Ehler-Danlos syndrome - advice please!

[Guest guest]

Hi all

I'm due to see a little girl with suspected Ehler-Danlos syndrome tomorrow and

would welcome any ideas, experience etc. She's been seen by paediatrician

because of failure to thrive - mother thinks may be sensitive to lots of foods

and keeps her off wheat and dairy - food intolerances and also hypermobile

joints are a family trait along with other 'auto-immune' type illnesses.

Many thanks

Alison