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15 years ago when I was diagnosed with hbp my doctor put me on a high dose

just to get the numbers lower; when my blood pressure dropped and stayed low

he started lowering the dosage until we found what would keep it under control.

That would seem to be the way to do it rather than starting low and working up.

Am going to change dr as soon as I can, visited mine last week, he had said I was

borderline in Dec. last week he said the further tests they had done in Dec. did

in fact show I was a diabetic but he didn't think it was necessary to phone me at

home to bother telling me..duh

duh is right!!! LOL loose him real fast, was this the same dr who starts bp meds off high then goes lower? Better loose that one too, if you haven't already, I know that was 15 yrs ago, but ???

You could have dangerously bottomed out, that is to only be done is an inpatient hospital invioroment where nurses are watching you 24/7, hopefully no one here tries that.:-)

carol

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15 years ago when I was diagnosed with hbp my doctor put me on a high dose

just to get the numbers lower; when my blood pressure dropped and stayed low

he started lowering the dosage until we found what would keep it under control.

That would seem to be the way to do it rather than starting low and working up.

Am going to change dr as soon as I can, visited mine last week, he had said I was

borderline in Dec. last week he said the further tests they had done in Dec. did

in fact show I was a diabetic but he didn't think it was necessary to phone me at

home to bother telling me..duh

duh is right!!! LOL loose him real fast, was this the same dr who starts bp meds off high then goes lower? Better loose that one too, if you haven't already, I know that was 15 yrs ago, but ???

You could have dangerously bottomed out, that is to only be done is an inpatient hospital invioroment where nurses are watching you 24/7, hopefully no one here tries that.:-)

carol

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  • 7 years later...
Guest guest

Having gone through 2 weeks IV, then 2 mths later 3 weeks IV antis, I started having some ‘funny turns’ recently.... Faint, like my head is wobbly, and legs won’t hold me up, find somewhere sit quick....dreamy, nice place, no pain although icy cold, nice not to come back....but do, with nausea, pounding headache, sweating ..... And from a usual 110/75 BP (and around the 40-45kg most of my life at barely 5’) am suddenly having BP as high as 157/100+ - oh, but it’s ok cos under the 160 arbitrary ‘danger’ line.

Doesn’t weight, muscle-mass, fitness etc come into this, or the fact that it’s a sudden change after meds not had so much of so intensely before.

Anyone else? Came home from 20hrs in ED o/night, 4-5hrs sleep, to be told it’s b/c I’m too anxious....!!!!!!!! LOL and maybe a few words of a blue tinge! Tired, fed up, and despair at future health ‘service’...

joy

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My goodness, your internist should be concerned about the type of symptoms you describe. With your experience, I would think they could see that you are able to deal with a lot and not just an anxious person! I'm sorry they treat you this way.

Kay

-------------- Original message --------------

Having gone through 2 weeks IV, then 2 mths later 3 weeks IV antis, I started having some ‘funny turns’ recently.... Faint, like my head is wobbly, and legs won’t hold me up, find somewhere sit quick....dreamy, nice place, no pain although icy cold, nice not to come back....but do, with nausea, pounding headache, sweating ..... And from a usual 110/75 BP (and around the 40-45kg most of my life at barely 5’) am suddenly having BP as high as 157/100+ - oh, but it’s ok cos under the 160 arbitrary ‘danger’ line. Doesn’t weight, muscle-mass, fitness etc come into this, or the fact that it’s a sudden change after meds not had so much of so intensely before.Anyone else? Came home from 20hrs in ED o/night, 4-5hrs sleep, to be told it’s b/c I’m too anxious....!!!!!!!! LOL and maybe a few words of a blue tinge! Tired, fed up, and despai

r at future health ‘service’...joy

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I've had the same lightheaded, faint feeling - since childhood. I can remember riding in subway cars to school in NYC - crowded, stuffy, no air to breathe - and feeling like I had to stand against the wall or else I'd fall down in a faint. My BP has always been low, too! Usually around 90-110/60-70. So I began carrying around a piece of chocolate or candy, esp an apple would help . Something to raise my sugar level seemed to help.

I still get that feeling sometimes but I try to eat every couple of hours and I don't get it as often.

Live..Love..Laugh!

Subject: RE: blood pressureTo: bronchiectasis Date: Thursday, July 24, 2008, 11:26 AM

Joy, I have the wobbly legs, find somewhere to sit, on occasion, when walking or shopping. My BP is always low. (110/80) Once I get that feeling, I start to panic and that doesn¢t help. I don¢t know if it is because I am not breathing correctly or I can¢t breathe or from stress. I say, just let me get hold of a shopping cart and I¢ll be ok, but it makes me panic. So what are we chalking it up to? Joan

From: bronchiectasis@ yahoogroups. com [mailto: bronchiectasis@ yahoogroups. com ] On Behalf Of joySent: Thursday, July 24, 2008 11:35 AMTo: bronchiectasis@ yahoogroups. comSubject: Re: blood pressure

Having gone through 2 weeks IV, then 2 mths later 3 weeks IV antis, I started having some ¡funny turns¢ recently.... Faint, like my head is wobbly, and legs won¢t hold me up, find somewhere sit quick....dreamy, nice place, no pain although icy cold, nice not to come back....but do, with nausea, pounding headache, sweating ..... And from a usual 110/75 BP (and around the 40-45kg most of my life at barely 5¢) am suddenly having BP as high as 157/100+ - oh, but it¢s ok cos under the 160 arbitrary ¡danger¢ line. Doesn¢t weight, muscle-mass, fitness etc come into this, or the fact that it¢s a sudden change after meds not had so much of so intensely before.Anyone else? Came home from 20hrs in ED o/night, 4-5hrs sleep, to be told it¢s b/c I¢m too anxious....! !!!!!!! LOL and maybe a few words of a blue tinge!

Tired, fed up, and despair at future health ¡service¢...joy

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Will try that for emergencies.  It’s

a scary feeling but few people can understand that.  so are we attributing it

to low BP or shortness of oxygen?

From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of McCaw

Sent: Thursday, July 24, 2008 2:16

PM

To: bronchiectasis

Subject: RE:

blood pressure

I've

had the same lightheaded, faint feeling - since childhood. I can remember

riding in subway cars to school in NYC - crowded, stuffy, no air to breathe -

and feeling like I had to stand against the wall or else I'd fall down

in a faint. My BP has always been low, too! Usually around 90-110/60-70.

So I began carrying around a piece of chocolate or candy, esp an apple would

help . Something to raise my sugar level seemed to help.

I still

get that feeling sometimes but I try to eat every couple of hours and I don't

get it as often.

Live..Love..Laugh!

From: joan lund <queenmum32909cfl (DOT) rr.com>

Subject: RE: blood pressure

To: bronchiectasis

Date: Thursday, July 24, 2008, 11:26 AM

Joy, I have the wobbly legs, find somewhere to sit, on occasion,

when walking or shopping. My BP is always low. (110/80) Once

I get that feeling, I start to panic and that doesn¢t help. I don¢t

know if it is because I am not breathing correctly or I can¢t breathe or from

stress. I say, just let me get hold of a shopping cart and I¢ll be ok,

but it makes me panic. So what are we chalking it up to? Joan

From: bronchiectasis@ yahoogroups. com

[mailto: bronchiectasis@ yahoogroups. com ] On

Behalf Of joy

Sent: Thursday, July 24, 2008

11:35 AM

To: bronchiectasis@ yahoogroups.

com

Subject: Re:

blood pressure

Having gone through 2

weeks IV, then 2 mths later 3 weeks IV antis, I started having some ¡funny

turns¢ recently.... Faint, like my

head is wobbly, and legs won¢t hold me up, find

somewhere sit quick....dreamy, nice place, no pain although icy cold, nice

not to come back....but do, with nausea, pounding

headache, sweating ..... And from a usual 110/75 BP (and around

the 40-45kg most of my life at barely 5¢)

am suddenly having BP as high as 157/100+

- oh, but it¢s ok cos under the 160

arbitrary ¡danger¢ line.

Doesn¢t weight, muscle-mass, fitness etc come

into this, or the fact that it¢s a sudden change after

meds not had so much of so intensely before.

Anyone else? Came home from 20hrs in ED o/night, 4-5hrs sleep, to be

told it¢s b/c I¢m too

anxious....! !!!!!!! LOL and

maybe a few words of a blue tinge! Tired, fed up, and despair at future

health ¡service¢...

joy

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I've had this light headed feeling quite often and found if I have something

with sugar in it I am better. I wonder if our blood sugar is out of whack

because of meds or the bronchiectasis itself?

Interesting thread.

Nan

--

If nothing ever changed, there'd be no butterflies.

Nan of CA tumbling@...

---- joan lund wrote:

Will try that for emergencies. It's a scary feeling but few people can

understand that. so are we attributing it to low BP or shortness of oxygen?

_____

From: bronchiectasis [mailto:bronchiectasis ]

On Behalf Of McCaw

Sent: Thursday, July 24, 2008 2:16 PM

To: bronchiectasis

Subject: RE: blood pressure

I've had the same lightheaded, faint feeling - since childhood. I can

remember riding in subway cars to school in NYC - crowded, stuffy, no air to

breathe - and feeling like I had to stand against the wall or else I'd fall

down in a faint. My BP has always been low, too! Usually around

90-110/60-70.

So I began carrying around a piece of chocolate or candy, esp an apple would

help . Something to raise my sugar level seemed to help.

I still get that feeling sometimes but I try to eat every couple of hours

and I don't get it as often.

Live..Love..Laugh!

Subject: RE: blood pressure

To: bronchiectasis

Date: Thursday, July 24, 2008, 11:26 AM

Joy, I have the wobbly legs, find somewhere to sit, on occasion, when

walking or shopping. My BP is always low. (110/80) Once I get that

feeling, I start to panic and that doesn?t help. I don?t know if it is

because I am not breathing correctly or I can?t breathe or from stress. I

say, just let me get hold of a shopping cart and I?ll be ok, but it makes me

panic. So what are we chalking it up to? Joan

_____

From: bronchiectasis@ yahoogroups. com [mailto: bronchiectasis@ yahoogroups.

com ] On Behalf Of joy

Sent: Thursday, July 24, 2008 11:35 AM

To: bronchiectasis@ yahoogroups. com

Subject: Re: blood pressure

Having gone through 2 weeks IV, then 2 mths later 3 weeks IV antis, I

started having some ?funny turns? recently.... Faint, like my head is

wobbly, and legs won?t hold me up, find somewhere sit quick....dreamy, nice

place, no pain although icy cold, nice not to come back....but do, with

nausea, pounding headache, sweating ..... And from a usual 110/75 BP (and

around the 40-45kg most of my life at barely 5?) am suddenly having BP as

high as 157/100+ - oh, but it?s ok cos under the 160 arbitrary ?danger?

line.

Doesn?t weight, muscle-mass, fitness etc come into this, or the fact that

it?s a sudden change after meds not had so much of so intensely before.

Anyone else? Came home from 20hrs in ED o/night, 4-5hrs sleep, to be told

it?s b/c I?m too anxious....! !!!!!!! LOL and maybe a few words of a blue

tinge! Tired, fed up, and despair at future health ?service?...

joy

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The sugar solution may work for some, but not for people like me. I'm

diabetic. Not only does that complicate things when it comes to eating

sugar, but I'm not even sure that low BG is the cause of my

lightheadedness. I've checked my blood sugar several times when I felt

that lightheaded/weak/near-syncope thing. I've checked my blood

pressure, too. Usually (though not always), my blood glucose (BG)

readings have been normal or at least near-normal. My blood pressure

readings haven't seemed very out of whack, either.

Unfortunately, the fact that I'm diabetic makes it a little tricky for

me to " treat " the lightheadedness by eating some candy or fruit or

other sugary item. If my sugar is normal, I might need to take an

insulin shot first. (I use short-acting insulin on an as-needed basis

so that I can eat carbohydrates.) If I'm feeling lightheaded and weak,

it also might me hard for me to prepare my shot and inject myself.

When my sugar does go low, I can eat a little bit of candy, drink a

half-cup of fruit juice or take glucose tablets. Then I'm supposed to

check it again in 15 minutes and, if it's normal, eat a light snack

with both carbs and protein. (I don't always have the snack after a

hypo episode, though.)

In any case, except in a very dire emergency, I don't think I'd want

to treat the lightheadedness with sugar unless my BG tests low. For

others, that may work, though.

--

> Will try that for emergencies. It's a scary feeling but few people can

> understand that. so are we attributing it to low BP or shortness of

oxygen?

>

>

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Ah, thx lin, while I was in ED last week they gave me a potassium drink....no explanation, why potassium was low... Typical eh? Thank goodness for I’net, at least can do some research!

Good to hear from you, and hope you’re ‘travelling’ well,

Love

joy

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Joy,

Good to hear from YOU. After all your recent ills, you are very remarkable. My latest is that I had an endoscopy of my esophagus done which shows I have Barretts esophagus. What that means is a change in the cell structure, which could be pre cancerous or even cancerous. But at this point it isn't. He just told me to take an acid reflux med twice a day and elevate the head of my bed, which I had already done. The weird thing is that I have had heartburn maybe 10 times in my life, but I guess the stomach acid has done its damage anyway.

Then there is the peripheral neuropathy issue. That is numbness of my hands and feet. The neurologist wants me to have a nerve biopsy, which I was told by a neurosurgeon has some risk of nerve damage and not to jump into it. This disorder is more annoying than anything, because it really slows me down and I am used to moving at top speed.

Then there is the bronchiectasis, which is kind of in the background now, as my breathing has been better, and NO infections since I had the bronchoscopy and the doctor kind of washed out my lungs. Although I recently found out my new pulmonologist, a woman, is leaving her practice, and I absolutely loved her.

Oh well. It is what it is. I have to live in the present, whatever it may be.

God be with you friend,

MarilynGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

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I noticed several people have been taking Levaquin. I have taken it twice. Once for urinary infect and once for bronch. I was just looking at what the side effects can be, and it is a little disturbing. Tendon rupture, mostly in older people, severe allergic reactions, cause peripheral neuropathy (which I already have), severe diarrhea, and quiite a few others.

Here I was thinking it was one of the safer new drugs, but I guess not.

MarilynGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

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I have successfully used Levquin for several infections and did not experience any side effects. I also have been using Avelox, and I'm happy to report...no side effects.

Eileen-FL

Subject: Re: Re: blood pressureTo: bronchiectasis Date: Thursday, July 31, 2008, 8:57 AM

I noticed several people have been taking Levaquin. I have taken it twice. Once for urinary infect and once for bronch. I was just looking at what the side effects can be, and it is a little disturbing. Tendon rupture, mostly in older people, severe allergic reactions, cause peripheral neuropathy (which I already have), severe diarrhea, and quiite a few others.

Here I was thinking it was one of the safer new drugs, but I guess not.

Marilyn

Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

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I have successfully used Levquin for several infections and did not experience any side effects. I also have been using Avelox, and I'm happy to report...no side effects.

Eileen-FL

Subject: Re: Re: blood pressureTo: bronchiectasis Date: Thursday, July 31, 2008, 8:57 AM

I noticed several people have been taking Levaquin. I have taken it twice. Once for urinary infect and once for bronch. I was just looking at what the side effects can be, and it is a little disturbing. Tendon rupture, mostly in older people, severe allergic reactions, cause peripheral neuropathy (which I already have), severe diarrhea, and quiite a few others.

Here I was thinking it was one of the safer new drugs, but I guess not.

Marilyn

Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

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Hi Joy -

In the US the trade name for albuterol sulfate is Proventil .I use it in my hand

held pufer as

well as my nebilizer.

-- In bronchiectasis , joy wrote:

>

> Hi ,

> Which puffers use albuterol sulfate - is trade-name Seretide one of them?

> Must check that one out.....

> joy

>

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Guest guest

Hi Joy -

In the US the trade name for albuterol sulfate is Proventil .I use it in my hand

held pufer as

well as my nebilizer.

-- In bronchiectasis , joy wrote:

>

> Hi ,

> Which puffers use albuterol sulfate - is trade-name Seretide one of them?

> Must check that one out.....

> joy

>

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--- Hi, everyone. I'm new to this chat & to this disease. My husband

was dx'd. just this wk. at The Cleveland Clinic. He was prescribed a

nebulizer and instructed to use 3ml of 3% saline solution 3 times/day.

So far, we have been unable to find the 3% saline in one-dose vials.

He's been using the ones he left The Clinic with. He uses the

" flutter " immediately after the nebulizer and says he can already feel

a difference. We're hopeful.

Thanks for this forum.

>

>

>

> >

> > Subject: Re: Re: blood pressure

> > To: bronchiectasis

> > Date: Thursday, July 31, 2008, 10:53 AM

> > yes its a prescription for plain viles of saline,,, its

> > known that salt is a

> > natural clenser so i thought to try to add extra saline

> > since im using the

> > neb anyway for the albuterol and low n behold it helped

> > cut down the darkness

> > of my mucus and the amount too,,,i get 100 vials in a box,

> > i only pay 5.00 for

> > it with my prescription plan,,the viles are 0.9%

> >

> >

> >

> > **************Get fantasy football with free live scoring.

> > Sign up for

> > FanHouse Fantasy Football today.

> > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

>

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