Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 I sure hope the DMSA would also help for aluminum, till now I only heard of malic acid for aluminum. We're giving him probiotics but we're not sure if it is a good one. We're still looking to find the right supplements, everything's having different names, sometimes it's hard to find it over here. Nadia 2006/1/4, Marin Simina : > > Nadia, > > DMSA will remove other heavy metals beside lead (including mercury, > aluminum, ...). And based on your description, I don't think he > experienced any regresion (nor side effects). However, constipation > is a BIG problem and I would take care of it immediately (otherwise, > the toxins and metals will not get eliminated and also gut bugs will > become an issue). Our DAN told us that exema might be from > aluminium (and after the first round of chelation with oral DMSA, my > son's exema was gone). > > Marin > > > > > > Hi Jan, > > > > tx for your reply. I will start with some more background for our > son who is > > 8yo and dx PDD - Asperger syndrome when he was 6yo. As a baby he > had severe > > intolerance for milk while I was breastfeeding so we both were on > a caseine > > free diet. This lasted till he was about 5 years but since he > never ate > > diary as a baby he doesn't like diary products a lot. > > The only thing we noticed is that he has eczema which worsenes > when taking > > colourings. So i think we managed to have our kids eat " healthy " > and we try > > to buy only organic products. > > Two months ago we started the GF diet and supplementing him. He is > more > > happier now and looks healthier. But there was no great > improvement in > > social interaction or attention. > > Because we found out that there was a lead intoxication due to > lead paint in > > the house, we decided to start with chelation via oral dmsa, low > doses of 33 > > mg every 4 hours, a couple of days. During this days, we saw a > decrease in > > hyperactivity, no increase in other symptoms. So is this > regression only > > observable with mercury toxicity and not with lead? > > When do you notice a regression, immediately after starting with > chelation > > or afterwards? > > Considering his gut, the only problem we observed here is > constipation, > > which could be due to the lead intoxication? > > > > So how can we now when gut is really an issue? There are no Dan > doctors in > > Belgium as far as we know, our general practioner can't help us > because she > > is not trained for this kind of stuff, she says. Glenn has been > treated by a > > toxicologist who gave him DMPS IV which severely affected him, he > clearly > > 'regressed' to a state he never has been in befor. > > We're now following the protocol of Andy Cutler. > > > > We have been exploring all these things for 2 years now to find > help for our > > son, but so far we think we are on our own here in Belgium. > > > > Nadia & Glenn > > > > > > 2006/1/4, Jan Brenton <janbrenton@i...>: > > > > > > Nadia - > > > > > > just a word of caution about oral DMSA in particular (and any > other > > > chelating protocols) - it's essential to get the > gastrointestinal tract > > > clear before you start oral DMSA and to ensure there are no > problems with > > > candida/yeast ...if your son has only been on a diet for 2 > months am > > > wondering what else you have done to prepare him for chelation? > is he > > > taking any probiotics? - sorry I don't know your child's > history or age > > > but > > > I do know several children who have regressed really badly on > oral DMSA > > > because their gut was not fully prepared - oral DMSA has a > history of > > > attracting yeast problems leading to severe gut dysbiosis ...do > you have a > > > DAN doc at the helm? the good biomedical docs are usually very > > > conservative > > > about introducing chelation protocols and try and ensure that > the immune > > > system is viable enough to cope with chelation (in any > form) ...your > > > little > > > fellow is making good headway on the diet ...perhaps go into > that a bit > > > more > > > and maybe (if you have not already done so) remove colourings > sugar > > > preservatives soy products - your boy may well be experiencing > > > withdrawal > > > symtoms now that dairy and gluten have been removed (a bit like > an addict > > > coming off drugs) and that may account for his mood swings - > there may > > > be more dietry infactions which are adversely affecting him that > you are > > > not > > > yet aware of ... we are all so anxious to help our kids recover > but to > > > " hasten slowly " > > > is a good guideline to give his body the chance to recover and > build up > > > his > > > immune > > > system before you do chelation ... > > > > > > having lived through " regression " on oral DMSA I wouldn't want > your boy > > > (or you) to experience the same ..our DAN no longer uses oral > DMSA there > > > were too many problems ....just my thoughts born on > experience .... best > > > of > > > luck on your recovery walk - > > > > > > jan brenton (biomedical autism group) > > > > > > > > > > > > From: " Nadia Diraä " <diraa.nadia@g...> > > > > > > > > > > > > Hi list, dr McCandless, > > > > > > we started chelating our son with oral dmsa last week. He has > been on the > > > GF/CF diet for almost two months now but we don't know how his > gut is. > > > Due to this diet, he seemed more happy, smiling a lot, hugging > etc. But > > > his > > > mood swings were more extreme, to the point that he started > hitting kids > > > in > > > school. > > > We also started supplementing him and chelating is the next step. > > > We use dmsa because of the lead but what should we do about the > aluminum? > > > We > > > didn't find any dietary intake yet, we read everywhere it should > come down > > > on its own so this is really puzzling us. > > > > > > thanks for letting us share our thoughts about this, > > > > > > Glenn & Nadia > > > > > > > > > > > > 2005/12/22, nadiadiraa <diraa.nadia@g...>: > > > > > > > > Dear Dr. McCandless, > > > > > > > > First of all thanks for the wonderfull & informatif book you > wrote ! > > > > We are the parents of Staf, 8 years old , and diagnosed > as " highly > > > > functional in the autisme spectrum " . He is now on the GF/CF > diet & > > > > supplements, enzymes and probiotics and we see some > improvements: > > > > motor skills and good mood. > > > > We did a hair test (for the results, see below) and were > trying to > > > > do a right interpretation with Andy Cutlers book Hair Test > > > > Interpretation. The counting rules don't apply for his > essential > > > > elements. But we found " indirect clues " . Page 87, Andy > > > > states " Alumnium may become elevated due to mercury induced > > > > derangement of mineral transport before the test meets a > counting > > > > rule. Some suspicion regarding the prescence of mercury is > > > > appropriate in a test with elevated alumnium, especially if > > > > accompanied by one or more of antimony, nickel, tin or > titanium. " > > > > There are three other reasons we think mercury is the problem > > > > (besides the high aluminum and lead) > > > > 1) When he is exited, he flaps with his hands and runs in > > > > patterns. There are other behaviors like extremely shy, no or > less > > > > eye contact, etc . which we think are typical mercury induced. > > > > 2) He had many vaccinations with mercury. His mother has 7 > > > > amalgam fillings. The last two vaccines, on the ages of 4,5 > and 6 > > > > year, contained aluminumhydroxide. Around this period he had > the > > > > most clearly transition in " autisme spectrum " we believe, due > to > > > > synergetic effects between the neurotoxins. Could it be that > the > > > > high reading for aluminum in the hair test is from those > vaccines 2 > > > > years ago ? > > > > 3) Mercury runs in the family. I (his father) am > currently > > > > recovering from amalgam illness (again with the help of Andy > Cutlers > > > > book Amalgam Illness) and my mother (grandmother from Staf) is > > > > suffering from schizophrenia, wich first occurred shortly > after her > > > > first amalgam fillings on the age of 30 years. > > > > > > > > All together we think we got a " high probability " for mercury. > Do > > > > you agree ? > > > > We are currently in counseling with a toxicologue but the new > > > > paradigma on autism children is still not known in Belgium. We > think > > > > that chelation with DMSA is appropriate, especially for lead. > And if > > > > there's mercury it has to show up in the urine tests. > > > > We read that you can chelate aluminum with malic acid. Wich > protocol > > > > do you use ? Is this like ALA, a few days every 3 hours and > the same > > > > quantity in mg? > > > > > > > > I hope you can give us some advice on how we can help our son > to > > > > become again the wonderful kid he was as a toddler. > > > > We also include the results of his hair test. > > > > > > > > Glenn & Nadia > > > > > > > > TOXIC RESULT for Staf, 8 yo, male > > > > REFERENCE PERCENTILE ELEMENTS µg/g RANGE 68th 95th > > > > Aluminum 20 < 8.0 yellow, almost red > > > > Antimony 0.032 < 0.066 green > > > > Arsenic 0.042 < 0.080 green > > > > Beryllium 0.01 < 0.020 no trace of it > > > > Bismuth 0.024 < 0.12 green > > > > Cadmium 0.028 < 0.15 green > > > > Lead 1.2 < 1.0 yellow (just over 68th percentile) > > > > Mercury 0.10 < 0.40 green > > > > Platinum < 0.003 < 0.005 no trace of it > > > > Thallium < 0.001 < 0.010 no trace of it > > > > Thorium < 0.001 < 0.005 no trace of it > > > > Uranium 0.005 < 0.060 green > > > > Nickel 0.24 < 0.40 green > > > > Silver 0.20 < 0.13 yellow (just over 68th percentile) > > > > Tin 0.16 < 0.30 green > > > > Titanium 0.33 < 1.0 green > > > > Total Toxic Representation yellow (just over 68th percentile) > > > > ESSENTIAL AND OTHER ELEMENTS > > > > RESULT REFERENCE PERCENTILE > > > > ELEMENTS µg/g RANGE 2.5th 16th 50th 84th 97.5th > > > > Calcium 349 160- 500 green to the left > > > > Magnesium 18 12- 50 green to the left > > > > Sodium 66 12- 90 green to the right > > > > Potassium 65 10- 40 yellow (84th percentile) > > > > Copper 8.9 9.0- 30 green (almost 16th percentile) > > > > Zinc 110 110- 190 green (almost 16th percentile) > > > > Manganese 0.18 0.18- 0.60 green (almost 16th percentile) > > > > Chromium 0.64 0.23- 0.50 yellow (cc. 90th percentile) > > > > Vanadium 0.075 0.025- 0.10 green to the right > > > > Molybdenum 0.063 0.040- 0.089 green to the right > > > > Boron 1.1 0.50- 3.5 green to the left > > > > Iodine 0.58 0.25- 1.3 white to the right > > > > Lithium 0.011 0.007- 0.023 white to the right > > > > Phosphorus 126 160- 250 yellow, almost to the 2.5th > > > > Selenium 0.65 0.95- 1.7 yellow, almost to the 2.5th > > > > Strontium 2.7 0.21- 2.1 yellow to the right > > > > Sulfur 46400 45500- 53000 green to the left > > > > Barium 0.52 0.19- 1.6 white to the left > > > > Cobalt 0.017 0.013- 0.035 green to the left > > > > Iron 16 6.0- 17 green to the right > > > > Germanium 0.040 0.045- 0.065 yellow to the left > > > > Rubidium 0.047 0.008- 0.080 green to the right > > > > Zirconium 0.089 0.060- 0.70 yellow to the left > > > > > > > > > > > > > > > > > > > > > > > > > > > > Many frequently asked questions and answers can be found at < > > > > http://forums.autism-rxguidebook.com/default.aspx> > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 I am about to switch to Klaire Labs Complete and Factor 4 formulations as we start oral DMSA. I missed the beginning of this thread. Jan, can you describe the regression you saw with DMSA? Thanks, -- Rima Regas Mom to Leah, age 8 (AS, DSI and APD) http://www.sensoryintegrationhelp.com > > I sure hope the DMSA would also help for aluminum, till now I only heard > of > malic acid for aluminum. > We're giving him probiotics but we're not sure if it is a good one. We're > still looking to find the right supplements, everything's having different > names, sometimes it's hard to find it over here. > > Nadia > > 2006/1/4, Marin Simina : > > > > Nadia, > > > > DMSA will remove other heavy metals beside lead (including mercury, > > aluminum, ...). And based on your description, I don't think he > > experienced any regresion (nor side effects). However, constipation > > is a BIG problem and I would take care of it immediately (otherwise, > > the toxins and metals will not get eliminated and also gut bugs will > > become an issue). Our DAN told us that exema might be from > > aluminium (and after the first round of chelation with oral DMSA, my > > son's exema was gone). > > > > Marin > > > > > > > > > > Hi Jan, > > > > > > tx for your reply. I will start with some more background for our > > son who is > > > 8yo and dx PDD - Asperger syndrome when he was 6yo. As a baby he > > had severe > > > intolerance for milk while I was breastfeeding so we both were on > > a caseine > > > free diet. This lasted till he was about 5 years but since he > > never ate > > > diary as a baby he doesn't like diary products a lot. > > > The only thing we noticed is that he has eczema which worsenes > > when taking > > > colourings. So i think we managed to have our kids eat " healthy " > > and we try > > > to buy only organic products. > > > Two months ago we started the GF diet and supplementing him. He is > > more > > > happier now and looks healthier. But there was no great > > improvement in > > > social interaction or attention. > > > Because we found out that there was a lead intoxication due to > > lead paint in > > > the house, we decided to start with chelation via oral dmsa, low > > doses of 33 > > > mg every 4 hours, a couple of days. During this days, we saw a > > decrease in > > > hyperactivity, no increase in other symptoms. So is this > > regression only > > > observable with mercury toxicity and not with lead? > > > When do you notice a regression, immediately after starting with > > chelation > > > or afterwards? > > > Considering his gut, the only problem we observed here is > > constipation, > > > which could be due to the lead intoxication? Quote Link to comment Share on other sites More sharing options...
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