get very " dark " without them. Any specific questions about anything MS related however obscure will more then likely be addressed in triplicate. So jump right in, the waters fine. Take care, USN/Ret " Sgt. K. Nicklay, USA (Med.Ret.) " wrote: HI folkzzz, I just joined this group (duh!) and thought I'd let you know a bit about myself. Currently, I am using a walker to get around the apartment and a wheelchair on my rare forays into the big, bad world (which used to seem so small and friendly). I'm engaged to my wonderful Patty-lady, drawing a 110% (that's right!!) disability pension courtesy of my 11+ years of dedicated and honorable service in the US Army, and going through all kinds of changes/stressors in my life thanks to kids (mine and fiancee Pat's) who are in the 19- to 21-year-old age-group and can't seem to quite figure out how life works, except that when there's a major disaster, it's call Mom or Dad/Me. This usually involves cars or cops, thus $$$$. I'm no tight wad, but the money tree will inevitably run dry, eventually. Grumble grumble grumble.  to the Yahoo! Terms of Service. -- Incoming mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.225 / Virus Database: 262.2.1 - Release Date: 3/5/2004 -- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.225 / Virus Database: 262.2.1 - Release Date: 3/5/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Drew, if you are having side effects that you do not like, you should go to your dr and tell him/her about your situations. They should change meds, there are a lot of other ones out there to try without you having to suffer side effects! I held onto a med for almost 1 yr and had horrid side effects...FINALLY i told my neuro to change meds! She listened and I am now sooooooo much happier! Just a bit of info and help for ya. Kim RE: (unknown) Number 1-never feel sorry for chatting on. We all need to do it…I’m the queen of this ‘art’. Second, thank you for serving our country. Third, I am on Paxil, and had to bring the dose up once. I got the worst headache, brought the dose right back down and it worked fine. Take Care, Drew ---- "When you're curious, you find lots of interesting things to do. And one thing it takes to accomplish something is courage." Walt Disney -----Original Message-----From: Mister Zig Sent: Saturday, March 06, 2004 10:34 AMTo: MSersLife Subject: Re: (unknown) Hi , or is it Steve? Hi Sarge, Welcome to the group. You gave 110% to your country, its a comfort to see them giving 110% back. You will find a great deal of support, information, ideas and shoulders here. A great bunch of people. I have been on Wellbutrin, Zoloft, and currently Paxil. They all seem to work fairly well, however I think I beging to build up a tolerance after a while. I have had interesting side effects with the Zoloft and Paxil that my Siginficant Other noticed as well. (everything works when its supposed to but the grand finale takes at least an hour to achieve) Needless to say, I havent been told to stop taking them. Besides, I get very "dark" without them. Any specific questions about anything MS related however obscure will more then likely be addressed in triplicate. So jump right in, the waters fine. Take care, USN/Ret "Sgt. K. Nicklay, USA (Med.Ret.)" wrote: HI folkzzz,I just joined this group (duh!) and thought I'd let you know a bit about myself. Currently, I am using a walker to get around the apartment and a wheelchair on my rare forays into the big, bad world (which used to seem so small and friendly). I'm engaged to my wonderful Patty-lady, drawing a 110% (that's right!!) disability pension courtesy of my 11+ years of dedicated and honorable service in the US Army, and going through all kinds of changes/stressors in my life thanks to kids (mine and fiancee Pat's) who are in the 19- to 21-year-old age-group and can't seem to quite figure out how life works, except that when there's a major disaster, it's call Mom or Dad/Me. This usually involves cars or cops, thus $$$$. I'm no tight wad, but the money tree will inevitably run dry, eventually.Grumble grumble grumble. to the Yahoo! Terms of Service. --Incoming mail is certified Virus Free.Checked by AVG Anti-Virus (http://www.grisoft.com).Version: 7.0.225 / Virus Database: 262.2.1 - Release Date: 3/5/2004 --Outgoing mail is certified Virus Free.Checked by AVG Anti-Virus (http://www.grisoft.com).Version: 7.0.225 / Virus Database: 262.2.1 - Release Date: 3/5/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Welcome , You sound like a very up-beat guy. Sometimes a sense of humor is the best weapon against the MonSter. Depression is very common, though, and meds can help. I take Celexa for mine and I can tell when I've missed a couple of pills - so can my husband! Welcome again. HI folkzzz,I just joined this group (duh!) and thought I'd let you know a bit about myself. Currently, I am using a walker to get around the apartment and a wheelchair on my rare forays into the big, bad world (which used to seem so small and friendly). I'm engaged to my wonderful Patty-lady, drawing a 110% (that's right!!) disability pension courtesy of my 11+ years of dedicated and honorable service in the US Army, and going through all kinds of changes/stressors in my life thanks to kids (mine and fiancee Pat's) who are in the 19- to 21-year-old age-group and can't seem to quite figure out how life works, except that when there's a major disaster, it's call Mom or Dad/Me. This usually involves cars or cops, thus $$$$. I'm no tight wad, but the money tree will inevitably run dry, eventually.Grumble grumble grumble.My "brand" of MS is somewhere between relapsing/remitting and secondary/progressive, but who knows? Just labels, as several neurologists have told me. They really don't know ow to classify precisely because of the slipperiness of the disease. I know there's a huge range of disabilities associated with MS, and so far I've been relatively lucky. Oh, I do have a tricky bladder and the occasional difficulty (impossibility) with bowel control-though constipation is a larger problem, but I generally manage. Also a chronically sore lumbar spine, which may be due to scoliosis (spinal curvature), which I was informed I had during an Army physical way back when (1983) I was still busy being a Russian linguist/radio intercept operator in then West Berlin and well before I was finally medically discharged. My first symptom was, Ta! Da!!, optic retinitis (neuritis?) of the right eye. Did a month of prednisone, two weeks on the neuro ward at since defunct Letterman Army General Hospital in San Franciso, got LPd and evoke-responsed and on and on, but could only be provisionally diagnosed with MS. Took an MRI in '86 to settle that issue. I also noticed tinnitus (ringing ears) that began concurrently with the eye problems, but the neuros all say, "Na, that hasn't a thing to do with MS." Bahh!! Who knows MS better than you or I? Of course, the ear ringing could have been a result of standing too close to cherry bombs when I was leading the life of "Beaver" in the 50s and 60s, or because of too much time spent with firearms both in the army and hunting. Or driving a combine, or tractor, or forklift. What else: Oh yeah. For the guys-any of you having trouble with the "lead in your pencils?" Pretty common in MSers with bladder involvement. I find Viagra worked great for a while, but not so consistently any longer. Good thing I'm not the fiend I once was.Any advice as to finding community services that I may not be aware of would be greatly appreciated, or new MS-related web sites. Or just chat.Oh yeah...what's the general consensus on MS-related depression issues among you folks? I know what the stats are, and I have an appointment with VA mental health on the advice of my neurologist, my primary care physician, and my Patty. How up do they expect me to be, I wonder? I've always been a "glass is half-empty" kind of guy, so I really didn't notice anything. I'm anything but suicidal. Self murder is the greatest slap in the face of God possible. If more drugs will help, I'll try something. Wellbutrin (sp?) seems like it might be useful and is generally well tolerated. Truly, I'd rather smoke the evil weed because it's natural and it works, but never mind that. Wait for the prohibition to end. I actually believe that most of my recent gloomier days have been a result of situational stressors.I know I have more to spout off about, but it's early and I want more coffee. One must have one's priorities. And a sitz-shower. And clean clothes. And lottery winnings. And stronger faith. And peace and health and happiness throughout the universe. Is that too much to ask?Snows blowing yet again. Better than the heat of summer, which kicks my rear.Luck to all, K. Nicklaysgtnick1951@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 Nice meeting you. Thank you for serving our great country. I deeply appreciate it!! that lead in the pencil problem, well there are newer meds for that now. Sex fiend or not you want to keep your lady, Patty, happy. So when were you dx'ed with MS? Avonex didn't agree with my depression level either at first. I "outgrew" the depression from that. I just have MS depression now...lol Oh, and I didn't steal your tagline. I've been using mine for a couple of weeks now...lol I just got lost in thought. It was unfamiliar territory. -- (unknown) HI folkzzz,I just joined this group (duh!) and thought I'd let you know a bit about myself. Currently, I am using a walker to get around the apartment and a wheelchair on my rare forays into the big, bad world (which used to seem so small and friendly). I'm engaged to my wonderful Patty-lady, drawing a 110% (that's right!!) disability pension courtesy of my 11+ years of dedicated and honorable service in the US Army, and going through all kinds of changes/stressors in my life thanks to kids (mine and fiancee Pat's) who are in the 19- to 21-year-old age-group and can't seem to quite figure out how life works, except that when there's a major disaster, it's call Mom or Dad/Me. This usually involves cars or cops, thus $$$$. I'm no tight wad, but the money tree will inevitably run dry, eventually.Grumble grumble grumble.My "brand" of MS is somewhere between relapsing/remitting and secondary/progressive, but who knows? Just labels, as several neurologists have told me. They really don't know ow to classify precisely because of the slipperiness of the disease. I know there's a huge range of disabilities associated with MS, and so far I've been relatively lucky. Oh, I do have a tricky bladder and the occasional difficulty (impossibility) with bowel control-though constipation is a larger problem, but I generally manage. Also a chronically sore lumbar spine, which may be due to scoliosis (spinal curvature), which I was informed I had during an Army physical way back when (1983) I was still busy being a Russian linguist/radio intercept operator in then West Berlin and well before I was finally medically discharged. My first symptom was, Ta! Da!!, optic retinitis (neuritis?) of the right eye. Did a month of prednisone, two weeks on the neuro ward at since defunct Letterman Army General Hospital in San Franciso, got LPd and evoke-responsed and on and on, but could only be provisionally diagnosed with MS. Took an MRI in '86 to settle that issue. I also noticed tinnitus (ringing ears) that began concurrently with the eye problems, but the neuros all say, "Na, that hasn't a thing to do with MS." Bahh!! Who knows MS better than you or I? Of course, the ear ringing could have been a result of standing too close to cherry bombs when I was leading the life of "Beaver" in the 50s and 60s, or because of too much time spent with firearms both in the army and hunting. Or driving a combine, or tractor, or forklift. What else: Oh yeah. For the guys-any of you having trouble with the "lead in your pencils?" Pretty common in MSers with bladder involvement. I find Viagra worked great for a while, but not so consistently any longer. Good thing I'm not the fiend I once was.Any advice as to finding community services that I may not be aware of would be greatly appreciated, or new MS-related web sites. Or just chat.Oh yeah...what's the general consensus on MS-related depression issues among you folks? I know what the stats are, and I have an appointment with VA mental health on the advice of my neurologist, my primary care physician, and my Patty. How up do they expect me to be, I wonder? I've always been a "glass is half-empty" kind of guy, so I really didn't notice anything. I'm anything but suicidal. Self murder is the greatest slap in the face of God possible. If more drugs will help, I'll try something. Wellbutrin (sp?) seems like it might be useful and is generally well tolerated. Truly, I'd rather smoke the evil weed because it's natural and it works, but never mind that. Wait for the prohibition to end. I actually believe that most of my recent gloomier days have been a result of situational stressors.I know I have more to spout off about, but it's early and I want more coffee. One must have one's priorities. And a sitz-shower. And clean clothes. And lottery winnings. And stronger faith. And peace and health and happiness throughout the universe. Is that too much to ask?Snows blowing yet again. Better than the heat of summer, which kicks my rear.Luck to all, K. Nicklaysgtnick1951@...Current meds include Zanaflex, Valium, and lots of vitamins. I did try Avonex, but it didn't agree with my emotional lability level; i.e., I was noticeably more depressed after use.I just got lost in thought. It was unfamiliar territory. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 I know exactly what you mean. I am also on Celexa and I don't know what I'd do without it. I too have missed a few days (I just forget sometimes), but when I so my husband ever so non-chalauntly(sp?) hands me my botle and tells me to take my chill-pill haha. I'm glad I have it!Lpcnc@... wrote: Welcome , You sound like a very up-beat guy. Sometimes a sense of humor is the best weapon against the MonSter. Depression is very common, though, and meds can help. I take Celexa for mine and I can tell when I've missed a couple of pills - so can my husband! Welcome again. HI folkzzz,I just joined this group (duh!) and thought I'd let you know a bit about myself. Currently, I am using a walker to get around the apartment and a wheelchair on my rare forays into the big, bad world (which used to seem so small and friendly). I'm engaged to my wonderful Patty-lady, drawing a 110% (that's right!!) disability pension courtesy of my 11+ years of dedicated and honorable service in the US Army, and going through all kinds of changes/stressors in my life thanks to kids (mine and fiancee Pat's) who are in the 19- to 21-year-old age-group and can't seem to quite figure out how life works, except that when there's a major disaster, it's call Mom or Dad/Me. This usually involves cars or cops, thus $$$$. I'm no tight wad, but the money tree will inevitably run dry, eventually.Grumble grumble grumble.My "brand" of MS is somewhere between relapsing/remitting and secondary/progressive, but who knows? Just labels, as several neurologists have told me. They really don't know ow to classify precisely because of the slipperiness of the disease. I know there's a huge range of disabilities associated with MS, and so far I've been relatively lucky. Oh, I do have a tricky bladder and the occasional difficulty (impossibility) with bowel control-though constipation is a larger problem, but I generally manage. Also a chronically sore lumbar spine, which may be due to scoliosis (spinal curvature), which I was informed I had during an Army physical way back when (1983) I was still busy being a Russian linguist/radio intercept operator in then West Berlin and well before I was finally medically discharged. My first symptom was, Ta! Da!!, optic retinitis (neuritis?) of the right eye. Did a month of prednisone, two weeks on the neuro ward at since defunct Letterman Army General Ho! spital i n San Franciso, got LPd and evoke-responsed and on and on, but could only be provisionally diagnosed with MS. Took an MRI in '86 to settle that issue. I also noticed tinnitus (ringing ears) that began concurrently with the eye problems, but the neuros all say, "Na, that hasn't a thing to do with MS." Bahh!! Who knows MS better than you or I? Of course, the ear ringing could have been a result of standing too close to cherry bombs when I was leading the life of "Beaver" in the 50s and 60s, or because of too much time spent with firearms both in the army and hunting. Or driving a combine, or tractor, or forklift. What else: Oh yeah. For the guys-any of you having trouble with the "lead in your pencils?" Pretty common in MSers with bladder involvement. I find Viagra worked great for a while, but not so consistently any longer. Good thing I'm not the fiend I once was.Any advice as to finding community services that I may not be aware of would be greatly appreciated, or new MS-related web sites. Or just chat.Oh yeah...what's the general consensus on MS-related depression issues among you folks? I know what the stats are, and I have an appointment with VA mental health on the advice of my neurologist, my primary care physician, and my Patty. How up do they expect me to be, I wonder? I've always been a "glass is half-empty" kind of guy, so I really didn't notice anything. I'm anything but suicidal. Self murder is the greatest slap in the face of God possible. If more drugs will help, I'll try something. Wellbutrin (sp?) seems like it might be useful and is generally well tolerated. Truly, I'd rather smoke the evil weed because it's natural and it works, but never mind that. Wait for the prohibition to end. I actually believe that most of my recent gloomier days have been a result of situational stressors.I know I have more to spout off about, but it's early and I want more coffee. ! One must have one's priorities. And a sitz-shower. And clean clothes. And lottery winnings. And stronger faith. And peace and health and happiness throughout the universe. Is that too much to ask?Snows blowing yet again. Better than the heat of summer, which kicks my rear.Luck to all, K. Nicklaysgtnick1951@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Hi guys, I don't forget my pills, because I have pain if I do But for others in my family, I've gotten one of those 7-day pill containers. You can always check and see if you forgot, or if you think you took it... Sam in Boston-where if you don't like the weather, just wait a few minutes, and something else will come along.. Maldonado wrote: I know exactly what you mean. I am also on Celexa and I don't know what I'd do without it. I too have missed a few days (I just forget sometimes), but when I so my husband ever so non-chalauntly(sp?) hands me my botle and tells me to take my chill-pill haha. I'm glad I have it! Lpcnc@... wrote: Welcome , You sound like a very up-beat guy. Sometimes a sense of humor is the best weapon against the MonSter. Depression is very common, though, and meds can help. I take Celexa for mine and I can tell when I've missed a couple of pills - so can my husband! Welcome again. In a message dated 3/6/2004 1:02:27 PM Eastern Standard Time, sgtnick1951@... writes: HI folkzzz, I just joined this group (duh!) and thought I'd let you know a bit about myself. Currently, I am using a walker to get around the apartment and a wheelchair on my rare forays into the big, bad world (which used to seem so small and friendly). I'm engaged to my wonderful Patty-lady, drawing a 110% (that's right!!) disability pension courtesy of my 11+ years of dedicated and honorable service in the US Army, and going through all kinds of changes/stressors in my life thanks to kids (mine and fiancee Pat's) who are in the 19- to 21-year-old age-group and can't seem to quite figure out how life works, except that when there's a major disaster, it's call Mom or Dad/Me. This usually involves cars or cops, thus $$$$. I'm no tight wad, but the money tree will inevitably run dry, eventually. Grumble grumble grumble. My "brand" of MS is somewhere between relapsing/remitting and secondary/progressive, but who knows? Just labels, as several neurologists have told me. They really don't know ow to classify precisely because of the slipperiness of the disease. I know there's a huge range of disabilities associated with MS, and so far I've been relatively lucky. Oh, I do have a tricky bladder and the occasional difficulty (impossibility) with bowel control-though constipation is a larger problem, but I generally manage. Also a chronically sore lumbar spine, which may be due to scoliosis (spinal curvature), which I was informed I had during an Army physical way back when (1983) I was still busy being a Russian linguist/radio intercept operator in then West Berlin and well before I was finally medically discharged. My first symptom was, Ta! Da!!, optic retinitis (neuritis?) of the right eye. Did a month of prednisone, two weeks on the neuro ward at since defunct Letterman Army General Ho! spital i n San Franciso, got LPd and evoke-responsed and on and on, but could only be provisionally diagnosed with MS. Took an MRI in '86 to settle that issue. I also noticed tinnitus (ringing ears) that began concurrently with the eye problems, but the neuros all say, "Na, that hasn't a thing to do with MS." Bahh!! Who knows MS better than you or I? Of course, the ear ringing could have been a result of standing too close to cherry bombs when I was leading the life of "Beaver" in the 50s and 60s, or because of too much time spent with firearms both in the army and hunting. Or driving a combine, or tractor, or forklift. What else: Oh yeah. For the guys-any of you having trouble with the "lead in your pencils?" Pretty common in MSers with bladder involvement. I find Viagra worked great for a while, but not so consistently any longer. Good thing I'm not the fiend I once was. Any advice as to finding community services that I may not be aware of would be greatly appreciated, or new MS-related web sites. Or just chat. Oh yeah...what's the general consensus on MS-related depression issues among you folks? I know what the stats are, and I have an appointment with VA mental health on the advice of my neurologist, my primary care physician, and my Patty. How up do they expect me to be, I wonder? I've always been a "glass is half-empty" kind of guy, so I really didn't notice anything. I'm anything but suicidal. Self murder is the greatest slap in the face of God possible. If more drugs will help, I'll try something. Wellbutrin (sp?) seems like it might be useful and is generally well tolerated. Truly, I'd rather smoke the evil weed because it's natural and it works, but never mind that. Wait for the prohibition to end. I actually believe that most of my recent gloomier days have been a result of situational stressors. I know I have more to spout off about, but it's early and I want more coffee. ! One must have one's priorities. And a sitz-shower. And clean clothes. And lottery winnings. And stronger faith. And peace and health and happiness throughout the universe. Is that too much to ask? Snows blowing yet again. Better than the heat of summer, which kicks my rear. Luck to all, K. Nicklay sgtnick1951@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Hi Marisol, and welcome aboard! Figuring out our symptoms is one of the difficult things of " early " days. I've found that heat, stress, any other illness (a cold, sinus infection, urinary infection) are things that increase my symptoms. Personally, I give any increase in symptoms a day or two, while I evaluate what other thing might be going on. If the symptom increase is severe, though, I'll skip that and go directly to calling the doc. It took me a while to know what should be worried about and what should not. It helps that my neurologist, when I first was diagnosed, said, " Call me, I'd much rather have you call than that you worry about what is going on. " It helped me in sorting things out at the beginning. I think that it's better to call or check out things, than to risk missing something that should be treated. Hope that helps! Sam in Boston, where we are happy that the Sox did well tonight! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Bill that is just so MEAN!!!! SO, So very Mean...Not that I am a Celtics Fan...But that was just MEAN!!! LOL Hugs,http://andcoverageforall.info Owner/Founder And Coverage For All 2 Yahoo Grouphttp://health.groups.yahoo.com/group/ACFA2/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Sam I am sending you the broom and hope the Pacers make use of it today to get the Celtics off there playoff schedule. Go Pacers . Bill Re: (unknown) Hi Marisol, and welcome aboard!Figuring out our symptoms is one of the difficult things of "early" days. I've found that heat, stress, any other illness (a cold, sinus infection, urinary infection) are things that increase my symptoms. Personally, I give any increase in symptoms a day or two, while I evaluate what other thing might be going on. If the symptom increase is severe, though, I'll skip that and go directly to calling the doc. It took me a while to know what should be worried about and what should not. It helps that my neurologist, when I first was diagnosed, said, "Call me, I'd much rather have you call than that you worry about what is going on." It helped me in sorting things out at the beginning.I think that it's better to call or check out things, than to risk missing something that should be treated.Hope that helps!Samin Boston, where we are happy that the Sox did well tonight! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Got to lighten up it was just friendly teasing, Boston clobbered the Pacers in last years playoff. Bill Re: (unknown) Bill that is just so MEAN!!!! SO, So very Mean...Not that I am a Celtics Fan...But that was just MEAN!!! LOL Hugs,http://andcoverageforall.info Owner/Founder And Coverage For All 2 Yahoo Grouphttp://health.groups.yahoo.com/group/ACFA2/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Well, the Sox DID sweep the Yankees..don't think The Boss was too happy... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Well, you gotta know I really don't follow the Celtics very much...it's really the Sox I route for..and they used that broom on the Yankees! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Sam, I hope you get to feeling better..I think its cool that you can still be on the net, while in a hopital bed..You must have one of those Wireles/connect to the net type laptops.. I have been wanting one for so long.. Hugs,Psalm 22:1-6http://andcoverageforall.info http://andcoverageforall.bravehost.com/ Both links above take you the same place!!!Owner/Founder And Coverage For All 2 Yahoo Grouphttp://health.groups.yahoo.com/group/ACFA2/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Hi I do have a laptop, but it's wireless only at home. Here, I have to plug in and dial up..and boy, do I miss the speed of cable! I've wanted this for a long time too; my computer guru found it for me, and it makes it easy for me to keep together with my online family as well! Be well! Sam Sam, I hope you get to feeling better..I think its cool that you can still be on the net, while in a hopital bed..You must have one of those Wireles/connect to the net type laptops.. I have been wanting one for so long.. Hugs,Psalm 22:1-6http://andcoverageforall.info http://andcoverageforall.bravehost.com/ Both links above take you the same place!!!Owner/Founder And Coverage For All 2 Yahoo Grouphttp://health.groups.yahoo.com/group/ACFA2/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 SAM, MAY GOD BLESS IT IS SO GOOD THEY FOUND WHAT IS WRONG GET WELL SOON LOVE AND HAPPINESS; FLOWERS AND BUTTERFLIESLYNN Re: (unknown) Hi I do have a laptop, but it's wireless only at home. Here, I have to plug in and dial up..and boy, do I miss the speed of cable!I've wanted this for a long time too; my computer guru found it for me, and it makes it easy for me to keep together with my online family as well!Be well!Sam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 u be well, too, Sam! and faster! hugs, LOVE, Andreia http://msmemoriesandthoughts.bravehost.com http://health.groups.yahoo.com/group/MSOBs/ - 2nd owner Re: (unknown) > Hi > > I do have a laptop, but it's wireless only at home. Here, I have to plug in and dial up..and boy, do I miss the speed of cable! > > I've wanted this for a long time too; my computer guru found it for me, and it makes it easy for me to keep together with my online family as well! > > Be well! > > Sam > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 I feel your pain...I live next door to my nada. She has always talked extremely loud...and she blathers on and on and on....i can hear he shriek my name in my sleep. I've always noticed that my nada's " pitch " is an entire octave higher in front of other people than it is at home. It's not trivial...it's like being pecked to death by a duck...or beaten to death with a pillow. I don't know how anybody can have a conversation with her...she will manipulate me to drop what i am doing to rush to her house just to ask me my opinion about something stupid...in mid sentence she will literally turn her back to me and start making this irritating squeal " WIIIIIII-gle, wiggle, wiggle " ...it's like she is a pig caller...she starts shrieking this and then loudly points out that her cat is walking with this wiggle so we both need to walk with her to the litter box. " look at her...LOOK AT HER !! She wiggles...she doesn't walk..she wiggles...look...LOOK!! Isn't that adorable?? HAHAHAHAHAHAHAHA!!!!! " I just want to smack the crap out of her sometimes. Yes...I am actually paying a mortgage for the house next door!! I moved 30 minutes away from here just to put myself in debt to pay for the house NEXT DOOR! Somebody should have smacked some sense into ME 12 years ago. You will find a way to cope...you will find peace...it CAN be done. aaronl1983 wrote: Even right now, I have to hear my mom's extremely loud voice. For some reason she can't seem to speak at a normal pitch. This might seem trivial, but I've been hearing this for so many years (I'm 24). It is emotionally exhausting. Kisses and Nibbles, Bunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 I feel your pain...I live next door to my nada. She has always talked extremely loud...and she blathers on and on and on....i can hear he shriek my name in my sleep. I've always noticed that my nada's " pitch " is an entire octave higher in front of other people than it is at home. It's not trivial...it's like being pecked to death by a duck...or beaten to death with a pillow. I don't know how anybody can have a conversation with her...she will manipulate me to drop what i am doing to rush to her house just to ask me my opinion about something stupid...in mid sentence she will literally turn her back to me and start making this irritating squeal " WIIIIIII-gle, wiggle, wiggle " ...it's like she is a pig caller...she starts shrieking this and then loudly points out that her cat is walking with this wiggle so we both need to walk with her to the litter box. " look at her...LOOK AT HER !! She wiggles...she doesn't walk..she wiggles...look...LOOK!! Isn't that adorable?? HAHAHAHAHAHAHAHA!!!!! " I just want to smack the crap out of her sometimes. Yes...I am actually paying a mortgage for the house next door!! I moved 30 minutes away from here just to put myself in debt to pay for the house NEXT DOOR! Somebody should have smacked some sense into ME 12 years ago. You will find a way to cope...you will find peace...it CAN be done. aaronl1983 wrote: Even right now, I have to hear my mom's extremely loud voice. For some reason she can't seem to speak at a normal pitch. This might seem trivial, but I've been hearing this for so many years (I'm 24). It is emotionally exhausting. Kisses and Nibbles, Bunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 I feel your pain...I live next door to my nada. She has always talked extremely loud...and she blathers on and on and on....i can hear he shriek my name in my sleep. I've always noticed that my nada's " pitch " is an entire octave higher in front of other people than it is at home. It's not trivial...it's like being pecked to death by a duck...or beaten to death with a pillow. I don't know how anybody can have a conversation with her...she will manipulate me to drop what i am doing to rush to her house just to ask me my opinion about something stupid...in mid sentence she will literally turn her back to me and start making this irritating squeal " WIIIIIII-gle, wiggle, wiggle " ...it's like she is a pig caller...she starts shrieking this and then loudly points out that her cat is walking with this wiggle so we both need to walk with her to the litter box. " look at her...LOOK AT HER !! She wiggles...she doesn't walk..she wiggles...look...LOOK!! Isn't that adorable?? HAHAHAHAHAHAHAHA!!!!! " I just want to smack the crap out of her sometimes. Yes...I am actually paying a mortgage for the house next door!! I moved 30 minutes away from here just to put myself in debt to pay for the house NEXT DOOR! Somebody should have smacked some sense into ME 12 years ago. You will find a way to cope...you will find peace...it CAN be done. aaronl1983 wrote: Even right now, I have to hear my mom's extremely loud voice. For some reason she can't seem to speak at a normal pitch. This might seem trivial, but I've been hearing this for so many years (I'm 24). It is emotionally exhausting. Kisses and Nibbles, Bunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 welcome !! I really doubt the language will be a problem, your english is excellent !! Jackie Hello everyone, I'm Marieke. I'm from Europe, Netherlands, and I have joined today. I'm surprised to read so many stories, which sound like mine. I'm still in Therapy, but now I read Randy Kreger and Mason about BPD it all gets clearer to me. I hope this group will help me feel better, and maybe I can be supporting to others too. If the language barrier will not make it to difficult, I already found out that cultural barriers are small in this disorder. marieke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 welcome !! I really doubt the language will be a problem, your english is excellent !! Jackie Hello everyone, I'm Marieke. I'm from Europe, Netherlands, and I have joined today. I'm surprised to read so many stories, which sound like mine. I'm still in Therapy, but now I read Randy Kreger and Mason about BPD it all gets clearer to me. I hope this group will help me feel better, and maybe I can be supporting to others too. If the language barrier will not make it to difficult, I already found out that cultural barriers are small in this disorder. marieke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 welcome !! I really doubt the language will be a problem, your english is excellent !! Jackie Hello everyone, I'm Marieke. I'm from Europe, Netherlands, and I have joined today. I'm surprised to read so many stories, which sound like mine. I'm still in Therapy, but now I read Randy Kreger and Mason about BPD it all gets clearer to me. I hope this group will help me feel better, and maybe I can be supporting to others too. If the language barrier will not make it to difficult, I already found out that cultural barriers are small in this disorder. marieke Quote Link to comment Share on other sites More sharing options...
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