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Re: Ear infections with tubes in place

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Ali uses eye drops for her ears. The name of what she uses is Vasocidin

(Sulfacetamide Sodium Prednisolone Sodium Phosphate) Opthalmic Solution.

She only uses this when her ears are draining. We don't use them daily.

Hope this helps.

Scio, Oregon

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Amy,

It's not my CHARGEr that has ear infections but my daughter (who

will be 21 next week). She had her first ear infection at the age of

10 days old, constant ear infections from then til they put the tubes

in at 1 year (back then they would do tubes til the kids were ayear

old and is prooly part of her hearing loss). she is now on her 13th

set of PE tubes. I had never heard of the ear drops til she was

about 7 or 8 and an ENT Rx'd them.. she uses them daily to

prevent infections (doesn't always work but the sure are fewer since

she's used them), they also help to keep her tubes from plugging

up by keeping the crud not so thick ( the crud in her ears is so

thick and sticky that it will plug her tubes in just a few days,

commonly called a glue ear).

For the life of me I can't remember the actual name (she hasn't

lived here in two years) but they were a cortisporin eye drop. I'll

ask her the name next time I talk to her.

Casey

Mom to Dawn 20 HH, Ken 10 ADHD, 7 CHARGE

ICQ 728514 AIM ZeeCasey

CHARGE Web Page:

http://www.geocities.com/Heartland/1220

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,

Kennedy uses " Garasone " eye drops in her ears when they are sore, infected, or

irritated, and also she uses them up her nose when the junk gets thick or green.

Mom to Kennedy 20 mos old CHARGEr, 10, 8, and wife to Graeme

New Brunswick, Canada

Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716

ICQ #1426476

Re: Ear infections with tubes in place

From: JFoley6163@...

In a message dated 99-10-20 06:28:28 EDT, you write:

<< She uses eye

drops for the ears though because some are dangerous if they get into the

middle ear. Plus some hurt. Check it out with the doctor. When she was

>>

Bonnie,

What kind of eye drops would you use in the ear? And why?

Foley

MOm to 4, (CHARGE angel) and Jillian 19mo cHaRGE

---------------------------

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,

It depends on the infection which eye drop we use. Mostly just tobramycin

because an eye drop is more gentle then ear drops. We use these becasue she

no longer has ear drums, just open to the middle ear. This is good because

she always rejected PE tubes just weeks after placement. She's been open

about 3 years now. Her eustachian tube doesn't work and she gets many

infections. She also gets fluid build up in there. We don't " flush " but

have her suctioned. She has lots of wax, mucus and sometimes polyps. We

used to have to hold her down. Now she holds my hand and plugs her nose.

She says it only hurts a little but feels like they are going to suck her

eyes out her ears. Shell' do it as long as she plugs her nose. Well,

whatever as long as she does it.

Bonnie

Bonnie

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  • 3 weeks later...

Oops, sorry all. Looks like I told the same story twice! You can blame it on

advanced age, or the many things on my

mind these days.

;-)

Anne, mom of Penina

JPM4189@... wrote:

> From: JPM4189@...

>

> << That fizzled a bit when she threw a monster of a temper tantrum in the

> parking lot later. Sigh.

> >>

> Anne,

>

> At least you got the exam done. It's as if it were a delayed reaction.

>

> Janet

>

> Wife to Matt

> Mom to & (CHaRGEr) 7, nne 2 1/2

> Mom to 16 months.

>

> Weymouth, Massachusetts, USA

>

> <A HREF= " http://members.aol.com/jpm4189/page/index.htm " >Our Family Homepage</

> A>

>

> > For information about the CHARGE Syndrome Foundation or to become a member

please contact marion@....

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Oops, sorry all. Looks like I told the same story twice! You can blame it on

advanced age, or the many things on my

mind these days.

;-)

Anne, mom of Penina

JPM4189@... wrote:

> From: JPM4189@...

>

> << That fizzled a bit when she threw a monster of a temper tantrum in the

> parking lot later. Sigh.

> >>

> Anne,

>

> At least you got the exam done. It's as if it were a delayed reaction.

>

> Janet

>

> Wife to Matt

> Mom to & (CHaRGEr) 7, nne 2 1/2

> Mom to 16 months.

>

> Weymouth, Massachusetts, USA

>

> <A HREF= " http://members.aol.com/jpm4189/page/index.htm " >Our Family Homepage</

> A>

>

> > For information about the CHARGE Syndrome Foundation or to become a member

please contact marion@....

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