Guest guest Posted September 29, 2008 Report Share Posted September 29, 2008 Hi Everyone! We have a new family joining us today. Here is what had to say... My name is Wheeler..my husband and I had a baby girl on June 3, 2008 and she was diagnosed with Mosaic Down Syndrome. Her name is Kayla Marie and she is just the most wonderful and beautiful baby!! Kayla was diagnosed shorlty after birth with three minor heart defects. At this time we are just watching her heart and the doctor feels that she wont have to have any kind of surgery. We had her eyes checked and it appears that she is alreday near sighted and might have to have glasses in January. She has an older brother who is 17(Kayla is my second and my husband's first)and he just adores his baby sister. We are members of the Down Syndrome Association of Central Ohio but I have just not found much information about Mosaic and would like to be able to ask questions and maybe get some help from others. Welcome to our family ! I am so glad you have joined us! Congratulations on your new baby! We are coming to Ohio for our 2009 Research & Awareness conference this coming July! Hopefully we will all get to meet you and your family then! Please feel free to ask any questions you have here. We will all be very happy to share our experiences with you. And, feel free to share any concerns and joys you have with Kayla. We are here for you and your family and will always be here to help you. Kristy Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12 Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.