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Re: Digest Number 583

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Re: Digest Number 581

> >

> > Chantelle,

> >

> > We are from Connecticut.

>

> ohh, I wish there were some CHARGErs in my area!

>

Chantelle:

There are...you just don't know them yet. We should get you over here to

the school for a visit. I'ts only about an hour and a bit.

Ann Gloyn, Deafblind Specialist Teacher, Provincial School, BRANTFORD!!!

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Chantelle,

You have me really curious about AND and the Institute For Human Potential. Are

they both in Philly? What types of

therapy did you do at each one? I am really curious! (Sorry if you already

answered this question) Thanks!

I think it is so wonderful to hear from you on the list. My son Josh is

only 8 months old. I have been so amazed

at the support that people give each other on this list. It has helped out a

lot! I am excited to hear more about your

story and what helped you. Thanks!

mom to (8 mo) CHaRGE and (2 yrs)

Chantelle McLaren wrote:

>

>

> >

> > Message: 2

> > Date: Mon, 4 Oct 1999 16:09:40 EDT

> > From: TURK22082@...

> > Subject: Re: Digest Number 581

> >

> > Chantelle,

> >

> > We are from Connecticut.

>

> ohh, I wish there were some CHARGErs in my area!

>

> When did you find out

> > you were CHARGE?

>

> I found out when I was born.

>

> We just

> > found out a little over a year ago and Patty is

> > 15. We did lots for her too

> > but now know of more we should have done.

>

> You say your daughter is bad at math. I was too

> at 15. I was a math dunse! My mom helped me with

> my last round of therapy when i was 15 and 1/2. I

> went to the Institute for Human Potential in

> Philly. It worked wonders. I recomend trying it

> out, BUT DONT BOTHER GOING FOR A REASSESMET! They

> will treat you like dirt. After your first

> assensment, you can go to AND, its cheaper anyway

> and the program is more specialized. then do a

> combo of the institute and AND's program. Noone

> can garrentee any over night results, but it

> realy helped me alot.

>

> > Patty had bilateral coanal

> > atresia, apnea, coloboma in left which is blind

> > and right gives lower field

> > vision,

>

> That is exactly what I have, same eyes affected

> too.

>

> submucus cleft, ear anomalies, sinus

> > structure problems, renal

> > issues, bladder reflux, PDA, weak immunity

> > spinal and bone diformity, small

> > grwoth structure, no menstruation... Did you

> > have any of thes?

>

> The only thing of the things you mentiond is the

> submecus cleft.

>

> What ewere

> > the thereapies?

>

> AND, the instutute for Human Potential

>

> >What do you do, go to school,

>

> Just finnished, next year I will go to univercity

> (yay!).

>

> > have a job?

>

> Nope, concentrated on school work mostly. I did

> do odd jobs hear and there.

>

> Most of all, are

> > you happy?

>

> yes.

>

> Chantelle

> ----------

> oops... you cant eat food of the floor.

>

> =====

> Hey! join my two mailing lists!!!

> http://www.onelist.com/community/SG1thenextdimention

> (fan-fic and story games)

> or

> http://www.onelist.com/community/and

> (discussion of and )

> > For information about the CHARGE Syndrome Foundation or to become a member

please contact marion@....

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  • 2 years later...

Thanks sweetie for the new years wish....right back at ya " ANGEL

BUD "

Anne Reischenbock - 32

tube lengths ® 4.5 (L) 7

TL- 2/27/93 - TR-5/22/01

DS-Aryan (12)

DD-Aryah (10)

DD-Ariel (8)

________________________________________________________________

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does anyone know if it hurts to take the False Unicorn Root for the whole

month instead of right after ovulation? I have read things about taking

it all month or just right after ov. You never know what to believe but

i guess if its not known to be damaging to ovulation or a pregnancy it

would be ok...anyone know????

I was taking it last month and let me tell you..you really feel that

stuff working on the ovaries!!!

Anne Reischenbock - 32

tube lengths ® 4.5 (L) 7

TL- 2/27/93 - TR-5/22/01

DS-Aryan (12)

DD-Aryah (10)

DD-Ariel (8)

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

http://dl.www.juno.com/get/web/.

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