Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 Hi everyone Your words of wisdom are needed please. I have a patient I've seen for a little over a year. She came to me with CFS. Made considerable improvement - from hardly being able to get out of bed to leading a reasonable life. Then she found a lump in her throat and I sent her to get it checked out. Turned out to be thyroid cancer. She has had the gland removed and radioactive iodine treatment. She believes she was only able to tolerate the surgery etc because she had got so well on herbs. After the surgery she was remarkably well. Then she got a virus over Christmas - she had a chest infection, plus Abx before she contacted me. I made her up a convalescent mix and she picked up, but then she went to see her endocrinologist. The problem is T3. Obviously she has no thryoid gland now so she has to have alternative. She was given T3 after the surgery. had to stop it before radioactive iodine. then was given it again. The consultant (endocrinologist) wants her on thryoxine. He's not sympathetic at all and really doesn't listen to her. When she takes thryoxine she becomes really unwell. he put her on a graduated changover. 5 weeks of increasing thyroxine reducing T3. On Friday her husband called the GP out so he could see what she was actually like. Unable to get out of bed, unable to walk. On a good day she could go to the bathroom. She's weak, depressed, exhausted. She was 4 weeks into the changeover regime. Over the weekend she decided to stop the thryoxine. She phoned me on Monday and she was already feeling lots better. That is without anything. She was planning to start taking T3 again in a day or so. Recent blood test shows she has thryoglobulin antibodies. Oncologist wants to give her another dose of radioactive iodine. All thoughts, suggestions sought please. Right at this moment she is not taking any herbs at all. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 Hi ,I have personal experience of this issue having had thyroid cancer and struggled on T4 for 22 years ( & developing CFS) before discovering T3 and making a significant recovery. Endocrinologists are reluctant to give cancer patients T3 because of its short half life and the 'theoretical' possibility that this could lead to a shortage of thyroid suppression over night and the possible regrowth of the gland.However, some consultants are these days prepared to try it, especially if it makes such a significant physiological difference as in the case of your patient. The web site Health Unlocked at this address thyroiduk.healthunlocked.com/ has much information on the issue and can provide lists of consultants (possibly for a small charge) who are prepared to prescribe T3 and more importantly, to actually listen to the patient (radical eh?).Of course, the rise in thyroglobulin means they will want to repeat the radioactive iodine treatment, which complicates matters somewhat and perhaps could make it difficult for her to seek alternative support at this stage. However, I don't see T3 being a hindrance to R101 treatment. After all, it will clear out of her system more quickly and lessen the length of preparation needed. I used to have to stop T4 1 month prior to treatment. With T3 it would be out of her system within days.One other thing to mention is that recently I had a major operation and experienced serious complications, apparently due to the T3 in my system. I'm having another op in a couple of weeks and have had to switch to T4 in preparation. Though T3 tends to produce better physiological responses, it seems there are also some potential drawbacks, though perhaps only if you are facing a major operation?I've taken T3 for about three years now and have almost total recovery from CFS. I hope this helps. Best regards, ______________________________________________________________________________________Willow Herbal ClinicWeb: www.willowherbal.co.ukTel: 01903 816426 To: ukherbal-list Sent: Wednesday, 4 April 2012, 9:13 Subject: Thyroid cancer Hi everyone Your words of wisdom are needed please. I have a patient I've seen for a little over a year. She came to me with CFS. Made considerable improvement - from hardly being able to get out of bed to leading a reasonable life. Then she found a lump in her throat and I sent her to get it checked out. Turned out to be thyroid cancer. She has had the gland removed and radioactive iodine treatment. She believes she was only able to tolerate the surgery etc because she had got so well on herbs. After the surgery she was remarkably well. Then she got a virus over Christmas - she had a chest infection, plus Abx before she contacted me. I made her up a convalescent mix and she picked up, but then she went to see her endocrinologist. The problem is T3. Obviously she has no thryoid gland now so she has to have alternative. She was given T3 after the surgery. had to stop it before radioactive iodine. then was given it again. The consultant (endocrinologist) wants her on thryoxine. He's not sympathetic at all and really doesn't listen to her. When she takes thryoxine she becomes really unwell. he put her on a graduated changover. 5 weeks of increasing thyroxine reducing T3. On Friday her husband called the GP out so he could see what she was actually like. Unable to get out of bed, unable to walk. On a good day she could go to the bathroom. She's weak, depressed, exhausted. She was 4 weeks into the changeover regime. Over the weekend she decided to stop the thryoxine. She phoned me on Monday and she was already feeling lots better. That is without anything. She was planning to start taking T3 again in a day or so. Recent blood test shows she has thryoglobulin antibodies. Oncologist wants to give her another dose of radioactive iodine. All thoughts, suggestions sought please. Right at this moment she is not taking any herbs at all. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 Wouldn't selenium/mineral supplemetation help conversion from T4 to T3? J Fidler, MCPP, (RH) AHGHerbalist To: "ukherbal-list " <ukherbal-list > Sent: Wednesday, April 4, 2012 5:59 AM Subject: Re: Thyroid cancer Hi ,I have personal experience of this issue having had thyroid cancer and struggled on T4 for 22 years ( & developing CFS) before discovering T3 and making a significant recovery. Endocrinologists are reluctant to give cancer patients T3 because of its short half life and the 'theoretical' possibility that this could lead to a shortage of thyroid suppression over night and the possible regrowth of the gland.However, some consultants are these days prepared to try it, especially if it makes such a significant physiological difference as in the case of your patient. The web site Health Unlocked at this address thyroiduk.healthunlocked.com/ has much information on the issue and can provide lists of consultants (possibly for a small charge) who are prepared to prescribe T3 and more importantly, to actually listen to the patient (radical eh?).Of course, the rise in thyroglobulin means they will want to repeat the radioactive iodine treatment, which complicates matters somewhat and perhaps could make it difficult for her to seek alternative support at this stage. However, I don't see T3 being a hindrance to R101 treatment. After all, it will clear out of her system more quickly and lessen the length of preparation needed. I used to have to stop T4 1 month prior to treatment. With T3 it would be out of her system within days.One other thing to mention is that recently I had a major operation and experienced serious complications, apparently due to the T3 in my system. I'm having another op in a couple of weeks and have had to switch to T4 in preparation. Though T3 tends to produce better physiological responses, it seems there are also some potential drawbacks, though perhaps only if you are facing a major operation?I've taken T3 for about three years now and have almost total recovery from CFS. I hope this helps. Best regards, ______________________________________________________________________________________Willow Herbal ClinicWeb: www.willowherbal.co.ukTel: 01903 816426 To: ukherbal-list Sent: Wednesday, 4 April 2012, 9:13 Subject: Thyroid cancer Hi everyone Your words of wisdom are needed please. I have a patient I've seen for a little over a year. She came to me with CFS. Made considerable improvement - from hardly being able to get out of bed to leading a reasonable life. Then she found a lump in her throat and I sent her to get it checked out. Turned out to be thyroid cancer. She has had the gland removed and radioactive iodine treatment. She believes she was only able to tolerate the surgery etc because she had got so well on herbs. After the surgery she was remarkably well. Then she got a virus over Christmas - she had a chest infection, plus Abx before she contacted me. I made her up a convalescent mix and she picked up, but then she went to see her endocrinologist. The problem is T3. Obviously she has no thryoid gland now so she has to have alternative. She was given T3 after the surgery. had to stop it before radioactive iodine. then was given it again. The consultant (endocrinologist) wants her on thryoxine. He's not sympathetic at all and really doesn't listen to her. When she takes thryoxine she becomes really unwell. he put her on a graduated changover. 5 weeks of increasing thyroxine reducing T3. On Friday her husband called the GP out so he could see what she was actually like. Unable to get out of bed, unable to walk. On a good day she could go to the bathroom. She's weak, depressed, exhausted. She was 4 weeks into the changeover regime. Over the weekend she decided to stop the thryoxine. She phoned me on Monday and she was already feeling lots better. That is without anything. She was planning to start taking T3 again in a day or so. Recent blood test shows she has thryoglobulin antibodies. Oncologist wants to give her another dose of radioactive iodine. All thoughts, suggestions sought please. Right at this moment she is not taking any herbs at all. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 Hi susan She is taking supplements, thanks anyway. Mg Selenium, Vit D, Vit B complex and lots of others. She just isn't taking any herbs at the moment but that is mainly because she has run out - I was about to give her commiphora mukulbecause I've read that it helps the conversion, but as she's back on T3 or will be soon, I didn't see much point. , thanks for that. She already has all the info from thryoiduk. She has been a very well-informed patient. We've talked about her going to see someone else e.g Dr Skinner in Birmingham would be within her traveling distance although at the moment she can just about get downstairs, and doesn't get dressed most days. One of the things we've talked about is bovine replacement. but - first of all I don't know anything about it beyond what I've read on sites like thyroiduk and in Barry Durant Peatfield's book and 2 - she's had cancer and all conventional treatment is aimed at removing all thyroid cells from the body so putting in " foreign' supplement that is actually thryoid gland doesn't seem logical, or feel right. That's a totally subjective feeling on my part (not based on any ideology - I eat meat, but not offal) and I realise that that is miles away from any scientific explanation. Maybe someone can disavow me of that notion? Or support it with something substantial? I know it would be anathema to many herbalists anyway, but all views welcome. I'll probably give her another general Rx to support everything, but if there are any other ideas, please do let me know. Thanks > > Wouldn't selenium/mineral supplemetation help conversion from T4 to T3? > > Â > J Fidler, MCPP, (RH) AHG > Herbalist > > > ________________________________ > > To: " ukherbal-list " <ukherbal-list > > Sent: Wednesday, April 4, 2012 5:59 AM > Subject: Re: Thyroid cancer > > > Â > Hi , > > I have personal experience of this issue having had thyroid cancer and struggled on T4 for 22 years ( & developing CFS) before discovering T3 and making a significant recovery. Endocrinologists are reluctant to give cancer patients T3 because of its short half life and the 'theoretical' possibility that this could lead to a shortage of thyroid suppression over night and the possible regrowth of the gland. > > However, some consultants are these days prepared to try it, especially if it makes such a significant physiological difference as in the case of your patient. The web site Health Unlocked at this addressthyroiduk.healthunlocked.com/ has much information on the issue and can provide lists of consultants (possibly for a small charge) who are prepared to prescribe T3 and more importantly, to actually listen to the patient (radical eh?). > > Of course, the rise in thyroglobulin means they will want to repeat the radioactive iodine treatment, which complicates matters somewhat and perhaps could make it difficult for her to seek alternative support at this stage. However, I don't see T3 being a hindrance to R101 treatment. After all, it will clear out of her system more quickly and lessen the length of preparation needed. I used to have to stop T4 1 month prior to treatment. With T3 it would be out of her system within days. > > > One other thing to mention is that recently I had a major operation and experienced serious complications, apparently due to the T3 in my system. I'm having another op in a couple of weeks and have had to switch to T4 in preparation. Though T3 tends to produce better physiological responses, it seems there are also some potential drawbacks, though perhaps only if you are facing a major operation? > > I've taken T3 for about three years now and have almost total recovery from CFS. > > > I hope this helps. > > > Best regards, > > > > Â > ________________________________________________________________________________\ ______ > > > Willow Herbal Clinic > Web: www.willowherbal.co.uk > Tel: 01903 816426 > > > ________________________________ > > To: ukherbal-list > Sent: Wednesday, 4 April 2012, 9:13 > Subject: Thyroid cancer > > > Â > Hi everyone > > Your words of wisdom are needed please. > > I have a patient I've seen for a little over a year. She came to me with CFS. Made considerable improvement - from hardly being able to get out of bed to leading a reasonable life. > Then she found a lump in her throat and I sent her to get it checked out. > Turned out to be thyroid cancer. > She has had the gland removed and radioactive iodine treatment. > She believes she was only able to tolerate the surgery etc because she had got so well on herbs. > After the surgery she was remarkably well. > Then she got a virus over Christmas - she had a chest infection, plus Abx before she contacted me. I made her up a convalescent mix and she picked up, but then she went to see her endocrinologist. > > The problem is T3. Obviously she has no thryoid gland now so she has to have alternative. She was given T3 after the surgery. had to stop it before radioactive iodine. then was given it again. The consultant (endocrinologist) wants her on thryoxine. He's not sympathetic at all and really doesn't listen to her. When she takes thryoxine she becomes really unwell. > he put her on a graduated changover. 5 weeks of increasing thyroxine reducing T3. > > On Friday her husband called the GP out so he could see what she was actually like. Unable to get out of bed, unable to walk. On a good day she could go to the bathroom. She's weak, depressed, exhausted. She was 4 weeks into the changeover regime. > Over the weekend she decided to stop the thryoxine. She phoned me on Monday and she was already feeling lots better. That is without anything. > She was planning to start taking T3 again in a day or so. > > Recent blood test shows she has thryoglobulin antibodies. > Oncologist wants to give her another dose of radioactive iodine. > > All thoughts, suggestions sought please. > Right at this moment she is not taking any herbs at all. > > Thanks > > Quote Link to comment Share on other sites More sharing options...
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