New to the group

September 14, 2001

Hi, welcome Bobbi! Congrats on your wonderful loss! Very inspiring!!! That

sounds like an excellent snack. I must admit though that veggies are the

hardest for me. I'm not a veggie fan, but I have printed this out and put in my

notebook for a try sometime. I try one new veggie a week. Green beans have

never been my favorite, but doctored up like this it sounds very good.

Lyn

new to the group

I'm new to your group and am learning my way around. I've been OP

for 3 weeks and love the program and I've lost 8lbs. I have a

good salad, veggie, or snack. Combine a can of green beans with a

can of flavored diced tomatoes, add salt and pepper, chill and

enjoy. I used Italian flavor diced tomatoes with the beans and my

husband had thirds. It's quick, easy and I don't think it's any

points. Looking forward to knowing all of you and learning a lot.

Bobbie

September 17, 2001

I missed the veggie snack could you send it my way again???

\

nbbutler@...

December 24, 2001

Hi and welcome! I am new to the group too and am scheduled to have my

consultation with Dr. Levin on 01-08-02! A day after you! We must keep in

touch! I haven't had a baby in almost 6 years and am nervous as well, but my

husband and I want a baby of our own very badly and I can't wait! Let's

stick together! Together we can get thru this!

Hey, if we get it done at the same time, we can get the discount! Lets think

about that one too! (I'm in Michigan)

I had the same procedure as you and would also like to hear from anybody who

has had the same thing done and is pregnant!

Merry Christmas!

new to the group

> hi everyone. i'm new to all this. i have my consultation

> with Dr Levin on 01-07-02. i am very nervous about everything

> it has been 13 years since i had a baby. my fiance wants not just a

> baby, but babies. i had one of the more difficult tubal ligations

> done, the one where they clamp your tubes then burn them. has anyone

> else had this done and had a succesfull reversal (you are now pg). i

> would love to hear your story.

>

December 24, 2001

Hi and welcome! I am new to the group too and am scheduled to have my

consultation with Dr. Levin on 01-08-02! A day after you! We must keep in

touch! I haven't had a baby in almost 6 years and am nervous as well, but my

husband and I want a baby of our own very badly and I can't wait! Let's

stick together! Together we can get thru this!

Hey, if we get it done at the same time, we can get the discount! Lets think

about that one too! (I'm in Michigan)

I had the same procedure as you and would also like to hear from anybody who

has had the same thing done and is pregnant!

Merry Christmas!

new to the group

> hi everyone. i'm new to all this. i have my consultation

> with Dr Levin on 01-07-02. i am very nervous about everything

> it has been 13 years since i had a baby. my fiance wants not just a

> baby, but babies. i had one of the more difficult tubal ligations

> done, the one where they clamp your tubes then burn them. has anyone

> else had this done and had a succesfull reversal (you are now pg). i

> would love to hear your story.

>

December 26, 2001

I'd like to welcome you and both to the group.

I've had my TR but I'm not pg YET! Dr levin did it on

8-20-01. It's been 14 1/2 years since I've had a baby

so I know what you mean about feeling nervous. I'm 34

now and DH is 33. I didn't catch your name (peachs ?)

sorry I know that's not your real name. Congrats on

your consultations!!!

Donna

--- peach3269 wrote:

> hi everyone. i'm new to all this. i have my

> consultation

> with Dr Levin on 01-07-02. i am very nervous about

> everything

> it has been 13 years since i had a baby. my fiance

> wants not just a

> baby, but babies. i had one of the more difficult

> tubal ligations

> done, the one where they clamp your tubes then burn

> them. has anyone

> else had this done and had a succesfull reversal

> (you are now pg). i

> would love to hear your story.

>

=====

Donna Fannin 34

DH Kenny 33

DD's Angie & 15 & 16

DS (bubby)14

TL 3-15-88 TR 8-20-01

__________________________________________________

March 2, 2002

Welcome Maribeth. It sounds like you are doing wonderful this time...

Fran

> Hi my name is Maribeth and I am back at WW after being over goal for about

8 years. I joined this year on January 8th and have lost 22.6 lbs so far.

> Maribeth Beller

> 302/279.4/160

>

October 9, 2003

Hi Tara,

Welcome to the group. I am also new to the group. The people here are very supportive and kind. I think you will also find this group very useful for many reasons. But as for the weight, I am having the same problems.I have a goiter in my neck. I either stay the same or I gain. Nomatter what type of diet I'm on or nomatter how much I exercise. Sometimes it gets kind of depressing for me becouse its like my husband wants his old (slim) wife back, but for some reason, I just cant get back to my old size. I even thought about taking these pills called stacker, but then I found out it has ephedra in it, and from what I heard, ephedra is kindve dangerous.

So I know exactly how you feel. Hang in there, hopefully it will get better,

W.

New To The Group

Hello I am new to the group my name is Tara and I am from Indiana. I am 25 have two children 3 and 9 and twin surrogate sons soon to be 1 on the 20th. I have been battling weight loss for three yearsL I have all the signs of having a hypothyroid accept high cholesterol. Recently since I started having two female cycles in one month and lots of pain my doc did blood work he drew a TSH which the level ended up being low 0.236 he then did a free T4 and Iron. The free T4 was 1.5 and my Iron was low so they put me on 325mg of Iron once twice a day. He has diagnosed me with Hyperthyroid. He claims I can have all the signs of hypo and still be hyper this to me doesn’t sound right. He says he won’t treat me with medicine till 4-6 weeks when I have another blood draw. The past few months I have been able to maintain weight which is at 206 and I am 5’4 but as soon as I start exercising I gain a tonL no matter what diet I try or workout routine I do even if it is every day I cant loose I gainL I am so depressed and I pretty much have given up hope. I have no health insurance it is to expensive cause we are self employed. I just want to feel better and get rid of some of this depressing blubberL any insight would be grateful. Are there any tests that are better than others that I can have him draw? I just don’t see how I can have all the signs of being hypo but yet be hyper

Thanks for any help

Tara

October 13, 2003

Whatever this BC pill is, does it have estrogen in it? I will guarantee you

that, if it does, it can put a major block on your thyroid hormone. Find

out what your tests are before they are run. Don't just obliviously take

for granted what your doc says. It's good that you had antibodies testing,

but you need to find out what that means and also LOOK at your own labs.

RE: New To The Group

> Tara,

>

> I don't know what tests he did to confirm my Hashi's, but all I know is

that they did a whole complete battery of tests. Walked into his office for

a check-up (2 weeks check up, since I was still adjusting to the meds), and

he told me I had Hashi's, and something about the antibodies in my test.

>

> The birth control I'm on is the Nuvaring. You might want to ask about it

and see if it would work for you. I've been on it for 3 months, and I've

been doing great, with no reactions as of yet. Of course, my thyroid is

enlarged, so I'm not sure what that's all about. Hopefully, it's not the

Nuvaring, it has no iron/iodine in it...

>

> I feel like screaming, sometimes... I'm so frustrated with this stupid

disease. Seems like it's always something.

>

> Tara

January 31, 2005

Welcome Kym!

You are an inspiration! As a new tae bo fan it makes me feel good to hear from others who are tae bo success stories years later.

Tae Bo Love

Tyra

----- Original Message -----

Hello all! I'm new here on the group, but not new to Taebo. What is your name? Kym

April 25, 2005

welcome, no advice, just hope you love tae bo as much as I do, just turned 48 and have never done karate...you are probably a step ahead. Delana.

-----Original Message-----From: tae-bo_on [mailto:tae-bo_on ]On Behalf Of BorchardtSent: Sunday, April 24, 2005 11:31 AMTo: tae-bo_on Subject: New To the groupHi all, I am new to all of this, but I must say that doing "Get Ripped" for the first time this AM.. It is for me. I am a 47 yr old grandma that trains in Karate and I just want to pump it up a bit. Any advice for me?As Deb has said: "Fitness is a journey and it begins with the first step.""This isn't about weight loss, it's about enlightenment" -

June 19, 2006

Thanks Regina! Ok, tonight will be my first time back with ! I

think I'll start out with one of the basic tapes, instead of jumping

into the boot camp... I'll keep you posted!

September 17, 2008

Greetings,

My name is Janice. I live just outside of Dallas. My father is an LBD

patient. He lives in Chicago and was diagnosed a year ago. We count it a

blessing that this condition had not dramatically changed our family's routine.

However, my sister who lives with him is beginning to notice changes in his

behavior. These changes are very similar to the ones he exhibited when he was

originally diagnosed a year ago.

I often feel helpless as I listen to my sister share her experiences. This is

all very new to us. My Dad celebrated his 68th birthday on yesterday.

Until recently, he's been the picture of health. He is a cancer survivor - in

remission for over a year. We thought once we got him over that hurdle we'd be

okay. LBD is beginning to change that.

So here I trying to do my part to from TX. My role is to gather as much

information as I can so we can make sound decisions moving forward. Many of

your posts have provided me with valuable insight into LBD. Thank you and God

Bless.

Janice in TX

September 17, 2008

All Right, there you have it Shreveport LA, for Piper. Dear I hope I don't

forget again.

Love a lot,

Imogene

In a message dated 9/17/2008 8:56:56 PM Central Daylight Time,

ppark4915@... writes:

Hi, Janice,

Welcome to our group! I am sorry to hear about your dad, but glad you

found

us. You will find a lot of great people and information here. I live in

Shreveport, LA so I am not too far from you. It sounds like you and your

sister

are great support for each other. We are here for you whenever you have

questions or just need to vent.

Hugs,

Piper

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

September 17, 2008

Janice: Welcome to a group that no one wants to belong to for the reason they

do, but one that should be very helpful to you with all the information you can

get from it. I hope you can share it with your sister and maybe even get her

online, too.

Did your father have surgery for his cancer, and if he did, was he under

anesthetic for a long time? Did his problems appear after that, or worsen if he

already had them. Many have reported that the LO either develops LBD or gets

worse after anesthetic, but there are no scientific studies that I know of.

will be sending you a big list of things to read, among them bad meds

for those with LBD.

Where near Dallas do you live? My sister and her daughter and their families

live in Carrollton. There are others in the Dallas area that are on the list,

too. I don't know if there are any support groups closeby, but if so, it

probably would be helpful for you to join if you can.

Again,welcome, and hope you'll get lots of answers. Be sure to ask questions as

much as you want, as someone will have had experience and have an answer for

you.

June, husband Darrell dx'd AD 1999; possible LBD 2006; died Nov. 2006, autopsy

showed both AD and LBD and possible stroke.

Subject: New to the group

To: LBDcaregivers

Date: Wednesday, September 17, 2008, 6:17 PM

Greetings,

My name is Janice. I live just outside of Dallas. My father is an LBD

patient. He lives in Chicago and was diagnosed a year ago. We count it a

blessing that this condition had not dramatically changed our family's routine.

However, my sister who lives with him is beginning to notice changes in his

behavior. These changes are very similar to the ones he exhibited when he was

originally diagnosed a year ago.

I often feel helpless as I listen to my sister share her experiences. This is

all very new to us. My Dad celebrated his 68th birthday on yesterday.

Until recently, he's been the picture of health. He is a cancer survivor - in

remission for over a year. We thought once we got him over that hurdle we'd be

okay. LBD is beginning to change that.

So here I trying to do my part to from TX. My role is to gather as much

information as I can so we can make sound decisions moving forward. Many of

your posts have provided me with valuable insight into LBD. Thank you and God

Bless.

Janice in TX

September 18, 2008

Here's my 'welcome links'...

I'm glad you found us.

First & foremost:

NO TRADITIONAL ANTIPSYCHOTICS (e.g. Haldol, Chlorpromazine),

NO BENZODIAZEPINES (e.g. Ativan)

NO ANTICHOLINERGIC DRUGS (e.g. Benadryl, Tylenol PM, Detrol, Enablex)

CAUTION with some ATYPICAL ANTIPSYCHOTICS (e.g. Risperidone,

Zyprexa) - but some are used w/ success (e.g. Seroquel,

Clozaril) " Start Low, Go Slow "

Take a moment to post a possible med. before trying - this board has

an archives section w/ tons & tons of warnings about meds that don't

work for those w/ LBD - they are extremely sensitive to meds!

Read here:

Risperdal & Haldol

Message w/ collection of articles re: above

http://health.groups.yahoo.com/group/LBDcaregivers/message/70932

Dementia With Lewy Bodies: A Review Of Clinical

Benzodiazepines (e.g. Ativan) may negatively affect cognition and

produce sedation, paradoxic agitation and increased risk of falls in

the elderly

http://tinyurl.com/2n54qj

Why such strong feelings about benzos?

Message by , also includes info re: an exception to the no benzo

warning, Klonopin, that has been used with success for RBD (REM

Behavior Disorder) by Dr. Boeve.

http://health.groups.yahoo.com/group/LBDcaregivers/message/61849

Evaluating Meds

Advice from a PharmaD via Lin

http://health.groups.yahoo.com/group/LBDcaregivers/message/75551

Legal Stuff - get it done NOW

http://health.groups.yahoo.com/group/LBDcaregivers/files/

scroll down to this document:

The Business of Dementia.doc

The 'legal' things you need to know about

Top links to important LBD resources (IMHO)

A Must Read by Dr. Bradley Boeve

A Comprehensive Approach to Treatment can Significantly Improve the

Quality of Life of Patients with the Lewy body dementias.

http://www.lewybodydementia.org/AR0504BFB.php

Diagnostic Review & Medicine Management

by Bradley F. Boeve, MD (October 2004) Physicians guide to diagnosing

and treating DLB/LBD. Includes recommended dosages.

http://www.lewybodydementia.org/Boevelink.php

*** 2006, September 08 -- Lewy body dementia

From MayoClinic.com, Special to CNN.com. Norma says, " ...this is the

most detailed, accurate information I've ever read about LBD. I think

it should be sent to all new caregivers AND doctors who aren't clear.

Thoughts everyone? " Keli says, " Definately yes!!! This is very

informative yet not overwhelming. It can easily be shared with

others. I intend to have my husband and children read it, and

hopefully my moms dr's as well. Very good information. "

http://www.cnn.com/HEALTH/library/DS/00795.html

LBD Brochure

(to print use legal size paper)

http://www.lewybodydementia.org/docs/LBDAbroch_webLGL.pdf

" Difficulties in Diagnosing Lewy Body Dementia "

by T. MD

http://www.youtube.com/LBDAtv

Live Chat Event with Gomperts, MD

Dr. Gomperts answered your questions in this Q & A session from March

2007 http://www.lewybodydementia.org/docs/gomperts_transcript.pdf

If your LO hasn't been diagnosed yet, make sure they get a FDG-PET

assessment.

http://interactive.snm.org/index.cfm?PageID=7405 & RPID=627

And a summary of what's on this board:

Main board:

http://groups.yahoo.com/group/LBDcaregivers/

(Read your emails via the board vs. your `in box'. And get into all

the different sections that are available on the website. Search

archived messages here.)

Links Section:

http://health.groups.yahoo.com/group/LBDcaregivers/links

(Tons of links that is continuously a `work in progress' – all these

links are useful to the caregiver. A variety of categories neatly

organized into folders – what topic are you interested in? Find the

folder and within it find numerous links to other websites for

additional information.)

Files Section:

http://health.groups.yahoo.com/group/LBDcaregivers/files/

(Read other caregiver's stories, read about the good & bad drugs

here, print a " companion card " from here (cards to hand out in public

areas about your LO's behavior), find the locations of other

caregivers who are possibility living in your immediate area, FAQ

document, LBD Phases by LBD Caring Spouses, etc.)

Database Section:

http://health.groups.yahoo.com/group/LBDcaregivers/database

(Suggested reading, learn the common denominators about our loved

ones, medical referrals, nursing home referrals, bibliography of LBD

in literature and film, etc.)

Photos Section:

http://health.ph.groups.yahoo.com/group/LBDcaregivers/photos

(Put a face to a name.)

Polls Section:

http://health.groups.yahoo.com/group/LBDcaregivers/polls

(Several polls running re: LBD)

; loving daughter of Maureen of Boston, MA; dx'd with LBD in

2/2006 (confirmed via brain biopsy;) fell victim to rapid decline

from Risperidone; Mom fell into the 50% category of those who could

not handle antipsychotics; Was successful on Celexa, Exelon, ALA &

B1; Mom became my Guardian Angel on Sept. 30th, 2006.

>

> Greetings,

>

> My name is Janice. I live just outside of Dallas. My father is

an LBD patient. He lives in Chicago and was diagnosed a year ago.

We count it a blessing that this condition had not dramatically

changed our family's routine. However, my sister who lives with him

is beginning to notice changes in his behavior. These changes are

very similar to the ones he exhibited when he was originally

diagnosed a year ago.

>

> I often feel helpless as I listen to my sister share her

experiences. This is all very new to us. My Dad celebrated his 68th

birthday on yesterday. Until recently, he's been the picture of

health. He is a cancer survivor - in remission for over a year. We

thought once we got him over that hurdle we'd be okay. LBD is

beginning to change that.

>

> So here I trying to do my part to from TX. My role is to gather as

much information as I can so we can make sound decisions moving

forward. Many of your posts have provided me with valuable insight

into LBD. Thank you and God Bless.

>

> Janice in TX

>

September 18, 2008

Hi Janice, Welcome. I live outside of Dallas about 1 mile south of

Fate. I am also a member of the LBD caringspouses yahoo group and

there are a lot of people on the combined groups from Dallas. On

caringspouses it was mentioned that there are enough from the DFW area

to start a support group. My problem is that I do not go anywhere

except maybe a medical appt without my husband. So I do not feel free

to attend much less start one. I have been thinking I could collect

the information of people interested in attending meetings and

therefore help with organizing. Anything like that I can do from home.

Lorraine

husband, Bob, 57, diagnosed with PD and has many LBD symptoms/behaviors

>

> Greetings,

>

> My name is Janice. I live just outside of Dallas. My father is

an LBD patient. He lives in Chicago and was diagnosed a year ago. We

count it a blessing that this condition had not dramatically changed

our family's routine. However, my sister who lives with him is

beginning to notice changes in his behavior. These changes are very

similar to the ones he exhibited when he was originally diagnosed a

year ago.

>

> I often feel helpless as I listen to my sister share her

experiences. This is all very new to us. My Dad celebrated his 68th

birthday on yesterday. Until recently, he's been the picture of

health. He is a cancer survivor - in remission for over a year. We

thought once we got him over that hurdle we'd be okay. LBD is

beginning to change that.

>

> So here I trying to do my part to from TX. My role is to gather as

much information as I can so we can make sound decisions moving

forward. Many of your posts have provided me with valuable insight

into LBD. Thank you and God Bless.

>

> Janice in TX

>

September 18, 2008

That sounds great. I live in Forney in between Dallas and Terrell. We are

military so we will be here for another 2 years. If the group's meetings are

not too far, I'd like to attend. Any information you have would be greatly

appreciated.

Janice

Re: New to the group