Guest guest Posted September 7, 2008 Report Share Posted September 7, 2008 Thank you, Donna Is anyone else dealing with excessive sleeping? Is this part of the latter stages of the disease? Gladys -- Checking in.... It's been a while since I've posted and I thought I'd check in and let you know that Mom and I are both still alive. LOL Life has been ..... well ... ... for lack of a better word quite dramatic lately. Mom's condition continues to deteroriate rapidly. She now depends on us for all activities of daily living and she sleeps about 80% of the time. The primary care physician is on a totally different page than we are (and than our neuro is) in terms of her treatment plan. He is in the prolong life mode and we are in the quality of life mode. It has caused a bit of tension. We're having a BP problem with the seroquel, but without it she's miserably unhappy and anxious so........... We're starting her on salt tablets today to see if it will give her BP a boost. In addition to Mom and a former foster son showed up on our door about a month ago with nothing but the clothes on his back. He is now 18 and has left the abusive environment he has been forced to live in for the past 17 years. He has a LOT of emotional issues and we are taking it one day at a time. As if all of that isn't enough along with teaching , I've taken on a part time job working from home as an admissions counselor for 's school. I'm not sure if I'll be able to handle it but, I'm giving it the old college try because we desperately need the money. Speaking of college, I remember telling some of you I was going back this fall to get my MA in Special Education. Well..... I'm putting that on hold temporarily. One day at a time.......... Gladys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2008 Report Share Posted September 7, 2008 Gladys, I didn't have that problem with Mom, although she did rest better toward the end and did have naps. When others talk about it, I often wonder if there is some drug that is causing it. It is hard to know. But I do know others have talked about it here. The other possibility is depression that causes the best of us to sleep. But that means there is another light weight drug that could help. It is all such a juggling act. Hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Checking in.... It's been a while since I've posted and I thought I'd check in and let you know that Mom and I are both still alive. LOL Life has been ..... well ... ... for lack of a better word quite dramatic lately. Mom's condition continues to deteroriate rapidly. She now depends on us for all activities of daily living and she sleeps about 80% of the time. The primary care physician is on a totally different page than we are (and than our neuro is) in terms of her treatment plan. He is in the prolong life mode and we are in the quality of life mode. It has caused a bit of tension. We're having a BP problem with the seroquel, but without it she's miserably unhappy and anxious so........... We're starting her on salt tablets today to see if it will give her BP a boost. In addition to Mom and a former foster son showed up on our door about a month ago with nothing but the clothes on his back. He is now 18 and has left the abusive environment he has been forced to live in for the past 17 years. He has a LOT of emotional issues and we are taking it one day at a time. As if all of that isn't enough along with teaching , I've taken on a part time job working from home as an admissions counselor for 's school. I'm not sure if I'll be able to handle it but, I'm giving it the old college try because we desperately need the money. Speaking of college, I remember telling some of you I was going back this fall to get my MA in Special Education. Well..... I'm putting that on hold temporarily. One day at a time.......... Gladys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2008 Report Share Posted September 7, 2008 I'm sure most would report more sleeping as time goes on. As I wasn't at the NH all the time, I don't know how much my husband slept, but because he didn't sleep well at night (they said), I think he made it up in the daytime. June C. > > Subject: Re: Checking in.... > To: LBDcaregivers > Date: Sunday, September 7, 2008, 11:26 AM > Thank you, Donna Is anyone else dealing with excessive > sleeping? Is this > part of the latter stages of the disease? > > Gladys > > -- Checking in.... > > It's been a while since I've posted and I thought > I'd check in and let you > know that Mom and I are both still alive. LOL Life has > been ..... well ... > .. for lack of a better word quite dramatic lately. > Mom's condition > continues to deteroriate rapidly. She now depends on us > for all activities > of daily living and she sleeps about 80% of the time. The > primary care > physician is on a totally different page than we are (and > than our neuro is) > in terms of her treatment plan. He is in the prolong life > mode and we are > in the quality of life mode. It has caused a bit of > tension. We're having > a BP problem with the seroquel, but without it she's > miserably unhappy and > anxious so........... We're starting her on salt > tablets today to see if it > will give her BP a boost. > > In addition to Mom and a former foster son showed > up on our door > about a month ago with nothing but the clothes on his back. > He is now 18 > and has left the abusive environment he has been forced to > live in for the > past 17 years. He has a LOT of emotional issues and we are > taking it one > day at a time. > > As if all of that isn't enough along with teaching > , I've taken on a > part time job working from home as an admissions counselor > for 's > school. I'm not sure if I'll be able to handle it > but, I'm giving it the > old college try because we desperately need the money. > Speaking of college, > I remember telling some of you I was going back this fall > to get my MA in > Special Education. Well..... I'm putting that on hold > temporarily. > > One day at a time.......... > > Gladys > > Quote Link to comment Share on other sites More sharing options...
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