Re: Dena/Dena's Mom

[Guest guest]

Dear Dena,

I am so sorry to hear about your mom not eating, but it's good to know she is in

a peaceful place and seems content in her surroundings. I understand

how difficult this is for you seeing your mom progressing more into the disease.

My thoughts and prayers are with you and your mom. I don't believe we can ever

be prepared for these moments. You are a good and caring daughter and you have

always been there for your mother during this dreadful disease and she realizes

it.

Sending you supportive hugs..................Jan

Dena's Mom

Hi Everyone

I wanted to let you all know that I believe that my mom is in her final leg of

the race. I don't post very often, but I will try to bring you all up to speed

quickly. My mom began hallucinations in June 2004. She began Aricept in July

2004 and was able to continue to live alone until May 2005. I found her on her

kitchen one morning totally disorientated and took her to Dr. She was admitted

for 4 days and released to me. I quit my job and moved my mom into my home with

my family (husband, two kids). She lived with us for 10 months. She was placed

on Hospice and all of her drugs were removed abruptly. She then began to lose

herself. She slipped farther and farther away. Then after 3 weeks she could no

longer communicate at all with anyone and stopped walking or even trying to

walk. She was bedridden and I just simply could not care for her any longer. We

admitted her to a Nursing Home as she had several pressure wounds. She lived

there for the next 2 years

and 4 months (at over $5,800 monthly) I recently moved her to a wonderful

Residential Care Home. She seems totally at peace. She sleeps most of the time

and after 6 or so days she began to slow down on her eating. She is now hardly

taking a slip of water and when she does get some food in her mouth it just sits

there. She does not try to chew or swallow. It has been a downhill progress

since she got her peace back. I believe that she has been in turmoil for the

last 2 years and 4 months and is finally feeling like she is home and can relax

again. She was like this at my house when I moved her too. If I had only know

what I know now! My mother has only been a shell of the person she once was from

years now. It is like her soul went to heaven years ago and only the body was

left behind. I have been grieving and missing her all this time. Her passing

will be very difficult, yet a huge blessing at the same time. My heart is so

heavy tonight. I will miss her

deeply, I already do.

Dena in SoCal

Mother (85) Existing with LBD in Residential Care Home

     

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Welcome to LBDcaregivers. 

[Guest guest]

Dena, I can only imagine what you are feeling, your description of your heart

being stretched a million miles and feeling anxious and a little nauseated

pretty much sums it up. You and your mother are in my thoughts

and prayers. I pray your mother has peace and comfort in her final days and

strength for you during

this difficult time.

To quote Shakespeare: " Parting is such sweet sorrow "

Peace be with you,

Jan

Dena's Mom

Hello Everyone

I wanted to give my best wishes for safe travels to Ann Arbor. I had originally

thought that I would be joining you, but God had a different idea.

My prayers are with Sandie also. I am praying that she does as she should and if

she is to go to the Gathering that she has a safe, healthy trip there.

My mom is Actively Dying now. We decided to call Hospice in. Amazing after

Kaiser told me she could only use them they have contracted her out to a

different agency. Actually I think it is a lot of paper work and we won't get

much out of it. My mom has had no food or water since Sunday. About 4 days now.

She had really slowed down on the amount of food she was eating before that too.

My heart is stretched a million miles right now. I feel anxious and a little

nauseated. It is just an awful thing to go through. I have done this before with

my Dad. My mom does seem peaceful. She is unresponsive now and just looks like

she is sleeping, but with labored breathing. I just wanted it over for her yet,

I am going to hate to lose her too. I spend much of the day there, but I am

sleeping in my bed at night. She just does not seem ready yet. I am headed back

shortly. So you  all have a safe trip. Wish I could be there. Sandie, you take

care of yourself too.

Dena in SoCal

Mother (85) Existing with LBD in Residential Care Home

     

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Welcome to LBDcaregivers.