Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 DEAR SHERRY--I'm so sorry about your fibro! Yes, after surgery, mine flared up something terrible. The doctors in California have to use a 'triple prescription' to prescribe anything stronger than extra- strength Vicodin (and my surgeon--nice as he was--does not treat 'other' conditions. He didn't understand that the fibro WAS aggravated by the surgery!) So, my pain was drastically undertreated for 2 years. I finally went to a great pain doc in San Diego who gave me Oramorph (time-release morphine) and that finally ended the flare up; I was pain free for several months moving up here. Unfortunately, this cold weather has aggravated it again and I am miserable; I am taking massive amounts of Aleve/Motrin/Excedrin for my only relief. (I'm sure the doctors would much rather see me ruin my liver/kidneys/pouch etc. than take even a small chance of giving me adequate narcotics--and if I sound bitter about it, I am. I've NEVER had even a slight addiction problem, and I certainly have adequate documentation of THAT, but that doesn't matter to them...) I sure HATE to have to make the rounds of doctors here and go through the mess of trying to convince them I'm REALLY in pain and not to undertreat it with as few narcotics as possible; that only has me chasing more. When I WAS given enough morphine, I was able to discontinue it on my own after just 3 months (that sure beats 12 YEARS on tylenol #3 and Vicodin!) Sometimes, I feel very hopeless... Yes, I am just starting magnesium supplements too; that seems to help. Neurontin for sleep helps too, but I've been out of that for months; I REALLY need to get a doctor here--so far, I've just been avoiding it. Not overdoing it helps too, but currently, I haven't been able to do much, so it's hard to overdo ANYTHING LOL! Heat DOES help--and keeping my legs warm enough--but I can't spend my life in a bathtub...! I don't have too many suggestions that help besides those. I sure hope YOU get some relief! You'll be in my prayers for sure--sorry I'm such a downer about this! Love, Ava Lee In GastricBypass-InfoCentral@y..., " sherijacobs87 " <sjacobs3@t...> wrote: > > My fibro ISN'T being benevolent; /Ethel/ how is yours? (Who > > else has fibromyalgia here?) Prayers for all of you for sure! > > Good Morning Ava, > > I have fibro, too. And like yours, mine isn't being benevolent. > That's why I am home today. I was up and down all night last with the > pain. > > About a month ago, I was doing a 3 hour home visit with grandparents > who had adopted their grandsons. They both chain smoked and we were > in a small place. Normally I would have asked that we go outside > because I just don't like to be around that much smoke, but we were > in the middle of an intense discussion/counseling session, so I just > let it go. By evening, in addition to smelling terrible, having > watering eyes, a sore throat, and aching lungs, my fibro kicked in > full force. I haven't really gotten it back under control since in > spite of my doctor adding a new medication that has helped some. > > Currently I am taking Effexor XR, Mobic and Ultram, along with a > Magnesium supplement. I know the Effexor will have to be changed to > regular instead of extended release after my surgery, but do you > think I will be able to take these medications post-op? Also, did the > surgery itself kick in a flare-up for you? I know that often physical > trauma can cause fibro to flare. While I understand that it is a very > individual thing, what have you found that helps? For me, avoiding > sugar, using heat on the muscles that hurt really bad, and keeping my > exercise moderate rather than heavy duty seems to help me out. Any > other suggestions for medications to try or tips to ease the pain? > > Thanks and gentle hugs to you. > > Sheri > In Sunny Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Hey! it`s Ethel in Pa. My fibro acting up today finally took periset and got in water bed for a couple hours. Husband is very good to help me like that, I am also going to get in Hot tub later on ,My sister and i are having big fight over my mom`s land and i won`t sign papers so she can get the money, i will only sign when they put in writing that the money goes for future care of mom. anyway the stress and the ever changing weather in our part of the world is just unbearible sometime, but when i get on yhe other side i am told after i lose about 25lbs. it starts to get some better , sorry to vent so long but that is what fibro does also , makes you bi1111111fkjevthy, and then fibro fog is another syory all of who have it know what it is ,ETHEL sherijacobs87 wrote: > > My fibro ISN'T being benevolent; /Ethel/ how is yours? (Who > > else has fibromyalgia here?) Prayers for all of you for sure! > > Good Morning Ava, > > I have fibro, too. And like yours, mine isn't being benevolent. > That's why I am home today. I was up and down all night last with the > pain. > > About a month ago, I was doing a 3 hour home visit with grandparents > who had adopted their grandsons. They both chain smoked and we were > in a small place. Normally I would have asked that we go outside > because I just don't like to be around that much smoke, but we were > in the middle of an intense discussion/counseling session, so I just > let it go. By evening, in addition to smelling terrible, having > watering eyes, a sore throat, and aching lungs, my fibro kicked in > full force. I haven't really gotten it back under control since in > spite of my doctor adding a new medication that has helped some. > > Currently I am taking Effexor XR, Mobic and Ultram, along with a > Magnesium supplement. I know the Effexor will have to be changed to > regular instead of extended release after my surgery, but do you > think I will be able to take these medications post-op? Also, did the > surgery itself kick in a flare-up for you? I know that often physical > trauma can cause fibro to flare. While I understand that it is a very > individual thing, what have you found that helps? For me, avoiding > sugar, using heat on the muscles that hurt really bad, and keeping my > exercise moderate rather than heavy duty seems to help me out. Any > other suggestions for medications to try or tips to ease the pain? > > Thanks and gentle hugs to you. > > Sheri > In Sunny Florida > > > To Subscribe to 's weekly FREE Newsletter send an email to > GBCookbook-subscribe@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Hey! it`s Ethel in Pa. My fibro acting up today finally took periset and got in water bed for a couple hours. Husband is very good to help me like that, I am also going to get in Hot tub later on ,My sister and i are having big fight over my mom`s land and i won`t sign papers so she can get the money, i will only sign when they put in writing that the money goes for future care of mom. anyway the stress and the ever changing weather in our part of the world is just unbearible sometime, but when i get on yhe other side i am told after i lose about 25lbs. it starts to get some better , sorry to vent so long but that is what fibro does also , makes you bi1111111fkjevthy, and then fibro fog is another syory all of who have it know what it is ,ETHEL sherijacobs87 wrote: > > My fibro ISN'T being benevolent; /Ethel/ how is yours? (Who > > else has fibromyalgia here?) Prayers for all of you for sure! > > Good Morning Ava, > > I have fibro, too. And like yours, mine isn't being benevolent. > That's why I am home today. I was up and down all night last with the > pain. > > About a month ago, I was doing a 3 hour home visit with grandparents > who had adopted their grandsons. They both chain smoked and we were > in a small place. Normally I would have asked that we go outside > because I just don't like to be around that much smoke, but we were > in the middle of an intense discussion/counseling session, so I just > let it go. By evening, in addition to smelling terrible, having > watering eyes, a sore throat, and aching lungs, my fibro kicked in > full force. I haven't really gotten it back under control since in > spite of my doctor adding a new medication that has helped some. > > Currently I am taking Effexor XR, Mobic and Ultram, along with a > Magnesium supplement. I know the Effexor will have to be changed to > regular instead of extended release after my surgery, but do you > think I will be able to take these medications post-op? Also, did the > surgery itself kick in a flare-up for you? I know that often physical > trauma can cause fibro to flare. While I understand that it is a very > individual thing, what have you found that helps? For me, avoiding > sugar, using heat on the muscles that hurt really bad, and keeping my > exercise moderate rather than heavy duty seems to help me out. Any > other suggestions for medications to try or tips to ease the pain? > > Thanks and gentle hugs to you. > > Sheri > In Sunny Florida > > > To Subscribe to 's weekly FREE Newsletter send an email to > GBCookbook-subscribe@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Hey! it`s Ethel in Pa. My fibro acting up today finally took periset and got in water bed for a couple hours. Husband is very good to help me like that, I am also going to get in Hot tub later on ,My sister and i are having big fight over my mom`s land and i won`t sign papers so she can get the money, i will only sign when they put in writing that the money goes for future care of mom. anyway the stress and the ever changing weather in our part of the world is just unbearible sometime, but when i get on yhe other side i am told after i lose about 25lbs. it starts to get some better , sorry to vent so long but that is what fibro does also , makes you bi1111111fkjevthy, and then fibro fog is another syory all of who have it know what it is ,ETHEL sherijacobs87 wrote: > > My fibro ISN'T being benevolent; /Ethel/ how is yours? (Who > > else has fibromyalgia here?) Prayers for all of you for sure! > > Good Morning Ava, > > I have fibro, too. And like yours, mine isn't being benevolent. > That's why I am home today. I was up and down all night last with the > pain. > > About a month ago, I was doing a 3 hour home visit with grandparents > who had adopted their grandsons. They both chain smoked and we were > in a small place. Normally I would have asked that we go outside > because I just don't like to be around that much smoke, but we were > in the middle of an intense discussion/counseling session, so I just > let it go. By evening, in addition to smelling terrible, having > watering eyes, a sore throat, and aching lungs, my fibro kicked in > full force. I haven't really gotten it back under control since in > spite of my doctor adding a new medication that has helped some. > > Currently I am taking Effexor XR, Mobic and Ultram, along with a > Magnesium supplement. I know the Effexor will have to be changed to > regular instead of extended release after my surgery, but do you > think I will be able to take these medications post-op? Also, did the > surgery itself kick in a flare-up for you? I know that often physical > trauma can cause fibro to flare. While I understand that it is a very > individual thing, what have you found that helps? For me, avoiding > sugar, using heat on the muscles that hurt really bad, and keeping my > exercise moderate rather than heavy duty seems to help me out. Any > other suggestions for medications to try or tips to ease the pain? > > Thanks and gentle hugs to you. > > Sheri > In Sunny Florida > > > To Subscribe to 's weekly FREE Newsletter send an email to > GBCookbook-subscribe@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 >>I've noticed that when my Fibro pain, brain fog and fatigue return if I take my temps they have lowered a little. I increase by 12.5 mg and the Fibro symptoms disappear. Why aren't all Fibro patients treated with Cytomel or Desiccated?<< They might get well? Seriously I think the whoe mystery behind Fibro an Chronic Fatigue is just a ruse to keep the moey flowing into our pharmaceuticals and physicians. It is shameful. I also had Fibro pain that left with enough T3 in my system. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 You know Val, that doesn't surprise me a bit "we might get well" . After 15 years of Fibro and 25 years of being kept hypothyroid on Syncrap I started researching my own health. First thing I discovered was that there is a connection between Fibro/CFS and Adrenals / hypothyroid. The second thing I discovered is STTM. Now my Fibro is history and my hypothyroid is controlled with Cytomel. I've lost all respect for the medical community.>> >>I've noticed that when my Fibro pain, brain fog and fatigue return if I > take my temps they have lowered a little. I increase by 12.5 mg and > the Fibro symptoms disappear. Why aren't all Fibro patients treated > with Cytomel or Desiccated?<<> > They might get well? Seriously I think the whoe mystery behind Fibro an Chronic Fatigue is just a ruse to keep the moey flowing into our pharmaceuticals and physicians. It is shameful. I also had Fibro pain that left with enough T3 in my system. > > -- > Artistic Grooming- Hurricane WV> > http://www.stopthethyroidmadness.com/> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/> http://health.groups.yahoo.com/group/RT3_T3/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 If I had a nickel for every DOLLAR I have spent on pharmaceuticals, labs and doctors to treat what is wrong with me, I could retire comfortably today. Instead I will have to work till I drop and can never afford to retire due to all the money spent in surviving this long. My illness not only robbed any chance of ever retiring but it also took my quality of life for 30 years. But I was able to barely work through it all, so that keeps the money going and THAT is the whole point of not treating this disease properly. It turns us into DUMB cows that pay every cent we earn in trying to keep alive, and yet doesn't quite kill us which would stop the money flow. Win win for everyone except US. I would liek to see this stopped in my lifetime. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ Quote Link to comment Share on other sites More sharing options...
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