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Jeanie

I've followed your fears regarding MacKenzie's kidney problems and I know

what you must be going through. I was told that there was a blood clot in

Caitlyn's vena cava (the main vein to the heart) last spring seen on a

sonogram ordered by GI and for 3 weeks I worried that she was on the verge

of a stroke. then cardiology reminded me that it was scar tissue from all

her surgeries her first few mos. and that she had grown extra little tiny

veins to make up for the blockage. Phew, it took several more weeks for me

to relax and get off the stroke thing. What imbeciles to make such a

mistake, someone should be fired. But I'm so happy for you and

MacKenzie--Merry Christmas!

--I'm so sorry to hear about your good intentions being foiled once

again. Don't give up, it's too easy to do, and these kids, including

are counting on you. Just think, when it's all said and done, what you have

created that will be here servicing deaf,MR kids long after you're gone.

It's a special thing to be able to leave such a lasting effect on society.

, I read with great interest Aubrie's progress, and remember how

much your early struggles reminded me of mine with Caitlyn (before I had a

computer and was all alone, sniff sniff). Like Caitlyn, Aubrie has

surprised you like I knew all along she would. I feel like a God Parent or

an aunt having been a part of the joys and tears as she grows up. Lord

knows you guys are all more supportive of me than my own family is most of

the time!

Caitlyn's fevers are down, and the pneumonia is reasonably under control.

(Did I mention she caught it again, 2nd time this month?) She will

definitely be enjoying the holidays, albeit a little more tired than usual,

but this won't be the first holiday where she's sick, and it probably won't

be the last.

Merry Christmas to one and all! (Happy belated Chanukah, and Happy Kwanzaa

too!)

Love Jeanne mom to Caitlyn age 4 cHaRgEr who gets altogether too many toys

for Christmas every year because she has left an impression on so many

people who are just so taken with her they just can't help themselves! I'm

so proud to be her mom!

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