Re: SSI and INS.

[Guest guest]

Amy, and All

na had her stints in the first time for 8weeks,(from 6days old), they were

changed once during that time to change where they went and size. She had them

out for only 6 days. They closed that much, that they went back to the smaller

size as well.... They stay in without a problem, she is just having breathing

problems as well and they cannot be sure if it's the stints, airway, or lungs

now... so we are now contacting pulmonary, (another service that we must have

missed (;->). But she is holding her own right now, barely!

Thanks for all the support...

Campanale

johncampanale@...

http://members.truepath.com/hedgebuilder0074/brianna.html

<><><><><><><><><><><><><><><><><><><><><><>

HEDGEBUILDERS---Protecting YOUR family and you......

www.hedge.org/sr/0074.htm

" Making the Internet Safe for Work and Play "

<><><><><><><><><><><><><><><><><><><><><><>

Re: SSI

From: RobinAlanT@...

:

Welcome to the newly wealthy club. I had no idea I was so well off until

the

SSI office informed me of my " rich " status. We do not have a townhouse we

rent out but we do have 2 cars. WOW!!! Let me see - one for my husband to

go to work in and one for me to take Ally to her appts in. Yes this

definitely makes me wealthy. HAHAHAHAHAHA!!!

Robin mom to Ally (14mths) & living on Easy Street (not)

For information about the CHARGE Syndrome Foundation or to become a member

please contact marion@....

---------------------------

[Guest guest]

,

When Kennedy was stinted, she did not breathe out of her nostrils. She still

mouth-breathed, and in order to keep her mouth open at times, we had to keep an

oral airway in her mouth, which we tied around her head to keep it in. (They

usually tape it in all around their mouth, but my hubby came up with a good way

to tie it, less painful). After she learned to mouth breathe decent when she

was awake, we would take it out, but she would close her mouth up when she was

drifting off to sleep and block her airway. Then, we would put the airway back

in. If you want to see a picture of her & her airway, you can at:

http://www.geocities.com/SunsetStrip/Palms/5716/kkairway.html

Hope you get things figured out soon,

Mom to Kennedy 21 mos old CHARGEr, 10, 8, and wife to Graeme

New Brunswick, Canada

Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716

ICQ #1426476

Re: SSI and INS.

Amy, and All

na had her stints in the first time for 8weeks,(from 6days old), they

were changed once during that time to change where they went and size. She had

them out for only 6 days. They closed that much, that they went back to the

smaller size as well.... They stay in without a problem, she is just having

breathing problems as well and they cannot be sure if it's the stints, airway,

or lungs now... so we are now contacting pulmonary, (another service that we

must have missed (;->). But she is holding her own right now, barely!

Thanks for all the support...

Campanale

johncampanale@...

http://members.truepath.com/hedgebuilder0074/brianna.html

<><><><><><><><><><><><><><><><><><><><><><>

HEDGEBUILDERS---Protecting YOUR family and you......

www.hedge.org/sr/0074.htm

" Making the Internet Safe for Work and Play "

<><><><><><><><><><><><><><><><><><><><><><>

Re: SSI

From: RobinAlanT@...

:

Welcome to the newly wealthy club. I had no idea I was so well off

until the

SSI office informed me of my " rich " status. We do not have a

townhouse we

rent out but we do have 2 cars. WOW!!! Let me see - one for my

husband to

go to work in and one for me to take Ally to her appts in. Yes this

definitely makes me wealthy. HAHAHAHAHAHA!!!

Robin mom to Ally (14mths) & living on Easy Street (not)

For information about the CHARGE Syndrome Foundation or to become a

member please contact marion@....

---------------------------