My View

[Guest guest]

Mike

I am not saying uproot the group. The facebook was just a place to be able to

talk with friends we are already comfy with and exchange thoughts that has

nothing to do with this site. PLEASE PLEASE dont think I want to take this away.

Yes we could do a chat on msn for the nasty monster. I want to be here I want

you all to be here for me. I just want a place that I can go to and say hey has

anybody tried green beans and kidney beans together..There are so many bad

people out there that I thought if we had a safe haven of our friends from here

we could be more comfy chatting. Also maybe with our name on Facebook more

people will join us here.

>

> On facebook firat there nothing wrong with it. I do see by switching our group

over tob facebook we will lose members. and stop new members from finding us. do

we need a chat area yes msn messenger will work. or another. but to uproot the

group I cant do that. Mike group owner

>

[Guest guest]

I'm windows live messenger (msn, whatever) if anyone wants to add me, please do

(mention SCS group in add please;)

badbacktimes5@... is my login

Tamra

From: Mike <mike2boys@...>

Subject: my view

Stimulator

Date: Wednesday, April 1, 2009, 4:44 PM

On facebook firat there nothing wrong with it. I do see by switching

our group over tob facebook we will lose members. and stop new members from

finding us. do we need a chat area yes msn messenger will work. or another. but

to uproot the group I cant do that. Mike group owner

[Guest guest]

There is know reason why we can't talk about recipes or anything like that on

here either, I beleive like Mike says it will draw to many members away and to

many new members will go there instead of coming here to get the main info they

are look for. Maybe Mike and the Group Moderators can come up with something

like make different topics like " What you all eatin for dinner tonight " you know

stuff like that. You yourself can open a chat time on MSN and talk to all kinds

of people at once by opening a chat room. This site took time to set up, we

can't just say ok we will just all move over to this place and start over Mike

has put allot of time into it you know.

Kathy Sweet

Group Moderator

> >

> > On facebook firat there nothing wrong with it. I do see by switching our

group over tob facebook we will lose members. and stop new members from finding

us. do we need a chat area yes msn messenger will work. or another. but to

uproot the group I cant do that. Mike group owner

> >

>

[Guest guest]

I run a Group on here for Rett Syndrome Support with 500 people, and

that's EXACTLY what we do!  We find the one's on facebook that we know pretty

well and communicate privately that way but our group is the main

From: fpddcso <fpddcso@...>

Subject: Re: my view

Stimulator

Date: Wednesday, April 1, 2009, 4:50 PM

Mike

I am not saying uproot the group. The facebook was just a place to be able to

talk with friends we are already comfy with and exchange thoughts that has

nothing to do with this site. PLEASE PLEASE dont think I want to take this away.

Yes we could do a chat on msn for the nasty monster. I want to be here I want

you all to be here for me. I just want a place that I can go to and say hey has

anybody tried green beans and kidney beans together..There are so many bad

people out there that I thought if we had a safe haven of our friends from here

we could be more comfy chatting. Also maybe with our name on Facebook more

people will join us here.

>

> On facebook firat there nothing wrong with it. I do see by switching our group

over tob facebook we will lose members. and stop new members from finding us. do

we need a chat area yes msn messenger will work. or another. but to uproot the

group I cant do that. Mike group owner

>

[Guest guest]

Hi all,

I guess I was under the impression(sp) that we needed to stick to the subject of

our pain SCS etc. If we are able to be open and share more beyond the pain then

hey I am all for it. I was just looking for a way to help bring us all closer as

a family by including our family and lives into this picture. You have all done

so much for me and been there for me with my questions that I want to share and

know more about all of you that you are willing to share.

Like I stated and maybe have OT topics to break it up sometimes.

> > >

> > > On facebook firat there nothing wrong with it. I do see by switching our

group over tob facebook we will lose members. and stop new members from finding

us. do we need a chat area yes msn messenger will work. or another. but to

uproot the group I cant do that. Mike group owner

> > >

> >

>

[Guest guest]

Sue,

I have run an RSD support group for 10+ years now. We have always discussed just

about anything and everything under the sun. However, through those years I know

that many of our members communicate privately through emails and instant

messages. For a time we had a private chat room but little response. Today I

know that many of our members are on Facebook or other sites, that is their

business. What people do in the private lives is none of my business and does

not pose any threat to our support group.

I do not understand why you are so worried about a group of your members letting

each other know that they all also belong to Facebook. Let them discuss their

pros/cons, ups and downs with their SCS on your board and how old their kids are

or what they watch on TV in Facebook. It is not going to affect either site.

Dorothy

[Guest guest]

what gives you the idea that any topic was threating or heated? in here all canh

be discussed no matterv the topic as long as it doesnt hurt others mike group

owner

>

> Sue,

> I have run an RSD support group for 10+ years now. We have always discussed

just about anything and everything under the sun. However, through those years I

know that many of our members communicate privately through emails and instant

messages. For a time we had a private chat room but little response. Today I

know that many of our members are on Facebook or other sites, that is their

business. What people do in the private lives is none of my business and does

not pose any threat to our support group.

>

> I do not understand why you are so worried about a group of your members

letting each other know that they all also belong to Facebook. Let them discuss

their pros/cons, ups and downs with their SCS on your board and how old their

kids are or what they watch on TV in Facebook. It is not going to affect either

site.

>

> Dorothy

>

>

>

>

[Guest guest]

dorthy sue gave her opions drop it ok mike group owner

>

> Sue,

> I have run an RSD support group for 10+ years now. We have always discussed

just about anything and everything under the sun. However, through those years I

know that many of our members communicate privately through emails and instant

messages. For a time we had a private chat room but little response. Today I

know that many of our members are on Facebook or other sites, that is their

business. What people do in the private lives is none of my business and does

not pose any threat to our support group.

>

> I do not understand why you are so worried about a group of your members

letting each other know that they all also belong to Facebook. Let them discuss

their pros/cons, ups and downs with their SCS on your board and how old their

kids are or what they watch on TV in Facebook. It is not going to affect either

site.

>

> Dorothy

>

>

>

>

[Guest guest]

Hey Kathy!

I have reading all these posts on the Face Book idea presented by . I

absolutley agree with Mike that we will not uproot our group to go to face

book, but I don't think that this is 's intention at all. It will be a

great idea for chatting.

In fact, it will take some of the off topic areas where alot of the members

have said is hard to keep up with. In NO way, shape or form am I saying that

our group is soley for pain issues, Mike and I do not feel that way. But,

it would be great to have a chat line...open ONLY to us...as has

said...a closed face book.

I just got back from Vacation and before that one hell of a few painful

weeks....so I have about 1000 messages to review. I will chat with Mike about

all this, and then I will get back to you.

Kathy G.

Group Co-Owner

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

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[Guest guest]

It's strange that I had just created this stationary, when Marty stated that he didn't think politics should be on this group. And that is ok, Marty. I hope it won't irritate you very much Marty, because I do, up to a point. The laws control the knowledge in this country (and around the world), that affects our foods, our environment, our medical world and so much more. If we are not aware of the truth, then we cannot make our wants known to the politicians, and hopefully get only the good laws passed. And the Truths are critical to our health and well being. How many people in the world think that food labels contain all of the ingredients? They don't in most countries, including the USA. Also, the ingredients are sometimes labeled with a new name to misguide us. Without the laws that are being considered right now, genetically modified food products ingredients will not be put on labels. ly, I want to know if there are any genetically modified ingredients in my food. As most know, in the USA and some other countries, herbal supplements are being ousted by pharmaceutical companies through politicians passing new laws. Vaccinations which can be harmful, have become mandated through laws in some of the states, here in the USA. Now do you understand why I say, discussing politics are good up to a point. No, I do not want this group to become a political discussion group. But I do want everyone to know what is going on in the political scene. It's crucial to our health. And unfortunately, a lot of it, is not in the news. If it is, we are not necessarily getting the whole truth, either. Therefore I will still be posting articles or petitions that is crucial to our well being. Blessings and Love to All. Joy

[Guest guest]

This is the way I see it, I don't want members of the group to feel that this group is a right wing or left wing group. You know, not that every one on this group is from the USA. Here in the USA we are polarized by republicans, democrats, then we have our independents. That is where I think we can draw the line. We don't want feelings hurt, and unfortunately feelings do get hurt, because people feel that we may be picking on a certain party.I for one would not do that, I stand for the truth either way. I even became a republican back in the last election so that I could vote for Ron in the primaries. Then I went back to being a democrat to vote for Obama. And I didn't think that he would be the miracle candidate.There are so many things broken here in the USA. How could one man do more than what his puppet

masters let him? In a sense because of this a lot of people have seen the light. They see that it doesn't matter what party the president comes from, it's all the same. They can only do what is allowed. If our voices are being heard by our representatives because we made a big noise then we would be getting some where. But we are very occupied by life, aren't we? We are busy, kept busy and by the time we have the time to do anything worth while, we are doing some R & R. We are stressed out so true isn't it?I hear that writing letter by snail mail really helps, our senators adhere to that, same with calling in to Washington and telling our reps what we want. I have done both.For me health issues have always been my top priority. Its very important to me what I eat and purchase at the grocery store. I have learned years ago to read labels. Now that I know about GMO foods

I am tending to buy organic mostly. I bake with organic flours and sugars too.I would think that we have been duped, why? we have so many allergies now and cancers, we are riddled with chemicals from every which way we turn, from the air we breathe to the water we drink, and then the foods we eat and the drugs that they push on us, through advertising on tv, magazines, and then you get some more when you go see your physician that you want to trust. All this is political. No doubt. If wall street stocks go up and down by consumer-ism, if then Obama gives a speech on war, and the stock market goes up or down, it is all tied in to one another.You know that there are people that make money on disasters? Same with the stock market, same with the housing crisis, same with people getting sick from vaccinations, or from their diet, or where they

work.Corporations make profits from wars, that is why we are still in wars. Banks make a heap of money on wars, the blood of our sons and daughters. For me war is not a political issue, its a money making issue. We want to spread democracy unto nations that are religious, why? because we want them to buy Mc's hamburgers, we want them to buy sony TV's, we want them to be American-ized. It sickens me to no end.So on that note, I will continue what I do for the group, the same as always.Blessings,MicheleFrom: Joyce Hudson <bjoyful@...>Subject: [ ] My View Date: Monday, June 28, 2010, 12:33

PM

It's strange that I had just created this stationary, when Marty stated that he didn't think politics should be on this group. And that is ok, Marty. I hope it won't irritate you very much Marty, because I do, up to a point. The laws control the knowledge in this country (and around the world), that affects our foods, our environment, our medical world and so much more. If we are not aware of the truth, then we cannot make our wants known to the politicians, and hopefully get only the good laws passed. And the Truths are critical to our health and well being. How many people in the world think that food labels contain all of the ingredients? They don't in most countries, including the USA. Also, the ingredients are sometimes labeled with a new name to misguide us. Without the laws that are being considered right now, genetically modified food products ingredients will not be put on labels. ly, I want to know if there are any genetically modified ingredients in my food. As most know, in the USA and some other countries, herbal supplements are being ousted by pharmaceutical companies through politicians passing new laws. Vaccinations which can be harmful, have become mandated through laws in some of the states, here in the USA. Now do you understand why I say, discussing politics are good up to a point. No, I do not want this group to become a political discussion group. But I do want everyone to know what is going on in the political scene. It's crucial to our health. And unfortunately, a lot of it, is not in the news. If it is, we are not necessarily getting the whole truth, either. Therefore I will still be posting articles or petitions that is crucial to our well being. Blessings and Love to All. Joy

[Guest guest]



I am going to reply inside of your letter.

[ ] My View Date: Monday, June 28, 2010, 12:33 PM

It's strange that I had just created this stationary, when Marty stated that he didn't think politics should be on this group. And that is ok, Marty. I hope it won't irritate you very much Marty, because I do, up to a point. The laws control the knowledge in this country (and around the world), that affects our foods, our environment, our medical world and so much more. If we are not aware of the truth, then we cannot make our wants known to the politicians, and hopefully get only the good laws passed. And the Truths are critical to our health and well being. How many people in the world think that food labels contain all of the ingredients? They don't in most countries, including the USA. Also, the ingredients are sometimes labeled with a new name to misguide us. Without the laws that are being considered right now, genetically modified food products ingredients will not be put on labels. ly, I want to know if there are any genetically modified ingredients in my food. As most know, in the USA and some other countries, herbal supplements are being ousted by pharmaceutical companies through politicians passing new laws. Vaccinations which can be harmful, have become mandated through laws in some of the states, here in the USA. Now do you understand why I say, discussing politics are good up to a point. No, I do not want this group to become a political discussion group. But I do want everyone to know what is going on in the political scene. It's crucial to our health. And unfortunately, a lot of it, is not in the news. If it is, we are not necessarily getting the whole truth, either. Therefore I will still be posting articles or petitions that is crucial to our well being. Blessings and Love to All. Joy

[Guest guest]

Drilling to deep..

if there is a big bubble [[[ of oil ]]] under the ground,and we take it all out,//what will keep the ground from colapsing....

this wouls be a shift in the earths crust,that could very well set off a earth quake..

it will change the presure of that area,under ground.

but you will not hear it from the ones that already know this.

Marty

living in the cosmic swirl,going round and round,singing my song,Dancing my dance...Stompingelk,

From: Joyce Hudson <bjoyfuliglou (DOT) com>Subject: [ ] My View Date: Monday, June 28, 2010, 12:33 PM

It's strange that I had just created this stationary, when Marty stated that he didn't think politics should be on this group. And that is ok, Marty. I hope it won't irritate you very much Marty, because I do, up to a point. The laws control the knowledge in this country (and around the world), that affects our foods, our environment, our medical world and so much more. If we are not aware of the truth, then we cannot make our wants known to the politicians, and hopefully get only the good laws passed. And the Truths are critical to our health and well being. How many people in the world think that food labels contain all of the ingredients? They don't in most countries, including the USA. Also, the ingredients are sometimes labeled with a new name to misguide us. Without the laws that are being considered right now, genetically modified food products ingredients will not be put on

labels. ly, I want to know if there are any genetically modified ingredients in my food. As most know, in the USA and some other countries, herbal supplements are being ousted by pharmaceutical companies through politicians passing new laws. Vaccinations which can be harmful, have become mandated through laws in some of the states, here in the USA. Now do you understand why I say, discussing politics are good up to a point. No, I do not want this group to become a political discussion group. But I do want everyone to know what is going on in the political scene. It's crucial to our health. And unfortunately, a lot of it, is not in the news. If it is, we are not necessarily getting the whole truth, either. Therefore I will still be posting articles or petitions that is crucial to our well being. Blessings and Love to All.

Joy