Re: can someone please help me!!!

[Guest guest]

Jill, please go to _www.biotoxin.info_ (http://www.biotoxin.info) for

information that may helpful. From what you have said it sounds like you could

have been exposed to some form of toxin. Depending on where you live in PA

there is an excellent Dr. in land just below Salisbury. Dr. Shoemaker

has been treating me for 5 yrs. after an exposure to mold in my school made

me VERY sick. Take the VCS test on his website. It is inexpensive, 98%

accurate and you get your results the moment you finish. You can read all about

how the test works then just follow the directions carefully to take the

test. If you are toxic it shows up in the optic nerve of the eye that's why

this vision screening works. Understand that it is only an initial

screening. Just the first part of the puzzle.

If you have any other questions just send me a message. I'll also be happy

to talk to you on the phone,

Sue

>>>

Hi everyone! My name is Jill and I live in pennsylvania. I was told to join

your group in hopes of getting some help on getting better.I just need to

know what doctor to go to, even if I have to travel across the country, if

he can help me, nowhere is too far!!!

[Guest guest]

Jill,

So sorry to hear what you are dealing with. Have you ever tried Nizoral

anti-fungal nasal spray? It sometimes helps with the headaches and vision

problems.

Sharon

In a message dated 4/17/2009 12:46:30 P.M. Pacific Daylight Time,

greenwatergrl@... writes:

Hi everyone! My name is Jill and I live in pennsylvania. I was told to

join your group in hopes of getting some help on getting better.I just need to

know what doctor to go to, even if I have to travel across the country, if

he can help me, nowhere is too far!!! It all started 8 years ago in

orlando florida. I lived in a condo and it got flooded. It was so bad that the

second floor came in to our ceiling!! It was all due to the upstairs neighbor

leaving his sneakers in his dryer, which overheated and caused a fire

which burst the waterheater. They said it was safe to move back into the unit

after about a month of them( so called cleaning it up), so i moved back

in.After 2 years of living there I kept getting headaches all the time. I

called the health department and they came out to the condo, they hooked

devices

up to the the walls and in their words said " get the hell out of here " !!!!

I did, but unfortunatly it wasnt soon enough:( I have had headaches for 8

years straight. I have eye pain just from reading one page in a book. I have

eye pain from going on the computer for one second. I cant drive at night

because the lights kill my eyes. I cant go into a mall because the

overwhelming smells make my head hurt so bad. Candles, perfumes, FORGET ABOUT

IT!!!! I feel handicapped and I desperatly need the right doctor to diagnose

me!!I have seen neurologists, and I got lasik surgery done, I got my wisdom

teeth pulled ,all at the cost of my own pockets, hoping it would cure my

pain:( I have got m r i and catscans. No medicine helps.The only thing that

gave me relief from my headaches and eye pain was when I went to get my eyes

checked and they put those numb drops in them!!That whole day I felt totally

fine!!!!I am not even able to write you this post, luckily enough for me,

im blessed with a twin sister who is typing this right now.The doctors I

have seen said everything from neuralgia( even though my pain is on both

sides of my face), peripheral neuritis, to A typical facial pain which means

there is no cause or cure. None of my doctors connected my symptoms to living

in a toxic enviroment for years.After all, the health department told me

those walls were filled with water 2 years later and to get out!!!. Lastly,

it seems like all my senses are working on overdrive. My eyes hurt to do

anything. my sense of smell is so strong i cant go anywhere. my sense of

feeling on my skin is super sensitive too. Just touching my finger to my nose,

it feels like touching raw nerves!! I have a feeling all of this stems from

my mold exposure!! Does anyone know of the right doctor for me to go to to

get the RIGHT DIAGNOSIS, TREATMENT!!! jill

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[Guest guest]

Hi Jill,

Oh my you have been and are going through an ordeal! -I am so very sorry

that this has happened to you,there are wonderful people on this forum,you

have come to the right place. I too became very ill from mold and I had

horrendous headaches that kept me in bed in the dark for 95% of the time. I

was also hypersensitive to light and so they diagnosed me with

Migraines-they were actually classic mold headaches-I didn't know that then.

I also developed severe chemical sensitivity-candles,perfume,soaps pretty

much anything until I ended up housebound for 6 mths so I can understand and

emphatize with what you are going through,believe me.I still have a hard

time with grocery stores,perfume any household cleaners.

The first question would be ,have you gotten rid of everything you had in

your moldy condo? Unfortunately in order to start the process of getting

well you have to-it sounds drastic, but every day you are around those

contaminated items-you are re-exposing yourself and getting sicker. There

are various trains of thought on keeping wood items, but honestly as hard as

it is we got rid of everything. I saw numerous doctors, even mold

doctors,the best place I found was Dr Lieberman in SC, he basically

" detoxed " my whole family.There are other physicians too in MD and TX and

other places around the country who know about Mold Illness and how severely

ill you can be from the mycotoxins which are the toxins producaed by the

mold. You have to find the right doctor for you.

As I said there are wonderful people on this forum with way more knowledge

than I, I can only tell you my story and experience.

Take care,

On Fri, Apr 17, 2009 at 12:59 PM, greenwatergrl <greenwatergrl@...>wrote:

>

>

> Hi everyone! My name is Jill and I live in pennsylvania. I was told to join

> your group in hopes of getting some help on getting better.I just need to

> know what doctor to go to, even if I have to travel across the country, if

> he can help me, nowhere is too far!!! It all started 8 years ago in orlando

> florida. I lived in a condo and it got flooded. It was so bad that the

> second floor came in to our ceiling!! It was all due to the upstairs

> neighbor leaving his sneakers in his dryer, which overheated and caused a

> fire which burst the waterheater. They said it was safe to move back into

> the unit after about a month of them( so called cleaning it up), so i moved

> back in.After 2 years of living there I kept getting headaches all the time.

> I called the health department and they came out to the condo, they hooked

> devices up to the the walls and in their words said " get the hell out of

> here " !!!! I did, but unfortunatly it wasnt soon enough:( I have had

> headaches for 8 years straight. I have eye pain just from reading one page

> in a book. I have eye pain from going on the computer for one second. I cant

> drive at night because the lights kill my eyes. I cant go into a mall

> because the overwhelming smells make my head hurt so bad. Candles, perfumes,

> FORGET ABOUT IT!!!! I feel handicapped and I desperatly need the right

> doctor to diagnose me!!I have seen neurologists, and I got lasik surgery

> done, I got my wisdom teeth pulled ,all at the cost of my own pockets,

> hoping it would cure my pain:( I have got m r i and catscans. No medicine

> helps.The only thing that gave me relief from my headaches and eye pain was

> when I went to get my eyes checked and they put those numb drops in

> them!!That whole day I felt totally fine!!!!I am not even able to write you

> this post, luckily enough for me, im blessed with a twin sister who is

> typing this right now.The doctors I have seen said everything from

> neuralgia( even though my pain is on both sides of my face), peripheral

> neuritis, to A typical facial pain which means there is no cause or cure.

> None of my doctors connected my symptoms to living in a toxic enviroment for

> years.After all, the health department told me those walls were filled with

> water 2 years later and to get out!!!. Lastly, it seems like all my senses

> are working on overdrive. My eyes hurt to do anything. my sense of smell is

> so strong i cant go anywhere. my sense of feeling on my skin is super

> sensitive too. Just touching my finger to my nose, it feels like touching

> raw nerves!! I have a feeling all of this stems from my mold exposure!! Does

> anyone know of the right doctor for me to go to to get the RIGHT DIAGNOSIS,

> TREATMENT!!! jill

>

>

>

[Guest guest]

Do a search on ocular sarcoidosis. Sarcoidosis is a systemic granulomatous

disease of unknown etiology, though mold exposure has been suspected as one

cause. Most patients also have other problems, particularly respiratory, but not

all. I had a friend several years ago whose thirteen year old son was otherwise

healthy, but slowly going blind. The fifth doctor they visited suggested this

possibility, and suggested a steroid injection directly into the eye. It brought

almost immediate improvement, and most importantly led to a course of treatment

and eventual resolution of the problem.

Short term oral prednisone might be of help if you can get a doctor to

prescribe it.

can someone please help me!!!

Posted by: " greenwatergrl " greenwatergrl@... greenwatergrl

Date: Fri Apr 17, 2009 12:46 pm ((PDT))

Hi everyone! My name is Jill and I live in pennsylvania. I was told to join your

group in hopes of getting some help on getting better.I just need to know what

doctor to go to, even if I have to travel across the country, if he can help me,

nowhere is too far!!! It all started 8 years ago in orlando florida. I lived in

a condo and it got flooded. It was so bad that the second floor came in to our

ceiling!! It was all due to the upstairs neighbor leaving his sneakers in his

dryer, which overheated and caused a fire which burst the waterheater. They said

it was safe to move back into the unit after about a month of them( so called

cleaning it up), so i moved back in.After 2 years of living there I kept getting

headaches all the time. I called the health department and they came out to the

condo, they hooked devices up to the the walls and in their words said " get the

hell out of here " !!!! I did, but unfortunatly it wasnt soon enough:( I have had

headaches for 8 years straight. I have eye pain just from reading one page in a

book. I have eye pain from going on the computer for one second. I cant drive at

night because the lights kill my eyes. I cant go into a mall because the

overwhelming smells make my head hurt so bad. Candles, perfumes, FORGET ABOUT

IT!!!! I feel handicapped and I desperatly need the right doctor to diagnose

me!!I have seen neurologists, and I got lasik surgery done, I got my wisdom

teeth pulled ,all at the cost of my own pockets, hoping it would cure my pain:(

I have got m r i and catscans. No medicine helps.The only thing that gave me

relief from my headaches and eye pain was when I went to get my eyes checked and

they put those numb drops in them!!That whole day I felt totally fine!!!!I am

not even able to write you this post, luckily enough for me, im blessed with a

twin sister who is typing this right now.The doctors I have seen said everything

from neuralgia( even though my pain is on both sides of my face), peripheral

neuritis, to A typical facial pain which means there is no cause or cure. None

of my doctors connected my symptoms to living in a toxic enviroment for

years.After all, the health department told me those walls were filled with

water 2 years later and to get out!!!. Lastly, it seems like all my senses are

working on overdrive. My eyes hurt to do anything. my sense of smell is so

strong i cant go anywhere. my sense of feeling on my skin is super sensitive

too. Just touching my finger to my nose, it feels like touching raw nerves!! I

have a feeling all of this stems from my mold exposure!! Does anyone know of the

right doctor for me to go to to get the RIGHT DIAGNOSIS, TREATMENT!!! jill

_________________________________________________________________

Windows Live™: Life without walls.

http://windowslive.com/explore?ocid=TXT_TAGLM_WL_allup_1b_explore_042009

[Guest guest]

Research Dr. in Texas. He greatly helped someone I know. Just

Google his name and all the info will come up. Good luck. Sherry

-- [] RE: can someone please help me!!!

Do a search on ocular sarcoidosis. Sarcoidosis is a systemic granulomatous

disease of unknown etiology, though mold exposure has been suspected as one

cause. Most patients also have other problems, particularly respiratory, but

not all. I had a friend several years ago whose thirteen year old son was

otherwise healthy, but slowly going blind. The fifth doctor they visited

suggested this possibility, and suggested a steroid injection directly into

the eye. It brought almost immediate improvement, and most importantly led

to a course of treatment and eventual resolution of the problem.

Short term oral prednisone might be of help if you can get a doctor to

prescribe it.

can someone please help me!!!

Posted by: " greenwatergrl " greenwatergrl@... greenwatergrl

Date: Fri Apr 17, 2009 12:46 pm ((PDT))

Hi everyone! My name is Jill and I live in pennsylvania. I was told to join

your group in hopes of getting some help on getting better.I just need to

know what doctor to go to, even if I have to travel across the country, if

he can help me, nowhere is too far!!! It all started 8 years ago in orlando

florida. I lived in a condo and it got flooded. It was so bad that the

second floor came in to our ceiling!! It was all due to the upstairs

neighbor leaving his sneakers in his dryer, which overheated and caused a

fire which burst the waterheater. They said it was safe to move back into

the unit after about a month of them( so called cleaning it up), so i moved

back in.After 2 years of living there I kept getting headaches all the time.

I called the health department and they came out to the condo, they hooked

devices up to the the walls and in their words said " get the hell out of here

!!!! I did, but unfortunatly it wasnt soon enough:( I have had headaches for

8 years straight. I have eye pain just from reading one page in a book. I

have eye pain from going on the computer for one second. I cant drive at

night because the lights kill my eyes. I cant go into a mall because the

overwhelming smells make my head hurt so bad. Candles, perfumes, FORGET

ABOUT IT!!!! I feel handicapped and I desperatly need the right doctor to

diagnose me!!I have seen neurologists, and I got lasik surgery done, I got

my wisdom teeth pulled ,all at the cost of my own pockets, hoping it would

cure my pain:( I have got m r i and catscans. No medicine helps.The only

thing that gave me relief from my headaches and eye pain was when I went to

get my eyes checked and they put those numb drops in them!!That whole day I

felt totally fine!!!!I am not even able to write you this post, luckily

enough for me, im blessed with a twin sister who is typing this right now

The doctors I have seen said everything from neuralgia( even though my pain

is on both sides of my face), peripheral neuritis, to A typical facial pain

which means there is no cause or cure. None of my doctors connected my

symptoms to living in a toxic enviroment for years.After all, the health

department told me those walls were filled with water 2 years later and to

get out!!!. Lastly, it seems like all my senses are working on overdrive. My

eyes hurt to do anything. my sense of smell is so strong i cant go anywhere.

my sense of feeling on my skin is super sensitive too. Just touching my

finger to my nose, it feels like touching raw nerves!! I have a feeling all

of this stems from my mold exposure!! Does anyone know of the right doctor

for me to go to to get the RIGHT DIAGNOSIS, TREATMENT!!! jill

_________________________________________________________________

Windows Live™: Life without walls.

http://windowslive.com/explore?ocid=TXT_TAGLM_WL_allup_1b_explore_042009

[Guest guest]

-Jill, you know your diagnosis, you have been exposed and poisoned by mold. You

can go to a number of Drs, go to MD to see Shoemaker. But all the same you need

to take Cholestrymine to help reduce the toxin load, and I am sorry to say, you

may have to live out of doors for up to a year to recover. Others may object to

this therapy, but without it you may never recover. And as I have seem over the

years, the disease up-regulates, and you end up in a tent in the desert ,like me

anyway. So please-go for total mold avoidence, read the book " Mold Warriors " ,

and leanto love the outside.

-- In , " greenwatergrl " <greenwatergrl@...> wrote:

>

> Hi everyone! My name is Jill and I live in pennsylvania. I was told to join

your group in hopes of getting some help on getting better.I just need to know

what doctor to go to, even if I have to travel across the country, if he can

help me, nowhere is too far!!! It all started 8 years ago in orlando florida. I

lived in a condo and it got flooded. It was so bad that the second floor came in

to our ceiling!! It was all due to the upstairs neighbor leaving his sneakers in

his dryer, which overheated and caused a fire which burst the waterheater. They

said it was safe to move back into the unit after about a month of them( so

called cleaning it up), so i moved back in.After 2 years of living there I kept

getting headaches all the time. I called the health department and they came out

to the condo, they hooked devices up to the the walls and in their words

said " get the hell out of here " !!!! I did, but unfortunatly it wasnt soon

enough:( I have had headaches for 8 years straight. I have eye pain just from

reading one page in a book. I have eye pain from going on the computer for one

second. I cant drive at night because the lights kill my eyes. I cant go into a

mall because the overwhelming smells make my head hurt so bad. Candles,

perfumes, FORGET ABOUT IT!!!! I feel handicapped and I desperatly need the right

doctor to diagnose me!!I have seen neurologists, and I got lasik surgery done, I

got my wisdom teeth pulled ,all at the cost of my own pockets, hoping it would

cure my pain:( I have got m r i and catscans. No medicine helps.The only thing

that gave me relief from my headaches and eye pain was when I went to get my

eyes checked and they put those numb drops in them!!That whole day I felt

totally fine!!!!I am not even able to write you this post, luckily enough for

me, im blessed with a twin sister who is typing this right now.The doctors I

have seen said everything from neuralgia( even though my pain is on both sides

of my face), peripheral neuritis, to A typical facial pain which means there is

no cause or cure. None of my doctors connected my symptoms to living in a toxic

enviroment for years.After all, the health department told me those walls were

filled with water 2 years later and to get out!!!. Lastly, it seems like all

my senses are working on overdrive. My eyes hurt to do anything. my sense of

smell is so strong i cant go anywhere. my sense of feeling on my skin is super

sensitive too. Just touching my finger to my nose, it feels like touching raw

nerves!! I have a feeling all of this stems from my mold exposure!! Does anyone

know of the right doctor for me to go to to get the RIGHT DIAGNOSIS,

TREATMENT!!! jill

>

[Guest guest]

Jill, you are not that far away from Dr. Shoemaker if you live in PA. He is

the best and could probably help you improve, Please go to his website

wwww.biotoxin.info and read all you can then take the VCS test!!!! You are

one of the lucky ones that live near land and could make the trip to see

him.

Don't delay just take the test, you have nothing to lose but about $15.

Sue

Do a search on ocular sarcoidosis. Sarcoidosis is a systemic granulomatous

disease of unknown etiology, though mold exposure has been suspected as

one cause.

[Guest guest]

Hi Jill,

I agree with Sue, Dr. Shoemaker is probably the right guy to help you out. I am

sick due to excessive mold exposure from my place of employment. It took me

almost a year to find the right doctor. I've been a patient of his for about

eight months and I feel much better than I have in a long time.

But I'd like to let you know that during one of my visits with him he did

mention a doctor that works with his protocol in town NJ. Dr. e

Gedroic you might want to check out her website www.gedroicfamilypractice.com

Bonnie