Re: rollercoaster

[Guest guest]

thank you elda,

i got your card today, thank you so much,

i keep on getting so many cards from the group, and none from my family,

isnt that a hoot, im trying hard not to let ttc take over my life but i want

it so bad its hard not to, love judy l

[Guest guest]

thank you elda,

i got your card today, thank you so much,

i keep on getting so many cards from the group, and none from my family,

isnt that a hoot, im trying hard not to let ttc take over my life but i want

it so bad its hard not to, love judy l

[Guest guest]

thank you elda,

i got your card today, thank you so much,

i keep on getting so many cards from the group, and none from my family,

isnt that a hoot, im trying hard not to let ttc take over my life but i want

it so bad its hard not to, love judy l

[Guest guest]

I have to say 'ditto' to both and Judy L. I had my TR in July

and still nothing. It's reassuring that I'm not alone but at the

same time frustrating because everywhere you go there are either

babies or pregnant women. Oh well, I guess we just need a little

more patience and faith and we should try and stay focused on our

goal but not obssess about it.

Take care everyone.

Elda

PS. To those ladies that have sent out christmas cards, " THANK YOU " .

Mine were sent out on Monday.

>

> First let me tell you guys thanks for the Christmas card. They are

> so nice. I am so sorry that I haven't been here more lately. I

have

> read your post but I just haven't posted back, I have kept an eye

out

> for pending members and made sure everything went smoothly in the

> group. First of all I really have been busy with my dh and his

> surgery and my mothers barn burning.

>

> Now, I have to tell you the roller coaster story..... First of all

> any of you that don't know me I had my original tr a year ago last

> october. The surgery was with a different doc, and was actually a

> joke. I spent 9 month ttc and never really had the chance. I felt

> it in my heart something was wrong.

>

> That is when Dr. Levin came into my life. He is such an awesome

> doctor. He has taken care of me so well and I can never ever show

> him how much he means to me. I was trying to help match buddies

in

> the group to help the girls out. Believe it or not I am going to

get

> out of this mood.... I did start to perk up when got

pregnat

> it gave me hope.

>

> I want to give you a quick run down of what I have done

>

> TR October 90 (with other doctor)

> HSG showed one blocked tube

> Started clomid.. I did 3 months of it, 3 months of ultra

sounds,eggs

> were produced on wrong side.

> I have done almost a year of temps, prenatal vitamins,

> Then I met Dr. Levin. He gave me renewed hope. He is so smart

with

> infertility etc. I should have went to him in the first place and

I

> have beat myself up so many times over that.

> We did 3 months of pergonal and iui.... No pregnancy

> I just felt like something was wrong and begged Dr. Levin to do

> surgery to at least repair the blocked tube. I am so thankful he

was

> the one who went in because he ran into a REAL disaster. He worked

3

> hours cleaning up the mess inside of me. That is when I found out

I

> never had a chance in the first place until Dr. Levin fixed me.

> That was back in Sept. I had one normal month and have done 2

months

> of pergonal. Maybe I am getting scared that I am too old. I am

42.

> I am having a real tough time understanding 3 yrs. ago I had a

baby.

> Sure was easy having him...

> I am trying to convince myself that although it has been a year

since

> my first tr it has only been 3 months since Dr. Levin operated on

> my. Both Dr. Levin and Venica gave me great chances of conceiving.

>

> Look now I have written a book. I am sure that some of you have

been

> in this same place in life. You have to decide if you should

follow

> your dream. This is sorta how frustrating I felt after I had my

tl.

> I felt like my hands were tied. I just kept thinking I want to be

> fixed even if I never had a baby. I am glad that I am repaired.

> Especially after Dr. Levins surgery because I was having problems

> with bladder control before and I believe all the stuff dr. Levin

> took out helped that a lot.

>

> Please just say a pray. I just want God to give me peace in my

> heart. I feel like I have a true gift of knowledge that I can

help

> you all when you are getting ready for your surgery, or learning

how

> to temp, many things. I can't do it when I am down in the

dumps.

> I miss you all so much. I promise with your prayers I will be back

> just as much as before.

>

> Dr. Levin probably won't read this but if you do I thank you so

> much. You are the most wonderful sensitive doctor in the world.

> More than anything do I want to call you and say. I am pg.

>

> Love you all

>

[Guest guest]

what kind of bladder problems did you have. after my tr I had a lot of

bladder problems to. if you dont mind me asking who did your first surg If

you want you can e mail me back privately if you dont want people to know Im

just curious if its simialar to my prob and maybe the same docter.

sharon

[Guest guest]

Girl power!

Kat in IL

rollercoaster

First of all, my deepest and most sincere thanks to all who have been

reaching out to me and putting their own personal pain and struggles aside

to do so. You will NEVER know how VERY much I have appreciated it..

Secondly, Ron, I'm praying for your Mom as well. The only good thing about

this journey is that I'm making it with some of the best people on the

planet.

We took Mom to the best hospital within an hour of our rural area. It is a

hospital that I have and nothing but positive experiences with over the past

25 years. I know, you are all hearing the " but " coming...... .

The first doctor in the ER was wonderful. She was knowledgeable and open

and assessed the situation pretty quickly as she started out by asking what

Mom's wishes where " IF something happened " . She seemed to know a lot about

older people and was very supportive. She ran a number of blood cultures

(which we have not yet gotten back), a CT scan to rule out stroke, a chest

Xray to rule out pneumonia, and a urine test to rule out UTI. All results

so far have shown no problem. She admitted her for observation and

hydration (she was mildly dehydrated) and to wait for the blood cultures to

come back which should be tomorrow.

After a couple hours, Mom was a bit more alert but still not herself and

continued to complain of pain in her neck. This wonderful doctor nailed

that one with one look at Mom's neck. All of the muscles of her neck have

constricted so tightly that she can no longer turn her head and the pain is

excruciating. The doctor said this was due to the parkinsonisms (which have

gotten dramatically worse over the past few weeks). Right before the shift

change, she advised that Mom would be given pain medication as soon as she

got admitted.

With the shift change came the next dramatic dip on this ride. A very young

doctor came on board who barely listened to a word we said. He said she

would not be getting the Seroquel tonight because he wanted to see if she

could be made a bit more alert first. So far, I was okay with it. She was

admitted at 10:00 at night. My daughter decided to stay with Mom last night

while I supposedly slept which never happened but that's a whole different

story involving a bear that I'll save for when I have more time. LOL

When I spoke to Ruthie this morning, she was very upset. Mom had still not

had her Seroquel and was starting to show it. Also, Ruthie spent the entire

night begging for pain medication for Mom only to have the nurse give Mom a

Tylenol at 4:00 this morning because " The doctor wrote for a pain patch

which was not to be started until 10:00 in the morning " Have you ever heard

of such nonsense?

I found out that not only did Mom not get her Seroquel, but they switched

her from the Exelon patch to exelon pills, didn't give her Zoloft to her,

nor her Namenda nor any of her other medications. I was so angry!!!!! I

went out to the nurses station and explained to the nurse there that it had

taken months working with one of the best neurologists in the County to get

Mom's meds balanced just right and that she could not just be taken " cold

turkey " off of them without risk of serious consequences. She said " How

balanced were they if her mental state was altered? " AAAAAAaaaargh. ........

.............. ..... What part of " dementia " would lead them to believe that

she should have an unaltered mental state at ANY time?

Shortly after this, I ended up in the ER myself with pink eye of all things.

Now, I'm heading back down to relieve my sister and spend the night with

Mom and I'm hoping they won't throw me out. I just started on my

antibiotics so I have to be very careful about hand washing etc. I want to

be with Mom tonight and I don't want Ruthie to have to do a 2nd night so we

ll see.

While I was in the ER, I called Mom's neuro in NYC and the doctor covering

for him called me right back. I asked what could be done to relieve the

muscle constriction in her neck. Are you ready for this? He suggested

VALIUM!!!!! I said " You can't give Valium to an LBD patient! " I couldn't

believe it. I guess he is not a LBD expert like the doctor for whom he

covers and I'll be having that conversation with our doctor in the morning.

At this point God intervened, Praise Him always! With a new shift change

came a new doctor who " gets it " . She saw Mom hallucinating and ordered them

to put her back on ALL of her meds at the regular doses until she can talk

to the neurologist in NYC tomorrow morning. She also had a local neuro come

in to see Mom. I haven't talked to my sister yet, but she told Ruthie that

he said he would write the " six month " letter for hospice and provide any

other help we needed to make her time comfortable, pain free, and anxiety

free which is our goal at this point in time.

So, that's where thing stand. I'm hoping to bring her home tomorrow or

Tuesday at the latest and I pray that this is our last hospital visit ever.

I am also going to write a letter to the hospital about the doctor who

caused my mother unnecessary pain and suffering. Many of you have seen Mom

s care book. No one ever want into a hospital more prepared than we were.

Many of the medical staff complemented but Dr. Young and Arrogant wouldn't

even look at any of it. He decided all by his little self that Mom was

over-medicated " and that was the problem. He practically accused us of

negligence and I will NOT allow that to ever happen to another family who

has to go to that hospital.

Well, that's where things stand tonight. Thank you all for being there. I

ll post again when I get home.

Gladys

[Guest guest]

Gladys, you are armed to the hilt with knowledge and support. Awesome! I fear

for any

doctor who treats your mom, Ruthie and you without deserved sensitivity. You go

girl!!!

With that, I am so very sorry for your mother's undeserved suffering! No wonder

we avoid

hospitals.

>

> First of all, my deepest and most sincere thanks to all who have been

> reaching out to me and putting their own personal pain and struggles aside

> to do so. You will NEVER know how VERY much I have appreciated it.

>

> Secondly, Ron, I'm praying for your Mom as well. The only good thing about

> this journey is that I'm making it with some of the best people on the

> planet.

>

> We took Mom to the best hospital within an hour of our rural area. It is a

> hospital that I have and nothing but positive experiences with over the past

> 25 years. I know, you are all hearing the " but " coming.......

>

> The first doctor in the ER was wonderful. She was knowledgeable and open

> and assessed the situation pretty quickly as she started out by asking what

> Mom's wishes where " IF something happened " . She seemed to know a lot about

> older people and was very supportive. She ran a number of blood cultures

> (which we have not yet gotten back), a CT scan to rule out stroke, a chest

> Xray to rule out pneumonia, and a urine test to rule out UTI. All results

> so far have shown no problem. She admitted her for observation and

> hydration (she was mildly dehydrated) and to wait for the blood cultures to

> come back which should be tomorrow.

>

> After a couple hours, Mom was a bit more alert but still not herself and

> continued to complain of pain in her neck. This wonderful doctor nailed

> that one with one look at Mom's neck. All of the muscles of her neck have

> constricted so tightly that she can no longer turn her head and the pain is

> excruciating. The doctor said this was due to the parkinsonisms (which have

> gotten dramatically worse over the past few weeks). Right before the shift

> change, she advised that Mom would be given pain medication as soon as she

> got admitted.

>

> With the shift change came the next dramatic dip on this ride. A very young

> doctor came on board who barely listened to a word we said. He said she

> would not be getting the Seroquel tonight because he wanted to see if she

> could be made a bit more alert first. So far, I was okay with it. She was

> admitted at 10:00 at night. My daughter decided to stay with Mom last night

> while I supposedly slept which never happened but that's a whole different

> story involving a bear that I'll save for when I have more time. LOL

>

> When I spoke to Ruthie this morning, she was very upset. Mom had still not

> had her Seroquel and was starting to show it. Also, Ruthie spent the entire

> night begging for pain medication for Mom only to have the nurse give Mom a

> Tylenol at 4:00 this morning because " The doctor wrote for a pain patch

> which was not to be started until 10:00 in the morning " Have you ever heard

> of such nonsense?

>

> I found out that not only did Mom not get her Seroquel, but they switched

> her from the Exelon patch to exelon pills, didn't give her Zoloft to her,

> nor her Namenda nor any of her other medications. I was so angry!!!!! I

> went out to the nurses station and explained to the nurse there that it had

> taken months working with one of the best neurologists in the County to get

> Mom's meds balanced just right and that she could not just be taken " cold

> turkey " off of them without risk of serious consequences. She said " How

> balanced were they if her mental state was altered? " AAAAAAaaaargh.........

> ................. What part of " dementia " would lead them to believe that

> she should have an unaltered mental state at ANY time?

>

> Shortly after this, I ended up in the ER myself with pink eye of all things.

> Now, I'm heading back down to relieve my sister and spend the night with

> Mom and I'm hoping they won't throw me out. I just started on my

> antibiotics so I have to be very careful about hand washing etc. I want to

> be with Mom tonight and I don't want Ruthie to have to do a 2nd night so we

> ll see.

>

> While I was in the ER, I called Mom's neuro in NYC and the doctor covering

> for him called me right back. I asked what could be done to relieve the

> muscle constriction in her neck. Are you ready for this? He suggested

> VALIUM!!!!! I said " You can't give Valium to an LBD patient! " I couldn't

> believe it. I guess he is not a LBD expert like the doctor for whom he

> covers and I'll be having that conversation with our doctor in the morning.

>

> At this point God intervened, Praise Him always! With a new shift change

> came a new doctor who " gets it " . She saw Mom hallucinating and ordered them

> to put her back on ALL of her meds at the regular doses until she can talk

> to the neurologist in NYC tomorrow morning. She also had a local neuro come

> in to see Mom. I haven't talked to my sister yet, but she told Ruthie that

> he said he would write the " six month " letter for hospice and provide any

> other help we needed to make her time comfortable, pain free, and anxiety

> free which is our goal at this point in time.

>

> So, that's where thing stand. I'm hoping to bring her home tomorrow or

> Tuesday at the latest and I pray that this is our last hospital visit ever.

> I am also going to write a letter to the hospital about the doctor who

> caused my mother unnecessary pain and suffering. Many of you have seen Mom

> s care book. No one ever want into a hospital more prepared than we were.

> Many of the medical staff complemented but Dr. Young and Arrogant wouldn't

> even look at any of it. He decided all by his little self that Mom was

> over-medicated " and that was the problem. He practically accused us of

> negligence and I will NOT allow that to ever happen to another family who

> has to go to that hospital.

>

> Well, that's where things stand tonight. Thank you all for being there. I

> ll post again when I get home.

>

> Gladys

>

>

[Guest guest]

Oh, Gladys, I'm so glad to hear that your mom is doing better and will

be coming home, possibly today. While reading your email, I was with

you every step of the way, experiencing the frustration, anxiety, and

complete bafflement the way things are done by certain people. I am

grateful that the new doctor--with intelligence and caring--arrived in

the morning. I hope your letter will make a difference for others. I

can't tell you how many different letters I've written. Hospice is a

really good idea. And she can always come off of it if need be. I

wish all of you the best, Norma

[Guest guest]

Hi Gladys,

I'm so sorry to hear of all the troubles you've had to go through

with the hospital but good on ya for fighting for what you know is

best for your Mom. It's a shame that not all docs work with their

patients and instead cause much grief and stress. Please take care of

yourself and I'm thinking of you and your family.

All the best,

Holly

>

> First of all, my deepest and most sincere thanks to all who have

been

> reaching out to me and putting their own personal pain and

struggles aside

> to do so. You will NEVER know how VERY much I have appreciated it.

>

> Secondly, Ron, I'm praying for your Mom as well. The only good

thing about

> this journey is that I'm making it with some of the best people on

the

> planet.

>

> We took Mom to the best hospital within an hour of our rural area.

It is a

> hospital that I have and nothing but positive experiences with over

the past

> 25 years. I know, you are all hearing the " but " coming.......

>

> The first doctor in the ER was wonderful. She was knowledgeable

and open

> and assessed the situation pretty quickly as she started out by

asking what

> Mom's wishes where " IF something happened " . She seemed to know a

lot about

> older people and was very supportive. She ran a number of blood

cultures

> (which we have not yet gotten back), a CT scan to rule out stroke,

a chest

> Xray to rule out pneumonia, and a urine test to rule out UTI. All

results

> so far have shown no problem. She admitted her for observation and

> hydration (she was mildly dehydrated) and to wait for the blood

cultures to

> come back which should be tomorrow.

>

> After a couple hours, Mom was a bit more alert but still not

herself and

> continued to complain of pain in her neck. This wonderful doctor

nailed

> that one with one look at Mom's neck. All of the muscles of her

neck have

> constricted so tightly that she can no longer turn her head and the

pain is

> excruciating. The doctor said this was due to the parkinsonisms

(which have

> gotten dramatically worse over the past few weeks). Right before

the shift

> change, she advised that Mom would be given pain medication as soon

as she

> got admitted.

>

> With the shift change came the next dramatic dip on this ride. A

very young

> doctor came on board who barely listened to a word we said. He

said she

> would not be getting the Seroquel tonight because he wanted to see

if she

> could be made a bit more alert first. So far, I was okay with it.

She was

> admitted at 10:00 at night. My daughter decided to stay with Mom

last night

> while I supposedly slept which never happened but that's a whole

different

> story involving a bear that I'll save for when I have more time.

LOL

>

> When I spoke to Ruthie this morning, she was very upset. Mom had

still not

> had her Seroquel and was starting to show it. Also, Ruthie spent

the entire

> night begging for pain medication for Mom only to have the nurse

give Mom a

> Tylenol at 4:00 this morning because " The doctor wrote for a pain

patch

> which was not to be started until 10:00 in the morning " Have you

ever heard

> of such nonsense?

>

> I found out that not only did Mom not get her Seroquel, but they

switched

> her from the Exelon patch to exelon pills, didn't give her Zoloft

to her,

> nor her Namenda nor any of her other medications. I was so

angry!!!!! I

> went out to the nurses station and explained to the nurse there

that it had

> taken months working with one of the best neurologists in the

County to get

> Mom's meds balanced just right and that she could not just be

taken " cold

> turkey " off of them without risk of serious consequences. She

said " How

> balanced were they if her mental state was altered? "

AAAAAAaaaargh.........

> ................. What part of " dementia " would lead them to

believe that

> she should have an unaltered mental state at ANY time?

>

> Shortly after this, I ended up in the ER myself with pink eye of

all things.

> Now, I'm heading back down to relieve my sister and spend the

night with

> Mom and I'm hoping they won't throw me out. I just started on my

> antibiotics so I have to be very careful about hand washing etc. I

want to

> be with Mom tonight and I don't want Ruthie to have to do a 2nd

night so we

> ll see.

>

> While I was in the ER, I called Mom's neuro in NYC and the doctor

covering

> for him called me right back. I asked what could be done to

relieve the

> muscle constriction in her neck. Are you ready for this? He

suggested

> VALIUM!!!!! I said " You can't give Valium to an LBD patient! " I

couldn't

> believe it. I guess he is not a LBD expert like the doctor for

whom he

> covers and I'll be having that conversation with our doctor in the

morning.

>

> At this point God intervened, Praise Him always! With a new shift

change

> came a new doctor who " gets it " . She saw Mom hallucinating and

ordered them

> to put her back on ALL of her meds at the regular doses until she

can talk

> to the neurologist in NYC tomorrow morning. She also had a local

neuro come

> in to see Mom. I haven't talked to my sister yet, but she told

Ruthie that

> he said he would write the " six month " letter for hospice and

provide any

> other help we needed to make her time comfortable, pain free, and

anxiety

> free which is our goal at this point in time.

>

> So, that's where thing stand. I'm hoping to bring her home

tomorrow or

> Tuesday at the latest and I pray that this is our last hospital

visit ever.

> I am also going to write a letter to the hospital about the doctor

who

> caused my mother unnecessary pain and suffering. Many of you have

seen Mom

> s care book. No one ever want into a hospital more prepared than

we were.

> Many of the medical staff complemented but Dr. Young and Arrogant

wouldn't

> even look at any of it. He decided all by his little self that Mom

was

> over-medicated " and that was the problem. He practically accused

us of

> negligence and I will NOT allow that to ever happen to another

family who

> has to go to that hospital.

>

> Well, that's where things stand tonight. Thank you all for being

there. I

> ll post again when I get home.

>

> Gladys

>

>