New Autism Stats just released....

[Guest guest]

This was just on the news where I live. Stats by their report are now one in

88??

Best.

Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities

Monitoring Network, 14 Sites, United States, 2008

Surveillance Summaries

March 30, 2012 / 61(SS03);1-19

http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6103a1.htm?s_cid=ss6103a1_e

[Guest guest]

Yes, 1 in 88. Boys are up to 1 in 50 or 1 in 54. Thank gawd my organization,

Greater Chattanooga Aspies, happened when it did in late 2010. Just yesterday

morning, I was speaking with the aunt of this one VR client (about 20 years

old). Told her about what GCA does and how we help people. Then last night,

spoke with this one woman, who has a 21 year old son. I am telling everyone,

it's only going to get worse. The numbers of people who will become adults with

ASD will only soar in the next 10-15 years.

I am part of a new local committee, in which the overall goal is to create a

working committee that both plans and EXECUTES the steps for creating

transitional programs for adults with ASD.

Committee listed desires and goals for adults with ASD in transition.

Assisted or supported housing program for adults with ASD

Assisting adults with ASD to be able to live independently

Assisting adults with ASD in getting and keeping jobs

Help adults with ASD have reliable transportation

Engagement in leisure and social activities for adults with ASD

Social skills training and support for adults with ASD

Public awareness about adults with ASD.

Committee discussed models for a supported or assisted housing program

A Residence (living location)

1 to 2 bedroom apartments

recreation room

outside recreation space

classrooms

meeting rooms

computer room

laundry room

low noise environment

sensory room

fitness center

Various levels of assisted living apartments. Members will require different

levels of independence and support and it will change as they progress through

program.

Onsite staff. Has an office with day hours and night hours.

Assessment and program planning. Staff assesses ability, goals,

progress.

Provides scheduling support and training (medication, hygiene, bills,

housekeeping, fitness, work, transportation, meals, etc....)

Social Skill training and support.

Monitoring (via meetings, home inspection electronics)

Transportation besides public transportation

Emergency assistance.

Personal safety training.

Independent living training.

other social services like case management.

Work opportunities onsite or nearby for residents.

Specialized Legal Support, who understands ASD (e.g., for adults who need a

representative payee for social security, person with a conservatorship, person

facing unique legal restrictions, person needs legal advice)

Transition program includes methods and steps for making the residents

experience the benefits of independent living outside of this program.

Partnering with clinical service providers to provide reliable access to

therapy

Parent program. Encourage parent involvement and ownership.

Discussed need for a job program for adults with ASD. Siskin has a Community

Re-entry Program that already does a great job but there are limited slots

available.

Discussed Autism education in the community so people are more aware of adults

with autism and more understanding. Can do this once we have more funding and

staff. Can deliver autism orientation about adults with ASD to Rotory Club,

Lions Club, large businesses, etc...

Discussed that Independent Living program should not just be dependent upon the

assisted living project. It should go beyond those members. Can create a

non-residential program first.

I can't wait to see what happens. Thanks to the 15 or so people who showed up

last night for the committee meeting, it's going to be quite interesting to see

what happens.

>

> This was just on the news where I live. Stats by their report are now one in

88??

>

> Best.

>

>

>

>

>

>

> Prevalence of Autism Spectrum Disorders � Autism and Developmental

Disabilities Monitoring Network, 14 Sites, United States, 2008

> Surveillance Summaries

> March 30, 2012 / 61(SS03);1-19

> http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6103a1.htm?s_cid=ss6103a1_e

>

[Guest guest]

This is a week old now; sorry. We've been incommunicado (phones;

Internet) since last Thursday 3-29-2012). Connections still are " iffy " ,

but here goes...

Newland wrote:

> This was just on the news where I live. Stats by their report are now one in

88??

>

> Best.

>

>

> Prevalence of Autism Spectrum Disorders — Autism and Developmental

Disabilities Monitoring Network, 14 Sites, United States, 2008

> Surveillance Summaries

> March 30, 2012 / 61(SS03);1-19

> http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6103a1.htm?s_cid=ss6103a1_e

Apart from being four years out-of-date, the report is much ado about

not very much at all.

By the report's own admission, there are *no* biological markers for any

" spectrum " conditions. They've very carefully measured something which

has no metric. ...The " Emperor's New Clothes " , really.

That said, and FWIW, a prevalence in the 1-2% range is what I'd expect

for a genetic entity held in human populations by " balanced selection " .

In this view, " autism " would be a human " variety " at least - possibly

a recurrent atavism.

I'm not the only 'professional' who believes this.

- Bill ...AS, ...and " older " clinical/research geneticist

--

WD " Bill " Loughman - Berkeley, California USA

http://home.earthlink.net/~wdloughman/wdl.htm

[Guest guest]

This is a week old now; sorry. We've been incommunicado (phones;

Internet) since last Thursday 3-29-2012). Connections still are " iffy " ,

but here goes...

Newland wrote:

> This was just on the news where I live. Stats by their report are now one in

88??

>

> Best.

>

>

> Prevalence of Autism Spectrum Disorders — Autism and Developmental

Disabilities Monitoring Network, 14 Sites, United States, 2008

> Surveillance Summaries

> March 30, 2012 / 61(SS03);1-19

> http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6103a1.htm?s_cid=ss6103a1_e

Apart from being four years out-of-date, the report is much ado about

not very much at all.

By the report's own admission, there are *no* biological markers for any

" spectrum " conditions. They've very carefully measured something which

has no metric. ...The " Emperor's New Clothes " , really.

That said, and FWIW, a prevalence in the 1-2% range is what I'd expect

for a genetic entity held in human populations by " balanced selection " .

In this view, " autism " would be a human " variety " at least - possibly

a recurrent atavism.

I'm not the only 'professional' who believes this.

- Bill ...AS, ...and " older " clinical/research geneticist

--

WD " Bill " Loughman - Berkeley, California USA

http://home.earthlink.net/~wdloughman/wdl.htm

[Guest guest]

Hi Bill,

I'm wondering if these are just " official " numbers - the more severely impacted

members of this " recurrent atavism " - the ones that require varying levels of

ongoing support in the schools and community. As you know, folks don't get a dx

if they are just " mildly " affected. A dash of autism is great .. but if there

are other co-morbid factors in the mix, they will need ongoing supports, and the

report may have been prepared with funding projections in mind? The rationale to

re-vamp categories of autism spectrum disorders in the DSM V was an economic

one, as you'll recall.

http://www.npr.org/2010/12/29/132407384/whats-a-mental-disorder-even-experts-can\

t-agree As much as the highest functioning amongst us do stress its advantages,

for those with severe co-morbid issues, autism does level a huge economic hit on

families:

http://www.cbsnews.com/8301-504763_162-57399907-10391704/mothers-of-autistic-chi\

ldren-earn-56-less-income-study-says/

- Helen, 57, self-dx'd AS, dx'd ADD

> > This was just on the news where I live. Stats by their report are now one

in 88??

> >

> > Best.

> >

> >

> > Prevalence of Autism Spectrum Disorders — Autism and Developmental

Disabilities Monitoring Network, 14 Sites, United States, 2008

> > Surveillance Summaries

> > March 30, 2012 / 61(SS03);1-19

> > http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6103a1.htm?s_cid=ss6103a1_e

>

> Apart from being four years out-of-date, the report is much ado about

> not very much at all.

>

> By the report's own admission, there are *no* biological markers for any

> " spectrum " conditions. They've very carefully measured something which

> has no metric. ...The " Emperor's New Clothes " , really.

>

> That said, and FWIW, a prevalence in the 1-2% range is what I'd expect

> for a genetic entity held in human populations by " balanced selection " .

> In this view, " autism " would be a human " variety " at least - possibly

> a recurrent atavism.

>

> I'm not the only 'professional' who believes this.

>

> - Bill ...AS, ...and " older " clinical/research geneticist

>

> --

> WD " Bill " Loughman - Berkeley, California USA

> http://home.earthlink.net/~wdloughman/wdl.htm

>