Re: Fw: (ASAN) ACTION ALERT: Tell HHS to Stop Creative Accounting

[Guest guest]

Helen,

Thanks for always forwarding these notices and requests from sites such as GRASP

and ASAN. This one's really valuable, and I'll be sending a separate support

Email on to our senator Ron Wyden who has considerable seniority on the Senate

committee responsible for HHS oversight. Wyden's particularly sensitive to

misleading reporting.

N. Meyer

Fw: (ASAN) ACTION ALERT: Tell HHS to Stop

" Creative Accounting "

>

>ACTION ALERT: Tell HHS to Stop " Creative Accounting " with Autism Research

>

>On July 10th, the federal government's Office of Autism Research Coordination

(OARC) released a new report analyzing the distribution of autism research

dollars in 2010. This report - entitled the IACC ASD Research Portfolio - is an

annual responsibility of the federal government under Public Law 112-32. At

first glance, the report shows significant steps forward on one of the key

priorities of the Autistic and autism communities: the percentage of research

funding going towards services research: OARC reports 16% of the autism research

agenda funding this priority, up from 3% in 2009. However, further scrutiny

reveals that rather than an actual increase in the percentage of funding

allocated to services research, OARC instead chose to re-classify existing

training programs as " research " to give the impression of progress. Instead of

getting more funding for services-research, we've just gotten creative

accounting, re-classifying practitioner training programs as research

activities.

>

>Autistic people and our families deserve better. Help us tell OARC as much by

signing our action alert to HHS Secretary Kathleen Sebelius, NIMH Director Tom

Insel and OARC Director s, urging them to revise the 2010 IACC

Research Portfolio Analysis to reflect the real data. Furthermore, tell them

that we've noticed how little progress has been made in funding research into

the needs of Autistic adults - still only 2% of the research agenda. Demand real

action to address the imbalances in our autism research agenda. It is time to

make them hear our voices.

>

>TAKE ACTION!

>

>http://autisticadvocacy.org/2012/07/action-alert-tell-hhs-to-balance-the-autism\

-research-agenda/

>

>

>ASAN

>Autistic Self Advocacy Network

> " Nothing about us without us "

>PO Box 66122 | Washington, DC 20035 US

>

>

>

>

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