Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 Thankyou Zahavi - I will look into your suggestions, though on initial googling of Dr Simoncini I only seem to be coming up with iodine for cancer treatment. Nettie > > > > My 24 year old son has psoriasis which has flared again lately, > and > > even though I have told him to find a doctor (he is in New > Zealand) to > > prescribe LDN for him, I am worried he will be unsuccessful. > > > > I am wondering if there is anyone out there with psoriasis who has > had > > success with LDN, before I wage an all out effort to get some for > him > > on this side of the world, OR if there is anyone out there who > lives in > > NZ who has found a doctor who will prescribe. I'm not even sure > that > > NZ has compound pharmacies, though I think they must. When I > return to > > live in NZ in a few years, I am going to have to find a supply for > > myself, though hopefully by then it will not be an uphill battle. > > > > Cheers, Nettie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 Psoriasis The treatment to choose for psoriasis is iodine solution at seven per cent, as it is capable of precipitating the proteins of the body of the fungus and destroying them completely in a short time. If the spots are fairly small, they must be painted with the solution 10-20-30 times twice a day for five days and then once for another ten days so that they become very dark. When the eschar is formed and it is higher than the epidermic plane, it is necessary to continue to paint underand above it, even if at first this causes a sharp pain. http://www.curenaturalicancro.com/protocol-psoriasis.html > > > > > > My 24 year old son has psoriasis which has flared again lately, > > and > > > even though I have told him to find a doctor (he is in New > > Zealand) to > > > prescribe LDN for him, I am worried he will be unsuccessful. > > > > > > I am wondering if there is anyone out there with psoriasis who > has > > had > > > success with LDN, before I wage an all out effort to get some for > > him > > > on this side of the world, OR if there is anyone out there who > > lives in > > > NZ who has found a doctor who will prescribe. I'm not even sure > > that > > > NZ has compound pharmacies, though I think they must. When I > > return to > > > live in NZ in a few years, I am going to have to find a supply > for > > > myself, though hopefully by then it will not be an uphill battle. > > > > > > Cheers, Nettie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 >From: Colleen <colleen521@...> >Date: 2008/09/02 Tue AM 08:55:18 CDT > " nettie.elder " <nettie.elder@...>, low dose naltrexone >Subject: Re: [low dose naltrexone] Psoriasis >I have had psoriasis for over 25 years and NOTHING helped! Once I started the LDN (3mgs) daily - within a couple of weeks the plaques were 90% gone (a little skin discoloration in the areas where the plaques were) But needless to say I WAS SO HAPPY to be able to wear sleeveless shirts and not feel so ugly and insecure. > >I hope this helped, >Colleen > > > > > > >>From: " nettie.elder " <nettie.elder@...> >>Date: 2008/09/02 Tue AM 08:55:18 CDT >>low dose naltrexone >>Subject: [low dose naltrexone] Psoriasis > >> >>My 24 year old son has psoriasis which has flared again lately, and >>even though I have told him to find a doctor (he is in New Zealand) to >>prescribe LDN for him, I am worried he will be unsuccessful. >> >>I am wondering if there is anyone out there with psoriasis who has had >>success with LDN, before I wage an all out effort to get some for him >>on this side of the world, OR if there is anyone out there who lives in >>NZ who has found a doctor who will prescribe. I'm not even sure that >>NZ has compound pharmacies, though I think they must. When I return to >>live in NZ in a few years, I am going to have to find a supply for >>myself, though hopefully by then it will not be an uphill battle. >> >>Cheers, Nettie >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Yes i have psoriasis Jolene In a message dated 9/20/2008 7:43:27 P.M. Eastern Daylight Time, kamilleon@... writes: Does anyone else here suffer from outbreaks of psoriasis? *~ Kami ~* [Non-text portions of this message have been removed] **************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Yes i have psoriatic arthritis.. He treats me for psoriatic arthritis as i started with the psoriasis. I also have crps which is complex regional pain syndrome. The ra factors were negative. But the signs of psoriasis just strated a year ago, followed from a stress fracture. They had a hard time figuring it all out it seems to go together. My crp was 6.8 when i started with the methotrexate. I didn't have the classis psoriasis i had it on my legs and back and elbows .. Nothing worked no creams, steroids nothing till the methotrexate. Now it is 90 percent gone. I am 43 and just got psoriais.. Jolene In a message dated 9/20/2008 8:09:09 P.M. Eastern Daylight Time, kamilleon@... writes: Do you have Psoriatic Arthritis? I am confused by all of this. *~ Kami ~* Re: [ ] Psoriasis Yes i have psoriasis Jolene In a message dated 9/20/2008 7:43:27 P.M. Eastern Daylight Time, _kamilleon@..._ (mailto:kamilleon@...) writes: Does anyone else here suffer from outbreaks of psoriasis? *~ Kami ~* [Non-text portions of this message have been removed] ************************<WBR>**Looking for simple solutions to your rea challenges? Check out WalletPop for the latest news and information, tips and calculators. (_http://www.walletpohttp://www.whttp://www.wallehttp_ (http://www.walletpop.com/?NCID=emlcntuswall00000001) ) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Do you have Psoriatic Arthritis? I am confused by all of this. *~ Kami ~* Re: [ ] Psoriasis Yes i have psoriasis Jolene In a message dated 9/20/2008 7:43:27 P.M. Eastern Daylight Time, kamilleon@... writes: Does anyone else here suffer from outbreaks of psoriasis? *~ Kami ~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Kami and group; Yes I suffer from psorisis on my feet and my hands. It started a couple years ago as a fungal infections. It finally cleared up with precription creams. Now I have just psorisis on it now. My palms are cleared up. I guess I got to stop going barefoot to clear it up my the bottom of my feet. gentle hugs Clora > Does anyone else here suffer from outbreaks of psoriasis? > > > *~ Kami ~* > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Yes true. My rheumy believe that since both treatments are most similar he diagnosed me with the psoriatic as the presentation of the psoriasis at my age 43 then the joint pain followed. Jolene In a message dated 9/21/2008 8:22:50 P.M. Eastern Daylight Time, Rheumatoid.Arthritis.Support@... writes: Kami, It's not unusual for people with RA to have psoriasis, too; however, to have both RA and psoriatic arthritis is rare. Also, the TNF blockers can cause psoriasis-like rashes. Not an MD On Sat, Sep 20, 2008 at 6:42 PM, ~ Kami ~ <_kamilleon@..._ (mailto:kamilleon@...) > wrote: > Does anyone else here suffer from outbreaks of psoriasis? > > *~ Kami ~* **************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Kami, It's not unusual for people with RA to have psoriasis, too; however, to have both RA and psoriatic arthritis is rare. Also, the TNF blockers can cause psoriasis-like rashes. Not an MD On Sat, Sep 20, 2008 at 6:42 PM, ~ Kami ~ <kamilleon@...> wrote: > Does anyone else here suffer from outbreaks of psoriasis? > > *~ Kami ~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Thanks! I have an appointment with a dermatologist on the 29th but when I was at my family doctor, he told me it was psoriasis. All of a sudden I am having tremendous pain in my ankles, elbows, and wrists..... I went off MTX this week so I am pretty sure that is why but.... I am so FRUSTRATED.... ****~**** Kami ****~**** Re: [ ] Psoriasis Kami, It's not unusual for people with RA to have psoriasis, too; however, to have both RA and psoriatic arthritis is rare. Also, the TNF blockers can cause psoriasis-like rashes. Not an MD On Sat, Sep 20, 2008 at 6:42 PM, ~ Kami ~ <kamilleon@...> wrote: > Does anyone else here suffer from outbreaks of psoriasis? > > *~ Kami ~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Good luck Kami! Hope you get some answers when you see the dermatologist. Sending good vibes your way, and a gentle hug, Tawny > > Thanks! I have an appointment with a dermatologist on the 29th but when I was at my family doctor, he told me it was psoriasis. All of a sudden I am having tremendous pain in my ankles, elbows, and wrists..... I went off MTX this week so I am pretty sure that is why but.... I am so FRUSTRATED.... > > > ****~**** Kami ****~**** > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 I have psoriasis and psoriatic arthritis. Some pretty drastic meds have been recommended to me. I’ve been on ldn for about 10 weeks. There is very significant improvement in my skin, and even more in my joints. I still have ups and downs, especially in cold or rainy weather. There is no doubt that the improvement is dramatic. I’m encouraged to hear that I might feel even better in a few more months. Carol Brockmon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Great News Carole, I have psoriasis also and LDN has helped. It took a lot longer than your though. So I think that is a good sign that you will do very well with LDN. All my best Aletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 It took about six months for my psoriasis to start clearing up. I suspect that at my age, 72, everything takes longer to get better, and I don't really expect a full recovery. The arthritis is not responding as well as the rash. Last week I had a lapse in judgement, and ate some wheat bread. The psoriasis on my elbows has flared up again, after being totally gone. Is it possible that wheat, or other allergens, can trigger a flare? Has anyone else had this experience? I thought my wheat allergy reaction was just respiratory. Konnie > > Great News Carole, I have psoriasis also and LDN has helped. It took a lot longer than your though. So I think that is a good sign that you will do very well with LDN. > > All my best > Aletha > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 dr simoncini says that psoriasis is a fungus and treat it with iodine 7%.if you go to the site of doug kaufman then you can see that all grains cause candida (fungus). http://www.knowthecause.com/ if you do his diet and use the antifungal products like olive leaf extract,oragano caprilic acids,etc you might get rid of the psoriasis and artritis. here is a dutch article about psoriasis that recomend also transdermal magnesium chloride http://deeyeopener.web-log.nl/eye_opener/2008/11/toepassing-van.html > > > > Great News Carole, I have psoriasis also and LDN has helped. It > took a lot longer than your though. So I think that is a good sign > that you will do very well with LDN. > > > > All my best > > Aletha > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Hi Konnie, Do you think you might have a gluten sensitivity ?? ...or do you know that you specifically have a 'wheat allergy' ?? I think an allergy can manifest its symptoms ~wherever. ie; as a rash, as asthma / breathing issues. It's good to hear that the LDN is helping your skin rash...very encouraging to for a lot of folks. Jann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Konnie: I’m 68. I did get some improvement quickly, but now, after almost three months it’s considerable—especially the joints. I still get flare ups that I think are weather related—so I don’t know about the food allergy possibility. Good Luck. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Konnie, for Arthritis, I would definitely check out Cyndi's video clip of Dr. Berkson (part #3). He has had amazing results with auto-immune arthritis. He uses ALA in an IV to start, LDN and diet. It sounds like a definite winner. Don't worry about your age Konnie, no matter what your age you should expect great health, and with your determination and big heart I am sure you will get that. Kindest of regards Aletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 An excellent observation Zahavi, as I have learned that even though LDN has gotten things much more in control, I still have a small flare of it show up on the back of my head when I drink too much alcohol or eat chocolate (why is the world so cruel, I wish it were spinach and liver that set this off instead). So what you say makes good sense in regards to being a fungus and certain things feeding it and fueling it on. I will look at the sites you sent and see what I should be doing. Aletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Carol and Aletha, Thank you both for your encouraging words. I will look into diet; I'm probably eating too much chocolate :-) If I could go to Las Cruces, if I could afford Dr. Berkson's treatment, I'd love to do that. I feel so much better whenever I'm in New Mexico. I moved from there to Washington state about five years ago, and am finding this cold damp climate to be very bad for my health. I would not advise anyone living in the southwest with fibromyalgia or any kind of arthritis to give it up for the northwest! I do think climate makes a difference. But, no matter what, I'm sticking with LDN, because it has done so much for my fibrofog, fatigue and dermatitis. It is worth it, and I never want to be without it. Konnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Jann and Zahavi, Thanks for your suggestions. I may very well have a glutin sensitivity, and shall take a serious look at this issue. I did develop asthma after I moved to the northwest. There is mold everywhere. But I've not had to use my inhalers since starting LDN. I'm thinking about getting a Himalayan salt inhaler anyway, just for good respiratory health. Konnie > > Hi Konnie, > > Do you think you might have a gluten sensitivity ?? ...or do you know > that you specifically have a 'wheat allergy' ?? > > I think an allergy can manifest its symptoms ~wherever. ie; as a > rash, as asthma / breathing issues. > > It's good to hear that the LDN is helping your skin rash...very > encouraging to for a lot of folks. > > Jann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 > > > Good morning! > > I am new to this group, and am looking for anyone who suffers from psoriasis, and who is currently using LDN. I would like to know what dosage you are taking, and how long it took before you noticed an improvement. > > Thank you in advance for any help you can offer! > > Isabelle > I have had Psoriatic Arthritis since Dec 2007 and had scalp Psoriasis develop after the arthritis developed. The skin part is not real problematic.I have been on Minocycline antibiotic since June 2008 which controls my pain but does not help the skin part. I started LDN on Feb 24 to see if it would allow me to reduce my Minocycline level and improve my skin Psoriasis and fingernails and toenails. I do seem to have a positive response to my arthritis, but no opinion yet on the skin part. vinnylid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2009 Report Share Posted March 7, 2009 Hi Isabelle, I take 4.5mg of LDN and my scalp psoriasis is much improved. I do notice however that it comes back a little if I start eating chocolate, more than a couple glasses of wine or a lot of sugar. I suffered with this condition for over 20+ years and it feels great not to worry or have it be such a big part of my life anymore. It took about 2.5 months for me to see any changes. All my best, Aletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2010 Report Share Posted March 7, 2010 I have psoriatic arthritis as well. Nothing worked for me except the methotrexate havent had an outbreak since then Jolene In a message dated 3/7/2010 3:55:45 P.M. Eastern Standard Time, jhoorm01@... writes: I have psoriatic arthritis... most of the same drugs are the one's you take for RA. THere may be some creams they can give you though.. Mine is on my scalp and elbows. ~~~~~~~~~~Joy~~~~~~~~~ --- On Sun, 3/7/10, J.J.L <_jjleeds@..._ (mailto:jjleeds@...) > wrote: From: J.J.L <_jjleeds@..._ (mailto:jjleeds@...) > Subject: [ ] Psoriasis _ @groRA-SUPP_ (mailto: ) Date: Sunday, March 7, 2010, 1:37 PM Hi all I haven't posted in a long time, but here I am. Went to my Rheumy this past week, and I'm happy to report that my RA is in remission for now. Still have some pain, but at least I'm functioning and sleeping well. The question I have is: Has anyone else developed Psoriasis along with their RA ? My elbows had gotten very rough, and itchy over the past few weeks. My rheumy looked at them, and told them I also now have psoriasis. Common in many folks with RA ? If so, does anyone out there use something that works for them? Thanks J.J. ------------------------------------ This is a private list. Should you wish to forward any mail to nonsubscribers, you must first obtain the writer's permission. We are NOT physicians. Information on this list is not to be construed as medical advice, and we cannot guarantee the accuracy and currency of the information provided. For archives or to change subscription options: _http://health.http://healthhttp://heahttp://health._ ( ) ! Groups Links [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2010 Report Share Posted March 7, 2010 I have psoriatic arthritis... most of the same drugs are the one's you take for RA. THere may be some creams they can give you though.. Mine is on my scalp and elbows. ~~~~~~~~~~Joy~~~~~~~~~  From: J.J.L <jjleeds@...> Subject: [ ] Psoriasis Date: Sunday, March 7, 2010, 1:37 PM Hi all I haven't posted in a long time, but here I am. Went to my Rheumy this past week, and I'm happy to report that my RA is in remission for now. Still have some pain, but at least I'm functioning and sleeping well. The question I have is: Has anyone else developed Psoriasis along with their RA ? My elbows had gotten very rough, and itchy over the past few weeks. My rheumy looked at them, and told them I also now have psoriasis. Common in many folks with RA ? If so, does anyone out there use something that works for them? Thanks J.J. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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