thank you

[Guest guest]

jani wrote:

>

> Thank you very much to all that responded to my update, it really

> helps just to know you all care enough to take the time to write to

> me. this group is the greatest!!! I will try to write a response to

> each of you as soon as I can.

> Mark Holmes and I were exchanging thoughts the other day, as we often

> do, and we were both wondering about how many of you are in remission,

> or have been in remission and how long did it take and how long did it

> last. Please share with us. Thanks again.

> Hugs to all,

> Jani

Just a quick story.

Diagnosed with RA 01/'90

Remission due to pregnancy 07/'90

Out of remission (think due to Prozac) 08/'98

Started Minocin 100mg MWF middle of 11/'98

Upped the dose Jan.22/'99 to 100mg 2 times a day (every day)

Lowered my dose Feb./'99 to 100mg daily. (due to dizziness)

Feb. 22, 1999 I think was the turning point for me. I am pretty much

feeling great other than fatigue (maybe due to overworking) and only

using occasional anti-inflam. but somewhat scared to say it's remission,

though I think it is. So far, so good.

Hope this helps.

God Bless, Debra

[Guest guest]

You're very welcome, . Glad you are finding some reassurance here.

We have very few rules. We ask that people refrain from being unkind,

selling, and sending original writing of any member to another group

without permission.

Hope you like it here!

[ ] Thank you

> Many thanks to a, Tess, ,Kathe, S. Lang and everybody

> who gave me such a warm welcome to the group. I have read everything

> on email that has been sent with great interest. I have certainly

> gained some insight into how to manage this disease, what to expect

> and how to deal with it. Knowledge minimises the fear greatly. Im

> afraid I have been all overthe place for a while with my emotions but

> now I understand I have to put that aside and learn to manage things

> and live as best I can. Many thanks much appreciated.

>

> Can you tell me about the rules connected to this group.

>

>

[Guest guest]

You're very welcome . I remember feeling very scared and alone when I

knew no one with RA and knew little about it. Plus that, my first rheumy

told me I'd be in a wheelchair by the time I was 30 and several other things

that scared me to death. I dumped that doctor and found one that had a more

positive attitude.

a

> Many thanks to a, Tess, ,Kathe, S. Lang and everybody

> who gave me such a warm welcome to the group. I have read everything

> on email that has been sent with great interest. I have certainly

> gained some insight into how to manage this disease, what to expect

> and how to deal with it. Knowledge minimises the fear greatly. Im

> afraid I have been all overthe place for a while with my emotions but

> now I understand I have to put that aside and learn to manage things

> and live as best I can. Many thanks much appreciated.

>

> Can you tell me about the rules connected to this group.

>

>

[Guest guest]

You're very welcome! Glad you found our group.

Sorry that it seems as if your RA has returned. Have you seen a

rheumatologist recently?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Thank you

> I just wanted to thank you for all the informative articles you have

> posted at this group, especially the ones in response to remission.

> Knowledge is empowering. Thank you

[Guest guest]

Renate, it sounds as if you are on the right track. I'm glad your

rheumatologist is trying to help you.

Congratulations on quitting smoking. That is a HUGE, positive step. It's

one of the very best things you can do to improve your health.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] thank you

> Thanks to all of you who answered my question. the site you sent

was very helpful. I have talked to my rheumy and he is trying to help me

get on something else. He is working on my insurance company and being

very helpful. I have gained 70 lbs. in the last nine months but I also

quit smoking at the same time I found out I had RA and started the

prednisone.So I am sure part of the weight gain is from that also.

> Thanks again and I hope all of you have a pain free day.

> Renate

[Guest guest]

Renate,

Congratulations on ridding yourself of the nicotine habit. I've been

quit for 10 years and know how hard it is. Too bad you gained weight,

but probably the prednisone had a lot to do with it, too. If you are at

all able to exercise, that will help you lose weight. I've got to get

back with my exercise program. I was sick for two weeks so got out of

the habit.

Sue

On Tuesday, June 8, 2004, at 01:46 PM, renate dorsey wrote:

> Thanks to all of you who answered my question. the site you sent

> was very helpful. I have talked to my rheumy and he is trying to help

> me get on something else. He is working on my insurance company and

> being very helpful. I have gained 70 lbs. in the last nine months but

> I also quit smoking at the same time I found out I had RA and started

> the prednisone.So I am sure part of the weight gain is from that also.

> Thanks again and I hope all of you have a pain free day.

[Guest guest]

Thank you Sue. I try to do a little but the ra prevents me from doing much.

I am still in the process of trying different meds to help me. Money is my

biggest problems for that. I appreciate the support from you and everyone. I

don't post often but read daily.

Thanks again

Renate

Re: [ ] thank you

> Renate,

>

> Congratulations on ridding yourself of the nicotine habit. I've been

> quit for 10 years and know how hard it is. Too bad you gained weight,

> but probably the prednisone had a lot to do with it, too. If you are at

> all able to exercise, that will help you lose weight. I've got to get

> back with my exercise program. I was sick for two weeks so got out of

> the habit.

>

> Sue

>

> On Tuesday, June 8, 2004, at 01:46 PM, renate dorsey wrote:

>

> > Thanks to all of you who answered my question. the site you sent

> > was very helpful. I have talked to my rheumy and he is trying to help

> > me get on something else. He is working on my insurance company and

> > being very helpful. I have gained 70 lbs. in the last nine months but

> > I also quit smoking at the same time I found out I had RA and started

> > the prednisone.So I am sure part of the weight gain is from that also.

> > Thanks again and I hope all of you have a pain free day.

>

>

>

>

>

[Guest guest]

((((((June))))))Thanks so much for sharing the beautiful story of

girl's last day's. What a sweet girl she was, it just touched

my heart, she will still always be close to you. It's really hard

right now dealing with the pain of losing her, but she is not hurting

anymore. she is up there with my handsome black lab,(smile) You

take care of yourself, and know that your close in my thoughts,Tawny

> I feel truly blessed to be part of this caring and understanding

group. All your emails and phone calls made the pain of losing

girl that much easier.

> As most of you know, was a very unusual dog so I thought I

would share with you, the last story of so many. On Monday morning

when Don lifted her out of her ed, underneath her were her baby

(plastic bee), yellow lamb and a tennis ball. These were the toys she

always had with her. I was a little annoyed at Don for putting them

in her bed since I thought she must have been uncomfortable laying on

top of them. As it turns out Don didn't put them there, I didn't put

them there and the only other person was grandson who petted her

Sunday night and I phoned to ask him and he said he saw the basket of

toys but since he has been away in the Canadian army for 3 years, he

would have no idea which ones were her favourites. Bearing in mind

that from Sunday night until Monday morning she needed help to even

drink some water. So how did her favourite toys get in her bed

underneath her?

> We are slowly coming to terms with losing her and now can talk

about all the funny things she did including her temper tantrums

where she would Harrumph loudly and throw herself on the floor and

cover her eyes. So many memories to cherish.

>

> Once again, thank you for caring.

>

> Hugs

> June

>

>

[Guest guest]

June, I am so sorry to hear of 's passing and know how

difficult this time is for you. My thoughts and prayers are with

you during this stressful time.

God bless,

Althea

[Guest guest]

That's a wonderful story, June!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Thank you

> I feel truly blessed to be part of this caring and understanding

group. All your emails and phone calls made the pain of losing

girl that much easier.

> As most of you know, was a very unusual dog so I thought I would

share with you, the last story of so many. On Monday morning when Don

lifted her out of her ed, underneath her were her baby(plastic bee),

yellow lamb and a tennis ball. These were the toys she always had with

her. I was a little annoyed at Don for putting them in her bed since I

thought she must have been uncomfortable laying on top of them. As it

turns out Don didn't put them there, I didn't put them there and the

only other person was grandson who petted her Sunday night and I

phoned to ask him and he said he saw the basket of toys but since he has

been away in the Canadian army for 3 years, he would have no idea which

ones were her favourites. Bearing in mind that from Sunday night until

Monday morning she needed help to even drink some water. So how did her

favourite toys get in her bed underneath her?

> We are slowly coming to terms with losing her and now can talk about

all the funny things she did including her temper tantrums where she

would Harrumph loudly and throw herself on the floor and cover her eyes.

So many memories to cherish.

>

> Once again, thank you for caring.

>

> Hugs

> June

[Guest guest]

June,

That is an amazing story. Somehow Girl found the strength to get her

favorite toys close to her for comfort. The first few weeks were very hard,

but like you we are coming to terms with loosing our girl.

The day after we lost Jawsie, was working outside and he saw a dog

that matched the description of a dog that was lost. There were signs all

over our neighborhood telling about Lexi being missing.

We brought the poor thing inside and fed and gave it water. He was so

hungry and thirsty. The dog ate so funny that all we could do is laugh. It

was a much needed laugh after all the tears shed the day before.

We swore Jawsie sent this dog to us to cheer us up and because Jawsie knew

we¹d take care of this lost pup and find his owners. Another very strange

happening here was the night we buried our girl in our back yard. We hadn¹t

finished for an hour and all the dogs in the neighborhood started howling.

We¹ve never heard howling since we lived here and to this day have never

heard howling.

The hardest thing to get used to is not having our girl greet us at the

door. It¹s the first time in my life I¹ve come home to a truly empty house.

We are both blessed to have such a special dog in our lives who gave us

years of love and a lifetime of memories.

a

> I feel truly blessed to be part of this caring and understanding group. All

> your emails and phone calls made the pain of losing girl that much

> easier.

> As most of you know, was a very unusual dog so I thought I would share

> with you, the last story of so many. On Monday morning when Don lifted her out

> of her ed, underneath her were her baby(plastic bee), yellow lamb and a tennis

> ball. These were the toys she always had with her. I was a little annoyed at

> Don for putting them in her bed since I thought she must have been

> uncomfortable laying on top of them. As it turns out Don didn't put them

> there, I didn't put them there and the only other person was grandson who

> petted her Sunday night and I phoned to ask him and he said he saw the basket

> of toys but since he has been away in the Canadian army for 3 years, he would

> have no idea which ones were her favourites. Bearing in mind that from Sunday

> night until Monday morning she needed help to even drink some water. So how

> did her favourite toys get in her bed underneath her?

> We are slowly coming to terms with losing her and now can talk about all the

> funny things she did including her temper tantrums where she would Harrumph

> loudly and throw herself on the floor and cover her eyes. So many memories to

> cherish.

>

> Once again, thank you for caring.

>

> Hugs

> June

>

>

[Guest guest]

Thank you for sharing this with us. That was your sign from her spirit guides

(guardian angels) that they were taking care of her. It was a sign to you that

she will be fine. I told you that you would see some signs here and there, that

was your first one!

Becky

[ ] Thank you

I feel truly blessed to be part of this caring and understanding group. All

your emails and phone calls made the pain of losing girl that much easier.

As most of you know, was a very unusual dog so I thought I would share

with you, the last story of so many. On Monday morning when Don lifted her out

of her ed, underneath her were her baby(plastic bee), yellow lamb and a tennis

ball. These were the toys she always had with her. I was a little annoyed at Don

for putting them in her bed since I thought she must have been uncomfortable

laying on top of them. As it turns out Don didn't put them there, I didn't put

them there and the only other person was grandson who petted her Sunday

night and I phoned to ask him and he said he saw the basket of toys but since he

has been away in the Canadian army for 3 years, he would have no idea which ones

were her favourites. Bearing in mind that from Sunday night until Monday morning

she needed help to even drink some water. So how did her favourite toys get in

her bed underneath her?

We are slowly coming to terms with losing her and now can talk about all the

funny things she did including her temper tantrums where she would Harrumph

loudly and throw herself on the floor and cover her eyes. So many memories to

cherish.

Once again, thank you for caring.

Hugs

June

[Guest guest]

OK, call me nuts, but I believe in signs like that too. A few years ago, my

collie, Rouva, who had only acted funny for a few days, died of cancer. I

didn't even realize she was ill, and was devestated. Two weeks later, in our

local paper, a 4 month old collie puppy was being given up by a family who was

breaking up because of divorce. I went to see her and fell in love.

Weird thing is, the couple decided to split the same day that Rouva died.

The first night I brough Neiti home, she jumped up and slept on my bed.

Noreen

[ ] Thank you

I feel truly blessed to be part of this caring and understanding group. All

your emails and phone calls made the pain of losing girl that much easier.

As most of you know, was a very unusual dog so I thought I would share

with you, the last story of so many. On Monday morning when Don lifted her out

of her ed, underneath her were her baby(plastic bee), yellow lamb and a tennis

ball. These were the toys she always had with her. I was a little annoyed at Don

for putting them in her bed since I thought she must have been uncomfortable

laying on top of them. As it turns out Don didn't put them there, I didn't put

them there and the only other person was grandson who petted her Sunday

night and I phoned to ask him and he said he saw the basket of toys but since he

has been away in the Canadian army for 3 years, he would have no idea which ones

were her favourites. Bearing in mind that from Sunday night until Monday morning

she needed help to even drink some water. So how did her favourite toys get in

her bed underneath her?

We are slowly coming to terms with losing her and now can talk about all the

funny things she did including her temper tantrums where she would Harrumph

loudly and throw herself on the floor and cover her eyes. So many memories to

cherish.

Once again, thank you for caring.

Hugs

June

[Guest guest]

You're welcome, Angie. Glad to hear that you are learning here. Happy to

have you aboard!

I hope you get your RA under control soon, too.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Thank you

> I wanted to thank all of you for the information that you guys put

> on here. I have learned a lot of RA from you guys. Hopefully I

> will have mine under control soon. Thanks again for all the good

> information you guys put in your posts.

>

> Thanks

> Angie

[Guest guest]

Glad you like it here, Darlene. Just try to ignore insensitive comments

from people around you. I believe most individuals don't mean any harm,

they just don't get it.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Thank you

>

>

> I just want to thank everyone for being here for support. I've been

living

> with pain for years with fibro and I'm just being diagnosed with

arthritis

> but not sure if it's RA yet. I'm finding that my closest friends are

> supportive and most of my family are, but there are other people who

just

> don't understand what it's like to have a chronic illness. One

" friend " has

> mild OA and said to me that she just sucks it up and goes on despite

the

> pain and another who says that --'yeah, my grandmother had it...'

yada, yada

> ..

>

> I'm on disability for major depression and I have allergies and asthma

and

> now this. I worked in health care for 23 years and I guess I just feel

like

> I've given a lot and it hurts when people minimize our pain. It's so

nice to

> have a group like this where I can read about how you are feeling and

I can

> say, yes, I understand!!

>

> So, thanks to all of you for being here. It means a lot to me!

> Hugs,

> Darlene

[Guest guest]

Hey Nea, so glad you found us, you will love everyone, hugs T

--- In , " gonzo_skye " <gonzo_skye@y...>

wrote:

>

>

> G'evenin to all,I thank all of you who have so warmly welcomed me

to

> this site.Thank you also for sharing links and especialy things

> regarding yourselves and tips to make life easier. Great tips btw.

> Regarding the Enbrel.its a 2x a week injection>>It comes in

> individual pkgs>> It is a protein so there is powder in the vial

> that you put bioelectricstatic water into and swirl.NEVER SHAKE>>

> also It MUST be refridgerated and if you go anywhere and are going

> to be dosing while gone..Take it with you in a cold pack ,or bag

> with cold packs in them,must be stored between 46-36 degrees

> farenheit. It seems complicated at 1st but after 2 injections got

> the hang of it.Enbrel does a fantastic job with teaching you how

the

> system works and has a nurse hotline to call for any

> question,concerns or help.As far as side effects go,,At first I get

> just a tad light headed (goes away quickly) and a bit of nausea

> within a few hours.To get alot of info on this Med go to

> www.enbrel.com

> and also edrugs.com this site goes deeper into the discription of

> medications far more than other sites I have found.Like I found out

> that with MTX ,the day before and after you need copious amts of

> water. And you should be drinking alot,I mean alot of nectar

> juices,such as apricot.I also found out at that site more info on

RA

> than anywhere else. Again,thank you for the warm welcome and look

> forward to some chat.A very special hello to my

> friend..Tawny...great to be back again!!!Missed you>> Nea

[Guest guest]

Hi

I can relate with a lot of what you say. I was talking with my sister on the

phone the other day about how people who are not in chronic pain simply do not

understand the frustration of those who are. My husband tries to be

understanding, but sometimes he gets frustrated when he doesn't think I am

trying. For example one thing that I can not do is open water bottles. It

really isn't that big of a deal, but sometimes it can be very frustrating. The

other day I was shopping and I was in a lot of pain, wishing I would have just

given in and gotten the stupid cart to ride on. I was very thirsty. I went to

the cooler and got myself a bottle of coke. I was about half way to the

register when I realized this bottle of coke I picked up out of habit was going

to do me absolutely no good because I couldn't open it! I was humiliated inside

as I put it back in the cooler. My husband thinks I should just try to open the

bottle, but what he doesn't understand is a) it causes me pain to try and it

is even more humiliating to try and fail (AGAIN). I had to go buy a coffee pot

yesterday because pouring the coffee out of a standard carafe is too painful

most days. So, I bought the Hamilton Beach Brew station. You just put your cup

up to it and it pours. It is a great coffee pot and it only cost about $40, but

it irritates me to death that I had to buy it. Ya know?

Semalee

[ ] Thank you

G'evenin to all,I thank all of you who have so warmly welcomed me to

this site.Thank you also for sharing links and especialy things

regarding yourselves and tips to make life easier. Great tips btw.

Regarding the Enbrel.its a 2x a week injection>>It comes in

individual pkgs>> It is a protein so there is powder in the vial

that you put bioelectricstatic water into and swirl.NEVER SHAKE>>

also It MUST be refridgerated and if you go anywhere and are going

to be dosing while gone..Take it with you in a cold pack ,or bag

with cold packs in them,must be stored between 46-36 degrees

farenheit. It seems complicated at 1st but after 2 injections got

the hang of it.Enbrel does a fantastic job with teaching you how the

system works and has a nurse hotline to call for any

question,concerns or help.As far as side effects go,,At first I get

just a tad light headed (goes away quickly) and a bit of nausea

within a few hours.To get alot of info on this Med go to

www.enbrel.com

and also edrugs.com this site goes deeper into the discription of

medications far more than other sites I have found.Like I found out

that with MTX ,the day before and after you need copious amts of

water. And you should be drinking alot,I mean alot of nectar

juices,such as apricot.I also found out at that site more info on RA

than anywhere else. Again,thank you for the warm welcome and look

forward to some chat.A very special hello to my

friend..Tawny...great to be back again!!!Missed you>> Nea

[Guest guest]

semalee... i sure know how you feel, i can not open anything anymore, i hve to

ask my husband and my sister (who lives with us) frusterating for sure.. and it

takes so much time asking others to do such a simple task for us!

my husband is great about all of it.. he helps me all the time, with a smile,

too....

rae

[ ] Thank you

G'evenin to all,I thank all of you who have so warmly welcomed me to

this site.Thank you also for sharing links and especialy things

regarding yourselves and tips to make life easier. Great tips btw.

Regarding the Enbrel.its a 2x a week injection>>It comes in

individual pkgs>> It is a protein so there is powder in the vial

that you put bioelectricstatic water into and swirl.NEVER SHAKE>>

also It MUST be refridgerated and if you go anywhere and are going

to be dosing while gone..Take it with you in a cold pack ,or bag

with cold packs in them,must be stored between 46-36 degrees

farenheit. It seems complicated at 1st but after 2 injections got

the hang of it.Enbrel does a fantastic job with teaching you how the

system works and has a nurse hotline to call for any

question,concerns or help.As far as side effects go,,At first I get

just a tad light headed (goes away quickly) and a bit of nausea

within a few hours.To get alot of info on this Med go to

www.enbrel.com

and also edrugs.com this site goes deeper into the discription of

medications far more than other sites I have found.Like I found out

that with MTX ,the day before and after you need copious amts of

water. And you should be drinking alot,I mean alot of nectar

juices,such as apricot.I also found out at that site more info on RA

than anywhere else. Again,thank you for the warm welcome and look

forward to some chat.A very special hello to my

friend..Tawny...great to be back again!!!Missed you>> Nea

[Guest guest]

Dear and Friends in Pain,

Yes I do clarify that.

Ya'll have been so nice thus far!!!

Peace and blessings,

In a message dated 1/21/2005 5:06:44 PM Central Standard Time,

Matsumura_Clan@... writes:

Nan, just to clarify, was referring to another group, not .

I'll tell you where to go!

Mayo Clinic in Rochester

Hallenbeck~Sikorsky~ BS,RN,UM,QC

Owner-Moderator

" AnGeLsInPain "

" OneVoiceInPain "

Interqual Certified

Published Psychiatric Researcher

Advocate for those in CIP, HIV, Psychologic Pain

" The Lord Will NEVER push us beyond what we can endure. "

[Guest guest]

J.Jan and Friends in Pain,

This is so true.

Do unto others, especially those in pain...

Peace,

In a message dated 1/21/2005 5:15:27 PM Central Standard Time,

simplymejmp@... writes:

hi just wanted to say i like what you wrote to

karen..its so true, i know what your talking about i

also feel like i stand alone at my house..if i cant

help anyone i sure dont want to hurt them...have a

great day.

j..jan in alabama

Hallenbeck~Sikorsky~ BS,RN,UM,QC

Owner-Moderator

" AnGeLsInPain "

" OneVoiceInPain "

Interqual Certified

Published Psychiatric Researcher

Advocate for those in CIP, HIV, Psychologic Pain

" The Lord Will NEVER push us beyond what we can endure. "

[Guest guest]

Nan, just to clarify, was referring to another group, not .

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Thank you

>

> Dear ,

> Bless you for saying what needed to be said. I have not been around here

> very long and I did not witness what you saw but I am a firm believer that

> you should walk a mile in someones shoes before saying a thing!!! Even

> then any utterences that come out of your mouth should be empathtic.

> If WE CANNOT UNDERSTAND EACHOTHERS CHRONIC PAIN AND SUPPORT ONE ANOTHER

> THEN WHO DO WE TURN TO???

> Sometimes I stand all alone here, feeling as if I am in a dungeon (at home

> i mean). I need to be heard. I am already depressed clinically with

> bipolar disorder and if someone told me that I would be devastated.

> PEOPLE !!!!!!!!!!!!!!!!!! Would you like to be responsible for someone on

> the edge already? Who may go out and take their own life? Worse yet take

> someone else with them?

> THESE ROOMS AND GROUPS ARE FOR SUPPORT, you know holding eachother up when

> we are down, like we may have helped someone else at one time. We should

> thank those who have knowledge also that gives us some answers but never

> should we just kick someone when they are down.

> Sometimes Chat rooms get very cliquey or clicky however you spell it, and

> you have personality problems that way. It's just too bad that you cannot

> leave that AT THE DOOR.

>

> ((((((((((((()))))))))))))))))) You have my support and my

> friendship and if I ever do anything to hurt anyone please let me

> know..... I love you all, sometimes I don't get to write like I want to

> but rest assured you are always in my heart and prayers.

> Be well and big HUGS,

> Nan in Michigan

[Guest guest]

Hi again, Kerri!

I'm Judi, 59 yo wife/grandmother (to 2-year old triplets and a 5-year

old.) I don't have RA, but I do have fibro and Dercum's Disease. It

took several years for me to get diagnosed, and when I did it was

because I did all the legwork and found a good group of doctors who

diagnosed me. So far there's no cure (it's considered a " rare "

disease) and no one doing any research on the disease. It's one of

those diseases that doctors love to tell us " you're fat, lazy, and it

doesn't really hurt. " So don't feel like you're alone in having to

wait for a diagnosis!

I was really angry, depressed, frustrated, desperate, you name it at

first. I wanted my old life back, the one where I could walk miles,

ride a bike, play tennis, run with the little ones, garden, clean

house, you name it. I felt like a failure to my husband and not a

very good grandmother, but you know what? My husband still loves me,

and the grandchildren don't even pay any attention to what I can't

do, they only want me to love them. That's all your children want,

and if you can't go to all their activities at the moment, you will

eventually. The doctors will get your RA under control, you'll heal

from your surgery, and you'll enjoy each day as it comes. You're

awfully young to have such an awful disease, but challenge knows no

age. Set small goals for yourself, and gradually enlarge the goals

as your capabilities improve, and reward yourself for any small

accomplishment just as you would your children. You have strength

you haven't tapped yet.

You're a very special person, and the world would be just a bit

darker if you weren't in it!

Judi

[Guest guest]

Kerri,

Please listen to Judi, she is exactly right, even though it doesn't seem

fair or right. This is the time to smell the roses .....take small deliberate

steps and move forward with love. YOU are the same.....WE are the same as

before we got sick....... we just can't jump on the bed anymore. I sit and hop

on my bottom, and laugh at myself now because I am the first monkey who fell

off the bed.

Love,

Carol M. in CA

[Guest guest]

Thank you very much Joyce for your lists about dangerous products and food. I think it will be something that will be of great help so that we can become more attentive for what we put in and on our body.

[Guest guest]

Yes, Thank you Joy, for all your hard work you did in getting this to us. It's greatly appreciated, and I will pass this on too!Getting away from soy products is a hard one to do when purchasing prepackaged food. Soy lecithin is in everything, its an emulsifier, I used to use it in baking too, in the late 70's. Now I know better, I try to stay away from it, any thing soy gives me a lot of problems, I think worse than gluten.Mayonnaise is pretty easy to make yourself, just need a lot of oil you prefer, I have made it before, but there is a few products out there in the health food store that carry soy free, gluten free mayo, namely spectrum or haines, made with GMO free canola oil, and the other one is made with GMO free safflower oil, this latter one can be the expensive one too, claiming it has Omega 3's

too. I found that the regular mayo you would buy has giving me lots of bloating because of the soy oil in it, so when I made the switch I no longer have the symptoms. Nitrates are another thing that is harmful. But this is hard to get away from with deli meats. Turkey, ham, all of them have some sort of preservative. Try to eat these products sparingly, like only once a week. Bacon, sausage also has BHT in it and nitrates, its hard to find these meats without all that. Soda has a lot of preservatives that are listed under the Harmful food ingredients too, phospherous acid, potasium benzoate, bad for the bones too, leaching calcium from your bones.surprised to see stevia as harmful though, I thought it was OK to eat, I don't personally eat it, I tried it once, and did not like it, gave it away.I rather have

regular organic raw sugar any day, this is what I bake with, or even organic turbinado sugar, even if its granulated it still melts down fine in baking or cooking.tto bean too, is harmful, that is also surprising, because its from a bean too, using it for color I thought.MicheleFrom: e Bonte <mbmasiba@...>Subject: [health] thank you"natural remedies" <health >Date: Monday, August 23, 2010, 11:52 PM

Thank you very much Joyce for your lists about dangerous products and food. I think it will be something that will be of great help so that we can become more attentive for what we put in and on our body.