New to the group

October 24, 2003

Hi Kim and welcome to the group! I think your results are just

fine... sometimes we have to focus on progress not perfection (as

the famed Bill says). In my first challenge, I only lost

8.5 scale lbs but I lost 2 dress sizes. Try taking tape

measurements of the major body parts: chest, arm, waist, hips,

thigh, calf and measure your progress that way. The scale doesn't

always tell the true story of progress.

Also, keep in mind that it sometimes takes a few months to " correct "

your metabolism, particularly if you - like many women - have a

history of yo-yo dieting (lose/gain/lose/gain). Keep up the good

work and try to focus on the small things - a successful nutrition

week, increasing your weights, being able to climb a flight of

stairs without wheezing, these are all signs that positive things

are happening in your body. Eventually the fat loss will happen and

6 months or a year from now you will be amazed at the progress you

have made!

Jen B.

> Hi all - my name is Kim and I live in New Zealand. I am 35 and I

am

> in week 10 of my first challenge. Have had very very small

results

> nothing major. I am going to carry on with my 6 days a week work

> out even after the 12 are over. I know it is going to take me a

> long time to lose my weight so I just have to keep going. my

start

> weight was 205lbs and at 5ft3 that is not good. I am now 198 so

not

> much of a loss well not a noticiable one anyway. I know that I

need

> to get more strick with my food and maybe do some of the floor

> exercises at home as well. Anyway - just wanted to say HI....

Have

> a wonderful weekend ....Kim (NZ)

September 17, 2004

Hi ,

Welcome to a wonderful group!

You said the magic word - subside. What was causing your back pain, and

what did you do to get the pain to subside?

Inquiring minds want to know!

Dix

Walsh wrote:

Hello everyone! I am new to this group and wanted to introduce my

self. I have had chronic back pain for the past 5 years and it's

finally starting to subside. I hope I can support other peolpe in the

fight.

Walsh

July 3, 2012

Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had

it when I was about 15, one node that went away with Potassium Iodide treatment.

It was deemed idiopathic and we weren't concerned)

I started having wandering joint pain in July 2011, and thought I'd inherited

Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I

have terrible insurance and since ibuprofen worked well, I was taking 600 mg

twice a day, I didn't bother going to the dr. In February of 2012 I got a hot

red lump on my right ankle and my toe and ankle had a lot of pain. I thought it

was perhaps Gout, and went to see the DR.

She did a blood panel which came back normal, so she diagnosed EN. I told her

I'd had it before and that the Potassium worked well for me. (She had to look up

the dosage in a textbook and had the student doctors come see it, because it was

so rare!)

The potassium cleared it up in two weeks, but one week after stopping the drops,

it came back. Finally in June I went to see her again and she referred me to a

rhumetologist.

From my research I really believe it was my Oral Contraceptives causing this

breakout (I was on them when I was 15 as well) and decided to go off the OCs. It

seemed to start helping.... until last month when I got pregnant. My husband and

I were going to try later this fall (hopefully after EN was under control) but

it happened a bit earlier than that. Oops.

Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything

he gives me has potential to harm the baby. I'd prefer a more natural rout to

treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes

on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg

of tylenol a day (less or none if I can)

Should I go see the rhumetologist? Is it worth the $250+ per appt to have him

just tell me there is nothing he can do? Is there something he CAN do? I just

don't know what to do anymore.

July 3, 2012

The rheumatologist will X-ray every bone in your body. Ours did. We also went to an infectious disease dr. All negative. We then knew it was idiopathic. No underlying disease. My daughter had just had a vaccine,taken Bactrim and taking YAZ. All known triggers. We dealt with it for almost 2 yrs with a bout of mono thrown in. She has been clear for almost 3 yrs now. No more Yaz or Bactrim. I know it could come back at any time though. Watch for triggers. Sent from my iPhone

Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned)

I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR.

She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!)

The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist.

From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops.

Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can)

Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 3, 2012

Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 3, 2012

Has anyone had problems with their hair falling out? That's the issue we are dealing with now basic thyroid levels are normal. Sent from my iPhone

Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 3, 2012

Yes. My hair was falling out considerably. But I believe mine was due to estrogen dominance and lack of progesterone. Also I wasn't getting the right thyroid medication. My doctor told me my labs were normal for years and it wasn't. I am so thankful for my new doctor who uses different criteria. My hair has since grown back. Also my eyebrows fell out on the tails. They are now growing back.There are a variety of issues that can cause one to lose hair. I just had a friend who has 5 large patches of hair missing. Her hair just was dropping out. Turns out her IUD was the culprit. Even though the doctor said it was alopecia. Once the IUD was taken out her hair came back.Also check your nutrition levels. You could be lacking several important vitamins.If you are older it could be hormonal. Estrogen dominance is a leading factor in women losing hair.There are also a few autoimmune issues that can cause hair loss.We kind of have to be our own doctor till we can figure out what works.Wishing you healing.ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Has anyone had problems with their hair falling out? That's the issue we are dealing with now basic thyroid levels are normal. Sent from my iPhone Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 3, 2012

What extra thyroid tests were ran? I knew I had thyroid problems for yrs but my tests were always normal til I had full on Graves disease that also caused heart issues. By then I was really sick and exhausted. My daughter is only 22. Hair falling out and tired all the time even after sleeping all night. But we have thyroid disease on both sides of the family. Graves and Hashimotos. I'm thinking thyroid antibodies should be checked?Sent from my iPhone

Yes. My hair was falling out considerably. But I believe mine was due to estrogen dominance and lack of progesterone. Also I wasn't getting the right thyroid medication. My doctor told me my labs were normal for years and it wasn't. I am so thankful for my new doctor who uses different criteria. My hair has since grown back. Also my eyebrows fell out on the tails. They are now growing back.There are a variety of issues that can cause one to lose hair. I just had a friend who has 5 large patches of hair missing. Her hair just was dropping out. Turns out her IUD was the culprit. Even though the doctor said it was alopecia. Once the IUD was taken out her hair came back.Also check your nutrition levels. You could be lacking several important vitamins.If you are older it could be hormonal. Estrogen dominance is a leading factor in women losing hair.There are also a few autoimmune issues that can cause hair loss.We kind of have to be our own doctor till we can figure out what works.Wishing you healing.ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Has anyone had problems with their hair falling out? That's the issue we are dealing with now basic thyroid levels are normal. Sent from my iPhone Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 3, 2012

I have Hashimotos. Your daughter's hair could be falling out because of the Hashimotos. Sounds familiar sleeping 18 hours a day for me before being treated properly. I had the hair loss, moon face, just never feeling normal. Terrible periods. And all my endocrinologists said I was normal. I would also go from 165lbs to 120lbs. At my worst my lumps would just explode. It was awful. It started getting really bad in the last 3 years. Vertigo, racing heart etc. I think I went to five heart doctors. Nothing wrong with my heart. Please go to http://www.stopthethyroidmadness.com/andhttp://thyroidbook.com/I have both of these books.Stop the thyroid madness is by far the BEST patient advocacy book on thyroid disorders. If you order it make sure you get the 2nd edition. My new doctor LOVES it. He tells all of his thyroid patience to get a copy and memorize it. Especially the labs sections.Being on Synthroid and Levythyroxin almost killed me. Las summer my old doctor switched me to Tyrosint saying it was more pure.... it sent me to the hospital 5 times. Numerous thyroid storms back-to-back and they had to flush me out with saline drips. The ER doctor told me his sister died of a thyroid storm and that I needed a new doctor. I finally yelled at my doctor and said, what could possibly be doing this? My whole body was shaking from tremors. My heart was racing. Then it would stop and I could sleep all day. When I went into mania I wouldn't be able to sleep for 4 days. She said the only thing could be Hashimotos. We tested it right then, they had a lab on the premises and it came back positive. I had been going to her for YEARS! And it never dawned on her to run that test, even though she knew my struggle with my thyroid. Why? She said I tested normal.So I did tons of research. I found a great doctor who didn't treat with Synthroid or Levythryroxine in La Jolla, CA whose expertise is Hashimotos, Graves, and almost all autoimmune issues.When he looked at my labs he just calmly told me that I would be fine in 6 months. It would take going gluten free (hashimotos patients must be gluten free), he put me on Nature Throid (natural desecated thyroid that contains a T3 Which is not in Synthiod or other Synthetic thyroids meds pushed by endocrinologists. The T3 I was starved for. I felt better in one week. I could never even imagine feeling this good. Ever. He also put me on selenium. Hashimotos patients should take it daily. Also anyone with heart issues and cancer.He ran a blood panel on my thryoid, as well as well. You will need ALL Thyroids checked: TSH 3/ TSH4 Free TSH and antibody test. ALOT of Hashimotos patients supposedly were testing NORMAL.I was one of them.He also ran a panel for all my nutrition. Spectracell Labs does this. I was deficient in Iron and B12 and Selenium (most Hashimotos will have these deficiencies)For one year I have been symptom free. I am able to run and walk and exercise daily without awful recovery periods that I had before with my other doctor. Also lumps were resolved within 3 months of going to him. I hope this is helpful! Finding a great doctor who isn't dumbed down by med school dogma is so important when dealing with autoimmune issues. ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden What extra thyroid tests were ran? I knew I had thyroid problems for yrs but my tests were always normal til I had full on Graves disease that also caused heart issues. By then I was really sick and exhausted. My daughter is only 22. Hair falling out and tired all the time even after sleeping all night. But we have thyroid disease on both sides of the family. Graves and Hashimotos. I'm thinking thyroid antibodies should be checked?Sent from my iPhone Yes. My hair was falling out considerably. But I believe mine was due to estrogen dominance and lack of progesterone. Also I wasn't getting the right thyroid medication. My doctor told me my labs were normal for years and it wasn't. I am so thankful for my new doctor who uses different criteria. My hair has since grown back. Also my eyebrows fell out on the tails. They are now growing back.There are a variety of issues that can cause one to lose hair. I just had a friend who has 5 large patches of hair missing. Her hair just was dropping out. Turns out her IUD was the culprit. Even though the doctor said it was alopecia. Once the IUD was taken out her hair came back.Also check your nutrition levels. You could be lacking several important vitamins.If you are older it could be hormonal. Estrogen dominance is a leading factor in women losing hair.There are also a few autoimmune issues that can cause hair loss.We kind of have to be our own doctor till we can figure out what works.Wishing you healing.ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Has anyone had problems with their hair falling out? That's the issue we are dealing with now basic thyroid levels are normal. Sent from my iPhone Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 3, 2012

I asked my endo for cytomel(t3). She said no, it was addictive and people like it cause it peps them up! DUH! I have no working thyroid.( took I131). I also was iron and b12 deficient! How much selenium do you take daily? Do not know where to take my daughter :/. We live in Oklahoma. Feel bad for her she used to have beautiful hair. Sent from my iPhone

I have Hashimotos. Your daughter's hair could be falling out because of the Hashimotos. Sounds familiar sleeping 18 hours a day for me before being treated properly. I had the hair loss, moon face, just never feeling normal. Terrible periods. And all my endocrinologists said I was normal. I would also go from 165lbs to 120lbs. At my worst my lumps would just explode. It was awful. It started getting really bad in the last 3 years. Vertigo, racing heart etc. I think I went to five heart doctors. Nothing wrong with my heart. Please go to http://www.stopthethyroidmadness.com/andhttp://thyroidbook.com/I have both of these books.Stop the thyroid madness is by far the BEST patient advocacy book on thyroid disorders. If you order it make sure you get the 2nd edition. My new doctor LOVES it. He tells all of his thyroid patience to get a copy and memorize it. Especially the labs sections.Being on Synthroid and Levythyroxin almost killed me. Las summer my old doctor switched me to Tyrosint saying it was more pure.... it sent me to the hospital 5 times. Numerous thyroid storms back-to-back and they had to flush me out with saline drips. The ER doctor told me his sister died of a thyroid storm and that I needed a new doctor. I finally yelled at my doctor and said, what could possibly be doing this? My whole body was shaking from tremors. My heart was racing. Then it would stop and I could sleep all day. When I went into mania I wouldn't be able to sleep for 4 days. She said the only thing could be Hashimotos. We tested it right then, they had a lab on the premises and it came back positive. I had been going to her for YEARS! And it never dawned on her to run that test, even though she knew my struggle with my thyroid. Why? She said I tested normal.So I did tons of research. I found a great doctor who didn't treat with Synthroid or Levythryroxine in La Jolla, CA whose expertise is Hashimotos, Graves, and almost all autoimmune issues.When he looked at my labs he just calmly told me that I would be fine in 6 months. It would take going gluten free (hashimotos patients must be gluten free), he put me on Nature Throid (natural desecated thyroid that contains a T3 Which is not in Synthiod or other Synthetic thyroids meds pushed by endocrinologists. The T3 I was starved for. I felt better in one week. I could never even imagine feeling this good. Ever. He also put me on selenium. Hashimotos patients should take it daily. Also anyone with heart issues and cancer.He ran a blood panel on my thryoid, as well as well. You will need ALL Thyroids checked: TSH 3/ TSH4 Free TSH and antibody test. ALOT of Hashimotos patients supposedly were testing NORMAL.I was one of them.He also ran a panel for all my nutrition. Spectracell Labs does this. I was deficient in Iron and B12 and Selenium (most Hashimotos will have these deficiencies)For one year I have been symptom free. I am able to run and walk and exercise daily without awful recovery periods that I had before with my other doctor. Also lumps were resolved within 3 months of going to him. I hope this is helpful! Finding a great doctor who isn't dumbed down by med school dogma is so important when dealing with autoimmune issues. ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden What extra thyroid tests were ran? I knew I had thyroid problems for yrs but my tests were always normal til I had full on Graves disease that also caused heart issues. By then I was really sick and exhausted. My daughter is only 22. Hair falling out and tired all the time even after sleeping all night. But we have thyroid disease on both sides of the family. Graves and Hashimotos. I'm thinking thyroid antibodies should be checked?Sent from my iPhone Yes. My hair was falling out considerably. But I believe mine was due to estrogen dominance and lack of progesterone. Also I wasn't getting the right thyroid medication. My doctor told me my labs were normal for years and it wasn't. I am so thankful for my new doctor who uses different criteria. My hair has since grown back. Also my eyebrows fell out on the tails. They are now growing back.There are a variety of issues that can cause one to lose hair. I just had a friend who has 5 large patches of hair missing. Her hair just was dropping out. Turns out her IUD was the culprit. Even though the doctor said it was alopecia. Once the IUD was taken out her hair came back.Also check your nutrition levels. You could be lacking several important vitamins.If you are older it could be hormonal. Estrogen dominance is a leading factor in women losing hair.There are also a few autoimmune issues that can cause hair loss.We kind of have to be our own doctor till we can figure out what works.Wishing you healing.ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Has anyone had problems with their hair falling out? That's the issue we are dealing with now basic thyroid levels are normal. Sent from my iPhone Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 3, 2012

Oh I also went into menopause at only 43! All my hormone levels were so low they did not register! Glanced at the website! Awesome! Thank youSent from my iPhone

I have Hashimotos. Your daughter's hair could be falling out because of the Hashimotos. Sounds familiar sleeping 18 hours a day for me before being treated properly. I had the hair loss, moon face, just never feeling normal. Terrible periods. And all my endocrinologists said I was normal. I would also go from 165lbs to 120lbs. At my worst my lumps would just explode. It was awful. It started getting really bad in the last 3 years. Vertigo, racing heart etc. I think I went to five heart doctors. Nothing wrong with my heart. Please go to http://www.stopthethyroidmadness.com/andhttp://thyroidbook.com/I have both of these books.Stop the thyroid madness is by far the BEST patient advocacy book on thyroid disorders. If you order it make sure you get the 2nd edition. My new doctor LOVES it. He tells all of his thyroid patience to get a copy and memorize it. Especially the labs sections.Being on Synthroid and Levythyroxin almost killed me. Las summer my old doctor switched me to Tyrosint saying it was more pure.... it sent me to the hospital 5 times. Numerous thyroid storms back-to-back and they had to flush me out with saline drips. The ER doctor told me his sister died of a thyroid storm and that I needed a new doctor. I finally yelled at my doctor and said, what could possibly be doing this? My whole body was shaking from tremors. My heart was racing. Then it would stop and I could sleep all day. When I went into mania I wouldn't be able to sleep for 4 days. She said the only thing could be Hashimotos. We tested it right then, they had a lab on the premises and it came back positive. I had been going to her for YEARS! And it never dawned on her to run that test, even though she knew my struggle with my thyroid. Why? She said I tested normal.So I did tons of research. I found a great doctor who didn't treat with Synthroid or Levythryroxine in La Jolla, CA whose expertise is Hashimotos, Graves, and almost all autoimmune issues.When he looked at my labs he just calmly told me that I would be fine in 6 months. It would take going gluten free (hashimotos patients must be gluten free), he put me on Nature Throid (natural desecated thyroid that contains a T3 Which is not in Synthiod or other Synthetic thyroids meds pushed by endocrinologists. The T3 I was starved for. I felt better in one week. I could never even imagine feeling this good. Ever. He also put me on selenium. Hashimotos patients should take it daily. Also anyone with heart issues and cancer.He ran a blood panel on my thryoid, as well as well. You will need ALL Thyroids checked: TSH 3/ TSH4 Free TSH and antibody test. ALOT of Hashimotos patients supposedly were testing NORMAL.I was one of them.He also ran a panel for all my nutrition. Spectracell Labs does this. I was deficient in Iron and B12 and Selenium (most Hashimotos will have these deficiencies)For one year I have been symptom free. I am able to run and walk and exercise daily without awful recovery periods that I had before with my other doctor. Also lumps were resolved within 3 months of going to him. I hope this is helpful! Finding a great doctor who isn't dumbed down by med school dogma is so important when dealing with autoimmune issues. ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden What extra thyroid tests were ran? I knew I had thyroid problems for yrs but my tests were always normal til I had full on Graves disease that also caused heart issues. By then I was really sick and exhausted. My daughter is only 22. Hair falling out and tired all the time even after sleeping all night. But we have thyroid disease on both sides of the family. Graves and Hashimotos. I'm thinking thyroid antibodies should be checked?Sent from my iPhone Yes. My hair was falling out considerably. But I believe mine was due to estrogen dominance and lack of progesterone. Also I wasn't getting the right thyroid medication. My doctor told me my labs were normal for years and it wasn't. I am so thankful for my new doctor who uses different criteria. My hair has since grown back. Also my eyebrows fell out on the tails. They are now growing back.There are a variety of issues that can cause one to lose hair. I just had a friend who has 5 large patches of hair missing. Her hair just was dropping out. Turns out her IUD was the culprit. Even though the doctor said it was alopecia. Once the IUD was taken out her hair came back.Also check your nutrition levels. You could be lacking several important vitamins.If you are older it could be hormonal. Estrogen dominance is a leading factor in women losing hair.There are also a few autoimmune issues that can cause hair loss.We kind of have to be our own doctor till we can figure out what works.Wishing you healing.ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Has anyone had problems with their hair falling out? That's the issue we are dealing with now basic thyroid levels are normal. Sent from my iPhone Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 3, 2012

Thank you gals so much for posting this! I lose hair according to my cycle (even my eyelashes) and have VERY thin outer corners of my eyebrows as well! I so wish that I could find a good alternative doc here in WY or even in Northern Colorado. ML- does your doc have any friends (docs) out here? Also, I would LOVE to see a list of what you eat. Do you make most of your/your families' food? I'd love to try (minus the fact that I'm married to an italian who loves pasta! I've thought a LOT about going Gluten free, but it seems like such a big jump. So I would love to hear what you eat on a regular basis. Thanks so much for all your info. I will be looking into the website. I've been using a progesterone serum, which did seem to have a very good effect on my emotions (I didn't have any before!). I drink a TON of water, I don't drink soda, I make all our bread at home from freshly ground wheat, we drink raw milk, I try to eat a much grass fed red meat as we can afford and we buy as many organic fruits/veggies as we can afford. So the jump wouldn't be huge for me. Feel free to email me back directly if you want. Adamohttp://www.HowToLiveNatural.com Young Living Dist. #1296758To: erythema_nodosum_Group From: roxannewarlick@...Date: Tue, 3 Jul 2012 21:27:21 -0500Subject: Re: New to the group

Oh I also went into menopause at only 43! All my hormone levels were so low they did not register! Glanced at the website! Awesome! Thank youSent from my iPhone

I have Hashimotos. Your daughter's hair could be falling out because of the Hashimotos. Sounds familiar sleeping 18 hours a day for me before being treated properly. I had the hair loss, moon face, just never feeling normal. Terrible periods. And all my endocrinologists said I was normal. I would also go from 165lbs to 120lbs. At my worst my lumps would just explode. It was awful. It started getting really bad in the last 3 years. Vertigo, racing heart etc. I think I went to five heart doctors. Nothing wrong with my heart. Please go to http://www.stopthethyroidmadness.com/andhttp://thyroidbook.com/I have both of these books.Stop the thyroid madness is by far the BEST patient advocacy book on thyroid disorders. If you order it make sure you get the 2nd edition. My new doctor LOVES it. He tells all of his thyroid patience to get a copy and memorize it. Especially the labs sections.Being on Synthroid and Levythyroxin almost killed me. Las summer my old doctor switched me to Tyrosint saying it was more pure.... it sent me to the hospital 5 times. Numerous thyroid storms back-to-back and they had to flush me out with saline drips. The ER doctor told me his sister died of a thyroid storm and that I needed a new doctor. I finally yelled at my doctor and said, what could possibly be doing this? My whole body was shaking from tremors. My heart was racing. Then it would stop and I could sleep all day. When I went into mania I wouldn't be able to sleep for 4 days. She said the only thing could be Hashimotos. We tested it right then, they had a lab on the premises and it came back positive. I had been going to her for YEARS! And it never dawned on her to run that test, even though she knew my struggle with my thyroid. Why? She said I tested normal.So I did tons of research. I found a great doctor who didn't treat with Synthroid or Levythryroxine in La Jolla, CA whose expertise is Hashimotos, Graves, and almost all autoimmune issues.When he looked at my labs he just calmly told me that I would be fine in 6 months. It would take going gluten free (hashimotos patients must be gluten free), he put me on Nature Throid (natural desecated thyroid that contains a T3 Which is not in Synthiod or other Synthetic thyroids meds pushed by endocrinologists. The T3 I was starved for. I felt better in one week. I could never even imagine feeling this good. Ever. He also put me on selenium. Hashimotos patients should take it daily. Also anyone with heart issues and cancer.He ran a blood panel on my thryoid, as well as well. You will need ALL Thyroids checked: TSH 3/ TSH4 Free TSH and antibody test. ALOT of Hashimotos patients supposedly were testing NORMAL.I was one of them.He also ran a panel for all my nutrition. Spectracell Labs does this. I was deficient in Iron and B12 and Selenium (most Hashimotos will have these deficiencies)For one year I have been symptom free. I am able to run and walk and exercise daily without awful recovery periods that I had before with my other doctor. Also lumps were resolved within 3 months of going to him. I hope this is helpful! Finding a great doctor who isn't dumbed down by med school dogma is so important when dealing with autoimmune issues. ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden What extra thyroid tests were ran? I knew I had thyroid problems for yrs but my tests were always normal til I had full on Graves disease that also caused heart issues. By then I was really sick and exhausted. My daughter is only 22. Hair falling out and tired all the time even after sleeping all night. But we have thyroid disease on both sides of the family. Graves and Hashimotos. I'm thinking thyroid antibodies should be checked?Sent from my iPhone Yes. My hair was falling out considerably. But I believe mine was due to estrogen dominance and lack of progesterone. Also I wasn't getting the right thyroid medication. My doctor told me my labs were normal for years and it wasn't. I am so thankful for my new doctor who uses different criteria. My hair has since grown back. Also my eyebrows fell out on the tails. They are now growing back.There are a variety of issues that can cause one to lose hair. I just had a friend who has 5 large patches of hair missing. Her hair just was dropping out. Turns out her IUD was the culprit. Even though the doctor said it was alopecia. Once the IUD was taken out her hair came back.Also check your nutrition levels. You could be lacking several important vitamins.If you are older it could be hormonal. Estrogen dominance is a leading factor in women losing hair.There are also a few autoimmune issues that can cause hair loss.We kind of have to be our own doctor till we can figure out what works.Wishing you healing.ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Has anyone had problems with their hair falling out? That's the issue we are dealing with now basic thyroid levels are normal. Sent from my iPhone Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 3, 2012

Well the T3 just made me feel normal. I would interview integrative endos. That's what I did. Do a search. I think even the Stop The Thyroid Madness has referals too. You want to interview the front desk and ask if they are open to natural t4/t3 solutions for thyroid. I use Nature Throid. I did Armour but it didn't work so well for me. Nature Throid works beautifully for me.I strongly recommend getting both of those books and going gluten free pronto. Then take your time finding an integrative medical doctor with an emphasis on autoimmune. Remember when you take your iron you have to take vit c with it. So it absorbs. You also can't take it near when you take your thyroid. You need four hours between. When you take B12 your should get a dropper sublingual. Make sure it is Methylcobalamin B12 complex. If you go to your local health food stores they shouldhave them there. Just do a full dropper full under your tongue everyday. Hold it there for 30 seconds before swallowing.I take one selenium pill 100mcg daily. When I was first tested a year ago I had to take two. But now I just take one a day.Here's my doctors information:http://www.docbron.com/He has a lot of clients all over the world. A lot of world class athletes. If you can't find anyone in Oklahoma, call his office and see if they have a referal. If they don't I would recommend a phone meetings. You would have to get all your lab work to him. And he would give you his opinion. I will warn you he doesn't take insurance for his appointments. All labs insurance is taken, but not for his consultations. And he's expensive, but very worth it. If it is for both you and your daughter. I would say that you would love to find out if he does a discount for two patients back to back. Might save you fifty bucks.Gook luck! ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden I asked my endo for cytomel(t3). She said no, it was addictive and people like it cause it peps them up! DUH! I have no working thyroid.( took I131). I also was iron and b12 deficient! How much selenium do you take daily? Do not know where to take my daughter :/. We live in Oklahoma. Feel bad for her she used to have beautiful hair. Sent from my iPhone I have Hashimotos. Your daughter's hair could be falling out because of the Hashimotos. Sounds familiar sleeping 18 hours a day for me before being treated properly. I had the hair loss, moon face, just never feeling normal. Terrible periods. And all my endocrinologists said I was normal. I would also go from 165lbs to 120lbs. At my worst my lumps would just explode. It was awful. It started getting really bad in the last 3 years. Vertigo, racing heart etc. I think I went to five heart doctors. Nothing wrong with my heart. Please go to http://www.stopthethyroidmadness.com/andhttp://thyroidbook.com/I have both of these books.Stop the thyroid madness is by far the BEST patient advocacy book on thyroid disorders. If you order it make sure you get the 2nd edition. My new doctor LOVES it. He tells all of his thyroid patience to get a copy and memorize it. Especially the labs sections.Being on Synthroid and Levythyroxin almost killed me. Las summer my old doctor switched me to Tyrosint saying it was more pure.... it sent me to the hospital 5 times. Numerous thyroid storms back-to-back and they had to flush me out with saline drips. The ER doctor told me his sister died of a thyroid storm and that I needed a new doctor. I finally yelled at my doctor and said, what could possibly be doing this? My whole body was shaking from tremors. My heart was racing. Then it would stop and I could sleep all day. When I went into mania I wouldn't be able to sleep for 4 days. She said the only thing could be Hashimotos. We tested it right then, they had a lab on the premises and it came back positive. I had been going to her for YEARS! And it never dawned on her to run that test, even though she knew my struggle with my thyroid. Why? She said I tested normal.So I did tons of research. I found a great doctor who didn't treat with Synthroid or Levythryroxine in La Jolla, CA whose expertise is Hashimotos, Graves, and almost all autoimmune issues.When he looked at my labs he just calmly told me that I would be fine in 6 months. It would take going gluten free (hashimotos patients must be gluten free), he put me on Nature Throid (natural desecated thyroid that contains a T3 Which is not in Synthiod or other Synthetic thyroids meds pushed by endocrinologists. The T3 I was starved for. I felt better in one week. I could never even imagine feeling this good. Ever. He also put me on selenium. Hashimotos patients should take it daily. Also anyone with heart issues and cancer.He ran a blood panel on my thryoid, as well as well. You will need ALL Thyroids checked: TSH 3/ TSH4 Free TSH and antibody test. ALOT of Hashimotos patients supposedly were testing NORMAL.I was one of them.He also ran a panel for all my nutrition. Spectracell Labs does this. I was deficient in Iron and B12 and Selenium (most Hashimotos will have these deficiencies)For one year I have been symptom free. I am able to run and walk and exercise daily without awful recovery periods that I had before with my other doctor. Also lumps were resolved within 3 months of going to him. I hope this is helpful! Finding a great doctor who isn't dumbed down by med school dogma is so important when dealing with autoimmune issues. ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden What extra thyroid tests were ran? I knew I had thyroid problems for yrs but my tests were always normal til I had full on Graves disease that also caused heart issues. By then I was really sick and exhausted. My daughter is only 22. Hair falling out and tired all the time even after sleeping all night. But we have thyroid disease on both sides of the family. Graves and Hashimotos. I'm thinking thyroid antibodies should be checked?Sent from my iPhone Yes. My hair was falling out considerably. But I believe mine was due to estrogen dominance and lack of progesterone. Also I wasn't getting the right thyroid medication. My doctor told me my labs were normal for years and it wasn't. I am so thankful for my new doctor who uses different criteria. My hair has since grown back. Also my eyebrows fell out on the tails. They are now growing back.There are a variety of issues that can cause one to lose hair. I just had a friend who has 5 large patches of hair missing. Her hair just was dropping out. Turns out her IUD was the culprit. Even though the doctor said it was alopecia. Once the IUD was taken out her hair came back.Also check your nutrition levels. You could be lacking several important vitamins.If you are older it could be hormonal. Estrogen dominance is a leading factor in women losing hair.There are also a few autoimmune issues that can cause hair loss.We kind of have to be our own doctor till we can figure out what works.Wishing you healing.ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Has anyone had problems with their hair falling out? That's the issue we are dealing with now basic thyroid levels are normal. Sent from my iPhone Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 3, 2012

I just had pasta with my sister tonight. She made it with rice noodles and it was fantastic. There's a brand from italy that is terrific. Any great health food store will have rice noodles. You can also order them and have them shipped to you.Here's my doctor:http://www.docbron.com/Call them and ask for a referal. If they don't have one ask about phone consults. He's expensive, but worth it. He has a lot of patients all over the world that just send in their labs and he consults over the phone.I have five of my friends going to him now and they love him. I literally only meet with him 4 times a year. So for me it is a heck of a lot cheaper than going to my other doctor that made me so sick.Also check out Stop The Thyroid Madness and see if they have referals. Or do a search on Integrative doctors with emphasis in autoimmune. Also interview the front desk. Ask if the doctor is open to Stop The Thyroid Madness methodology. Most traditional Endos are not. So you might have to call around a lot. Also order the books I recommended. Very important! It will open your eyes.Yes I make most of the foods I eat. It's not a big jump when you experience the benefits. There are so many great recipes out there for gluten free.Luckily for me down the road they opened a new bakery/cafe that is 100% gluten free and it is out of control delicious. It is packed every day. The cupcakes are insane. The breads fantastic. All the pastas and pot pies are amazing. I do not miss the heavy bloated feeling from gluten at all. Neither does my family. I haven't had gluten bread or pasta for over a year. wishing you healing! ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Thank you gals so much for posting this! I lose hair according to my cycle (even my eyelashes) and have VERY thin outer corners of my eyebrows as well! I so wish that I could find a good alternative doc here in WY or even in Northern Colorado. ML- does your doc have any friends (docs) out here? Also, I would LOVE to see a list of what you eat. Do you make most of your/your families' food? I'd love to try (minus the fact that I'm married to an italian who loves pasta! I've thought a LOT about going Gluten free, but it seems like such a big jump. So I would love to hear what you eat on a regular basis. Thanks so much for all your info. I will be looking into the website. I've been using a progesterone serum, which did seem to have a very good effect on my emotions (I didn't have any before!). I drink a TON of water, I don't drink soda, I make all our bread at home from freshly ground wheat, we drink raw milk, I try to eat a much grass fed red meat as we can afford and we buy as many organic fruits/veggies as we can afford. So the jump wouldn't be huge for me. Feel free to email me back directly if you want. Adamohttp://www.HowToLiveNatural.com Young Living Dist. #1296758To: erythema_nodosum_Group From: roxannewarlick@...Date: Tue, 3 Jul 2012 21:27:21 -0500Subject: Re: New to the group Oh I also went into menopause at only 43! All my hormone levels were so low they did not register! Glanced at the website! Awesome! Thank youSent from my iPhone I have Hashimotos. Your daughter's hair could be falling out because of the Hashimotos. Sounds familiar sleeping 18 hours a day for me before being treated properly. I had the hair loss, moon face, just never feeling normal. Terrible periods. And all my endocrinologists said I was normal. I would also go from 165lbs to 120lbs. At my worst my lumps would just explode. It was awful. It started getting really bad in the last 3 years. Vertigo, racing heart etc. I think I went to five heart doctors. Nothing wrong with my heart. Please go to http://www.stopthethyroidmadness.com/andhttp://thyroidbook.com/I have both of these books.Stop the thyroid madness is by far the BEST patient advocacy book on thyroid disorders. If you order it make sure you get the 2nd edition. My new doctor LOVES it. He tells all of his thyroid patience to get a copy and memorize it. Especially the labs sections.Being on Synthroid and Levythyroxin almost killed me. Las summer my old doctor switched me to Tyrosint saying it was more pure.... it sent me to the hospital 5 times. Numerous thyroid storms back-to-back and they had to flush me out with saline drips. The ER doctor told me his sister died of a thyroid storm and that I needed a new doctor. I finally yelled at my doctor and said, what could possibly be doing this? My whole body was shaking from tremors. My heart was racing. Then it would stop and I could sleep all day. When I went into mania I wouldn't be able to sleep for 4 days. She said the only thing could be Hashimotos. We tested it right then, they had a lab on the premises and it came back positive. I had been going to her for YEARS! And it never dawned on her to run that test, even though she knew my struggle with my thyroid. Why? She said I tested normal.So I did tons of research. I found a great doctor who didn't treat with Synthroid or Levythryroxine in La Jolla, CA whose expertise is Hashimotos, Graves, and almost all autoimmune issues.When he looked at my labs he just calmly told me that I would be fine in 6 months. It would take going gluten free (hashimotos patients must be gluten free), he put me on Nature Throid (natural desecated thyroid that contains a T3 Which is not in Synthiod or other Synthetic thyroids meds pushed by endocrinologists. The T3 I was starved for. I felt better in one week. I could never even imagine feeling this good. Ever. He also put me on selenium. Hashimotos patients should take it daily. Also anyone with heart issues and cancer.He ran a blood panel on my thryoid, as well as well. You will need ALL Thyroids checked: TSH 3/ TSH4 Free TSH and antibody test. ALOT of Hashimotos patients supposedly were testing NORMAL.I was one of them.He also ran a panel for all my nutrition. Spectracell Labs does this. I was deficient in Iron and B12 and Selenium (most Hashimotos will have these deficiencies)For one year I have been symptom free. I am able to run and walk and exercise daily without awful recovery periods that I had before with my other doctor. Also lumps were resolved within 3 months of going to him. I hope this is helpful! Finding a great doctor who isn't dumbed down by med school dogma is so important when dealing with autoimmune issues. ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden What extra thyroid tests were ran? I knew I had thyroid problems for yrs but my tests were always normal til I had full on Graves disease that also caused heart issues. By then I was really sick and exhausted. My daughter is only 22. Hair falling out and tired all the time even after sleeping all night. But we have thyroid disease on both sides of the family. Graves and Hashimotos. I'm thinking thyroid antibodies should be checked?Sent from my iPhone Yes. My hair was falling out considerably. But I believe mine was due to estrogen dominance and lack of progesterone. Also I wasn't getting the right thyroid medication. My doctor told me my labs were normal for years and it wasn't. I am so thankful for my new doctor who uses different criteria. My hair has since grown back. Also my eyebrows fell out on the tails. They are now growing back.There are a variety of issues that can cause one to lose hair. I just had a friend who has 5 large patches of hair missing. Her hair just was dropping out. Turns out her IUD was the culprit. Even though the doctor said it was alopecia. Once the IUD was taken out her hair came back.Also check your nutrition levels. You could be lacking several important vitamins.If you are older it could be hormonal. Estrogen dominance is a leading factor in women losing hair.There are also a few autoimmune issues that can cause hair loss.We kind of have to be our own doctor till we can figure out what works.Wishing you healing.ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Has anyone had problems with their hair falling out? That's the issue we are dealing with now basic thyroid levels are normal. Sent from my iPhone Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 3, 2012

Oh ,Anything you can conceive of eating can be converted to gluten free. I make a great pizza with Che Che bread (gluten free).Pasta noodles there are so many gluten free options now. Great one from Italy.Breads. I'm lucky because I live near 2Good2Be bakery, which is all gluten free. I've adapted my sandwiches to lettuce wraps and I like that much better. So if you are ever dinning out you would ask for a sandwich wrapped in lettuce. You will get really good at reading labels.When dining out you want to always ask the server if there are any thickners or gluten products in what you are eating or if they have a gluten free menu.Basically online you can find TONS of information.If your husband needs convincing ask him to hep you do research on what gluten can do to the body. It's pretty scary.ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Thank you gals so much for posting this! I lose hair according to my cycle (even my eyelashes) and have VERY thin outer corners of my eyebrows as well! I so wish that I could find a good alternative doc here in WY or even in Northern Colorado. ML- does your doc have any friends (docs) out here? Also, I would LOVE to see a list of what you eat. Do you make most of your/your families' food? I'd love to try (minus the fact that I'm married to an italian who loves pasta! I've thought a LOT about going Gluten free, but it seems like such a big jump. So I would love to hear what you eat on a regular basis. Thanks so much for all your info. I will be looking into the website. I've been using a progesterone serum, which did seem to have a very good effect on my emotions (I didn't have any before!). I drink a TON of water, I don't drink soda, I make all our bread at home from freshly ground wheat, we drink raw milk, I try to eat a much grass fed red meat as we can afford and we buy as many organic fruits/veggies as we can afford. So the jump wouldn't be huge for me. Feel free to email me back directly if you want. Adamohttp://www.HowToLiveNatural.com Young Living Dist. #1296758To: erythema_nodosum_Group From: roxannewarlick@...Date: Tue, 3 Jul 2012 21:27:21 -0500Subject: Re: New to the group Oh I also went into menopause at only 43! All my hormone levels were so low they did not register! Glanced at the website! Awesome! Thank youSent from my iPhone I have Hashimotos. Your daughter's hair could be falling out because of the Hashimotos. Sounds familiar sleeping 18 hours a day for me before being treated properly. I had the hair loss, moon face, just never feeling normal. Terrible periods. And all my endocrinologists said I was normal. I would also go from 165lbs to 120lbs. At my worst my lumps would just explode. It was awful. It started getting really bad in the last 3 years. Vertigo, racing heart etc. I think I went to five heart doctors. Nothing wrong with my heart. Please go to http://www.stopthethyroidmadness.com/andhttp://thyroidbook.com/I have both of these books.Stop the thyroid madness is by far the BEST patient advocacy book on thyroid disorders. If you order it make sure you get the 2nd edition. My new doctor LOVES it. He tells all of his thyroid patience to get a copy and memorize it. Especially the labs sections.Being on Synthroid and Levythyroxin almost killed me. Las summer my old doctor switched me to Tyrosint saying it was more pure.... it sent me to the hospital 5 times. Numerous thyroid storms back-to-back and they had to flush me out with saline drips. The ER doctor told me his sister died of a thyroid storm and that I needed a new doctor. I finally yelled at my doctor and said, what could possibly be doing this? My whole body was shaking from tremors. My heart was racing. Then it would stop and I could sleep all day. When I went into mania I wouldn't be able to sleep for 4 days. She said the only thing could be Hashimotos. We tested it right then, they had a lab on the premises and it came back positive. I had been going to her for YEARS! And it never dawned on her to run that test, even though she knew my struggle with my thyroid. Why? She said I tested normal.So I did tons of research. I found a great doctor who didn't treat with Synthroid or Levythryroxine in La Jolla, CA whose expertise is Hashimotos, Graves, and almost all autoimmune issues.When he looked at my labs he just calmly told me that I would be fine in 6 months. It would take going gluten free (hashimotos patients must be gluten free), he put me on Nature Throid (natural desecated thyroid that contains a T3 Which is not in Synthiod or other Synthetic thyroids meds pushed by endocrinologists. The T3 I was starved for. I felt better in one week. I could never even imagine feeling this good. Ever. He also put me on selenium. Hashimotos patients should take it daily. Also anyone with heart issues and cancer.He ran a blood panel on my thryoid, as well as well. You will need ALL Thyroids checked: TSH 3/ TSH4 Free TSH and antibody test. ALOT of Hashimotos patients supposedly were testing NORMAL.I was one of them.He also ran a panel for all my nutrition. Spectracell Labs does this. I was deficient in Iron and B12 and Selenium (most Hashimotos will have these deficiencies)For one year I have been symptom free. I am able to run and walk and exercise daily without awful recovery periods that I had before with my other doctor. Also lumps were resolved within 3 months of going to him. I hope this is helpful! Finding a great doctor who isn't dumbed down by med school dogma is so important when dealing with autoimmune issues. ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden What extra thyroid tests were ran? I knew I had thyroid problems for yrs but my tests were always normal til I had full on Graves disease that also caused heart issues. By then I was really sick and exhausted. My daughter is only 22. Hair falling out and tired all the time even after sleeping all night. But we have thyroid disease on both sides of the family. Graves and Hashimotos. I'm thinking thyroid antibodies should be checked?Sent from my iPhone Yes. My hair was falling out considerably. But I believe mine was due to estrogen dominance and lack of progesterone. Also I wasn't getting the right thyroid medication. My doctor told me my labs were normal for years and it wasn't. I am so thankful for my new doctor who uses different criteria. My hair has since grown back. Also my eyebrows fell out on the tails. They are now growing back.There are a variety of issues that can cause one to lose hair. I just had a friend who has 5 large patches of hair missing. Her hair just was dropping out. Turns out her IUD was the culprit. Even though the doctor said it was alopecia. Once the IUD was taken out her hair came back.Also check your nutrition levels. You could be lacking several important vitamins.If you are older it could be hormonal. Estrogen dominance is a leading factor in women losing hair.There are also a few autoimmune issues that can cause hair loss.We kind of have to be our own doctor till we can figure out what works.Wishing you healing.ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Has anyone had problems with their hair falling out? That's the issue we are dealing with now basic thyroid levels are normal. Sent from my iPhone Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

July 4, 2012

Hello ,I have been Gluten Free for about 7 years now. I have travelled reasonably frequently and have just returned from New York and Paris where I had now real problem ordering Gluten Free meals. I have to say though that New York was harder than in Paris. Coming from Australia, I always thought that restaurants here were so far behind, but I do think it is a world-wide problem. A lot of people tend to think that being Gluten Free is a life-style choice, and not a decision based on your health. It can create prejudice!However, our latest trip changed my mind a little, and I found that restaurants in Europe especially were quite comfortable when you said that you couldn't eat Gluten. The wait-staff went back to the kitchen and spoke with the chef on each occasion and mostly came back with alternative dishes. I mostly stick with protein and vegetables. Quinoa is fantastic as an alternative to normal grains, and goes great in a tabouli. , if your husband likes pasta then he is sure to like Risotto as well. Rice is Gluten Free! there are a few reasonable Gluten Free Pastas here in Australia, but being a pasta lover myself, I prefer to avoid them and look for other options... which is why I have become quite an expert at making a variety of Risottos.Good Luck, don;t let your husband's preferences hinder your future well-being.Vicki from Brisbane (Australia) Thank you gals so much for posting this! I lose hair according to my cycle (even my eyelashes) and have VERY thin outer corners of my eyebrows as well! I so wish that I could find a good alternative doc here in WY or even in Northern Colorado. ML- does your doc have any friends (docs) out here? Also, I would LOVE to see a list of what you eat. Do you make most of your/your families' food? I'd love to try (minus the fact that I'm married to an italian who loves pasta! I've thought a LOT about going Gluten free, but it seems like such a big jump. So I would love to hear what you eat on a regular basis. Thanks so much for all your info. I will be looking into the website. I've been using a progesterone serum, which did seem to have a very good effect on my emotions (I didn't have any before!). I drink a TON of water, I don't drink soda, I make all our bread at home from freshly ground wheat, we drink raw milk, I try to eat a much grass fed red meat as we can afford and we buy as many organic fruits/veggies as we can afford. So the jump wouldn't be huge for me. Feel free to email me back directly if you want. Adamohttp://www.HowToLiveNatural.com Young Living Dist. #1296758To: erythema_nodosum_Group From: roxannewarlick@...Date: Tue, 3 Jul 2012 21:27:21 -0500Subject: Re: New to the group Oh I also went into menopause at only 43! All my hormone levels were so low they did not register! Glanced at the website! Awesome! Thank youSent from my iPhone I have Hashimotos. Your daughter's hair could be falling out because of the Hashimotos. Sounds familiar sleeping 18 hours a day for me before being treated properly. I had the hair loss, moon face, just never feeling normal. Terrible periods. And all my endocrinologists said I was normal. I would also go from 165lbs to 120lbs. At my worst my lumps would just explode. It was awful. It started getting really bad in the last 3 years. Vertigo, racing heart etc. I think I went to five heart doctors. Nothing wrong with my heart. Please go to http://www.stopthethyroidmadness.com/andhttp://thyroidbook.com/I have both of these books.Stop the thyroid madness is by far the BEST patient advocacy book on thyroid disorders. If you order it make sure you get the 2nd edition. My new doctor LOVES it. He tells all of his thyroid patience to get a copy and memorize it. Especially the labs sections.Being on Synthroid and Levythyroxin almost killed me. Las summer my old doctor switched me to Tyrosint saying it was more pure.... it sent me to the hospital 5 times. Numerous thyroid storms back-to-back and they had to flush me out with saline drips. The ER doctor told me his sister died of a thyroid storm and that I needed a new doctor. I finally yelled at my doctor and said, what could possibly be doing this? My whole body was shaking from tremors. My heart was racing. Then it would stop and I could sleep all day. When I went into mania I wouldn't be able to sleep for 4 days. She said the only thing could be Hashimotos. We tested it right then, they had a lab on the premises and it came back positive. I had been going to her for YEARS! And it never dawned on her to run that test, even though she knew my struggle with my thyroid. Why? She said I tested normal.So I did tons of research. I found a great doctor who didn't treat with Synthroid or Levythryroxine in La Jolla, CA whose expertise is Hashimotos, Graves, and almost all autoimmune issues.When he looked at my labs he just calmly told me that I would be fine in 6 months. It would take going gluten free (hashimotos patients must be gluten free), he put me on Nature Throid (natural desecated thyroid that contains a T3 Which is not in Synthiod or other Synthetic thyroids meds pushed by endocrinologists. The T3 I was starved for. I felt better in one week. I could never even imagine feeling this good. Ever. He also put me on selenium. Hashimotos patients should take it daily. Also anyone with heart issues and cancer.He ran a blood panel on my thryoid, as well as well. You will need ALL Thyroids checked: TSH 3/ TSH4 Free TSH and antibody test. ALOT of Hashimotos patients supposedly were testing NORMAL.I was one of them.He also ran a panel for all my nutrition. Spectracell Labs does this. I was deficient in Iron and B12 and Selenium (most Hashimotos will have these deficiencies)For one year I have been symptom free. I am able to run and walk and exercise daily without awful recovery periods that I had before with my other doctor. Also lumps were resolved within 3 months of going to him. I hope this is helpful! Finding a great doctor who isn't dumbed down by med school dogma is so important when dealing with autoimmune issues. ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden What extra thyroid tests were ran? I knew I had thyroid problems for yrs but my tests were always normal til I had full on Graves disease that also caused heart issues. By then I was really sick and exhausted. My daughter is only 22. Hair falling out and tired all the time even after sleeping all night. But we have thyroid disease on both sides of the family. Graves and Hashimotos. I'm thinking thyroid antibodies should be checked?Sent from my iPhone Yes. My hair was falling out considerably. But I believe mine was due to estrogen dominance and lack of progesterone. Also I wasn't getting the right thyroid medication. My doctor told me my labs were normal for years and it wasn't. I am so thankful for my new doctor who uses different criteria. My hair has since grown back. Also my eyebrows fell out on the tails. They are now growing back.There are a variety of issues that can cause one to lose hair. I just had a friend who has 5 large patches of hair missing. Her hair just was dropping out. Turns out her IUD was the culprit. Even though the doctor said it was alopecia. Once the IUD was taken out her hair came back.Also check your nutrition levels. You could be lacking several important vitamins.If you are older it could be hormonal. Estrogen dominance is a leading factor in women losing hair.There are also a few autoimmune issues that can cause hair loss.We kind of have to be our own doctor till we can figure out what works.Wishing you healing.ml ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Has anyone had problems with their hair falling out? That's the issue we are dealing with now basic thyroid levels are normal. Sent from my iPhone Rhumetologist did nothing for me.I've had it since 1975. I've been to hundreds of doctors. The only ones that helped me were acupuncturists, and more holistic doctors.I too received mine after BC pills. However, my doctor thinks that there is still a root cause we haven discovered yet.Have you got all your labs for your hormones, and thyroids? Your hormones, thyroid, adrenals, gastrointestinal are great contributors to EN outbreaks. We don't know why, yet.Eat as clean as possible. NO GLUTEN. That means wheat, rye, oats and barley. See what happens. Stay away from sugar drinks like soda. Soda is terrible for bones and joints.Try to drink a lot of pure water. We should be drinking half our body weight in ounces daily. And fresh juices are great too.Braggs Apple Cider Vinegar with the mother in it is a great potassium source. I usually drink two capfuls in 8 ounces of water every day. If I had an outbreak I would put a paper towel soaked in apple cider vinegar and drape it over the outbreak. It was amazing how well it worked.My issues were hormone, thyroid (auto immune Hashimotos) and gastrointestinal. Complicated by BC and Strep. Getting a great doctor was key, who thought outside the box. He got my thyroid and hormones in check and insisted I go GLUTEN FREE. In three months all lumps were gone. One year. No lumps. Numerous people in our group have gone gluten free and found great results.So do your body a favor and go gluten free, it's cheaper than going to a Rhumetologist. And in the meantime do your research on auto immune and gluten etc. I do think you should get all your labs done for thyroid, hormones etc. Just to make sure you don't have another complication that is manifesting EN.Wishing you healing. ML GemmillThe miracle of gratitude is that it shifts your perception to such an extent that it changes the world you see.Dr. Holden Hi guys. I'm 26 and was diagnosed with EN in February of this year (though I had it when I was about 15, one node that went away with Potassium Iodide treatment. It was deemed idiopathic and we weren't concerned) I started having wandering joint pain in July 2011, and thought I'd inherited Arthritis (it runs in my family) or possibly Lupus (also runs in the family) I have terrible insurance and since ibuprofen worked well, I was taking 600 mg twice a day, I didn't bother going to the dr. In February of 2012 I got a hot red lump on my right ankle and my toe and ankle had a lot of pain. I thought it was perhaps Gout, and went to see the DR. She did a blood panel which came back normal, so she diagnosed EN. I told her I'd had it before and that the Potassium worked well for me. (She had to look up the dosage in a textbook and had the student doctors come see it, because it was so rare!) The potassium cleared it up in two weeks, but one week after stopping the drops, it came back. Finally in June I went to see her again and she referred me to a rhumetologist. From my research I really believe it was my Oral Contraceptives causing this breakout (I was on them when I was 15 as well) and decided to go off the OCs. It seemed to start helping.... until last month when I got pregnant. My husband and I were going to try later this fall (hopefully after EN was under control) but it happened a bit earlier than that. Oops. Now I'm feeling like I'd rather not go to the rhumetologist, for worry anything he gives me has potential to harm the baby. I'd prefer a more natural rout to treat this. I don't have a lot of hope, as I'm in full flair with over 40 nodes on my feet, legs, arms and hands. I'm in constant pain and taking only 1000 mg of tylenol a day (less or none if I can) Should I go see the rhumetologist? Is it worth the $250+ per appt to have him just tell me there is nothing he can do? Is there something he CAN do? I just don't know what to do anymore.

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