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Welcome All New Families

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Hello,and welcome to our group. Where are you are all of you from? I hope that

you find this on line form to be helpful to you, and your family, as much as I

have.

 My name is . and I'm from Ohio. My husband and I have 4 kids 2 boys.

8, Hayden 5, and our twin girls Adde and 21 months. We found this

group when we found out that Adde has mds. We found out that she had it when

she was just a week old. I felt like that was the biggest slap in the face. Why

me? How did this happen to me?( I mean after all I was only 28 when I had them)

My husband did the " let's not really talk about it. " So in a way he kinda shut

down. So like many of you, I needed hope, faith, and most importantly

encouragement. I needed to know that I wasn't alone, that there were others who

felt my anger, fears, pain. That's when I found IMDSA. Now I'm not alone

anymore!

I also volunteer my time to IMDSA.org. I'm the fund raiser chairperson, and

the conference coordinator for the 09 conference that is being held here in

Ohio!  Now, I don't post often, but I'm always reading the post to keep up with

everything.  Feel free to ask questions, or if you want to brag, then BRAG about

it!!! Just remember that YOU are not alone anymore!

 

Hellard

mom to Adde 21 months

brandy@...

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