New to group

[Guest guest]

Welcome ...

I know you will enjoy the advice and information provided from the members

within the group....I am currently attending meetings on Thursday evenings and

have 50 pounds to lose....I can't wait to get to know you and you spouse through

this group...

Good luck...

wrote: Hi all..

Thought I would introduce myself.

My name is , age 27, and I live near Lansing Michigan. I just joined

Weight Watchers at home with my husband. It is great to have his support and

help with this! Lucked out there for sure! I am way to busy with my two jobs

(one at home on the internet selling rubber stamps and craft supplies) to go to

meetings. I am hoping this works out. We have been doing it for a week and so

far so good. My husband, has about 20 pounds to lose. I have much more. I

know I cant get back to teh 125 I weighed when I graduated HS but 140 would be

great so I have 80 pounds to lose. I will take anything right now really. 20 is

my first goal. We are always trying to get pregnant and I really think weight

has to do with why it is not working so far. I think this makes me more

committed than ever to lose weight and I really like how the weight watchers

program works. I did Craig and the doctor made me stop beucase I am such a

picky eater that i hardly ate (cuase you had to eat their food) and I was

fainting a lot. So I am glad to join your group and cant wait to participate.

Hugs

Cole

[Guest guest]

I would go to dotties site- http://www.dwlz.com and

check out her restaurant section with the points in

it, and choose ahead of time what you are going to

eat, so that you have options. Or y ou can print it

out, and take it with you so you know.. then you wont

be hungry later.. and doing without food like that can

stop or slow your loss, its not good, never mind

emotionally so that you are hungry.

--- melissajennifergitlitz wrote:

> Hi Everyone-

> I'm new to this group and am looking for any support

> around. I am

> trying to lose about 35 pounds before my wedding

> (Nov 2003) and as

> much as I can before a friends wedding that I'm a

> bridesmaid in (Aug

> 2002). So I've got time but this seems so

> slow....I've lost 3.2 in

> the past two weeks (total combined) My hard days

> are restaraunt days-

> I never know how many points Im eating so I try to

> overcompensate

> with little to no points until dinner which leaves

> me hungry all day,

> then I order a salad at dinner because what i really

> want is either

> too high in points or completely unkown. Any

> advice? Family and

> friends are always trying to tell me to just party

> and forget the

> diet- It is so hard! Help.

>

>

>

__________________________________________________

[Guest guest]

My hard days are restaraunt days-

> I never know how many points Im eating so I try to overcompensate

> with little to no points until dinner which leaves me hungry all day,

> then I order a salad at dinner because what i really want is either

> too high in points or completely unkown. Any advice?

YES!!! This a fabulous site, Dotti's

http://www.dwlz.com/

She's got points lists for everything on earth, recipes, AND a list of

Restaurants with their Food Lists

http://www.dwlz.com/restaurants.html

Steamed shellfish is surprisingly low in points. Get fat-free dressing,

avoid huge slabs of rich desserts, fried foods, chees sauces, and things

simmered in butter and lean towards steamed veggies and roasted chicken.

And fit in 30-60 minutes of exercise class every day if you possibly can,

and you'll have those 35 pounds gone or mostly gone by August. If you notice

the weights people post on this list, having 35 pounds to lose is relatively

little. There are folks on this list who have 50 or more to lose, so they're

right now envying you, me amongst them. I had 50 to lose when I started,

I've lost 15, so I too have 35 to lose, and it seems totally possible. But

you gotta work for it. Planning ahead is the key. And you really don't want

to STARVE yourself by eating under points, because that will send your body

into a starvation mode and keep those pounds on. Oddly enough, we all find

that you need to be sure to eat ENOUGH each day to get the weight off.

Check this group's files for an explanation of the Wendie plan, also, which

you will LOVE and may find useful.

[Guest guest]

That means non cancerous, or benign. Cysts are sacks the body produces that fill with fat, fluid, debris, but not cancer. I have two cysts in my back by my spine and two on my liver but not harmful. Nodules can in themselves cause effects. Did they give you copies of your tests?

Re: New to Group

Good evening everyone. I recieved a message on my answering machine today but I am not sure what she is talking about. Excuse me if I spell something wrong, but she said my biopsy came back banine, or something like that. Then she said it had multiple nodulars, and something about being sisted. I am so confused, and when I went to my appointment, they acted as if I was getting on my nerves when asking them questions. She also stated that I wasnt hyper. I have no clue what that means. And when I told her about my tiredness and how I keep gaining weight and not loosing no matter what I do or eat, she kept referring back to my tests. But I don't care what my bloodwork says. I know how I feel. I think maybe I might have to just pay out of my pocket and go get a second opinion. This is frustrating.....

[Guest guest]

I have never been on the Wiley Protocol but was researching it because

I knew it used high doses of hormones and I had gotten to the point

where two Climara patches were doing nothing. I have had horrible

experiences with progesterone so after researching this protocol

realized it will never work for me.

However I am interested in the dosage and forms that people use of

estrogen. My doctor is refusing to give me more patches than two of

the 0.1 mg Climara (not that I would like wearing any more any way.)

I was supplementing with some estrogel I bought over the internet and

some oral estradiol I had left over before I went on the patches.

I started the hot flashes in 2003 and it got gradually worse, but in

the last few months it seems that my estrogen production must have

gone from low to nothing.

So for the people who take higher doses of hormones are you taking it

oral or transdermal? If transdermal I assume it is compounded as to

use the pharmaceutical preparations at high doses would be very

expensive right?

I sometimes wonder if all the symptoms I attribute to low estrogen

truly are, because the symptoms present differently. For example,

sometimes I notice the hot flashes first, or I feel this uterine

cramping feeling. Often times I have palpitations that often occur

with hot flashes. A few months ago, it seemed that my early warning

sign so to speak was itching in my legs which I haven't noticed lately.

Any thoughts?

Kate

[Guest guest]

Hi Kayla,

Your Dad is very fortunate to have the 3 of you there for him. It's

so important. Most important: I want to be sure you know the

medications that your Dad should NOT be on. Following this list will

be tons of other important information.

BAD LBD MEDICATIONS

This was compiled in 2004. There is information that is current and

up-to-date in the FILES section.

Based on actual experiences reported by caregivers.

Revised, January, 2004.

One of the symptoms of LBD is extreme sensitivity to many

medications.

NEUROLEPTICS AND OPIATES ARE LIFE THREATENING.

DO NOT GIVE:

Haldol, Clozapine, Morphine, Demerol or any other neuroleptics or

opiates.

All medications ending in " azine " may cause neuroleptic malignant

syndrome.

AVOID:

Zyprexa/olanzapine

Risperdal/risperidone

Ativan/lorazepam

Mirapex/pramipexole

Eldepryl/selegeline

Ambien/zolpidem

Ultram/tramadol

Detrol & Detropan

Benedryl (OTC allergy medication)

USE CAUTION:

Dilantin....extremely careful monitoring of levels is needed.

Sinemet/carbidopa-levodopa may cause increased dementia, stiffness,

and hallucinations.

Cough and Cold medications

This is not a complete list of medications, which may cause serious

consequences in LBD patients. Bad reactions to strong antibiotics,

for example, are not uncommon. LBD patients who have been given the

least medications, seem to do better in the long run than those who

have been more medicated.

Unfortunately, the LBD patient never goes back to the level of former

functioning when the troublesome medication is removed, and sometimes

as with neuroleptics, there may be no recovery.

LESS IS BEST ... and safest.

Go to: http://www.lbda.org/category/3440/lbda-resources.htm Click

on Multimedia Resources. There are 3 streaming videos (one

underneath each other).

This paper is important for most physicians to read:

Diagnostic Review & Medicine Management

by Bradley F. Boeve, MD (October 2004) Physicians guide to diagnosing

and treating DLB/LBD. Includes recommended dosages.

http://www.lewybodydementia.org/Boevelink.php

And here is a bunch of other stuff that (on the support

group website) sends to all new members. Don't read it all; it'll be

way too much:

First & foremost:

NO TRADITIONAL ANTIPSYCHOTICS (e.g. Haldol, Chlorpromazine),

NO BENZODIAZEPINES (e.g. Ativan)

NO ANTICHOLINERGIC DRUGS (e.g. Benadryl, Tylenol PM, Detrol, Enablex)

CAUTION with some ATYPICAL ANTIPSYCHOTICS (e.g. Risperidone,

Zyprexa) - but some are used w/ success (e.g. Seroquel,

Clozaril) " Start Low, Go Slow "

Take a moment to post a possible med. before trying - this board has

an archives section w/ tons & tons of warnings about meds that don't

work for those w/ LBD - they are extremely sensitive to meds!

Read here:

Risperdal & Haldol

Message w/ collection of articles re: above

http://health.groups.yahoo.com/group/LBDcaregivers/message/70932

Dementia With Lewy Bodies: A Review Of Clinical

Benzodiazepines (e.g. Ativan) may negatively affect cognition and

produce sedation, paradoxic agitation and increased risk of falls in

the elderly

http://tinyurl.com/2n54qj

Why such strong feelings about benzos?

Message by , also includes info re: an exception to the no benzo

warning, Klonopin, that has been used with success for RBD (REM

Behavior Disorder) by Dr. Boeve.

http://health.groups.yahoo.com/group/LBDcaregivers/message/61849

Evaluating Meds

Advice from a PharmaD via Lin

http://health.groups.yahoo.com/group/LBDcaregivers/message/75551

Legal Stuff - get it done NOW

http://health.groups.yahoo.com/group/LBDcaregivers/files/

scroll down to this document:

The Business of Dementia.doc

The 'legal' things you need to know about

Top links to important LBD resources (IMHO)

A Must Read by Dr. Bradley Boeve

A Comprehensive Approach to Treatment can Significantly Improve the

Quality of Life of Patients with the Lewy body dementias.

http://www.lewybodydementia.org/AR0504BFB.php

Diagnostic Review & Medicine Management

by Bradley F. Boeve, MD (October 2004) Physicians guide to diagnosing

and treating DLB/LBD. Includes recommended dosages.

http://www.lewybodydementia.org/Boevelink.php

*** 2006, September 08 -- Lewy body dementia

From MayoClinic.com, Special to CNN.com. Norma says, " ...this is the

most detailed, accurate information I've ever read about LBD. I think

it should be sent to all new caregivers AND doctors who aren't clear.

Thoughts everyone? " Keli says, " Definately yes!!! This is very

informative yet not overwhelming. It can easily be shared with

others. I intend to have my husband and children read it, and

hopefully my moms dr's as well. Very good information. "

http://www.cnn.com/HEALTH/library/DS/00795.html

LBD Brochure

(to print use legal size paper)

http://www.lewybodydementia.org/docs/LBDAbroch_webLGL.pdf

" Difficulties in Diagnosing Lewy Body Dementia "

by T. MD

http://www.youtube.com/LBDAtv

Live Chat Event with Gomperts, MD

Dr. Gomperts answered your questions in this Q & A session from March

2007 http://www.lewybodydementia.org/docs/gomperts_transcript.pdf

If your LO hasn't been diagnosed yet, make sure they get a FDG-PET

assessment.

http://interactive.snm.org/index.cfm?PageID=7405 & RPID=627

And a summary of what's on this board:

Main board:

http://groups.yahoo.com/group/LBDcaregivers/

(Read your emails via the board vs. your `in box'. And get into all

the different sections that are available on the website. Search

archived messages here.)

Links Section:

http://health.groups.yahoo.com/group/LBDcaregivers/links

(Tons of links that is continuously a `work in progress' – all these

links are useful to the caregiver. A variety of categories neatly

organized into folders – what topic are you interested in? Find the

folder and within it find numerous links to other websites for

additional information.)

Files Section:

http://health.groups.yahoo.com/group/LBDcaregivers/files/

(Read other caregiver's stories, read about the good & bad drugs

here, print a " companion card " from here (cards to hand out in public

areas about your LO's behavior), find the locations of other

caregivers who are possibility living in your immediate area, FAQ

document, LBD Phases by LBD Caring Spouses, etc.)

Database Section:

http://health.groups.yahoo.com/group/LBDcaregivers/database

(Suggested reading, learn the common denominators about our loved

ones, medical referrals, nursing home referrals, bibliography of LBD

in literature and film, etc.)

Photos Section:

http://health.ph.groups.yahoo.com/group/LBDcaregivers/photos

(Put a face to a name.)

Polls Section:

http://health.groups.yahoo.com/group/LBDcaregivers/polls

(Several polls running re: LBD)