need help

February 20, 1999

How about Tuberculosis,or some other mycoplasmal disease? It can show the same

signs of disease as RA. You could have a skin test but the results may not be

valid if you are on the methotrexate. I know they would not show up if you are

on corticosteroids, [prednisone]

Sincerely

rheumatic need help

Hello to everyone.

I have a problem that I need advice on I know a lot of you are familiar with

what happened to me in Dec.and some of you might not be .

I have had RA for about 10 years my sister has had it for about 12 years we

were both on methotrexate for about 8 years in Dec I was in a wreck and the

steering wheel hit me in the chest I went ot the hospital and they said my ribs

were bruised about 5 days later I went back to the hospital because I was

getting to where I couldn't breathe they said I had the worst case of pneumonia

they had ever seen that night I had resp failure and was put on life support

they told my family I wouldn't make it thru the night while I was in there they

run a tube into my broncioles the dr told my sister that he found something he

had never seen before after about 2 days he decided that it was cancer he told

her it was a rare type (Squmious Cell Carcinoma ) but that is the most common

type .He was my mothers Dr just before she died and he swore that she had cancer

but he couldn't find it so on her death certificate he put heart failure. they

gave me fourteen treaments of radiation Which normal amount is 6 weeks everyday

on the last exrays there was a spot on my lungs that wasn't there when I went

into the hospital , so they wanted to give me chemo too ( this was a pulmunary

Dr) in the meantime I wanted a second opionion so I went to an oncoligist . he

looked at my exrays and told me he didn't see anything that looked malignant so

he done a ct scan and called the other Dr.and then he decided I needed chemo for

that spot and he told me my broncioles were clean as a whistle that my lungs

looked beautiful except for that spot. which he couldn't be 100% sure it was

cancer now the strange thing is my sister is getting the same thing she has been

sick for about a year like I was and they kept saying sinus infection she has a

spot on her lung now too and is really sick with vomiting diarrea, and can't

hardly breathe and coughing.her Dr,says she has a rheumatoid lung desease they

are coming up with 2 different things when we have the same symptoms.I have

searched the internet and I found a site on rheumatoid lung deseases but

everytime I ask the dr if that could be it they say no they say it's not caused

from metho. to make a long story shor they don't know either .so I really don't

know what to do about the chemo I have been seeing an herbilist and I feel

better now then I have in a year . can anyone tell me what desease associated

with arthritis or anything else could have caused the spot or any suggestions

where I might look or any suggestions about the chemo,

any help would be appreciated Burlyne

April 27, 2001

Nina,

Be sure to look at the counting rules for DDI hair analysis rather than actual

mercury level reading. Blood and urine levels don't tell you what you need to

know either.

S

On Tue, 24 April 2001, nina@... wrote:

>

> <html><body>

> <tt>

> How dangerous is mercury detox treatment & nbsp; for a 2 1/2 year old? does

anybody have personal experience good or bad?

> My son had six vaccines in one setting and now is mildly autistic, though he

is starting to become related, should i still do the treatment. his mercury

levels are only slightly elevated (on a scale 1-3, he is 41/2).

> thanks

> nina

>

>

April 27, 2001

Dear ,

Thank you for your reply. I do not know what DDI is and where can I get this

information. Have you done mercury detox? if so, could you share your

experience with me please. thanks again.

All the best

Nina

Re: [ ] need help

> Nina,

> Be sure to look at the counting rules for DDI hair analysis rather than

actual mercury level reading. Blood and urine levels don't tell you what

you need to know either.

> S

>

> On Tue, 24 April 2001, nina@... wrote:

>

> >

> > <html><body>

> > <tt>

> > How dangerous is mercury detox treatment & nbsp; for a 2 1/2 year old?

does anybody have personal experience good or bad?

> > My son had six vaccines in one setting and now is mildly autistic,

though he is starting to become related, should i still do the treatment.

his mercury levels are only slightly elevated (on a scale 1-3, he is

41/2).

> > thanks

> > nina

> >

> >

April 28, 2001

Nina,

DDI is Doctor's Data. I have their #, etc. at home so will e-mail again later.

If you call their 800# they will send you a list of doctor's in your area who

use their services and can request the kit.

I had a hair analysis done by another company quite a few years after having had

my fillings replaced. (Ten years ago I had lost my ability to spell, had chronic

fatigue (undiagnosed), weighed only 82 lbs down from a natural wt. of 110+ at

5'6 " and eating appropriate or extra large portions of healthy food.)

I did not know about the counting rules at the time and haven't found back the

results to look at them now that I know the counting rules. My hair analysis

did reveal other high metals. I've addressed them but haven't retested. I knew

about DMSA, but didn't understand the appropriate dosing schedule so luckily I

chose not to try it. I went with gut instinct on that and on the fact that as a

vegan I didn't want to hassle with switching it all to vegicaps!) I have done

numerous other alternative therapies and supplements in addition to a

gluten-free, casein-free, vegan diet. I can list the various appproaches I've

used in another post if you want to know more.

S

On Fri, 27 April 2001, nina@... wrote:

>

> <html><body>

> <tt>

> Dear ,

> Thank you for your reply. I do not know what DDI is and where can I get

this

> information. Have you done mercury detox? if so, could you share your

> experience with me please. & nbsp; thanks again.

> All the best

> Nina

> Re: [ ] need help

>

> & gt; Nina,

> & gt; Be sure to look at the counting rules for DDI hair analysis rather

than

> actual mercury level reading. & nbsp; Blood and urine levels don't tell you

what

> you need to know either.

> & gt; S

> & gt;

> & gt; On Tue, 24 April 2001, nina@... wrote:

> & gt;

> & gt; & gt;

> & gt; & gt; & lt;html & gt; & lt;body & gt;

> & gt; & gt; & lt;tt & gt;

> & gt; & gt; How dangerous is mercury detox treatment & amp;nbsp; for a 2 1/2 year

old?

> does anybody have personal experience good or bad? & lt;BR & gt;

> & gt; & gt; My son had six vaccines in one setting and now is mildly

autistic,

> though he is starting to become related, should i still do the treatment.

> his mercury levels are only slightly elevated (on a scale 1-3, he is

> 41/2). & lt;BR & gt;

> & gt; & gt; thanks & lt;BR & gt;

> & gt; & gt; nina & lt;BR & gt;

> & gt; & gt; & lt;BR & gt;

> & gt; & gt;

April 28, 2001

Hi ,

Thanks for that useful information, I am sure it will help. can you tell me

if you are familiar with cilantro AS AN ALTERNATIVE TREATMENT. Are you

better now, or are you still feeling the effects of metal toxicity.

All the best,

NINA

Re: [ ] need help

> >

> > & gt; Nina,

> > & gt; Be sure to look at the counting rules for DDI hair analysis rather

than

> > actual mercury level reading. & nbsp; Blood and urine levels don't tell

you what

> > you need to know either.

> > & gt; S

> > & gt;

> > & gt; On Tue, 24 April 2001, nina@... wrote:

> > & gt;

> > & gt; & gt;

> > & gt; & gt; & lt;html & gt; & lt;body & gt;

> > & gt; & gt; & lt;tt & gt;

> > & gt; & gt; How dangerous is mercury detox treatment & amp;nbsp; for a 2 1/2

year old?

> > does anybody have personal experience good or bad? & lt;BR & gt;

> > & gt; & gt; My son had six vaccines in one setting and now is mildly

autistic,

> > though he is starting to become related, should i still do the

treatment.

> > his mercury levels are only slightly elevated (on a scale 1-3, he is

> > 41/2). & lt;BR & gt;

> > & gt; & gt; thanks & lt;BR & gt;

> > & gt; & gt; nina & lt;BR & gt;

> > & gt; & gt; & lt;BR & gt;

> > & gt; & gt; [Non-text portions of this message have been

removed] & lt;BR & gt;

> > & gt; & gt; & lt;BR & gt;

> > & gt; & gt; & lt;/tt & gt;

> > & gt; & gt;

> > & gt; & gt; & lt;br & gt;

> > & gt; & gt;

> > & gt; & gt; & lt;!-- |**|begin egp html banner|**| -- & gt;

> > & gt; & gt;

> > & gt; & gt; & lt;table border=0 cellspacing=0 cellpadding=2 & gt;

> > & gt; & gt; & lt;tr bgcolor=#FFFFCC & gt;

> > & gt; & gt; & lt;td align=center & gt; & lt;font size= & quot;-1 & quot;

color=#003399 & gt; & lt;b & gt;

> > Sponsor & lt;/b & gt; & lt;/font & gt; & lt;/td & gt;

> > & gt; & gt; & lt;/tr & gt;

> > & gt; & gt; & lt;tr bgcolor=#FFFFFF & gt;

> > & gt; & gt; & lt;td width=470 & gt; & lt;a

> > href= & quot;<a

href= " http://rd./M=190462.1393721.2979173.2/D=egroupmail/S=17000616

" >http://rd./M=190462.1393721.2979173.2/D=egroupmail/S=17000616</a>

> > 16:N/A=551015/?<a

href= " http://www.debticated.com " >http://www.debticated.com</a> & quot;

target= & quot;_top & quot; & gt; & lt;img width=468

> > height=60

> > src= & quot;<a

href= " http://us.a1.yimg.com/us.yimg.com/a/am/ameridebtt/debicatedbanner2.gif

" >http://us.a1.yimg.com/us.yimg.com/a/am/ameridebtt/debicatedbanner2.gif</a>

& quot;

> > alt= & quot;www.debticated.com & quot; border=0 & gt; & lt;/a & gt; & lt;/td & gt;

> > & gt; & gt; & lt;/tr & gt;

> > & gt; & gt; & lt;tr & gt; & lt;td & gt; & lt;img alt= & quot; & quot; width=1

height=1

> > src= & quot;<a

href= " http://us.adserver./l?M=190462.1393721.2979173.2/D=egroupmail

/ " >http://us.adserver./l?M=190462.1393721.2979173.2/D=egroupmail/</

a>

> >

S=1700061616:N/A=551015/rand=864355280 & quot; & gt; & lt;/td & gt; & lt;/tr & gt;

> > & gt; & gt; & lt;/table & gt;

> > & gt; & gt;

> > & gt; & gt; & lt;!-- |**|end egp html banner|**| -- & gt;

> > & gt; & gt;

> > & gt; & gt; & lt;br & gt;

> > & gt; & gt; & lt;tt & gt;

> > & gt; & gt;

======================================================= & lt;BR & gt;

> > & gt; & gt;

April 29, 2001

Dear Nina,

Yes, lots of people on this list have personal experience with doing

mercury detox with kids. Yes, lots of people on this list have had

(and are having) positive results.

Both of your questions seem unlikely to get a lot of responses.

This list deals in many details of risk/safety of treatment, in

minute little bits. " Does anyone have any experience with... " --

well, what would someone say to that? Beyond " yes " one could

write a sentence or a volume.

I don't mean to discourage you--- another way to say it is

" yes, you have reached the right place. " So, go ahead now and

ask more detailed questions, or just read for a while.

If you look in the FILES section you can find a log of 's posts

about chelation progress with Kenny (her son). It covers 6 months

and might give you some insights into both risks and potential of

this treatment.

Also in FILES is a report on the results of a survey of the list

regarding progress and results of chelation.

I will briefly list the risks of chelation that I'm aware of. I am NOT

trying to include every risk that could ever exist, just those that

come to my mind at the moment:

1. it may be a waste of time and money if your kid is not mercury toxic.

2. both DMSA and ALA can decrease immune function in some people.

3. if you use the wrong protocol and your kid is merc toxic, you can

have " redistribution " of the mercury to other (worse) places (e.g. from

body to brain).

4. if you use a " good " protocol and your kid is merc toxic, you can

have a lot of mercury toxic symptoms during the time period when you

are doing chelation. (Even if you do it perfectly, the mercury has

to get out of the body which involves going through the bloodsystem,

liver, colon, kidneys, etc)

5. chelation is stressful on the kidneys and liver and no doubt all kinds

of detox systems (lymph, etc). Poisons are generally stressful to

get rid of. (beats the heck out of keeping the poison in your body tho!)

6. it is a pain to get up in the middle of the night. There is a serious

risk that you will be sleep deprived!

I hope this is of some assistance.

best,

Moria

p.s. If your child is mercury toxic, he will benefit a great deal from the

treatment, regardless of the progress he is already making-- so, yes, if

he is toxic, you would still want to treat.

Also, I think someone else already responded to your statement about the

mercury " numbers " you quote. Don't go by mercury numbers. They don't mean

anything.

RESPONDING TO:

From: nina@...

Mailing-List: list ; contact

-owner

Delivered-mailing list

List-Unsubscribe: <mailto: -unsubscribe >

Date: Wed, 25 Apr 2001 01:23:10 +0100

Reply-

Subject: [ ] need help

How dangerous is mercury detox treatment for a 2 1/2 year old? does

anybody have personal experience good or bad?

My son had six vaccines in one setting and now is mildly autistic, though

he is starting to become related, should i still do the treatment. his

mercury levels are only slightly elevated (on a scale 1-3, he is 41/2).

thanks

nina

May 14, 2002

>I have to decide whether to chelate my son, adn I want to know what the

>dangers are of chelation. His psychiatrist wants to use DMSA 3 days on

>and 11 off. He's only three yrs old, and is currently on clonodine due

>to hyper and aggressive behavior. The psych said she would not expect a

> " huge " improvement in his PDD behaviors b/c he is very low on the scale,

>not even full blown autism. What are the dangers of this type of

>chelation? and is it worth the risk?

I'm too tired to ramble about the dangers right now--- oh, and

I think Andy answered that part?

As for the potential gains, I shall refer you to here:

/files/LOVE_LETTERS

Please note that there is a LOT of content here, and it is not all

reduced down to short items. PLEASE READ IT ALL. Take your time

-- take 2 or 3 weeks if you want, but PLEASE try to read it all.

It took many months for me to start to REALLY CATCH ON that this

" chelation thing " really helps many kids significantly. People

post wonderful stuff, but not all that often--- needle in a

haystack. Anyway, we've collected many of the needles for you.

This will save you having to read about 70 posts a day (on this

list) to get....... In other words, it is a lot of content, but

not compared to the avalanche of content that flies by here......

Do find out what you are getting into with chelation. The more

you learn the more you can evaluate the dangers of chelating

AND THE DANGERS OF NOT CHELATING.

best wishes,

Moria

December 7, 2002

I only received one response to a request to fill out a survey for my thesis in

Communications Disorder.

I am a parent of a child with autism and my survey involves parental

observations of children after immunizations.

Please e-mail me and I will e-mail it back to you. I tried doing an attachment,

but learned you can't. And I tried copying it to this letter but I can't do it

when it is protected, then it gets out of alignment. So, if you can e-mail me

at cbostx@... I would appreciate it. It only takes 5 minutes. Thanks!

[ ] Editorial in Wall Street Journal

=======================================================

July 2, 2004

Hello, welcome!

I am not from Miss., but click DATABASE (at left) and then click the

Dr.'s/Referring physicians choice. There is also a Band/Helmets

choice that you can look in. Otherwise, I believe that you should

ask your primary ped for the name of a pediatric neurosurgeon or....

you will get more advice shortly! (I'm fairly new)

Sue

Colin F. 9 mos. brachy, rt plag STARband 6/29/04

Buffalo, NY

> are there any people from mississippi out there. I am looking for

> doctors or specialists in my area for plag and tort.? Thank for all

> of your coments..

July 2, 2004

Hi,

Welcome the group!

How old is your baby? Has your pediatrician already diagnosed the

plagio and tort? Are you interested in finding out about

helmeting/banding options in your area? We have a ton of

information here at the site, including some severity assessment

forms in the links/severity assessment of plagio, and b & a phtotos

in the photos/before and after folder. Maybe you could take a look

around the site when you have time and let us know if you have any

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